Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Has anyone heard of one ear going deaf in PLS? My one ear is completely deaf - all of a sudden - it happened on New Year's Day and has not come back yet. I went to the Ear Specialist and he confirmed that it is deaf but can't tell me why. Raine Storm This is sent with Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 In a message dated 1/19/03 2:39:33 PM Mountain Standard Time, larstorm@... writes: > Has anyone heard of one ear going deaf in PLS? > > My one ear is completely deaf - all of a sudden - it happened on New > Year's Day and has not come back yet. > > I went to the Ear Specialist and he confirmed that it is deaf but can't > tell me why. > Raine, My right ear has gone " bad " since PLS. Shortly after my diagnosis (18 months after onset of first symptoms) I started on baclofen. The dosage of 30mg was to be increased " gradually " on the following time schedule: 10mg for 3-4 days taken in the morning, then add another 10mg for the next 3-4 days to be taken at noon, and finally adding another 10mg at night. Well, it turned out that I had a VERY rare reaction to the baclofen because my body's balancing center couldn't adjust to that kind of dosages that quickly. As a result, after 1 month on baclofen I started to get what I thought at the time was an ear infection. My ear went numb to the touch, it felt like it was building up internal pressure inside (liquid), I would get extremely dizzy if I bent over or tipped my head to one side or the other, and my hearing was much reduced. To make a long story short, I went to my doctor several times to get antibiotics for the " infection, " but nothing worked and it just got worse. She finally sent me to an ear specialist (far too late to save my hearing in that ear). He diagnosed me with Meniere's Disease which was a crock of you know what because I haven't had a recurrence of the dizziness since that time and my ear pressure slowly went away. However, tinnitus (ringing in the ear) set in and the hearing gradually has worsened since then until now I don't hear much out of that ear at all. My neurologist checks hearing in both ears every time I visit, so during my next visit he was surprised to find I had lost my hearing in that ear. When I described the symptoms I had and the treatment regime and diagnosis of the specialist, he looked up the side effects for baclofen and said I probably had a rare reaction to it. That seemed the most likely explanation to me and from now on I always up any drug dosage in 1/2 increments giving that dosage 10-14 days for my body to adjust before increasing it more. I know this isn't exactly what you described, but for me -- one day my ear was fine and the next day it suddenly had a lot of pressure built up inside causing hearing loss. Lyndal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Lyndal: Thanks for your reply. I can't take Baclofen at all.....am allergic to it. Still am deaf in one ear,,I am a mess! Raine This is sent with Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 thanks , what is a bone conduction aid? it is always such a surprise to hear positive news at an appointment, i hope you enjoyed it! i have to say that i was most surprised when the audioligist said Josh had tested at normal! i wish i'd had a camera for the tiger headband ears ... hoping that it'll be one of those life-long memories that just sticks in there :0) Jo ds Ben, ds Josh ----- Original Message ----- > > Kendra has conductive loss and has tested 'normal range " during one bone > conduction test. Quote Link to comment Share on other sites More sharing options...
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