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Re: Re: B and Foucault!

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In a message dated 7/8/01 12:36:58 AM Central Daylight Time,

kfroilan@... writes:

> Subj: Re: B and Foucault!

> Date: 7/8/01 12:36:58 AM Central Daylight Time

> From: kfroilan@...

> Reply-to: graves_support

> To: graves_support

>

>

>

>

> I can't help but wonder, the Bush's' both have GD, I believe both went

> > through RAI, what kind of treatment are they getting now that they

> just

> act

> > like everything is hunky-dorry, nothing to it. If they were

> getting the

> > same treatment as the rest of us, and feeling like most of us RAIers

> > do...maybe they could have done something in this area. They are

> either

> > getting much better treatment or are lying!

>

> Maybe they're on actual thyroid gland from actual humans. The rich

> often get organ donations from third world children, you know. I'll

>

My cousin had RA treatment and is doing great. He had it about 10 or 15

years ago. I have met several at the Endo that also are doing good..Kim

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> From: kfroilan@...

> Reply-To: graves_support

> Date: Sun, 08 Jul 2001 05:36:33 -0000

> To: graves_support

> Subject: Re: B and Foucault!

>

> I can't help but wonder, the Bush's' both have GD, I believe both went

>> through RAI, what kind of treatment are they getting now that they

> just

> act

>> like everything is hunky-dorry, nothing to it. If they were

> getting the

>> same treatment as the rest of us, and feeling like most of us RAIers

>> do...maybe they could have done something in this area. They are

> either

>> getting much better treatment or are lying!

There are a few that don't feel too bad after RAI or have problems. Maybe

what we need to do is find out why? Was it treated early? What were there

levels? Or there is always the other answer, they just don't tell people

how bad they feel. Some people do look at the rich and think well they

don't get sick like we do because their money can buy the best treatment.

Debbie R.

> -----------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

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Hi Debbie,

Hope this one gets through...my other groups in yahoo are going through with

no problem.

Those that have had RAI and feel great...consider *maybe* they had small

dose of RAI and their thyroid hasn't completely died yet, maybe with smaller

amounts of RAI, it just takes longer...if that is the case I feel sorry for

them because they won't know how to deal with everything as we are all

learning here. And if enough years go by, no one including themselves will

probably tie it in to the thyroid if the damn TSH is in the normal

range...ggggrrrrrrrr (sorry for the mouth but I really HATE the TSH and drs.

who rely on them for everything.

Or, as you said, they aren't telling how bad they feel because so very many

of the symptoms we all have are not on the *accepted* list of what our

thyroids do to us...so most drs. just ignore them!

Take care, and we are heading home tomorrow :) Lost our shirts at the

casino, but had a great time.

Jody

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Get your FREE download of MSN Explorer at http://explorer.msn.com

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Hi Kim-

I've heard of people that did well too but I've never talked to any. I know

my cousin doesn't think her bipolar problem is associated with not having a

thyroid. But I've read it in several texts. And I've met a couple of other

people that are post-RAI and think they're doing great (in that regard)

because they don't associate any of the problems that they have with not

having a thyroid.

There's also the theory that some patients are much more sensitive to any

changes and people don't have any idea how they're going to be until after

RAI. And once your thyroid is gone, you can't change your mind if you start

having problems.

I had no idea that so many of the problems I was having were thyroid

related. If someone would have asked how I was then, I would have told them

I was doing fine thyroid-wise. The thing that sparked my interest was an

article on T3 replacement for patients on big doses of Synthroid. Then when

my husband and I started experimenting with different ratios, I was

astounded at all the things that I had previously thought I'd have to live

with for the rest of my life, had gotten so much better.

So, I think it's better to keep your own thyroid if you can. It's too hard

trying to figure out what's what afterwards and most people don't connect

not having a thyroid with any problems they have down the line.

Take care,

> My cousin had RA treatment and is doing great. He had it about 10 or 15

> years ago. I have met several at the Endo that also are doing good..Kim

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Hi Kim-

I've heard of people that did well too but I've never talked to any. I know

my cousin doesn't think her bipolar problem is associated with not having a

thyroid. But I've read it in several texts. And I've met a couple of other

people that are post-RAI and think they're doing great (in that regard)

because they don't associate any of the problems that they have with not

having a thyroid.

There's also the theory that some patients are much more sensitive to any

changes and people don't have any idea how they're going to be until after

RAI. And once your thyroid is gone, you can't change your mind if you start

having problems.

I had no idea that so many of the problems I was having were thyroid

related. If someone would have asked how I was then, I would have told them

I was doing fine thyroid-wise. The thing that sparked my interest was an

article on T3 replacement for patients on big doses of Synthroid. Then when

my husband and I started experimenting with different ratios, I was

astounded at all the things that I had previously thought I'd have to live

with for the rest of my life, had gotten so much better.

So, I think it's better to keep your own thyroid if you can. It's too hard

trying to figure out what's what afterwards and most people don't connect

not having a thyroid with any problems they have down the line.

Take care,

> My cousin had RA treatment and is doing great. He had it about 10 or 15

> years ago. I have met several at the Endo that also are doing good..Kim

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