Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Dear Ruthie, I can't answer your question at all but wanted to say thanks for posting that email - don't feel like a whinger the weight thing does keep coming up everywhere I am reading and there doesn't seem to be all that much of a blanket solution. I am guessing it is important to hit on the right combination of foods for YOU to loose the weight. I swing between thinking weight cannot be that important to me and then feeling panicky that it is never going to stop piling on and that it will begin to affect my life in serious ways. It already has in fact as my knees are hurting alot more these days and I am sure it is because of the heaviness. I am now on the 11th day of the Scarsdale diet and have not cheated, but my weight plateaued after about day six whereas it is supposed to keep coming off every day of the diet. I would not normally even contempplate doing such a " QUICK weight loss diet " but was getting scared as ten days ago I was fully thirty pounds heavier than I had ever been in my life and it didn't look like it was ever going to stop. At least it hasn't gone on anymore the last week. Hope you get some good answers to your question. DAWN ROSE > >Reply-To: graves_support >To: <graves_support > >Subject: Re: ? for dawn rose >Date: Thu, 19 Jul 2001 08:33:27 -0500 > > > > and had put most of it on betweeen Christmas and early April! Can't >wait >to > > get it off and get back into some old clothes, at the moment I have two > > pairs of baggy jeans from K-mart that I wear in rotation, and lots of ! > > >Do those of you on ATDs know if we can expect to be able to lose the weight >when we get off them? I have to eat like a rabbit with protein shakes and >celery just in order to not gain....I blow it now and again( I have always >had a killer sweet tooth) but I have put on 24 lbs with no sign of >stopping...is it the low(but in normal range) thyroid levels or is it the >ATD? This is making me more and more emotional as I will soon pass my >husband in the weight area. I cannot wear my clothes, I have costumes for >my >chorus that will have to be taken out. Sorry for dwelling on it but the >whole thing consumes my thoughts every day. >Ruthie > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 > Do those of you on ATDs know if we can expect to be able to lose the weight > when we get off them? I have to eat like a rabbit with protein shakes and > celery just in order to not gain....I blow it now and again( I have always > had a killer sweet tooth) but I have put on 24 lbs with no sign of > stopping...is it the low(but in normal range) thyroid levels or is it the > ATD? This is making me more and more emotional as I will soon pass my > husband in the weight area. I cannot wear my clothes, I have costumes for my > chorus that will have to be taken out. Sorry for dwelling on it but the > whole thing consumes my thoughts every day. > Ruthie > Ruthie Maybe what is 'low normal' by standards, is too low for you! This shouldn't be happening to you. Though I am still on ATD's I only started gaining weight one time, and I went to the Doc and she cut my meds right away! Then I lost the weight I had gained. My meds were only cut by 50 mg's (that's half a pill) She said, it can be a huge difference for you, regardless of what those same blood tests might mean to someone else. She also said that I am the one who knows when I am feeling bad. Ruthie,something is going on, and you know it, if your doctor just says your stable and that you should go away, I would tell that Doc that you are certain these results aren't going to work for you, that you wanted to feel better, not just a different kind of sick! To answer your question, it's the low normal range, I would suspect caused by too high a dosage of ATD's. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Ruthie, I second this . . .the minute I started gained weight and going hypo, I went into the endo. As soon as my TSH came down, the weight dropped off. My TSH was in the normal range (around 3) when I gained weight--but my pregraves TSH was 1.2 ish, so even that fluctuation wthin the normal range meant by body slowed down too much. The key here is really being at an ideal TSH (and other hormones) not simply in the norm. B Re: Re: ? for dawn rose > > > > > > > >> Do those of you on ATDs know if we can expect to be able to lose the weight > >> when we get off them? I have to eat like a rabbit with protein shakes and > >> celery just in order to not gain....I blow it now and again( I have always > >> had a killer sweet tooth) but I have put on 24 lbs with no sign of > >> stopping...is it the low(but in normal range) thyroid levels or is it the > >> ATD? This is making me more and more emotional as I will soon pass my > >> husband in the weight area. I cannot wear my clothes, I have costumes for my > >> chorus that will have to be taken out. Sorry for dwelling on it but the > >> whole thing consumes my thoughts every day. > >> Ruthie > >> > > > > Ruthie > > > > Maybe what is 'low normal' by standards, is too low for you! > > This shouldn't be happening to you. Though I > > am still on ATD's I only started gaining weight one time, and I went > > to the Doc and she cut my meds right away! Then I lost the weight I > > had gained. My meds were only cut by 50 mg's (that's half a pill) > > She said, it can be a huge difference for you, regardless of what > > those same blood tests might mean to someone else. She also said that > > I am the one who knows when I am feeling bad. Ruthie,something is > > going on, and you know it, if your doctor just says your stable and > > that you should go away, I would tell that Doc that you are certain > > these results aren't going to work for you, that you wanted to feel > > better, not just a different kind of sick! > > > > To answer your question, it's the low normal range, I would > > suspect caused by too high a dosage of ATD's. > > > > > > Val > > > > > > > > I need to chime back in here too, since one of the " clues " I have used to > determine that I was over medicated even though the doc thought me in > " normal range " on the tests was the rapid weight gain. For me, it went along > with needing a 2-hour nap every afternoon, and waking up in the morning like > I'd never slept, so groggy and cranky I hated to face the day, and had > little energy to do so. As soon as I started cutting my tapazole on my own, > I began to see a glimmer of hope--and now that I've cut it again, feel > pretty close to " normal " . I lost 2 lbs., but that is probably because I had > a 4-day migraine (along with another period, LOL). But, I haven't gained it > back--a first in the last 2 months. I am so eager to see the results of the > antibody tests, and know for sure where I am. I need the validation that my > instincts are right. I am feeling very glad, now that I've done it, that I > challenged my endo! > > Terry > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 > > Reply-To: graves_support > Date: Thu, 19 Jul 2001 09:27:46 -0700 > To: graves_support > Subject: Re: Re: ? for dawn rose > > > >> Do those of you on ATDs know if we can expect to be able to lose the weight >> when we get off them? I have to eat like a rabbit with protein shakes and >> celery just in order to not gain....I blow it now and again( I have always >> had a killer sweet tooth) but I have put on 24 lbs with no sign of >> stopping...is it the low(but in normal range) thyroid levels or is it the >> ATD? This is making me more and more emotional as I will soon pass my >> husband in the weight area. I cannot wear my clothes, I have costumes for my >> chorus that will have to be taken out. Sorry for dwelling on it but the >> whole thing consumes my thoughts every day. >> Ruthie >> > > Ruthie > > Maybe what is 'low normal' by standards, is too low for you! > This shouldn't be happening to you. Though I > am still on ATD's I only started gaining weight one time, and I went > to the Doc and she cut my meds right away! Then I lost the weight I > had gained. My meds were only cut by 50 mg's (that's half a pill) > She said, it can be a huge difference for you, regardless of what > those same blood tests might mean to someone else. She also said that > I am the one who knows when I am feeling bad. Ruthie,something is > going on, and you know it, if your doctor just says your stable and > that you should go away, I would tell that Doc that you are certain > these results aren't going to work for you, that you wanted to feel > better, not just a different kind of sick! > > To answer your question, it's the low normal range, I would > suspect caused by too high a dosage of ATD's. > > > Val > > > > I need to chime back in here too, since one of the " clues " I have used to determine that I was over medicated even though the doc thought me in " normal range " on the tests was the rapid weight gain. For me, it went along with needing a 2-hour nap every afternoon, and waking up in the morning like I'd never slept, so groggy and cranky I hated to face the day, and had little energy to do so. As soon as I started cutting my tapazole on my own, I began to see a glimmer of hope--and now that I've cut it again, feel pretty close to " normal " . I lost 2 lbs., but that is probably because I had a 4-day migraine (along with another period, LOL). But, I haven't gained it back--a first in the last 2 months. I am so eager to see the results of the antibody tests, and know for sure where I am. I need the validation that my instincts are right. I am feeling very glad, now that I've done it, that I challenged my endo! Terry > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Thank you so much Dawn Rose for your reply. The last time I mentioned the gain to my Endo she said only that a low fat diet and more exercise would help. I am at fault there...I cannot seem to muster the energy to do much more than walk a mile or so every few days. I need to get motivated and do more because I know it will help my disposition if nothing else. Re: ? for dawn rose > >Date: Thu, 19 Jul 2001 08:33:27 -0500 > > > > > > > and had put most of it on betweeen Christmas and early April! Can't > >wait > >to > > > get it off and get back into some old clothes, at the moment I have two > > > pairs of baggy jeans from K-mart that I wear in rotation, and lots of ! > > > > > >Do those of you on ATDs know if we can expect to be able to lose the weight > >when we get off them? I have to eat like a rabbit with protein shakes and > >celery just in order to not gain....I blow it now and again( I have always > >had a killer sweet tooth) but I have put on 24 lbs with no sign of > >stopping...is it the low(but in normal range) thyroid levels or is it the > >ATD? This is making me more and more emotional as I will soon pass my > >husband in the weight area. I cannot wear my clothes, I have costumes for > >my > >chorus that will have to be taken out. Sorry for dwelling on it but the > >whole thing consumes my thoughts every day. > >Ruthie > > > > > >------------------------------------- > >The Graves' list is intended for informational purposes only and is not > >intended to replace expert medical care. > >Please consult your doctor before changing or trying new treatments. > >---------------------------------------- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Thank you Val for your response to my question. I think the meds ARE probably too high but I have steadily been cutting down as required by my Endo and am down to 1 10mg pill a day......at 15 mg for 6 weeks my levels were still fairly low...would cutting back to 5 mg help? I seem to gain no matter what dosage. I am not due for more blood work for another 2 weeks, but maybe I'll go in this week and get the dosage cut again if levels are still low...they must be..I am often too cold, have very little energy. Re: Re: ? for dawn rose > > > > Do those of you on ATDs know if we can expect to be able to lose the weight > > when we get off them? I have to eat like a rabbit with protein shakes and > > celery just in order to not gain....I blow it now and again( I have always > > had a killer sweet tooth) but I have put on 24 lbs with no sign of > > stopping...is it the low(but in normal range) thyroid levels or is it the > > ATD? This is making me more and more emotional as I will soon pass my > > husband in the weight area. I cannot wear my clothes, I have costumes for my > > chorus that will have to be taken out. Sorry for dwelling on it but the > > whole thing consumes my thoughts every day. > > Ruthie > > > > Ruthie > > Maybe what is 'low normal' by standards, is too low for you! > This shouldn't be happening to you. Though I > am still on ATD's I only started gaining weight one time, and I went > to the Doc and she cut my meds right away! Then I lost the weight I > had gained. My meds were only cut by 50 mg's (that's half a pill) > She said, it can be a huge difference for you, regardless of what > those same blood tests might mean to someone else. She also said that > I am the one who knows when I am feeling bad. Ruthie,something is > going on, and you know it, if your doctor just says your stable and > that you should go away, I would tell that Doc that you are certain > these results aren't going to work for you, that you wanted to feel > better, not just a different kind of sick! > > To answer your question, it's the low normal range, I would > suspect caused by too high a dosage of ATD's. > > > Val > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Thank you Debbie.....now that you have been off ATDs, do you still go in for blood work? Sheesh...knowing that the weight gain is not all my fault does NOT make this any easier to handle. Re: Re: ? for dawn rose > Ruthie, > > I've been off ATDs since July 2000 and yes I continuely struggle with weight > loss. I've recently lost some but I've had to work extra hard. I am > walking a mile or more daily, some days I walk two plus, but it depends on > how I am feeling. I've had a lot of trouble with my thigh muscles hurting. > I also have to eat like a rabbit, you aren't alone. If I don't drink lots > of water I get swelling which of course gives you weight gain. I've learned > that lots of water is important and days I don't drink enough I can tell. I > have an article that requires 8-8 oz. glasses plus 8 oz. for every 25 lbs. > you are over weight. I know this was addressed for dawn rose, but wanted to > put in my two cents. > > Debbie > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Ruthie, I've been off ATDs since July 2000 and yes I continuely struggle with weight loss. I've recently lost some but I've had to work extra hard. I am walking a mile or more daily, some days I walk two plus, but it depends on how I am feeling. I've had a lot of trouble with my thigh muscles hurting. I also have to eat like a rabbit, you aren't alone. If I don't drink lots of water I get swelling which of course gives you weight gain. I've learned that lots of water is important and days I don't drink enough I can tell. I have an article that requires 8-8 oz. glasses plus 8 oz. for every 25 lbs. you are over weight. I know this was addressed for dawn rose, but wanted to put in my two cents. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Yes, I go every three months now for blood work. I joined ediets.com they have lots of support groups and it is only $10.00 a month. I was going to quit because the weight is coming off slow, but my husband said no. He thinks it is good for me. There meal plans are very easy to handle, they give you meal plans that you can change, the recipe how to make the stuff. I started out good lost 20 lbs., then we got sick this winter and took us a while to get over it. I gained the weight back eventually, started losing and hit a plateau. Which I read plateaus can come every 5 lbs. in some people. Finally I decided to start walking, at first I hurt so bad I couldn't do it everyday sometimes. This week I've had a good week with not much pain, but I've been tired and had a migraine. Most of all I've started to LOVE the person I now am, there are days I look in the mirror and can't look at myself. And yes I use that illegal herb, but I had to do something for sleeping. I've been sleeping well and in 2 months have lost 14 lbs. The first month I lost 10 lbs. I walk daily and not even at a fast pace some days, baby steps. I wouldn't even buy myself alot of clothes because I kept saying I would lose weight. Finally I bought myself pants, shirts everything to help myself feel better about myself. Most important I know my family and I are eating healthy. Debbie > > Reply-To: graves_support > Date: Thu, 19 Jul 2001 13:45:56 -0500 > To: <graves_support > > Subject: Re: Re: ? for dawn rose > > Thank you Debbie.....now that you have been off ATDs, do you still go in for > blood work? Sheesh...knowing that the weight gain is not all my fault does > NOT make this any easier to handle. > Re: Re: ? for dawn rose > > >> Ruthie, >> >> I've been off ATDs since July 2000 and yes I continuely struggle with > weight >> loss. I've recently lost some but I've had to work extra hard. I am >> walking a mile or more daily, some days I walk two plus, but it depends on >> how I am feeling. I've had a lot of trouble with my thigh muscles > hurting. >> I also have to eat like a rabbit, you aren't alone. If I don't drink lots >> of water I get swelling which of course gives you weight gain. I've > learned >> that lots of water is important and days I don't drink enough I can tell. > I >> have an article that requires 8-8 oz. glasses plus 8 oz. for every 25 lbs. >> you are over weight. I know this was addressed for dawn rose, but wanted > to >> put in my two cents. >> >> Debbie >> >> >> ------------------------------------- >> The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. >> Please consult your doctor before changing or trying new treatments. >> ---------------------------------------- >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Dear Ruthie and everyone, For some of us the weight seems to come off the instant you drop the ATDs. This is not the case for me, the success I got out of " disobeying " my endocrinologist and jiggling my own dose has been that I feel more awake, my blood levels are normal and my weight gain has slowed down or plateued. I can't really drop my dose any further as my antibody tests show I am not yet in remission (TSI still at 3.something when RR=0-1) and I am on 5mg of Carbimazole a day. I can't split the pill much more than that - currently I take 2.5mg twice a day, I could go down to 2.5mg once a day, but I guess that would mean spending half the 24 hour period with no effective ATD as it gets used up quite quickly as I understand it. I have a bit of a theory about the weight gain though... remember all those magazine articles about he dangers of yo-yo dieting and how you can end up fatter if you keep going on and off diets? This seems built on the theory (in addition to metabolism shifts) that if you starve your body of food, when you do start feeding it again, it will be in starvation mode and grab everything it can thinking another famine is just around the corner. Effectively, being hyper is like being on a starvation diet. So maybe time is the big factor... our bodies need to " forget " the starvation experience and then start responding more appropriately to normal nutrition. When I was hypo, it didn't matter if I ate a low fat diet and exercised, I could still put on 5lbs overnight in my sleep (that did honestly happen)... it makes me REALLY angry when doctors look you in the eye and tell you to follow a low fat diet and exercise - you just know they think you overeat and don't own up. yuk. DAWN ROSE > >Reply-To: graves_support >To: <graves_support > >Subject: Re: Re: ? for dawn rose >Date: Thu, 19 Jul 2001 13:37:17 -0500 > >Thank you so much Dawn Rose for your reply. The last time I mentioned the >gain to my Endo she said only that a low fat diet and more exercise would >help. I am at fault there...I cannot seem to muster the energy to do much >more than walk a mile or so every few days. I need to get motivated and do >more because I know it will help my disposition if nothing else. > Re: ? for dawn rose > > >Date: Thu, 19 Jul 2001 08:33:27 -0500 > > > > > > > > > > and had put most of it on betweeen Christmas and early April! Can't > > >wait > > >to > > > > get it off and get back into some old clothes, at the moment I have >two > > > > pairs of baggy jeans from K-mart that I wear in rotation, and lots >of >! > > > > > > > > >Do those of you on ATDs know if we can expect to be able to lose the >weight > > >when we get off them? I have to eat like a rabbit with protein shakes >and > > >celery just in order to not gain....I blow it now and again( I have >always > > >had a killer sweet tooth) but I have put on 24 lbs with no sign of > > >stopping...is it the low(but in normal range) thyroid levels or is it >the > > >ATD? This is making me more and more emotional as I will soon pass my > > >husband in the weight area. I cannot wear my clothes, I have costumes >for > > >my > > >chorus that will have to be taken out. Sorry for dwelling on it but the > > >whole thing consumes my thoughts every day. > > >Ruthie > > > > > > > > >------------------------------------- > > >The Graves' list is intended for informational purposes only and is not > > >intended to replace expert medical care. > > >Please consult your doctor before changing or trying new treatments. > > >---------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
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