Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi all, I recently met a friend of my daughter's who I think might have Graves'. I was wondering if I posted a letter from him with his symptoms if you could give him a sense of direction. He is in the hands of doctors now who have already diagnosed him with an attention deficit disorder. Also panic attacks, I believe. I am not too confident they won't just continue down this path even though the guy has the eye thing starting (scratchy, dry, sensitive to light, swelling over eyes) and a history of rage...I'll let him tell it. I really appreciate the time you spend considering his case and replying. Don't know if I posted this before but I got an appointment for my daughter at Dr Greenspan's! Not until Sept, but still, I am hopeful for healing eventually. I read things about Graves' and i wonder if my doctor knows about that? or that? or this? You too? My old doctor usually scored low, but i think Greenspan might actually know most of this stuff! I think I'm saved! (I wonder if he knows about the left side backache? I'm going to tell him about it. A contribution to medical science. Maybe he'll put it in a book one day.) F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi Susie, Pretibial myxedema (PTM) can occur in several forms, but one of the most common is brownish waxy placques that occur on the ankle and shins. The feet are often affected too. In my case, the skin has a mottled appearance and seems to have improved now that I'm on the proper dose of replacement hormone. My PTM developed shortly after having RAI. I have an article on suite 101 discusssing skin changes in GD that mentions this. You can go to www.suite101.com and look up Elaine or Graves' disease. the article is from Jan 26, 2001. Visit my Web Site at http://daisyelaine_co.tripod.com/gravesdisease/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi , I'm wondering whether the Dr. Greenspan you mention below is Dr. Greenspan at UCSF Medical (San Fran). If so, is he your Endo as well. I'd love to ear whatever comments, experiences, etc you have to share about him. Hope you don't mind my intruding. You can email me directly if you like at tarbi@.... I look forward to hearing from you. All my best, Zoey my friend Hi all, I recently met a friend of my daughter's who I think might have Graves'. I was wondering if I posted a letter from him with his symptoms if you could give him a sense of direction. He is in the hands of doctors now who have already diagnosed him with an attention deficit disorder. Also panic attacks, I believe. I am not too confident they won't just continue down this path even though the guy has the eye thing starting (scratchy, dry, sensitive to light, swelling over eyes) and a history of rage...I'll let him tell it. I really appreciate the time you spend considering his case and replying. Don't know if I posted this before but I got an appointment for my daughter at Dr Greenspan's! Not until Sept, but still, I am hopeful for healing eventually. I read things about Graves' and i wonder if my doctor knows about that? or that? or this? You too? My old doctor usually scored low, but i think Greenspan might actually know most of this stuff! I think I'm saved! (I wonder if he knows about the left side backache? I'm going to tell him about it. A contribution to medical science. Maybe he'll put it in a book one day.) F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi . I was reading your email. You said.. " I wonder if he knows about the left side backache? " Just wondered if that had anything to do with Graves Disease. I am trying to read all the archives starting from the beginning but I am only up to #50. I am also interested in Pretibial myxedema. I have this rash. If anyone can say some info on this I would be happy. I have this rash on my lower legs..my feet are have brown spots up to my ankles... I would appreciate any info. Meanwhile I plug along on the archives! Susie >From: kfroilan@... >Reply-To: graves_support >To: graves_support >Subject: my friend >Date: Wed, 27 Jun 2001 19:05:39 -0000 > >Hi all, > I recently met a friend of my daughter's who I think might have >Graves'. I was wondering if I posted a letter from him with his >symptoms if you could give him a sense of direction. He is in the >hands of doctors now who have already diagnosed him with an attention >deficit disorder. Also panic attacks, I believe. I am not too >confident they won't just continue down this path even though the guy >has the eye thing starting (scratchy, dry, sensitive to light, >swelling over eyes) and a history of rage...I'll let him tell it. I >really appreciate the time you spend considering his case and >replying. > > Don't know if I posted this before but I got an appointment for my >daughter at Dr Greenspan's! Not until Sept, but still, I am hopeful >for healing eventually. I read things about Graves' and i wonder if >my doctor knows about that? or that? or this? You too? My old doctor >usually scored low, but i think Greenspan might actually know most of >this stuff! I think I'm saved! (I wonder if he knows about the left >side backache? I'm going to tell him about it. A contribution to >medical science. Maybe he'll put it in a book one day.) > > F > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi , Post your letter from your friend. Probably the most important thing he needs to do is get the lab work run on his thyroid and the antibody testing. Sometimes I think drs. tend to think of thyroid disease (any of it) is a womans illness and don't think to look for it so much in men. That could be what is going on with him. Take care and ttyl, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi Susie, In the messages there is a place to do a search. Type in pretibial myxedema and it will come up with posts on this. I know there are some in there. I don't know much about this but I know others in the group have/had to deal with it. Hang in here! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2001 Report Share Posted June 28, 2001 Hi there ne, I am going to repost a letter from Pat about her pretibial myxedema and see if that helps you self diagnose. I think it must be a very good description. It is from my private mail, but I know I posted it too. Just not sure what number...this seemed easiest. The left side backache is something that many of us have found we have in common. Lately I can feel mine stretching across to the right occasionally and sometimes instead of being a burning pain it feels like someone has their hand on my back, pressing in with their palm and fingertips... But maybe that's just me. I'm not so up on the search engine here, but if you put in left backache you might get the posts. And by the way, I never could get through the posts! There are so many now I doubt anyone would! (But I am going to tell my new doctor that there are about 7000 posts here for him!) Good luck ne! > Hi . > I was reading your email. > You said.. " I wonder if he knows about the left > side backache? " > > Just wondered if that had anything to do with Graves Disease. I am trying to > read all the archives starting from the beginning but I am only up to #50. I > am also interested in Pretibial myxedema. I have this rash. If anyone can > say some info on this I would be happy. I have this rash on my lower > legs..my feet are have brown spots up to my ankles... > I would appreciate any info. > Meanwhile I plug along on the archives! > Susie > > > > >From: kfroilan@y... > >Reply-To: graves_support@y... > >To: graves_support@y... > >Subject: my friend > >Date: Wed, 27 Jun 2001 19:05:39 -0000 > > > >Hi all, > > I recently met a friend of my daughter's who I think might have > >Graves'. I was wondering if I posted a letter from him with his > >symptoms if you could give him a sense of direction. He is in the > >hands of doctors now who have already diagnosed him with an attention > >deficit disorder. Also panic attacks, I believe. I am not too > >confident they won't just continue down this path even though the guy > >has the eye thing starting (scratchy, dry, sensitive to light, > >swelling over eyes) and a history of rage...I'll let him tell it. I > >really appreciate the time you spend considering his case and > >replying. > > > > Don't know if I posted this before but I got an appointment for my > >daughter at Dr Greenspan's! Not until Sept, but still, I am hopeful > >for healing eventually. I read things about Graves' and i wonder if > >my doctor knows about that? or that? or this? You too? My old doctor > >usually scored low, but i think Greenspan might actually know most of > >this stuff! I think I'm saved! (I wonder if he knows about the left > >side backache? I'm going to tell him about it. A contribution to > >medical science. Maybe he'll put it in a book one day.) > > > > F > > > > ______________________________________________________________________ ___ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2001 Report Share Posted June 29, 2001 > Hi there ne, > I am going to repost a letter from Pat about her pretibial > myxedema and see if that helps you self diagnose. OOps, maybe it didn't get posted. Here it is~ Hi ... I have pretibial myxedema. This is very rare and is almost always accompanied by thyroid eye disease. It started out as what I thought was a spider bite on my left leg...around the ankle. More and more of these red, swellings began to appear ...on both legs and on top of my feet. From what I understand thyroid antibodies binding to the collagen in the skin. However, like the eye disease there is no definitive answer as to why these particular areas are affected. Within a year of onset, both my legs were inflamed. The red area encircles my leg...from the ankle to just below my knee. My treatment has consisted of 2x daily applications of a high cortisone creme. It helps to control the lumpiness but does nothing really for the discoloration. Another fun aspect of Graves disease and I hope that you do not have to go through this. Best wishes....Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2001 Report Share Posted August 4, 2001 Susie: I haven't read all the e-mail in the group yet so I don't know if someone already answered your question or not.I get the rash on my leg's when I'm hyper as a matter of fact I have it now.I think he reduced my Tapazol too fast this time anway's if you use " Phisoderm " it's a soap that I use and it's good to help with the itch and help's will help you leg's to heal.This soap is also great after a surgery for the stitches. Regards Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 I use phisoderm. I have done that for years. I buy the non-perfume one. My rash on my legs disappeared when I went hyper again with the levothyroxine. I think it had something to do with being hypo. So much information to sift through. The doctors made it sound like just get the RAI in most of my problems will be gone. Now I have 3 finger nails that are changing. Hopefully that will go back to normal once my levels go into normal for awhile. I have a hair stylist who took the RAI about 2 years ago went on levothyroxine and she says she is great!! Oh to be so lucky!! But it is still early for me. Susie R. > >Reply-To: graves_support >To: <graves_support > >Subject: Re: my friend >Date: Sun, 5 Aug 2001 01:49:09 -0400 > >Susie: I haven't read all the e-mail in the group yet so I don't know if >someone already answered your question or not.I get the rash on my leg's >when I'm hyper as a matter of fact I have it now.I think he reduced my >Tapazol too fast this time anway's if you use " Phisoderm " it's a soap that >I >use and it's good to help with the itch and help's will help you leg's to >heal.This soap is also great after a surgery for the stitches. >Regards >Kit > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 HI Susie, I have heard that initially one can become hyper after RAI. That is rough. It's been 7 months for you? I didn't realize it took them so long to get people balanced out after RAI. It seems people are being pushed into this treatment, especially when they don't know much about their alternatives. And doctors seem better prepared to perform and provide follow up for this procedure than the others. I think that's because it's easier for them. Surgery is always risky and ATDs require more study and understanding than they have time for. From what I've heard around here many doctors don't know how to prescribe ATDs correctly. It's hard to deal with getting informed when you are not really feeling that great, too. I know this group helped me get answers without having to spend all day searching the internet. Good luck getting stabilized. I hope you feel well very soon. > I use phisoderm. I have done that for years. I buy the non-perfume one. My > rash on my legs disappeared when I went hyper again with the levothyroxine. > I think it had something to do with being hypo. So much information to sift > through. The doctors made it sound like just get the RAI in most of my > problems will be gone. Now I have 3 finger nails that are changing. > Hopefully that will go back to normal once my levels go into normal for > awhile. I have a hair stylist who took the RAI about 2 years ago went on > levothyroxine and she says she is great!! Oh to be so lucky!! But it is > still early for me. > Susie R. > > > >From: " Mackenzie " <macdb@o...> > >Reply-To: graves_support@y... > >To: <graves_support@y...> > >Subject: Re: my friend > >Date: Sun, 5 Aug 2001 01:49:09 -0400 > > > >Susie: I haven't read all the e-mail in the group yet so I don't know if > >someone already answered your question or not.I get the rash on my leg's > >when I'm hyper as a matter of fact I have it now.I think he reduced my > >Tapazol too fast this time anway's if you use " Phisoderm " it's a soap that > >I > >use and it's good to help with the itch and help's will help you leg's to > >heal.This soap is also great after a surgery for the stitches. > >Regards > >Kit > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
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