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RE: Burning the candle at both ends

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Robyn, you're not butting in on an e-mail thread! This is a place where we throw ideas and experiences out for comment from others. You are probably right...there are lots of us who knew no other way but "burning the candle at both ends" until our bodies screamed "HELP"! That...plus type A personalities seem to be dominant in this group.

Hugs,

Jane

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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Robyn--You aren't butting in! This is a group!

I think you're right. Most of us on here are type A personalities.

I mean, I always exercised and either prayed or meditated , or both; but I also worked long hours and had the kids, and when I was single (between marriages) managed to squeeze in an active social life. Never listened when the body said stop and rest. Oh every so many days I might crash--Saturdays I used to sleep in if I wasn't working--but mostly I was like a kid fighting it because there was too much to do.

I think you're right--of course there has to be a genetic pre-disposition and a triggering incident in most cases, but the real reason we probably have all this is that our body is demanding its share of the attention. AND our spiritual nature is also.

Kathy

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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had to answer this... how many others are like this??? i was. full time 50 plus a week job, another night job at 911as a dispatcher and then a full load at college. no idea how i did it but my auto. taught me i had a family and children to take care of and needed to slow down for them as well as for myself.

anyone else get slapped down with a disease while going full speed?

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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Mine came on in bits and pieces, but yeah. I worked about 50 hours regularly--which included over 100 miles of driving a day--then was on-call alot. On call days meant you usually worked a minimum of 16, but sometimes you'd get home after 16 hours just start to settle into sleep and the beeper would go off requiring an 80 mile drive to see a patient who wasn't bad enough to send to the ER.

Then I made a point of driving to see Kayly and the kids one day a week--that was about 45 miles each way at the time. And of course there was the house stuff, shopping, cooking, etc. And Denny and I usually did something on the weekends if I wasn't working.

I had been rear-ended in 1994 and had a bad whiplash injury--that started the neck thing.

Then the thyroid thing in 1996.

I went from full-time to flex in the winter of 1998 after my eye surgery and the hours kept decreasing after that and all my time off was spent recouping from work. Sept of 2000 the body just stopped and it's spiraled down from there.

Kathy

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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Sounds very familiar.

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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Did I get slapped down while going full speed? I'm not sure how to answer. From what the docs say, I had this thing all my life, but wasn't diagnosed. So I was going full speed & ignoring any sign that I might be sick - mainly because I didn't know other people didn't feel like I did. It didn't matter how tired I got, or if I lost weight because I couldn't eat & had diarrhea;; the docs told me there was nothing wrong & I thought I must be normal. I try to be careful now, but on my good days I find myself pushing to do as much as I can while I can, to make up for the bad days. If I push too hard, my body steps in & forces me to rest. Sometimes, I just crash & can't wake up; other times, I have a major Crohn's flare & am in bed; last winter, I broke 2 ribs. It seems like whatever it takes to slow me down, my body finds it. I'm really trying to make it unnecessary for my body to do that.

-- Re: Burning the candle at both ends

Sounds very familiar.

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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kathy i had a car wreck.... rear ended in a dodge shadow by a 1/2 ton truck who never hit his brakes at 75 mph while i was stopped....... in 1994 and that started my back trouble but i have a feeling they only found what was there before. it did make it hurt then and it never had before.

any other car wrecks anyone?

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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,

All this sounds so familiar. Even now (you think I would know better) my body seemed to be stabilizing out on the arthritis part of the Crohn's so I thought (Ms Doctor, herself) that because I am putting on so much weight on the prednisone and because I am having major, major brain fog with it, that I'd try cutting back on the prednisone from 5mg to 4mg. Such a minor cut back I thought. But NO I've gone back into major joint pain and now it is worse in my neck and between my shoulders at the top of my spine. I've had some pain here before but never like this. I suppose it's just a spread of the arthritis. It is impossible to find a comfortable position to sleep in. I'm using 2 pillows to try to keep my head from bending over towards my shoulders when I sleep on my side. I can't sleep on my back ever. Sitting is better as far as the pain goes as long as my back is straight but it's hard to sleep like this. I guess my body isn't happy with me

again! When will I learn!

(((Hugs but gentle)))

Robyn wrote:

Did I get slapped down while going full speed? I'm not sure how to answer. From what the docs say, I had this thing all my life, but wasn't diagnosed. So I was going full speed & ignoring any sign that I might be sick - mainly because I didn't know other people didn't feel like I did. It didn't matter how tired I got, or if I lost weight because I couldn't eat & had diarrhea;; the docs told me there was nothing wrong & I thought I must be normal. I try to be careful now, but on my good days I find myself pushing to do as much as I can while I can, to make up for the bad days. If I push too hard, my body steps in & forces me to rest. Sometimes, I just crash & can't wake up; other times, I have a major Crohn's flare & am in bed; last winter, I broke 2 ribs. It seems like whatever it takes to slow me down, my body finds it. I'm really trying to make it unnecessary

for my body to do that.

-- Re: Burning the candle at both ends

Sounds very familiar.

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and

hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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Yes I totalled my car in a front on crash with a truck (actually it was my fault because I lost control of the car on the bottom of a hill in the rain and drove - or slid - onto the wrong side of the road into the truck's path). But that was after my Crohn's had started. Crohn's started in 1995 this was in 1997.

RobynChristy wrote:

kathy i had a car wreck.... rear ended in a dodge shadow by a 1/2 ton truck who never hit his brakes at 75 mph while i was stopped....... in 1994 and that started my back trouble but i have a feeling they only found what was there before. it did make it hurt then and it never had before.

any other car wrecks anyone?

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and

hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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Kathy,

Yep I agree heart, body and soul.

Robyne O'Hara wrote:

Robyn--You aren't butting in! This is a group!

I think you're right. Most of us on here are type A personalities.

I mean, I always exercised and either prayed or meditated , or both; but I also worked long hours and had the kids, and when I was single (between marriages) managed to squeeze in an active social life. Never listened when the body said stop and rest. Oh every so many days I might crash--Saturdays I used to sleep in if I wasn't working--but mostly I was like a kid fighting it because there was too much to do.

I think you're right--of course there has to be a genetic pre-disposition and a triggering incident in most cases, but the real reason we probably have all this is that our body is demanding its share of the attention. AND our spiritual nature is also.

Kathy

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and

hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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any other car wrecks anyone?

Yep, I've been in two. First one was before I started school, I hit the windshield and had over 100 stitches in my face. Secone one was in 1994 and we were t-boned by another car, it hit on my side. I was sitting facing , I was buckled in, and the angle really wrenched my back, neck and right shoulder. I've had back problems ever since.

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Yes, I was broadsided (passenger side and I was driving) by a car going about 60 MPH.

Also, on another occasion, I slipped on ice and my feet went out from under me and I flew up into the air perfectly horizontal according to onlookers and came down fast with all 5'9" of me (my height at that time) hitting the ice and concrete at the same time. I had whiplash from that...guess that was the start of the neck problems I have now.

Jane

Burning the candle at both ends

Good Morning Jane,

Sorry to butt in on this e-mail thread but I was interested in your comment that you used to have a reputation for "burning the candle at both ends": I wasn't physically active in sport etc but I certainly "burnt the candle at both ends" as far as my lifestyle was concerned prior to autoimmune. I used to work a full-time job as well as being a mother etc. But on top of that I worked in a voluntary capacity another 40 hours a week (or more sometimes). I believe that my autoimmune came to me to help me recognise that I had a "body" that I was totally ignoring. I used to believe that my body was only there to carry my head around. I was very much a person who "operated at head level only". I ignored the early warning signs from my body that it was exhausted and needed some attention. As I continued to ignore these signs they got stronger and more serious. Then I got the food poisoning that led to the Crohn's condition and hospitalization on numerous occasions. Now I have to be conscious of my body ALL the time. I need to think about whether it is hungry and if so what it needs or can tolerate, how close I am to a toilet because it gives me very little warning that I have to go NOW, whether it is tired or getting run down, whether I am treating it right in regards to my joints and the arthritis, whether it is too hot or cold, whether I've even remembered to add creams etc to it to stop it totally drying out. . . The list just goes on and on. I have no choice but to take enormous care of my body now. I will never be able to "burn the candle at both ends" again. I was a slow learner but I suspect autoimmune is there because we as a group are slow learners!

(((Hugs)))

Robyn

Yahoo! Personals- New people, new possibilities. FREE for a limited time! Please visit our website at:http://ACES_Autoimmune.tripod.com

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