Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 In a message dated 5/6/2002 10:39:08 PM Eastern Daylight Time, tloggie@... writes: > Tommi, you are not alone. does not run. I can get him to run from the > door to the end of the driveway but that is all. It is a challenage for him > to run any distance. will be 10 in August. > > Lori > Ty Lori...I know from the baseball game this is difficult for a lot of our kids. He usually does so good at meeting my challenges, but this and learning to ride a bike we just aren't making headway on. He can't get his legs to go just forward, y'know, for bike riding. This wouldn't be such a biggie except he WANTS to do it. He sits on the bike forever looking around at the other riders and trying, but he doesn't go anywhere. Halpfway pedal , then his feet must go right back to the starting point the other way. This must be infuriating for him, as the running thing is too I think because I think he wants in on the tag games and whatnot, but he's always IT when they let him play (of course mine do, but I mean the non-brother kids) and he can never catch anyone. Then they laugh at him and he laughs too, but I'm not laughing y'know? I just want to try to give him this edge closer towards his peers, but it's rough. We'll keep plugging away though..... Tommi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Tommi, you are not alone. does not run. I can get him to run from the door to the end of the driveway but that is all. It is a challenage for him to run any distance. will be 10 in August. Lori teaching running How do I do this? I guess I haven't been paying enough attention to how my other kids learned, but I seriously just remember them running...no teaching, they just did it. Well, is 6 and there is no running in his abilities....at all. DH and I tried tonight. See we are trying because although it has been a wonderful 3 years at his autism school, is moving to the public school in the fall. He goes there one 1/2 day a week now and after our IEP on Wednesday he will be going 2 1/2 days and the district is very gung-ho on him attending full time in the fall. Not a big deal for me anymore really, I think he's ready. BUT...I think they are seriously lacking in OT abilities so I figured we would do it here on our own. hahahahahaha....as I said dh and I, along with Dakota and Sebastian, tried very hard tonight as usual to get him to run, or jog or anything resembling either. We coached, tried " tag " , rewards, races, bribes (Dakota's idea to bribe him with his playstation) and then physically holding his arm and running with him which ended in a hysterical letting his legs just drop. He wasn't upset, he was actually hysterically laughing, finding us very amusing I am sure. I mentioned he is in baseball now, and it's a challenger league so it's OK that he doesn't run, but in the next soccer season we will be putting him in with Sebastian in the typical kiddies and I am not so sure just walking around the field unable to run is going to do much for him socially, y'know? He will make a good goalie for sure:) Are there particular muscles I need to get ready for running? I find it hard to believe that a kid who jumps ALL day and has legs of steels doesn't have what it takes to run. I am perplexed to say the least. Anyway I know I am rambling, but I have alone time and don't know what else to do with it...LOL! I'll exit now, but hope everyone is having a grand day/evening:) Tommi (Mom to Dakota TS 8, Autism 6 and Sebastian NT 5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 > I find it hard to believe that a kid who jumps ALL day and has legs of steels doesn't have what it takes to run. < tommi, this is a problem with low muscle tone, aka hypotonia, i would ask the school for him to have a PT eval. there could also be problems with motor planning, which is what happens when the body doesn't do what the mind tells it to. " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 > although it has been a wonderful 3 years at his autism school, is moving to the public school in the fall < does he go to the children's annex? " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 gives kisses freely to anyone who requests one. My husband and I have a game where we stand away from each other. One of us calls for one and she'll run and give that person a kiss. Then the other parent says but I want a kiss and makes her run over. I don't know if that would work though What about a game like Red Rover? You need some momentum to break threw. G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 In a message dated 5/7/2002 12:37:23 AM Eastern Daylight Time, muollo3@... writes: > does he go to the children's annex? > yep....but no more ( ) I guess all good things must come to an end. I'm sure this is a good move, at least I am seriously hoping. I think the district has only seen him one day a week for 2 hours and it's like honeymoon still, but so be it. The only thing that fears me is his behaviors when he's in a growth spurt (before we modify the meds) or when the honeymoon is over. The local school has no quiet room and are not allowed to restrain in any way. Horror story: in the beginning of the year they called the cops (the cops!) on a kindergartener who was fitting in the typical class--I don't know if he is NT or not, I just know they did that. I think I will not agree unless it is in writing that I will be called (since I only live up the hill from school) if he gets upset RIGHT away. I wanted them to try a full day or two first, but they don't have the 1:1 available right now....she better be available in the fall! Tommi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I hear you. does not ride a bike either. He also sits on the bikes and tries but gets no where. Then he screams telling the bike to move but it won't. He tells us to push but he won't pedal. I have duck taped his feet to the pedals and tried to get him to pedal but he just can't or don't seem to get how to get those legs to move that way. I and his worker, work at it on a daily bases. It has now been 3 years and still nothing. Lori Re: teaching running In a message dated 5/6/2002 10:39:08 PM Eastern Daylight Time, tloggie@... writes: > Tommi, you are not alone. does not run. I can get him to run from the > door to the end of the driveway but that is all. It is a challenage for him > to run any distance. will be 10 in August. > > Lori > Ty Lori...I know from the baseball game this is difficult for a lot of our kids. He usually does so good at meeting my challenges, but this and learning to ride a bike we just aren't making headway on. He can't get his legs to go just forward, y'know, for bike riding. This wouldn't be such a biggie except he WANTS to do it. He sits on the bike forever looking around at the other riders and trying, but he doesn't go anywhere. Halpfway pedal , then his feet must go right back to the starting point the other way. This must be infuriating for him, as the running thing is too I think because I think he wants in on the tag games and whatnot, but he's always IT when they let him play (of course mine do, but I mean the non-brother kids) and he can never catch anyone. Then they laugh at him and he laughs too, but I'm not laughing y'know? I just want to try to give him this edge closer towards his peers, but it's rough. We'll keep plugging away though..... Tommi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 > Well, is 6 and there is no running in his > abilities....at all. DH and I tried tonight.>. Probably motor planning...big deal for kids with sensory dysfunction...which is most all kids with autism... > Are there particular > muscles I need to get ready for running? >> Nope...it's not muscle power that is the problem, most likely... Running is a fairly complex motor activity...and one that is hard to teach, to be honest. is eight and he still falls apart and gallops when trying to run. If you have access to OT at his present school, I would ask him/her for ideas to work on coordination in general...obstacle courses where he has to plan out what he is going to do, doing sensory preparation before a running activity to help his body be ready (like the ALERT stuff...there is a couple of wonderful tapes...one from the " ALERT " program, and another called " Songames " for that)...motor games like " Hokey Pokey " ... Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Do you know anybody with a really good tempered dog and a fenced yard? Our kids and animals seem to motivate each other. We had the neighbors little pug dog over here a few days ago and he loved being chased. loved trying to catch the dog. I know having your own dog might be too much, but if you know somebody - if the dog is of the right temperment, than the owners probably are too and usually are happy to have somebody take the dog out and play more. There will be falls, so a helmet and knee pads might be in order. went down stairs for the first time by herself, because the cat was at the bottom of the steps and she wanted to see him. Her first two word sentence was " here kitty " (but cats don't like to be chased, so try for a dog?) Just a suggestion. That or try swimming, so he can work on his motor planning skills and figure out where his legs are. has been working in the water for 4 months now, once a week and I actually watched her run down the hall without running into anything - she still runs like a drunken sailor, but at least she didn't bounce off anything. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 , you are so true on what you are saying. The trouoble is that for 5 years know has been swimming every Friday for 2 and 1/2 hours a day. He also is made to try and run every day at school in the gym. But he still can not get it together to run. I keep hoping that he will catch on but I think this is going to be like talking. He will never get it. Lori Re: teaching running Do you know anybody with a really good tempered dog and a fenced yard? Our kids and animals seem to motivate each other. We had the neighbors little pug dog over here a few days ago and he loved being chased. loved trying to catch the dog. I know having your own dog might be too much, but if you know somebody - if the dog is of the right temperment, than the owners probably are too and usually are happy to have somebody take the dog out and play more. There will be falls, so a helmet and knee pads might be in order. went down stairs for the first time by herself, because the cat was at the bottom of the steps and she wanted to see him. Her first two word sentence was " here kitty " (but cats don't like to be chased, so try for a dog?) Just a suggestion. That or try swimming, so he can work on his motor planning skills and figure out where his legs are. has been working in the water for 4 months now, once a week and I actually watched her run down the hall without running into anything - she still runs like a drunken sailor, but at least she didn't bounce off anything. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Tommi, does get PT at school..you could ask his physical therapist to work on this with him. I don't have this problem with ..he can run..he runs so fast I can just barely catch up with him. We've been working with him on riding his bike..he is finally getting the hang of pedaling. If he doesn't get PT..ask the school about getting it for him! Mimi --- madness4midnight@... wrote: > How do I do this? I guess I haven't been paying > enough attention to how my > other kids learned, but I seriously just remember > them running...no teaching, > they just did it. Well, is 6 and there is no > running in his > abilities....at all. DH and I tried tonight. See we > are trying because > although it has been a wonderful 3 years at his > autism school, is > moving to the public school in the fall. He goes > there one 1/2 day a week now > and after our IEP on Wednesday he will be going 2 > 1/2 days and the district > is very gung-ho on him attending full time in the > fall. Not a big deal for me > anymore really, I think he's ready. BUT...I think > they are seriously lacking > in OT abilities so I figured we would do it here on > our own. > hahahahahaha....as I said dh and I, along with > Dakota and Sebastian, tried > very hard tonight as usual to get him to run, or jog > or anything resembling > either. We coached, tried " tag " , rewards, races, > bribes (Dakota's idea to > bribe him with his playstation) and then physically > holding his arm and > running with him which ended in a hysterical > letting his legs just > drop. He wasn't upset, he was actually hysterically > laughing, finding us very > amusing I am sure. I mentioned he is in baseball > now, and it's a challenger > league so it's OK that he doesn't run, but in the > next soccer season we will > be putting him in with Sebastian in the typical > kiddies and I am not so sure > just walking around the field unable to run is > going to do much for him > socially, y'know? He will make a good goalie for > sure:) Are there particular > muscles I need to get ready for running? I find it > hard to believe that a kid > who jumps ALL day and has legs of steels doesn't > have what it takes to run. I > am perplexed to say the least. Anyway I know I am > rambling, but I have alone > time and don't know what else to do with it...LOL! > I'll exit now, but hope > everyone is having a grand day/evening:) > Tommi > (Mom to Dakota TS 8, Autism 6 and Sebastian NT > 5) > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 In a message dated 5/7/2002 5:52:24 PM Eastern Daylight Time, rgr4us@... writes: > Why is it that I assume that the schools have already evaluated all > these kids for such things? How can a kid with autism get through > more than a year of school without someone noticing that he doesn't > run? > The y noticed, and he has adaptive and whatnot, but I think over the past three years they have been focusing on the more severe behaviors and inabilites, which I am more than grateful, and probably since a lot of that has been addressed (except for fine motors which is what they are desperately trying to tackle now) it is becoming an issue to notice. I am just thinking that since I am going to lose these great people that I am going to have to do these things myself and was just wondering how I should go about it. I know it is the new school's responsibility too, but although I respect their teaching and am sure they will give him the 1:1 and ABA and all that great stuff in his special class, they are seriously lacking in OT/PT. They admit this too, so I am not sure if I can get them to add some stuff for home or just do it myself or what. Still thinking....Tomorrow is the meeting. Tommi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 In a message dated 5/7/2002 5:54:26 PM Eastern Daylight Time, khan39@... writes: > . Than to, just turned 3 and didn't even > walk until 15 months or go down the stairs on her butt until 21 > months, just sat at the top and cried until somebody came and got > her, so she has major gross motor issues. > > That was Jare too, no walking until 18 months and that was work! I think I am going to try swimming lessons this year, since there is no formal of that in IEP either or the place for me to work on it. Usually I just take him to the lake:) I am sure there must be a swimming class of some sort for kids with special needs somewhere in my area. I will check into it. Tommi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 I'm strapped for time at the moment, so I'm going to comment on this quickly. The school should do a PT evaluation on him...If he is not running, he should qualify for the service AND for adaptive PE, if you choose. Jacqui just learned how to run this year. Before her run was more like a full body shake moving forward...LOL Penny teaching running How do I do this? I guess I haven't been paying enough attention to how my other kids learned, but I seriously just remember them running...no teaching, they just did it. Well, is 6 and there is no running in his abilities....at all. DH and I tried tonight. See we are trying because although it has been a wonderful 3 years at his autism school, is moving to the public school in the fall. He goes there one 1/2 day a week now and after our IEP on Wednesday he will be going 2 1/2 days and the district is very gung-ho on him attending full time in the fall. Not a big deal for me anymore really, I think he's ready. BUT...I think they are seriously lacking in OT abilities so I figured we would do it here on our own. hahahahahaha....as I said dh and I, along with Dakota and Sebastian, tried very hard tonight as usual to get him to run, or jog or anything resembling either. We coached, tried " tag " , rewards, races, bribes (Dakota's idea to bribe him with his playstation) and then physically holding his arm and running with him which ended in a hysterical letting his legs just drop. He wasn't upset, he was actually hysterically laughing, finding us very amusing I am sure. I mentioned he is in baseball now, and it's a challenger league so it's OK that he doesn't run, but in the next soccer season we will be putting him in with Sebastian in the typical kiddies and I am not so sure just walking around the field unable to run is going to do much for him socially, y'know? He will make a good goalie for sure:) Are there particular muscles I need to get ready for running? I find it hard to believe that a kid who jumps ALL day and has legs of steels doesn't have what it takes to run. I am perplexed to say the least. Anyway I know I am rambling, but I have alone time and don't know what else to do with it...LOL! I'll exit now, but hope everyone is having a grand day/evening:) Tommi (Mom to Dakota TS 8, Autism 6 and Sebastian NT 5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 > > The school should do a PT evaluation on him...If he is not > running, he should qualify for the service AND for adaptive PE, if > you choose.>> Why is it that I assume that the schools have already evaluated all these kids for such things? How can a kid with autism get through more than a year of school without someone noticing that he doesn't run? Raena (happy homeschooler who thinks maybe she's not missing much...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Do you do a program in the water with him? With , we throw a ball or a bean bag and ask her to go and get it and than do major happy dances when she does. Or I stand on the other side of the pool with something she wants and make her walk over and get it. It will be awhile yet before she can swim, if ever, but we do see progress. If your son isn't doing a formal program in the water, than use his love of the water any way you can. I swear that had no clue that she could actually use her arms and legs to get where she wanted in the water when we started and you can really see the improvement in her gross motor skills. If you are doing a formal program with a PT in the water, than maybe it's the wrong PT? Sorry about the dog idea, don't want to irratate the dogs. Maybe a treadmill and gradually increase the speed? Of course with the TV and his favorite tape in front of it, so he can stim while he works? (Might want to think about some sort of harness from the ceiling - to keep him from falling.) doesn't have running in her IEP either, but I did make them put in that she will be able to walk down the hall without tripping or running into the wall. I have argued the last two IEP's that her gross motor skills are so poor that she needs more OT or PT help in this area, but unless I want to hassle with appeals, it won't happen, so we do it at home. Than to, just turned 3 and didn't even walk until 15 months or go down the stairs on her butt until 21 months, just sat at the top and cried until somebody came and got her, so she has major gross motor issues. The swimming thing > he does enjoy, but not actually swimming, just " fainting " and going > underwater. It's the funniest thing, he just falls back and jumps up > sputtering as if someone did it to him....over and over for hours! The school > does not have running in his IEP, I think we'll add that tomorrow, but since > it's a new OT and PT for the new school, I'm still not sure what they can do > for him. He is going from a gymnasium size OT/PT room right now with > everything you can think of to a closet with nothing more that balls really. > blah! > > > > > > > Good luck. > > > > > TY:) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 .....learning to ride a bike we just aren't making headway on. He can't get his legs to go just forward, y'know, for bike riding..... Jacqui just learned to ride her bike last summer (at 6) ...... but he's always IT when they let him play ..... Yep... I really hate that too. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 is there any site for hypotonia? has and we all know he has very low muscle tone. But this is the frist I heard about hypotonia. Lori Re: teaching running > I find it hard to believe that a kid who jumps ALL day and has legs of steels doesn't have what it takes to run. < tommi, this is a problem with low muscle tone, aka hypotonia, i would ask the school for him to have a PT eval. there could also be problems with motor planning, which is what happens when the body doesn't do what the mind tells it to. " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 > is there any site for hypotonia? has and we all know he has very low muscle tone. But this is the frist I heard about hypotonia. Lori < try this... http://www.tendercare4kids.com/therapytime/tt020124_hypotonia.html " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 > is there any site for hypotonia? > > has and we all know he has very low muscle tone. But this is the frist I heard about hypotonia.> Lori, Hypotonia is the same thing as low muscle tone...fancy medical word. Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 > probably since a lot of that > has been addressed (except for fine motors which is what they are > desperately trying to tackle now) it is becoming an issue to > notice. >> Tommi, Does he have an OT or PT now? Seems to me that tackling the fine motor would require making sure he has a good gross motor foundation...fine movements are built on a solid foundation of gross motor control...ask them for some activities to improve overall coordination and motor planning...and things should start to come together for him in all areas. I am just thinking > that since I am going to lose these great people that I am going to have to > do these things myself and was just wondering how I should go about it. > Pump them for info before you lose them...maybe ask for some guidance for the summer? :-) >> they are seriously lacking in OT/PT. They admit > this too, so I am not sure if I can get them to add some stuff for home or > just do it myself or what. Still thinking....Tomorrow is the meeting.>> Would they be willing to pay for some private OT? Maybe just a monthly consult to devise/oversee a home program? I would ask them...especially since they have admitted they cannot provide what he needs in this area (and are legally required to). I have some lists of good home activities to improve motor planning for school age kids somewhere...I can try to find it if you think it would be helpful...what is required to run, I would say, are adequate skills in motor imitation, timing, reciprocal movement, and coordinating one side of the body with the other... Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 How is his swimming, Lori? Penny >>>>> , you are so true on what you are saying. The trouoble is that for 5 years know has been swimming every Friday for 2 and 1/2 hours a day.<<<<<< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Penny he just floats with noodles. He does not kick his feet. It took the frist year just to get him in the water. They are still worling on him kicking. I have been lucky, the girl that started with 5 years ago is still the same one that works with him now. She just does not know what else to do. She has been having him push off the wall, he does not get very far. she has him step on different level boards but he makes no effort to push off the boards just walks off them. She had her PT instructor come and help and they are still trying to work with him. So lets just say he really does not get anywhere with it. Lori RE: Re: teaching running How is his swimming, Lori? Penny >>>>> , you are so true on what you are saying. The trouoble is that for 5 years know has been swimming every Friday for 2 and 1/2 hours a day.<<<<<< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 The way an Autistic child can attend school for almost an entire year, her mother very involved and just two weeks ago finding out about a " friendship group " . Re: teaching running > > The school should do a PT evaluation on him...If he is not > running, he should qualify for the service AND for adaptive PE, if > you choose.>> Why is it that I assume that the schools have already evaluated all these kids for such things? How can a kid with autism get through more than a year of school without someone noticing that he doesn't run? Raena (happy homeschooler who thinks maybe she's not missing much...) Quote Link to comment Share on other sites More sharing options...
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