Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Thanks Elaine. Guess I'd better get my act together with the calcium, magnesium and Vitamin D. Also weight bearing exercises (can I carry my dog around?) (can my dog carry me around?) I'm not going to panic, I will do all the right things and take another test in a year, and if it's still dropping, then, I'll panic! The neck is better, testing is proceeding, probably in the next 1-2 weeks. At 06:22 PM 09/06/2001 -0400, you wrote: >, >About 27% of GD patients have hypercalcemia or excess serum calcium caused by >excess bone resorption. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Redhen, I am still laughing!!!! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Hi , Did I miss another post? What is going on with the neck? I hope all is okay for you soon. TTYL Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Redhen, Just curious--what kind of cheese? (sorry, inveterate foodie here) Terry > From: redhengirl@... > Reply-To: graves_support > Date: Thu, 06 Sep 2001 13:51:59 -0000 > To: graves_support > Subject: Re: Bone density tests? > > Naw, I better go pasteurize milk and make some > cheese and stay out of trouble! > > The Milk Maid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Redhen and , Could you show me the data that leads us to take hormone replacement therapy to prevent osteoporosis? My doc said the same thing about it preventing it but I kept reading about increased cancer risk with HRT and so went off of it while I thought it over...I'm still thinking but i haven't found anyting that convinces me to take them. > >I'm going to reply to myself. I do that sometimes. Just tell > >yourself, " She's a little eccentric. " > > > >Anyway, it occurred to me that there is controversy about the theory > >that it is the replacement hormone that causes osteoporosis, and I > >ought to let you know that. If you do an Internet search for > > " synthroid and osteoporosis " you will find a number of articles > >discussing this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 > > Hi Redhen, > > Is it just the synthetic TRH's? Where does Armour fit in here? > > I believe that the T3 in Armour helps with bones. Sooner or later, > someone knowledgeable will be stepping in on this discussion, I hope. Hi, Im not knowledgeable but I read that the thyroid also makes calcitonin which regulates mineral in the bone...this is pretty vague I know, but it said something like your minerals can come in and out of solution. The minerals might be washed out by one chemical condition, but if it changes, the minerals will be increased in the bone again...something like that. Someone posted not long ago that the calcitonin in armour won't survive the digestive tract...Try going to dogpile and putting in calcitonin. Maybe you'll find something interesting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 OH, I see Elaine has posted to this question so much better than I could. Good. K > > > Hi Redhen, > > > Is it just the synthetic TRH's? Where does Armour fit in here? > > > > I believe that the T3 in Armour helps with bones. Sooner or later, > > someone knowledgeable will be stepping in on this discussion, I > hope. > > Hi, > Im not knowledgeable but I read that the thyroid also makes > calcitonin which regulates mineral in the bone...this is pretty vague > I know, but it said something like your minerals can come in and out > of solution. The minerals might be washed out by one chemical > condition, but if it changes, the minerals will be increased in the > bone again...something like that. Someone posted not long ago that > the calcitonin in armour won't survive the digestive tract...Try > going to dogpile and putting in calcitonin. Maybe you'll find > something interesting. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Hi Suzi, Good to hear from you. I think you should ask for a bone density. During active growth, like in kids, there aren't usually problems, but still a baseline test is always a good idea. One of my techs is 24 and has osteoporosis. I'm not sure why she has it, but reports that it only occurs in older people can be misleading. Here in the states we have what's called a Pixie test. It involves standing barefoot on some device like a scale that's hooked up to a computer. It measures bone density but doesn't quantitate percentages like the scan does. It's very accurate in determining normal bone density from abnormal amounts. If it's positive, then one can get a regular dexascan. this test differentiates bone loss in the cervical spine from bone loss in the hips and gives an estimate of one's bone loss compared to others in the same age range. This costs a lot more and insurance companies have strict guidelines as to how often one can have the test. If the Pixie test is available in your area, your doctor may be more inclined to order it. Best to you, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Hi all, I have been reading all the posts for almost a year now. I have not posted here. My 17 yr old son was diagnosed with Graves in Sept 2000 and has TED also. He's had TED for almost 3 yrs. My question is: What does a bone density test tell? He's never had one and our endo is not open to suggestions from anyone, so to ask him to have one done on my son will be like pulling wisdom teeth. Am still looking for Doctor Right so we can leave Doctor KnowItAll-It'sMyWayOrNoWay. BTW, Elaine & U have been inspirations to me, when I first started researching, they responded immediately and I still have emails from last yr from her. Thanks Elaine and U Suzie Re: Bone density tests? > If your insurance covers it, I'd go ahead, because it's good to have a > baseline while you are still young. That way, you have something to > compare with when you get into perimenopause. I just had my first scan at > age 43, and I am at the low end of normal. I wish I knew what I was like > in my thirties. > > > > At 01:21 PM 09/05/2001 -0500, you wrote: > >How about this for a new topic? What is everyone's experience with bone > density scans? > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Hi Suzi, Have you used the doctor find on Shomons site to find a new endo, they are recommended by patients. The url is http://thyroid.about.com/library/weekly/bldoc1.htm Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Suzie - I think we must have the same Dr! I just laughed when I read that part of your message. Unfortunately, I don't have an answer, trying to get the test done myself. I thought getting one for me was hard, I can't imagine what you have to go through to get one for a 17 year old boy! Good luck - I hope you find Dr. Right. Re: Bone density tests? > If your insurance covers it, I'd go ahead, because it's good to have a > baseline while you are still young. That way, you have something to > compare with when you get into perimenopause. I just had my first scan at > age 43, and I am at the low end of normal. I wish I knew what I was like > in my thirties. > > > > At 01:21 PM 09/05/2001 -0500, you wrote: > >How about this for a new topic? What is everyone's experience with bone > density scans? > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 Have you followed the news lately on teens who do sports, diet to keep their weight down, and end up with severe osteoporosis/stress fractures, etc.? It has been very disheartening! Terry > From: daisyelaine@... > Reply-To: graves_support > Date: Fri, 7 Sep 2001 17:16:08 EDT > To: graves_support > Subject: Re: Bone density tests? > > One of my techs is 24 and has > osteoporosis. I'm not sure why she has it, but reports that it only occurs in > older people can be misleading. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 Hi Jody, Yes I have but none listed in my area. I did find a doctor here who was willing to do block and replacement therapy on my son. but she's on maternity leave, so will wait or try to find another/ Re: Bone density tests? > Hi Suzi, > Have you used the doctor find on Shomons site to find a new endo, they > are recommended by patients. The url is > > http://thyroid.about.com/library/weekly/bldoc1.htm > > Jody > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 Elaine Thanks, but I am sure our endo won't even consider a bone density test, I was told to have my son's adrenals tested months ago and our endo is not very cooperative. I will keep all of this info in mind for the next endo we get. Hey our endo didn't think my son had Graves, he thought he had " raging hormones " because he's a teenager, soooo.... what does that tell you about him. It is so hard to find someone who is willing to work with us here. Re: Bone density tests? > Hi Suzi, > Good to hear from you. I think you should ask for a bone density. During > active growth, like in kids, there aren't usually problems, but still a > baseline test is always a good idea. One of my techs is 24 and has > osteoporosis. I'm not sure why she has it, but reports that it only occurs in > older people can be misleading. > > Here in the states we have what's called a Pixie test. It involves standing > barefoot on some device like a scale that's hooked up to a computer. It > measures bone density but doesn't quantitate percentages like the scan does. > It's very accurate in determining normal bone density from abnormal amounts. > If it's positive, then one can get a regular dexascan. this test > differentiates bone loss in the cervical spine from bone loss in the hips and > gives an estimate of one's bone loss compared to others in the same age > range. This costs a lot more and insurance companies have strict guidelines > as to how often one can have the test. > > If the Pixie test is available in your area, your doctor may be more inclined > to order it. Best to you, Elaine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 Thanks , I know one day we will find the right Doctor. But it is so hard here and I am so busy. My son is doing really well, reduced to 2 pills of PTU per day since last month, only out of range is his TSH, others are in what they call normal, but what is normal for a 17 yr old, 5' 10 " young man? If we do find a new doctor (oh I wish I lived in British Columbia, Dr Derry is the best.) <---- that's another story, he's been emailing me, and I live 4 provinces away, he's wonderful but.... anyway enuff babbling here. I will try to encourage our current endowhatever to give my son the test. Will let you all know what he says (or should I tell you now? LOL) Suzie Re: Bone density tests? > > > > If your insurance covers it, I'd go ahead, because it's good to have a > > baseline while you are still young. That way, you have something to > > compare with when you get into perimenopause. I just had my first scan at > > age 43, and I am at the low end of normal. I wish I knew what I was like > > in my thirties. > > > > > > > > At 01:21 PM 09/05/2001 -0500, you wrote: > > >How about this for a new topic? What is everyone's experience with bone > > density scans? > > > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 Thanks , I know one day we will find the right Doctor. But it is so hard here and I am so busy. My son is doing really well, reduced to 2 pills of PTU per day since last month, only out of range is his TSH, others are in what they call normal, but what is normal for a 17 yr old, 5' 10 " young man? If we do find a new doctor (oh I wish I lived in British Columbia, Dr Derry is the best.) <---- that's another story, he's been emailing me, and I live 4 provinces away, he's wonderful but.... anyway enuff babbling here. I will try to encourage our current endowhatever to give my son the test. Will let you all know what he says (or should I tell you now? LOL) Suzie Re: Bone density tests? > > > > If your insurance covers it, I'd go ahead, because it's good to have a > > baseline while you are still young. That way, you have something to > > compare with when you get into perimenopause. I just had my first scan at > > age 43, and I am at the low end of normal. I wish I knew what I was like > > in my thirties. > > > > > > > > At 01:21 PM 09/05/2001 -0500, you wrote: > > >How about this for a new topic? What is everyone's experience with bone > > density scans? > > > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Hi Suzi, I'm glad to hear of another doc who will do the BRT! Maybe more docs will come around to that kind of therapy. In earlier posts A talked about the success of the BRT in Japan (I think) and in some European countries. I have a friend whose daugther lives in Reno and is getting BRT also. I hope all will be successful for your son! Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Suzi, Does your son have a primary physcian who would be more open to running the other tests that you would like done? Maybe a family doc that you could ask to have them done just to ease your mind? Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
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