Re: Good news and Bad news....

[Guest guest]

> OK - the good.

Sydney is now officially TALKING. <

that is SO cool!!!!!!!

> Bad news? <There always has to be some, you know...>

Madison is getting worse. I have to tweak her supplements. I ran out of

TMG and just decided to see what happens. The headbanging is coming back,

constant fussing, she seems miserable. Absolutely miserable. <

my first and most obvious thought...depression

> Some on this list would claim she is confrontational because she takes

after her mother, but I am definitely not in people's 1 ft comfort zone.....

or am I? <

nope, you definitely are not

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> OK - the good.

> Sydney is now officially TALKING.

> Well, okay, so she is not speaking real words, but she will imitate all

> syllables for you and enjoys it. She's going to talk, and probably soon.

YAAAAYYYYYYYYY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

:-D

> And yeah, I did sob already. In fact, I called everyone and everyone in

my

> family sobbed along with me after hearing her few syllable imitations.

Gotta love a family who 'gets it'.

>

> Bad news? <There always has to be some, you know...>

> Madison is getting worse. I have to tweak her supplements. I ran out of

> TMG and just decided to see what happens. The headbanging is coming back,

> constant fussing, she seems miserable. Absolutely miserable. And the

stark

> difference between her and Sydney is becoming painful. I have to reorder

> some TMG...

Send me your snail mail address again and I'll send you the tub of TMG I

have just sitting on my shelf!

> It's so sad to see. Also, I've got to teach this kid about respecting a

> comfort zone. Talk about a child who gets " IN YOUR FACE " to play with

you.

> I mean, she practically kisses everyone she interacts with, and while that

> is cute from a tiny 4 year old, that can't be too cute from a 10 year old,

> huh... Some on this list would claim she is confrontational because she

> takes after her mother, but I am definitely not in people's 1 ft comfort

> zone..... or am I?

She could very well take after her forthright mother, but like all autistic

kids she takes it to the extreme....you do, I have to admit, have a healthy

respect for personal space. :-)

Jacquie

[Guest guest]

> > Sydney is now officially TALKING.

> Well, okay, so she is not speaking real words, but she will imitate

> all syllables for you and enjoys it. She's going to talk, and

> probably soon.>>

Terrific! I am so glad for you (and her!)...so exciting. That will

make a huge difference in her frustration level...and could help

Madison as well, as Syd may be able to interpret for her?

> Bad news? <There always has to be some, you know...>

> Madison is getting worse. I have to tweak her supplements. I ran

out of

> TMG and just decided to see what happens. The headbanging is

coming back,

> constant fussing, she seems miserable. Absolutely miserable. And

the stark

> difference between her and Sydney is becoming painful.>

Madison has more sensory issues than Sydney, doesn't she? Honestly

Grace, I would talk to the OT about giving her more sensory

support...I say that because it seems to me that she is telling you

that she is overwhelmed...maybe some things that are more geared

toward sensory processing than integration per se...sort of a step

down from SI...that's where we work, and it is much more successful

for certain kids...

> It's so sad to see. Also, I've got to teach this kid about

respecting a comfort zone. Talk about a child who gets " IN YOUR

FACE " to play with you.

> I mean, she practically kisses everyone she interacts with>>

She may have difficulty telling where " her " space ends and another's

space begins...that is sensory, too...

Madison will get better, Grace, but it's going to be a different path

for her, I would say. I would be careful to be sure that her world

is as calm and predictable as possible, find some good, organizing

activities via the OT that are specific to her needs, and stay with

the supplementations...they make a difference for these kids. Help

her feel safe...that is honestly the most important thing, IMHO, in

moving these kids out of this.

There is a site www.atready.com that talks about kids with sensory

processing dysfunction...maybe worth a look?

Raena

[Guest guest]

Grace you must be so proud of her. I really can't wait for the day that

will start talking.

Lori

Re: Good news and Bad news....

> > Sydney is now officially TALKING.

> Well, okay, so she is not speaking real words, but she will imitate

> all syllables for you and enjoys it. She's going to talk, and

> probably soon.>>

Terrific! I am so glad for you (and her!)...so exciting. That will

make a huge difference in her frustration level...and could help

Madison as well, as Syd may be able to interpret for her?

> Bad news? <There always has to be some, you know...>

> Madison is getting worse. I have to tweak her supplements. I ran

out of

> TMG and just decided to see what happens. The headbanging is

coming back,

> constant fussing, she seems miserable. Absolutely miserable. And

the stark

> difference between her and Sydney is becoming painful.>

Madison has more sensory issues than Sydney, doesn't she? Honestly

Grace, I would talk to the OT about giving her more sensory

support...I say that because it seems to me that she is telling you

that she is overwhelmed...maybe some things that are more geared

toward sensory processing than integration per se...sort of a step

down from SI...that's where we work, and it is much more successful

for certain kids...

> It's so sad to see. Also, I've got to teach this kid about

respecting a comfort zone. Talk about a child who gets " IN YOUR

FACE " to play with you.

> I mean, she practically kisses everyone she interacts with>>

She may have difficulty telling where " her " space ends and another's

space begins...that is sensory, too...

Madison will get better, Grace, but it's going to be a different path

for her, I would say. I would be careful to be sure that her world

is as calm and predictable as possible, find some good, organizing

activities via the OT that are specific to her needs, and stay with

the supplementations...they make a difference for these kids. Help

her feel safe...that is honestly the most important thing, IMHO, in

moving these kids out of this.

There is a site www.atready.com that talks about kids with sensory

processing dysfunction...maybe worth a look?

Raena

[Guest guest]

Grace,

Yay for Sydney!!! I'm sorry it makes Madison's differences more painful for

you though. Even with my boys, there's such a stark difference........

Sue

[Guest guest]

Grace!

YEAH!!! Syd is TALKING!!! WOO HOO!!!

(was there ever any doubt??? naaaaaaaaah)

Now, Madison:

Madison WILL get there too...obviously its going to take more time. But you

KNOW that.

I hear ya on the " comfort zone " . Let me tell you how " uncute " it is at 7!

Did you order the TMG yet?

I can send you some overnight if you want.....(I'll even send it back in

your bottle) :-D

Let me know.

Penny

Good news and Bad news....

Which to tell first?

OK - the good.

Sydney is now officially TALKING.

Well, okay, so she is not speaking real words, but she will imitate all

syllables for you and enjoys it. She's going to talk, and probably soon.

And yeah, I did sob already. In fact, I called everyone and everyone in my

family sobbed along with me after hearing her few syllable imitations. I've

succeeded in getting her to say " appah " which is daddy, in Korean..... and

Shaun almost crashed the car in NY when he heard that.

Bad news? <There always has to be some, you know...>

Madison is getting worse. I have to tweak her supplements. I ran out of

TMG and just decided to see what happens. The headbanging is coming back,

constant fussing, she seems miserable. Absolutely miserable. And the stark

difference between her and Sydney is becoming painful. I have to reorder

some TMG... The SNTp5p seems to help her become so interactive, and she

still is - - but she is also miserable a whole lot more without the TMG.

It's so sad to see. Also, I've got to teach this kid about respecting a

comfort zone. Talk about a child who gets " IN YOUR FACE " to play with you.

I mean, she practically kisses everyone she interacts with, and while that

is cute from a tiny 4 year old, that can't be too cute from a 10 year old,

huh... Some on this list would claim she is confrontational because she

takes after her mother, but I am definitely not in people's 1 ft comfort

zone..... or am I?

Grace

Mom to Sydney and Madison (3-28-98)

and wife to Shaun (1-11-97)

Bay Area, Northern California

[Guest guest]

Man you guys keep talking about this TMG and I want to try it so bad but I

don't want to spend the money to find out that it does not work on him.

I also am afraid of it interfering with his meds that he takes for his

eplispy.

Does any one know if it interfers with other drugs?

Lori

Good news and Bad news....

>

>

> Which to tell first?

>

> OK - the good.

> Sydney is now officially TALKING.

> Well, okay, so she is not speaking real words, but she will imitate all

> syllables for you and enjoys it. She's going to talk, and probably soon.

> And yeah, I did sob already. In fact, I called everyone and everyone in

my

> family sobbed along with me after hearing her few syllable imitations.

I've

> succeeded in getting her to say " appah " which is daddy, in Korean..... and

> Shaun almost crashed the car in NY when he heard that.

>

> Bad news? <There always has to be some, you know...>

> Madison is getting worse. I have to tweak her supplements. I ran out of

> TMG and just decided to see what happens. The headbanging is coming back,

> constant fussing, she seems miserable. Absolutely miserable. And the

stark

> difference between her and Sydney is becoming painful. I have to reorder

> some TMG... The SNTp5p seems to help her become so interactive, and she

> still is - - but she is also miserable a whole lot more without the TMG.

> It's so sad to see. Also, I've got to teach this kid about respecting a

> comfort zone. Talk about a child who gets " IN YOUR FACE " to play with

you.

> I mean, she practically kisses everyone she interacts with, and while that

> is cute from a tiny 4 year old, that can't be too cute from a 10 year old,

> huh... Some on this list would claim she is confrontational because she

> takes after her mother, but I am definitely not in people's 1 ft comfort

> zone..... or am I?

>

>

> Grace

> Mom to Sydney and Madison (3-28-98)

> and wife to Shaun (1-11-97)

> Bay Area, Northern California

>

>

>

>

>

>

>

>

[Guest guest]

Wow!!!!!! That is great news about Sydney!! I am so

excited for you and I hope she keeps going with her

progress. As far as Madison, I have said it before

and will say it again, she is soooo much like Ebony.

I hope you get the TMG going again and that helps her.

Tamara

--- Grace Keh wrote:

> Which to tell first?

>

> OK - the good.

> Sydney is now officially TALKING.

> Well, okay, so she is not speaking real words, but

> she will imitate all

> syllables for you and enjoys it. She's going to

> talk, and probably soon.

> And yeah, I did sob already. In fact, I called

> everyone and everyone in my

> family sobbed along with me after hearing her few

> syllable imitations. I've

> succeeded in getting her to say " appah " which is

> daddy, in Korean..... and

> Shaun almost crashed the car in NY when he heard

> that.

>

> Bad news? <There always has to be some, you

> know...>

> Madison is getting worse. I have to tweak her

> supplements. I ran out of

> TMG and just decided to see what happens. The

> headbanging is coming back,

> constant fussing, she seems miserable. Absolutely

> miserable. And the stark

> difference between her and Sydney is becoming

> painful. I have to reorder

> some TMG... The SNTp5p seems to help her become so

> interactive, and she

> still is - - but she is also miserable a whole lot

> more without the TMG.

> It's so sad to see. Also, I've got to teach this

> kid about respecting a

> comfort zone. Talk about a child who gets " IN YOUR

> FACE " to play with you.

> I mean, she practically kisses everyone she

> interacts with, and while that

> is cute from a tiny 4 year old, that can't be too

> cute from a 10 year old,

> huh... Some on this list would claim she is

> confrontational because she

> takes after her mother, but I am definitely not in

> people's 1 ft comfort

> zone..... or am I?

>

>

> Grace

> Mom to Sydney and Madison (3-28-98)

> and wife to Shaun (1-11-97)

> Bay Area, Northern California

>

>

>

[Guest guest]

Glad, no, thrilled to hear about Sydney's talking. And don't give up on

Madison yet.

Salli