Re: More Mikey update/really long but full of good news.

[Guest guest]

>

>!!!!! Oh I am so excited!!! We just might get an ABA program after all!!!

Oh Yay, Yay, Yay!!!! I really do think that Mikey is one of those kids who

will just blossom with ABA.

>>So I apologized for the mess & said we'd all been sick, and she

>said.......Don't worry about it! When everybody's sick the house comes

>last

>and it really isn't that bad anyway!

Well, she is much more practical, thank goodness.

> " I can't imagine how hard it must be to take care of a child like ,

>a

>child who just doesn't understand what you're telling him. "

Oh, and she's sympathetic and wants to help. Yippee!

>>She smiles. " You have got two absolutely adoring children. They

>>obviously

>love you very much. You must be a great mom. "

You ARE a great mom Sara. I'm so glad she could see that!

>But he'll get there.

Yes, yes he will!

>of his sensory issues; that it is not based in his motor skills but in

>sensory integration.

One thing that helped Kep here was an oral vibrator. Even used on the

outside of the mouth, or on the cheek, it really helped. He loved it too!

This stuff all sounds great Sara. Glad that things are finally going your

way!

Amy H--in Michigan

Kepler 4 1/2 ASD and Bethany 6 NT

" although one has a responsiblity to stick things out to the limit of one's

endurance, one also has to have the courage to retreat and lick one's

wounds, so as to return to the fray refreshed. "

~Kenzaburo Oe

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[Guest guest]

Wow, that is good news! And your ST sounds wonderful.

Tuna

More Mikey update/really long but full of good news.

First the really EXCELLENT news - our case worker has identified Mikey as a

priority case for the I-O waiver!!! The IO waiver is not the same as THE

waiver, but Ohio legislation is changing THE waiver so it doesn't cover

autism anymore. Thus, Mikey's priority status - he will not get services

without the IO waiver. We have to fill some forms out and they will be

submitted to a committee to make the final decision, but he's going to push

hard for us. He said we may start to get funding as early as July!!! and he

doesn't think any later than December. We are supposed to set up ABA

providors in the meantime so everything is ready to go as soon as we get the

$. He said the county would pay for us to see a consultant while we wait.

!!!!! Oh I am so excited!!! We just might get an ABA program after all!!!

We got a speech therapist from the county to make it 2 hours a week. (We

provide an hour a week privately.) She comes here. She's been here 3 times

now; the 3rd was yesterday. The other 2 times I was Flying & it was clean

and smelled nice. Yesterday, well, we have all been sick and neither boy is

sleeping and although I am getting dressed, I am not wearing shoes or making

beds or shining the sink. I spent 15 minutes picking up the living room

before she came and that was all I had in me.

So I apologized for the mess & said we'd all been sick, and she

said.......Don't worry about it! When everybody's sick the house comes last

and it really isn't that bad anyway!

Compare this to the woman who told me is autistic *because* the

place is a mess and we don't have him on a schedule.

Later, Gabe headed for Mikey's potty chair. I said, " , no " in a firm

tone. He stopped. He looked at me. His little lip quivered. Then he went

and played with something else.

I sighed happily and said, " It is so amazing to have a child who responds

that way when I say no. He STOPS! Wow. "

And she said.......

" I can't imagine how hard it must be to take care of a child like , a

child who just doesn't understand what you're telling him. "

!!!!!

And later, completely out of nowhere --

She smiles. " You have got two absolutely adoring children. They obviously

love you very much. You must be a great mom. "

Compared to the woman who told me letting him nurse is a bad habit, and that

I am a suspicious person for not letting him ride on the bus for an hour

each way with no carseat and no aide, and that I should just trust that they

know how to deal with a kid like Mikey.

In between all this amazing stuff, she lured Mikey to her with a dish of

bacon bits which I provided, and made him make eye contact before she gave

him one. They did that for about 20 minutes. Mikey then had a fit and

ended up going over to the dining room chair, curling up and going to sleep

on it. *sigh* Overwhelmed. Can't deal with this stranger in my house.

Going to sleep. Buh-bye.

But he'll get there. Yesterday was a LOT better than last week, when she

just left after 15 minutes because he was so upset.

Rigid? What? I don't know what you're talking about.

We talked about apraxia & she said from what I described she does not think

he has apraxia. She thinks he just can't feel his mouth very well because

of his sensory issues; that it is not based in his motor skills but in

sensory integration. Made some suggestions like having him chew on small

pieces of chewy things. Gum would be great but I think he would just

swallow it. Small pieces of beef jerky, taffy, things like that which he

will have to manipulate around in his mouth. Also pop rocks, if he will

tolerate them, will provide lots of sensory input. Looking forward to

seeing his reaction to those! =)

Mikey is also on the waiting list for another hour of OT a week, paid for by

the county.

Woo! =)

-Sara.

[Guest guest]

You don't know how lucky you are. We're been waiting to get just a

case worker from December. Nothing. I was given the number of

another guy that is supposed to 'discuss services that may be

provided' to while we a waiting for a case worker. I have

called him several times over three weeks and never get a call back.

I hate Ohio, I wish I never came here. has NO services and

stays at home -- South-western city schools won't put him in special

ed until next fall--because by the time they finally got their act

together (March) they said there is not that much school left so

he'll start next school year. I'm so far in debt now I hate to even

think about it. I contacted Ohio Legal Rights and they say nothing

can be done. At least someone is getting what they deserve --good

for you

I hate Ohio.....

(in Hell)

4 ASD

2 NT

[Guest guest]

Sara,

Your post sounds simply fantastic!! Glad you found someone who seems so

nice!

Sue

[Guest guest]

That is really really super! I am so excited for you

guys. I hope it happens as soon as possible....July

would be great!!

Good luck!

Tamara

--- The Byks wrote:

> First the really EXCELLENT news - our case worker

> has identified Mikey as a

> priority case for the I-O waiver!!! The IO waiver

> is not the same as THE

> waiver, but Ohio legislation is changing THE waiver

> so it doesn't cover

> autism anymore. Thus, Mikey's priority status - he

> will not get services

> without the IO waiver. We have to fill some forms

> out and they will be

> submitted to a committee to make the final decision,

> but he's going to push

> hard for us. He said we may start to get funding as

> early as July!!! and he

> doesn't think any later than December. We are

> supposed to set up ABA

> providors in the meantime so everything is ready to

> go as soon as we get the

> $. He said the county would pay for us to see a

> consultant while we wait.

> !!!!! Oh I am so excited!!! We just might get an

> ABA program after all!!!

>

> We got a speech therapist from the county to make it

> 2 hours a week. (We

> provide an hour a week privately.) She comes here.

> She's been here 3 times

> now; the 3rd was yesterday. The other 2 times I was

> Flying & it was clean

> and smelled nice. Yesterday, well, we have all been

> sick and neither boy is

> sleeping and although I am getting dressed, I am not

> wearing shoes or making

> beds or shining the sink. I spent 15 minutes

> picking up the living room

> before she came and that was all I had in me.

>

> So I apologized for the mess & said we'd all been

> sick, and she

> said.......Don't worry about it! When everybody's

> sick the house comes last

> and it really isn't that bad anyway!

>

> Compare this to the woman who told me is

> autistic *because* the

> place is a mess and we don't have him on a schedule.

>

> Later, Gabe headed for Mikey's potty chair. I said,

> " , no " in a firm

> tone. He stopped. He looked at me. His little lip

> quivered. Then he went

> and played with something else.

>

> I sighed happily and said, " It is so amazing to have

> a child who responds

> that way when I say no. He STOPS! Wow. "

>

> And she said.......

>

> " I can't imagine how hard it must be to take care of

> a child like , a

> child who just doesn't understand what you're

> telling him. "

>

> !!!!!

>

> And later, completely out of nowhere --

>

> She smiles. " You have got two absolutely adoring

> children. They obviously

> love you very much. You must be a great mom. "

>

> Compared to the woman who told me letting him nurse

> is a bad habit, and that

> I am a suspicious person for not letting him ride on

> the bus for an hour

> each way with no carseat and no aide, and that I

> should just trust that they

> know how to deal with a kid like Mikey.

>

> In between all this amazing stuff, she lured Mikey

> to her with a dish of

> bacon bits which I provided, and made him make eye

> contact before she gave

> him one. They did that for about 20 minutes. Mikey

> then had a fit and

> ended up going over to the dining room chair,

> curling up and going to sleep

> on it. *sigh* Overwhelmed. Can't deal with this

> stranger in my house.

> Going to sleep. Buh-bye.

>

> But he'll get there. Yesterday was a LOT better

> than last week, when she

> just left after 15 minutes because he was so upset.

>

> Rigid? What? I don't know what you're talking

> about.

>

> We talked about apraxia & she said from what I

> described she does not think

> he has apraxia. She thinks he just can't feel his

> mouth very well because

> of his sensory issues; that it is not based in his

> motor skills but in

> sensory integration. Made some suggestions like

> having him chew on small

> pieces of chewy things. Gum would be great but I

> think he would just

> swallow it. Small pieces of beef jerky, taffy,

> things like that which he

> will have to manipulate around in his mouth. Also

> pop rocks, if he will

> tolerate them, will provide lots of sensory input.

> Looking forward to

> seeing his reaction to those! =)

>

> Mikey is also on the waiting list for another hour

> of OT a week, paid for by

> the county.

>

> Woo! =)

>

> -Sara.

>

>

=====

Tamara

mom to :

Ebony, 4 yrs -- asd, ADHD, bi-polar

, 1 year

wife to:

Terry, love of my life

__________________________________________________

[Guest guest]

WOW!! So much great news in the one post...this is fantastic!!

Never believe you are anything other than a great mother Sara )

(inAus)

More Mikey update/really long but full of good

news.

First the really EXCELLENT news - our case worker has identified Mikey as a

priority case for the I-O waiver!!!

[Guest guest]

Well hi ! I didn't know you were in Ohio...We're in SW schools too

but since he's so young he can still go to the district programs if I find

something better. No idea what SW offers.

And btw it has taken us over a year to get here.

Have you called Mark ? He's the guy to get you an autism case

worker. Let me go see if I have his #...464 2743 x 284 leave him a

message - he rarely answers but he's great about calling back. Just tell

him you have an autistic child & you need a case worker.

Lori Peacock is another good contact, she is very active in COFEAT. Her

work # is 793 7162 & home is 262 1624. She is very helpful and can point

you in the right direction.

And hey - give me a call sometime! 853-2617. Maybe we can get together!

-Sara.

[Guest guest]

Hi Sara! I live in Grove City. Just an hour ago I talked to a Matt

Giesler from MR/DD. Seem the reason I still haven't gotten a case

worker is because of all the changes that is going on. And there is

no estimate as to where I will get one, perhaps by the end of this

year, he said!! But....still have good news. I guess I should

complain more often....we got the I/O priority status TODAY as a

severe need case (or whatever). Also we are now setting up therapy

through Dr. Carol Manosh (CAVS program)--does the name ring any

bells?? Let me know if you have heard of her.

Yes I have talked with Lori, she is so very nice, I wonder how she

has the time to do all that she does....I 'lurk' in the AutismOhio

group as well and read everything there too!! I wish I had a car and

someone to take (my parents refuse to watch him--he is quite

a handful), otherwise I'd go to those 'mom's night out' they always

have. It sounds great.

Thank you so much for your number, mine is 877-3946. I am home all

the time, on the internet every chance I get

> Well hi ! I didn't know you were in Ohio...We're in SW

schools too

> but since he's so young he can still go to the district programs

if I find

> something better. No idea what SW offers.

>

> And btw it has taken us over a year to get here.

>

> Have you called Mark ? He's the guy to get you an autism

case

> worker. Let me go see if I have his #...464 2743 x 284 leave him a

> message - he rarely answers but he's great about calling back.

Just tell

> him you have an autistic child & you need a case worker.

>

> Lori Peacock is another good contact, she is very active in

COFEAT. Her

> work # is 793 7162 & home is 262 1624. She is very helpful and

can point

> you in the right direction.

>

> And hey - give me a call sometime! 853-2617. Maybe we can get

together!

>

>

> -Sara.

[Guest guest]

>>But....still have good news. I guess I should

complain more often....we got the I/O priority status TODAY as a

severe need case (or whatever). Also we are now setting up therapy

through Dr. Carol Manosh (CAVS program)--does the name ring any

bells?? Let me know if you have heard of her.<<

HURRAH!!! This must be a county-wide thing since the legislation changed.

's son Keenan (not on this list - lives up in Worthington) also got

priority status and they weren't even on the OHHCW waiting list.

Carol Manosh rings a bell but I really don't know anything about her. I'll

be calling Dr. tomorrow; she's covered by CAFS (community

alternate funding source, or something close to that!) too. My case worker

warned me we will need to jump on it to get providors lined up and now I see

why!

>>I wish I had a car and

someone to take (my parents refuse to watch him--he is quite

a handful), otherwise I'd go to those 'mom's night out' they always

have. It sounds great.<<

Well we will just HAVE to get together then. Matt is great with the kids

and I know once we all get to know each other he'd be willing to watch them

for us. =) 's husband can help too -- they can have a " Guy's

Night In " while we have our girl's night out!

How many kids do you have? We have a mini van that seats 7, so if you would

fit we could all go do something...There are 3 restaraunts close to us with

playplaces. Our is quite the handfull too & we are in this tiny

apartment with no yard, so if (WHEN) we want to get him out and let him run

and play that's where we go...

Well I will give you a call tomorrow, probably afternoon. Mikey has school

in the morning & we usually go visit afterwards as she lives close by.

But otherwise we've got nothing going on.

-Sara.

[Guest guest]

Great , So Happy!!! Thank You!!