Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi everyone, Just found your group, I live in England so some of the drug names etc are different to what I am used to. I have had af for about ten years. About 18 months ago I started 100mgs of flecainide twice a day which has stopped my attacks totally until last week when they started again. Has anybody has this happen and does it mean that I am heading towards 24/7 AF Best wishes Marguerita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Marguerita, I sure hope the answer to that last question is NO, but who among us really knows, eh? I'm in exactly the same boat -- was extolling the virtues of Flecainide to this group not three months months ago (also 100mg 2X daily), but am already back in the every-10-day episodic cycle I was in when I started taking it. Sigh. I have had af for about ten years. About 18 months ago I started 100mgs of flecainide twice a day which has stopped my attacks totally until last week when they started again. Has anybody has this happen and does it mean that I am heading towards 24/7 AF Best wishes Marguerita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Thanks to everyone for their advice about flecainide. It is rather reassuring that I am not alone and have the support of people who understand my problems. Marguerita (Essex UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Anyone on Flecainide might try taking Magnesium. I have been taking both for about a year now and have found that the addition of Magnesium helps stop the odd small runs of afib and my 'normal' afib episodes are shorter. Still get visual side effects with Flecainide. In my case waving my hands in front of me in the evening produces a slow motion effect. Walking past white door frames in a dimly lit hall produces a similar effect where the frame appears to move slowly past me. I am currently taking 'Boots' multi mineral capsules 5 a day. My theory on extra Magnesium is, I need more of it than normal because I have afib. Not necessarily because I am not getting enough from my diet. I guess this could only be proved by clinical measurements. Basically what I am saying is that even if you have the 'text book' amount of Magnesium in your system, it may be that taking extra Magnesium helps if you have afib. (nice theory anyway). Best regards, Tim. 56, Kent UK, 100mg Flecainide *2, Magnesium, 1000mg Salmon Oil, 300mg Aspirin when required. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 I gathered from my readings the the possible proarrythmia effects from flec usually occur within the first 72 hours after being administered, hence the hospital stay. Wouldn't that negate it's use " on demand " ? > There is an increasing amount of evidence--both > research and anecdotal--in favor of an " on-demand " use > of Flecainide (and Propafenone) for conversion to NSR > after onset of AFIB > > Seems to me that such an approach to the use of Flec > would 1) maintain the drug's efficacy over more years, > since your body would not be constantly exposed to it > (which is the case with conventional BID use of Flec), > and 2) avoid the pro-ahrrythmias and AFIB > break-throughs that sometime occur with constant use > of Flec. Quote Link to comment Share on other sites More sharing options...
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