Re: Burzynski Clinic in Houston

[Guest guest]

Hi Stacey,

Since you are going to be in Texas, here is a thought for you and

your sister. We go to CTRC (Cancer Therapy and Research Center) in

San , Texas.

While I was waiting on to get his IMRT treatment I picked up

a newspaper they publish. I was surprized to find out that they

played one of the biggest parts in the Iressa Clinical Trial.

They have just finished adding on 2 new 4 story buildings and are

doing all kinds of things there.

I had no idea what all they do there, probably because we always

head for the 3rd floor.

Hope this helps,

Joyce

> Hi everyone,

>

> Thank you for your posts. Even though I don't write often, I read

> your posts and am grateful for them. My 24-yr-old sis (dx stg IV

> 11/02) and I are going to visit the Burzynski clinic in Houston on

> Friday. We live in Utah but have a sister in Dallas. So we're

> making a fun trip out of it all. (Actually, our other two sisters

> are going as well so there will be 5 unencumbered sisters together

on

> a grand adventure. Watch out Dallas!) She called MD , but

> they said they could offer no clinical trials for cc patients and

at

> this time could offer only the standard treatments. So, we're not

> pusuing that further at the present. I have my own doubts about

the

> efficacy of Dr. Burzynski's " clinical trials " using

antineoplastons,

> but I felt like it was worth checking out. Another young girl

from

> our home town is currently receiving treatment there for a brain

> tumor. I'll keep you all posted and let you know if we learn

> anything useful there. Thanks for your support and know you are

in

> my thoughts and prayers. I was pleased to hear that is

making

> great strides in his surgical recovery.

>

> My best to you all,

>

> Stacey

[Guest guest]

Hi Stacey,

Please be sure to let us know anything you find out. I've heard a

little bit about Burzynski, but more in the context of brain cancer

where perhaps he has had better success than with colon (remember,

success with one form of cancer does NOT necessarily carry over into

other forms). I did know a CC patient who called Burz. and tried to

get details of his success rates for CC (5- year " cure " rates) -

somehow they didn't seem too much different from what would be

expected if you went entirely with conventional therapy.

What concerned me a lot more was the cost of the whole thing - could

be up to $100,000/year (not paid by insurance!) is what I heard.

Normally in a " clinical trial " the cost of the experimental drug is

covered by the sponsor, but my understanding was that Burzynski

expects you to pay anyway. Of course, under those circumstances how

could there be a " control arm " in the trial, and if there is no

control arm you have nothing to compare against to see if it worked

or not...

Anyway, hope you have a good time in Dallas w/ family and

friends...and please do post your impressions of the clinic!

Best Wishes,

> Hi everyone,

>

> Thank you for your posts. Even though I don't write often, I read

> your posts and am grateful for them. My 24-yr-old sis (dx stg IV

> 11/02) and I are going to visit the Burzynski clinic in Houston on

> Friday. We live in Utah but have a sister in Dallas. So we're

> making a fun trip out of it all. (Actually, our other two sisters

> are going as well so there will be 5 unencumbered sisters together

on

> a grand adventure. Watch out Dallas!) She called MD , but

> they said they could offer no clinical trials for cc patients and

at

> this time could offer only the standard treatments. So, we're not

> pusuing that further at the present. I have my own doubts about

the

> efficacy of Dr. Burzynski's " clinical trials " using

antineoplastons,

> but I felt like it was worth checking out. Another young girl from

> our home town is currently receiving treatment there for a brain

> tumor. I'll keep you all posted and let you know if we learn

> anything useful there. Thanks for your support and know you are in

> my thoughts and prayers. I was pleased to hear that is

making

> great strides in his surgical recovery.

>

> My best to you all,

>

> Stacey

[Guest guest]

This is a GREAT idea, Joyce! Check out as many different

clinics/doctors as you can while you're in the area!

Best,

> Hi Stacey,

> Since you are going to be in Texas, here is a thought for you and

> your sister. We go to CTRC (Cancer Therapy and Research Center) in

> San , Texas.

> While I was waiting on to get his IMRT treatment I picked up

> a newspaper they publish. I was surprized to find out that they

> played one of the biggest parts in the Iressa Clinical Trial.

> They have just finished adding on 2 new 4 story buildings and are

> doing all kinds of things there.

> I had no idea what all they do there, probably because we always

> head for the 3rd floor.

> Hope this helps,

> Joyce

[Guest guest]

Hi Stacey:

I too am very interested. I went looking through the info on the

internet about Burzynski after your post and found some interesting

information similar to what discusses below. I'm quickly

learning how incredibly political cancer is.

So do keep us posted.

I hope you have a wonderful time on your trip.

Laurie

> > Hi everyone,

> >

> > Thank you for your posts. Even though I don't write often, I

read

> > your posts and am grateful for them. My 24-yr-old sis (dx stg IV

> > 11/02) and I are going to visit the Burzynski clinic in Houston

on

> > Friday. We live in Utah but have a sister in Dallas. So we're

> > making a fun trip out of it all. (Actually, our other two

sisters

> > are going as well so there will be 5 unencumbered sisters

together

> on

> > a grand adventure. Watch out Dallas!) She called MD ,

but

> > they said they could offer no clinical trials for cc patients and

> at

> > this time could offer only the standard treatments. So, we're

not

> > pusuing that further at the present. I have my own doubts about

> the

> > efficacy of Dr. Burzynski's " clinical trials " using

> antineoplastons,

> > but I felt like it was worth checking out. Another young girl

from

> > our home town is currently receiving treatment there for a brain

> > tumor. I'll keep you all posted and let you know if we learn

> > anything useful there. Thanks for your support and know you are

in

> > my thoughts and prayers. I was pleased to hear that is

> making

> > great strides in his surgical recovery.

> >

> > My best to you all,

> >

> > Stacey