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Amy,

Welcome to the list, there are a lot of experienced parents here to help you

out, so please don't think any question is too dumb or silly or whatever.

You certainly have a lot on your plate and we are here to help you as we

can. You will probably end up helping some of us too! :) I am not

familiar with your son's chromosonal disorder, but I would think that if

there are no known food problems (like PKU for example) then he should have

no problems with the gfcf diet. It is replacing the gluten with other

grains and the dairy with other foods. You may find some improvements in

your son's immune system & hopefully he can grow out of his need to the

constant antibiotics. Glad you joined up!

Janice

>Hello, Im wanted to introduce myself and my son. His name is Trace

>and

>he was born on May 26th, 1997 with a rare and terminal Chromosonal

>disorder called Trisomy 13 mosaic. Most children do not make it past

>birth but he is 3

<snip>

>Amy , mom to Trace T13m, autism

>

>

>

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Guest guest

Amy,

Welcome to the list, there are a lot of experienced parents here to help you

out, so please don't think any question is too dumb or silly or whatever.

You certainly have a lot on your plate and we are here to help you as we

can. You will probably end up helping some of us too! :) I am not

familiar with your son's chromosonal disorder, but I would think that if

there are no known food problems (like PKU for example) then he should have

no problems with the gfcf diet. It is replacing the gluten with other

grains and the dairy with other foods. You may find some improvements in

your son's immune system & hopefully he can grow out of his need to the

constant antibiotics. Glad you joined up!

Janice

>Hello, Im wanted to introduce myself and my son. His name is Trace

>and

>he was born on May 26th, 1997 with a rare and terminal Chromosonal

>disorder called Trisomy 13 mosaic. Most children do not make it past

>birth but he is 3

<snip>

>Amy , mom to Trace T13m, autism

>

>

>

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Amy, I live in Orlando and would be happy to help you when you get ready to

come. just hollar. :)

Holly

> Re: Introduction

>

>

>Thanks for the welcome Janice. I know it hasnt been easy for all of you.

>Im sure Ill be making plenty of mistakes. Ive only been in a health food

>store twice in my life.

>How do you all deal with going on vacation. Trace's Trisomy 13 and 18

>national conference is at Disney World in Aug. we raised money to go but

>now I dont know how to deal with his diet when we get there. We are in

>Ohio and are flying so I dont know if I can pack a bunch of food.

>Any advice will help

>Thanks all

>Amy mom to Trace T13m autism

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Guest guest

Acidophilus should promote health, not sickness. What will make a child

sick is having the digestive system " out of whack " because of antibiotics.

Antibiotics are known to kill the flora (good bacteria) in the intestine and

promote excess yeast growth (which is toxic).

Hope this helps!

Amy B.

>Amy wrote:

>

> Nice to meet you. Does that vitamin make the kids sick like the

> nystatin? Im concerned about that. Trace cant spare any weight.

> Thanks

> amy mom to Trace T13m and autism from Ohio

>

> Amy Blodgett wrote:

(Big Snip)

> > As far as the antibiotics go (in case this wasn't mentioned by someone

> > else), I would recommend L.acidophilus, which promotes healthy bacteria

in

> > the intestines as well as an anti-fungal treatment (such as Nystatin or

> > Diflucan).

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Guest guest

In a message dated 06/10/2000 5:14:30 PM US Eastern Standard Time,

aclark000@... writes:

<< Trace's Trisomy 13 and 18

> >national conference is at Disney World in Aug. >>

That sounds great! I lost my little girl, Grace, to Trisomy 13. You can

email me privately if you want!

KMPerl@...

Krista

(2 year old/ possible PDD)

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  • 3 weeks later...
Guest guest

Schaffer wrote:

>You may notice that when you take him off the gluten,

>that he starts craving more dairy. If you are on the

>Atkins diet then you are already a good step closer

>than the rest of us. But be diligent because you are

>looking for gluten, not carbs. Gluten is hidden in a

>lot of things.

Hi ,

Yes, gluten is hidden and goes by many different names... :P

Thanks again!

Kathy.

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  • 4 years later...
Guest guest

--- saeaden wrote:

>

> A while ago we were all asked to tell a little

> about ourselves.

> my nane is sarah, its 4 am and I can't sleep. so,

> heres a little

> about me and my problems.

***** snip *****

> went to family dr. and was talking to him .mentioned

> my thyroid .

> that i thought it had grew again and didn't he think

> it should be

> tested again?(had NOT) been tested this whole

> year!!He just took the

> TSH and it said I was hyper-at0.331 went for

> ultra-sound then had

> another fna on a 2. something NEW nodule.

***** snip *****

NOW! heres one i dont understand!

> focal photopenic

> defect involving right of thyroid gland. the findins

> are most likely

> on the basis of non-functioning adenoma in view of

> patients biopsy of

> 3-17-05. the word ADENOMA scares me!! any way the

> test says i]m hypo-

> Lordy=Lordy!! went monday and gave more blood .

> asked what he was

> testing and it was all T's . I asked about the

> FREE's and the anti

> bodies.SEE, I learned something on this site

> already!! hehegot home

> from drs. office. nurse called about 45 mins. later

> and had to go

> back to give more blood. he ran all the tests i

> asked for except the

> anti-bodies. should hear tomarrow or now today, will

> post them then.

> sorry this is so long. i got pretty windy up here at

> 4 am all by

> myself.thank you for having this site its helping a

> lot.

> Saeah Eaden

> sr68@...

{{{{{{{{{{}}}}}}}}}} Hang in there. The folks

here are wonderful to help. We get quiet sometimes

and we get busy sometimes, so if you ask something and

don't get a response, it's usually because we've

missed it so just ask it again. We won't fuss or bite

if you ask again.

Now, having a TSH of .0331 is not necessarily hyper,

but you do need to have your antibodies tested. With

your TSH bouncing around you may have Hashimoto's

Thyroiditis. I don't have Hashi's, but and

both do along with others, and they are very

knowledgable and willing to share their knowledge. I

can't convince my doc to test my antibodies either,

but I don't believe I have Hashi's anyway, I believe

I'm hypo from birth since I was severely premature.

Oh well, I just snuck on before getting in the shower

for work, so let me run. I didn't miss you by much

last night though. I signed off the computer around

4:00 am EDT. Feel free to IM me or ask me to add you

to my friends list, regardless of whether you see me

online or not. I'm usually running invisible to avoid

the trolls.

Kathy >^,,^<

KitzCat146@...

http://www.chaytongroup.com/modernbill/order/index.php?aid=ka081104

http://www.heartwarmers4u.com/members/?kitzcat

kitzcat2001 on Yahoo Messenger

kitzcat on MSN Messenger

In a cat's eyes, all things belong to cats. - English Proverb

__________________________________________________

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  • 2 years later...

Hello All,

I'm new to this forum. I've lost over 50 pounds during the last two

years, mostly through exercise and watching it. However,I've come to a

sort of standstill/crossroads. I'm slowly gaining the weight back.

Probably because I've been resorting back to my old habits compiled

with an inconsistent work schedule. (I work retail)I've tried the

dieting route (WW) but it seems like I'm hungry all the time and the

dieting mentality just makes me want to eat more. So, I'm trying the

IE way. I read a while ago that the only way weight will stay off is

if it is ONE'S OWN WAY of eating. It has to come from within, not

externally. Anyway, just curious of how many of you on this board

have lost and kept weight using this technique.

Thanks!

method

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  • 3 months later...
Guest guest

Welcome :)

You do matter as do we all! It matters to me that you are here and

working towards our common goal of returning eating to a SANE aspect

in our lives. I think you will find that you are not alone and this is

a safe place for you to start you IE journey. Looking forward to

reading more posts from you too :)

Katcha

>

> Hello everyone,

> I joined the group a few days ago and now that my taxes are finally

done, I

> have time to introduce myself. I will take good care of me because

I MATTER! :-)

>

> B.

>

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  • 2 weeks later...
Guest guest

Hi Meridith welcome to the group so glad to have you with us. Eva

Hi Meredith. Welcome! I look forward getting to know you better.

Marttha>> Hi everyone,> > This is Meredith in South Florida. I've just joined the group and> wanted to introduce myself. I'm looking forward to hearing more from> folks who are putting IE into practice. I'm 27 - and have struggled> with listening to my body's cues and being mindful of its signals. > Time to learn a new skill!> Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

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