Dr Myhill

[Guest guest]

>

> I went to Dr Myhill and she put me on an over severe elimination

> diet -no cereals, no dairy produce, no citrus, no soy, there were

a

> lot more categories of food eliminated all at once.

> A severe elimination diet is harmful, particularly for a already

> weakened person. When I did the elimination diet, I lost a huge

> amount amount and afterwards I also got such severe digestive

> problems that I couldn't eat without pain and nearly died. My

> digestive problems and general health have never fully recovered

> since.

> She also gave me all those supplements at the same time but they

did

> nothing for me. Now I know some people might like Dr Myhill on

this

> lis. and if you do not suffer what I went through or even improve

on

> her treatment, then that is good. I can almost imagine people

> writing in saying " How dare you besmirch one of the few UK CFS

> doctors that exist! " . I do not want to provoke an argument with

> anyone who likes her. I just feel that I should tell people on the

> list what happened to me and beware of severe elimination diets.

Hi

I have never seen Dr Myhill in my life I have only followed stuff

from her website following up her articles with my own research plus

comments from people like Rich on this list but I do know I am

eternally grateful to her for sharing all her knowledge so that

people like me can get the benefits especially as she hasn't made

any money out of me apart from the few supplements I have bought

from her company.

If it wasn't for her information I would never have known that my

magnesium was so low my body couldn't make ATP from it because my

rbc magnesium levels looked ok. It would have been so much better

if I could have known that 5 years and saved myself from developing

CFS but there was no test available then and if it wasn't for her

work with Dr McClaren there wouldn't be a test now.

Maybe you saw her some while ago before all the latest information

on the mitochondria came out (Sinatra etc), after all the test for

ATP has only become available to us since August this year.

I am sure you are right about very restricted diets being a bad

idea, I wonder if she still recommends them now?

Pam

[Guest guest]

Honey

I was put on a restricted diet, not by Dr Myhill but by another UK

doctor who worked along similar lines. He also recommended specific

supps, most based on tests done through Biolab, or to ensure I did

suffer form deficiencies due to the foods I needed to avoid. I had

lost a serious amount of weight; yet the elimination and candida

diets allowed me to put weight back on.

Cheers, Tansy

In , honey <yahoney@f...> wrote:

>

> Hi Pam

>

> > I am sure you are right about very restricted diets being a bad

> > idea, I wonder if she still recommends them now?

> >

> > Pam

>

> Yes, it still seems to be the cornerstone of her approach - with all

> ME patients, she seems to go straight for her elimination diet plus

> supplements, in her view to get a level playing field by eliminating

> all possible obvious problem-causing agents and deficiencies.

> She's told me her hope is then that after the dust's cleared, she

> can see more specific problems. I'm obviously a bit concerned from

> 's report that the diet (mine's even stricter, with a parasite

> diagnosis) may be actually prolonging illness, so very interested in

> other experiences here, and getting some clarity on whether

elimination

> diets (properly balanced by a doctor of course) can still produce

> longterm problems and intolerances that didn't exist before.

>

> Honey

>

[Guest guest]

On Sun, 13 Nov 2005, chaiya6 wrote:

> I went to Dr Myhill and she put me on an over severe elimination

> diet -no cereals, no dairy produce, no citrus, no soy, there were a

> lot more categories of food eliminated all at once.

> A severe elimination diet is harmful, particularly for a already

> weakened person. When I did the elimination diet, I lost a huge

> amount amount and afterwards I also got such severe digestive

> problems that I couldn't eat without pain and nearly died. My

> digestive problems and general health have never fully recovered

> since.

> She also gave me all those supplements at the same time but they did

> nothing for me. Now I know some people might like Dr Myhill on this

> lis. and if you do not suffer what I went through or even improve on

> her treatment, then that is good. I can almost imagine people

> writing in saying " How dare you besmirch one of the few UK CFS

> doctors that exist! " . I do not want to provoke an argument with

> anyone who likes her. I just feel that I should tell people on the

> list what happened to me and beware of severe elimination diets.

Hi (?),

Could you give a few more details? I've had serious gut problems

from before I started Dr Myhill's elimination diet, so it's not

causative, but they haven't resolved themselves after treatment for

the Blastocystis Hominis parasite, nor on a diet even stricter than

Dr Myhill's (basically hers, plus no carbs or sugars whatsoever,

as Blasto feeds on them). I now can't tolerate any sugar at all,

even in tiny amounts of relatively unsugary fruit. I'm wondering if

you or others could explain a mechanism where such diets can produce

longterm ill-effects as you describe? Can not taking sugars of any

kind for a long period produce long-term intolerance of sugar that

you can't resolve later, and if so, how does the body do this?

Also, what continuing digestive problem do you have having discontinued

elimination dieting that you didn't have before, and do you know why?

I'm a Dr Myhill patient, but won't play the " don't besmirch " card, I

promise. I've always found her very open to difference of opinion, and

her patients should be too. And I'm of course concerned if my diet

regime has actually made me iller, if there's evidence for this.

Honey

[Guest guest]

Hi Pam

> I am sure you are right about very restricted diets being a bad

> idea, I wonder if she still recommends them now?

>

> Pam

Yes, it still seems to be the cornerstone of her approach - with all

ME patients, she seems to go straight for her elimination diet plus

supplements, in her view to get a level playing field by eliminating

all possible obvious problem-causing agents and deficiencies.

She's told me her hope is then that after the dust's cleared, she

can see more specific problems. I'm obviously a bit concerned from

's report that the diet (mine's even stricter, with a parasite

diagnosis) may be actually prolonging illness, so very interested in

other experiences here, and getting some clarity on whether elimination

diets (properly balanced by a doctor of course) can still produce

longterm problems and intolerances that didn't exist before.

Honey

[Guest guest]

Hi Honey

I have been ill ten years and my worst symptom has always been gut, gut

flares, get sick. I have tested for parasites with both parascope and great

smokies lab three times over the years. Each time nothing has showed up and

no treatment recomended. I started off being able to eat anything and over

the time have had to take stuff out. i did a York test food sensitivity

test, not many foods showed as bad except gluten. I can eat no grains and no

sugar and just about anything upsets me for no reason, vitamin pills are

also now a no no. it has all just got like that on it's own without any

diets or anything. my gut always feels awful and often ceased with pain and

bloating. have tried anti candida regimes and probotics and anything that

looks as though it might help. Nothing so far has. don't think it is

Myhill's diet that is the problem, think it is just whatever the bug is that

causes this horrible illness.

n

>From: honey <yahoney@...>

>Reply-

>

>Subject: Re: Re: Dr Myhill

>Date: Sun, 13 Nov 2005 18:28:51 +0000 (GMT)

>

>Hi Pam

>

> > I am sure you are right about very restricted diets being a bad

> > idea, I wonder if she still recommends them now?

> >

> > Pam

>

>Yes, it still seems to be the cornerstone of her approach - with all

>ME patients, she seems to go straight for her elimination diet plus

>supplements, in her view to get a level playing field by eliminating

>all possible obvious problem-causing agents and deficiencies.

>She's told me her hope is then that after the dust's cleared, she

>can see more specific problems. I'm obviously a bit concerned from

>'s report that the diet (mine's even stricter, with a parasite

>diagnosis) may be actually prolonging illness, so very interested in

>other experiences here, and getting some clarity on whether elimination

>diets (properly balanced by a doctor of course) can still produce

>longterm problems and intolerances that didn't exist before.

>

>Honey

[Guest guest]

I went to Dr Myhill and she put me on an over severe elimination

diet -no cereals, no dairy produce, no citrus, no soy, there were a

lot more categories of food eliminated all at once.

A severe elimination diet is harmful, particularly for a already

weakened person. When I did the elimination diet, I lost a huge

amount amount and afterwards I also got such severe digestive

problems that I couldn't eat without pain and nearly died. My

digestive problems and general health have never fully recovered

since.

I just feel that I should tell people on the

list what happened to me and beware of severe elimination diets.

I had a cfs friend who was put on a similar diet early in her cfs and the same

exact thing happened, she went downhill so fast she nearly died and her 'cfs dr'

kept her on it anyway, she became totaly incapacitated for months. She did many

other treatments after that to recover just to where she was before she did that

diet. Eventually she had her mercury out and some dental probs fixed, did some

IV chelation and altho she's still not 'normal', she is probably 80% or so now.

But that diet was months of near death experience for her.

Marcia

[Guest guest]

Hi n,

> I have been ill ten years and my worst symptom has always been gut, gut

> flares, get sick. I have tested for parasites with both parascope and great

> smokies lab three times over the years. Each time nothing has showed up and

> no treatment recomended. I started off being able to eat anything and over

> the time have had to take stuff out. i did a York test food sensitivity

> test, not many foods showed as bad except gluten. I can eat no grains and no

> sugar and just about anything upsets me for no reason, vitamin pills are

> also now a no no. it has all just got like that on it's own without any

> diets or anything. my gut always feels awful and often ceased with pain and

> bloating. have tried anti candida regimes and probotics and anything that

> looks as though it might help. Nothing so far has. don't think it is

> Myhill's diet that is the problem, think it is just whatever the bug is that

> causes this horrible illness.

Sounds uncannily similar to me, n - but the difference for me is

that I had sudden onset intense gut problems after 12 years of ME. I

had no problem with any food before this, ever. The gut problems

started before I started the elimination diet, so it can't be the actual

cause.

When I was positively diagnosed with Blastocystis Hominis, I thought

this was the key to it all: I still hope so, but so unsure. Certainly

it's true that something very noticeably different happened when I

was on specific anti-parasite antibiotics (Rifaximin + Nitazoxinide,

30 days). I'm not sure what advice I can offer if your results are

consistently coming back negative. Unless it's not the parasite with

me, and we have the same thing.

Honey

[Guest guest]

Hi,

Sorry to hear you had a bad reaction to avoiding certain foods.

I've been a patient of Dr Myhill for years. Initially she told me

to cut out junk food, sugars and milk products (as I had rhinitus).

A few months later on she told me to do an elimination diet - but

the elimination diet was for testing my foods. I had to avoid lots

of foods for a few days and then start reintroducing them to see

which ones affected me. Maybe she is doing things differently now.

As a result I have quite a few foods eliminated from my diet - but

by testing them I knew which ones were bothering me. But it wasn't

done in all one stage. Eliminating foods has helped me a lot. I can

see, though, that it could maybe be a shock to the system to do it

all in one go.

I am finding it is very important to eat foods which will replace

the nutrients I am losing from cutting out the other foods. It took

a bit of work to find them.

I wouldn't cope with one of the diets Dr M recommends now with no

carbohydrate during the day and carbohydrate in the evening. I find

I need a little carbohydrate in the day. At one time I had very very

little carbohydrate in my diet cos of bad yesast problems (which

were probably borrelia as that thrives on sugar) but now I have a

little more but am always on somehting to help kill the critters off.

All the best,

Carol

>

> I went to Dr Myhill and she put me on an over severe elimination

> diet -no cereals, no dairy produce, no citrus, no soy, there were

a

> lot more categories of food eliminated all at once.

> A severe elimination diet is harmful, particularly for a already

> weakened person. When I did the elimination diet, I lost a huge

> amount amount and afterwards I also got such severe digestive

> problems that I couldn't eat without pain and nearly died. My

> digestive problems and general health have never fully recovered

> since.

> She also gave me all those supplements at the same time but they

did

> nothing for me. Now I know some people might like Dr Myhill on

this

> lis. and if you do not suffer what I went through or even improve

on

> her treatment, then that is good. I can almost imagine people

> writing in saying " How dare you besmirch one of the few UK CFS

> doctors that exist! " . I do not want to provoke an argument with

> anyone who likes her. I just feel that I should tell people on the

> list what happened to me and beware of severe elimination diets.

>

[Guest guest]

Hello Ladies,

I am sure there are some of you ladies on this group

who have heard of Dr Myhill.

I was looking at her website tonight and found that

she has been reported to the GMC

GENERAL MEDICAL COUNCIL.

As many of you know she helps implant/explant women

who are sick.

She has helped me in the past.

Dr Myhill wrote to my GP on my behalf explaining

the silicone illness, needless to say my Dr asked why I was wasting my money.

If you google her name you can see the so called list

of complaints against her.

SEEMS TO ME THAT IT’S THE USUAL ……HERE

IS SOMEBOBY WHO BELIEVES US

AND THEY WILL GET THEM ONE WAY OR ANOTHER !!!!!!

What do you think?

Patty Rogene I know you have heard of her.

Sue

[Guest guest]

Hi Sue, Well, that is just nasty!! But I'm not surprised!!! We have that game going on here too. There are a few good doctors doing so much good to help sick people, and then somebody has to get all snooty about it because they are threatened by a doctor going outside the "politically correct" lines and all hell breaks loose in that person's life. It's a darn shame. It's just plain wrong. it can destroy a career. We've got a war going on behind the scenes in this country with regards to natural medicines and the freedom to choose health care. I hope you guys don't get into this kind of battle there too, but I'm afraid it's already started. It's between the good guys and the bad guys, as usual. Guess who the bad guys are? I call it "Evil organized medicine." It's evil because it takes away the freedoms of people to find and choose the kind of

care they want....safe, effective, simple, natural, cheap...in favor of their money making schemes. Isn't it funny that they call the natural doctors with the natural therapies "Quacks", when the other doctors are the ones giving out all these unsafe drugs with weird side effects? Makes you wonder who the real quacks are, doesn't it? I hope Dr. Myhill will be safe and protected in her career. Here is a link for a European/UK organization working for health care freedom: http://www.anhcampaign.org/ Some links on health freedom issues in America: http://www.quackpotwatch.org/opinionpieces/tim%20bolen.htm http://www.quackpotwatch.org/default.htm http://www.healthfreedomusa.org/index.php?page_id=155 http://www.healthfreedom.net/index.php?option=com_content & task=view & id=15 & Itemid=44 Thanks Sue! Patty Sue Gibbens <susan.gibbens@...> wrote: Hello Ladies, I am sure there are some of you ladies on this group who have heard of Dr Myhill. I was looking at her website tonight and found that she has been reported to the GMC GENERAL MEDICAL COUNCIL. As many of you know she helps implant/explant women who are sick. She has helped me in the past. Dr Myhill wrote to my GP on my behalf explaining the silicone illness, needless to say my Dr asked why I was wasting my money. If you google her name you can see the so called list of complaints against her. SEEMS TO ME THAT IT’S THE

USUAL ……HERE IS SOMEBOBY WHO BELIEVES US AND THEY WILL GET THEM ONE WAY OR ANOTHER !!!!!! What do you think? Patty Rogene I know you have heard of her. Sue

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.