Re: stage 3 - comments on chemo plan

[Guest guest]

First of all Happy Birthday May God grant you many more.

Secondly thanks for showing us that Stage 4 IS NOT a death warrant!

May you continue to improve and be an inspiration to us all,

God Bless,

Narice

[Guest guest]

thanks for the birthday wish..stage 4 is NOT a death wish ..you just have to

have to find a dr. that will help you push and get out there and search this

puter and anywhere you can to find medicines that might help..if one doesn't do

dwell on that one ...find another...stay POSITIVE..thanks again,hugs,kaye

Re: Re: stage 3 - comments on chemo plan

First of all Happy Birthday May God grant you many more.

Secondly thanks for showing us that Stage 4 IS NOT a death warrant!

May you continue to improve and be an inspiration to us all,

God Bless,

Narice

[Guest guest]

Hi,

I was initially told that I had Stage III Colon Cancer until I went

for a PET Scan and it indicated that there could be 2 " hot " lymph

nodes in my abdomen. I was therefore restaged as Stage IV; I myself

and still hoping that that the two lymph nodes are either a false

positive or are eradicated via the chemo that I'm on now. I was told

that the PET scans pick up pretty much everything I'm hoping that in

my case that they are playing it safe treating me assuming the lymph

nodes are cancerous. Bear in mind that my CAT Sscans were completely

clean. The only way to be truly sure is via biopsy.

-Ken

> > > my mom had a colon resection two years ago, and had two

> positive

> > nodes. she had chemo every other week for six months and

> responded

> > to it well, with no serious side effects. now, two years

later,

> her

> > CEA has been rising but so far the CT scan has not revealed any

> > lesions or tumors, although the oncologist thinks it may only

be

> a

> > matter of time. in any case, when she had the chemo she was

84,

> and

> > did pretty well with it.

> > > stage 3 - comments on chemo

> plan

> > >

> > >

> > > My mom (72 years old)had her colon resection on 8/25, and

was

> > told

> > > she had 4 positive lymph nodes, which put her at stage 3.

> The MD

> > > plans on treating her with 5FU and leukovorin, 5 days on,

28

> days

> > off

> > > for 6 months. Any advice on this treatment plan? What

> > experiences

> > > have people had with side effects of this treatment? Any

> > information

> > > would be appreciated.

> > >

> > >

> > >

[Guest guest]

Hi Ken,

How long in between your original diagnosis as stage III and the pet

results indicating possible " hot " nodes?

Sorry if I missed it, but what and how long was your chemo protocol?

Also, what prompted the pet scan-was your CEA elevated?

Thanks you for sharing!

Rick G.

..

> > > > my mom had a colon resection two years ago, and had two

> > positive

> > > nodes. she had chemo every other week for six months and

> > responded

> > > to it well, with no serious side effects. now, two years

> later,

> > her

> > > CEA has been rising but so far the CT scan has not revealed

any

> > > lesions or tumors, although the oncologist thinks it may

only

> be

> > a

> > > matter of time. in any case, when she had the chemo she was

> 84,

> > and

> > > did pretty well with it.

> > > > stage 3 - comments on

chemo

> > plan

> > > >

> > > >

> > > > My mom (72 years old)had her colon resection on 8/25,

and

> was

> > > told

> > > > she had 4 positive lymph nodes, which put her at stage

3.

> > The MD

> > > > plans on treating her with 5FU and leukovorin, 5 days

on,

> 28

> > days

> > > off

> > > > for 6 months. Any advice on this treatment plan? What

> > > experiences

> > > > have people had with side effects of this treatment?

Any

> > > information

> > > > would be appreciated.

> > > >

> > > >

> > > >

[Guest guest]

Hi Rich,

The original diagnosis came on July 30 (a shock as I'm only 33). I

immediately scheduled a second opinion at MSK here in NY and was

diagnosed w/probable Stage IV about 4 weeks ago. I guess part of

MSK's protocol is to test everything henceforth the PET Scan (nothing

to do with my CEA). Right now I'm in the middle of CPT-5FU-Le

triplet. Hopefully when I get re-scanned at the end of October we can

talk about surgery.

Regards,

Ken

> > > > > my mom had a colon resection two years ago, and had two

> > > positive

> > > > nodes. she had chemo every other week for six months and

> > > responded

> > > > to it well, with no serious side effects. now, two years

> > later,

> > > her

> > > > CEA has been rising but so far the CT scan has not revealed

> any

> > > > lesions or tumors, although the oncologist thinks it may

> only

> > be

> > > a

> > > > matter of time. in any case, when she had the chemo she

was

> > 84,

> > > and

> > > > did pretty well with it.

> > > > > stage 3 - comments on

> chemo

> > > plan

> > > > >

> > > > >

> > > > > My mom (72 years old)had her colon resection on 8/25,

> and

> > was

> > > > told

> > > > > she had 4 positive lymph nodes, which put her at stage

> 3.

> > > The MD

> > > > > plans on treating her with 5FU and leukovorin, 5 days

> on,

> > 28

> > > days

> > > > off

> > > > > for 6 months. Any advice on this treatment plan? What

> > > > experiences

> > > > > have people had with side effects of this treatment?

> Any

> > > > information

> > > > > would be appreciated.

> > > > >

> > > > >

> > > > >

[Guest guest]

my mom had a CT scan which showed no cancer, but meanwhile her CEA has been

rising steadily. so far the onc hasn't ordered a PET scan but I think we're

going to seek one. but I have heard of situations where the results of the

blood tests and the scans are inconsistent, and while a PET scan may show things

that a CT scan won't, false positives are sometimes a problem with them.

stage 3 - comments on chemo

> plan

> > >

> > >

> > > My mom (72 years old)had her colon resection on 8/25, and

was

> > told

> > > she had 4 positive lymph nodes, which put her at stage 3.

> The MD

> > > plans on treating her with 5FU and leukovorin, 5 days on,

28

> days

> > off

> > > for 6 months. Any advice on this treatment plan? What

> > experiences

> > > have people had with side effects of this treatment? Any

> > information

> > > would be appreciated.

> > >

> > >

> > >

[Guest guest]

Hi Ken, thanks for responding to my post. If you don't mind I would

love to ask you some more questions, as we are heading down to MSK on

9/30 to get a second opinion for my mom. We are scheduled to see Dr.

Veach. Any suggestions on questions or anything else that would help

us be best prepared for this visit, so we can make the most of it?

Also curious, if MSK recomended something different than your onc. or

just agreed on the treatment. Any information would be greatly

appreciated. By the way, I am in upstate NY, do you live in NY also?

Thanks, Theresa

> > > > > > my mom had a colon resection two years ago, and had two

> > > > positive

> > > > > nodes. she had chemo every other week for six months and

> > > > responded

> > > > > to it well, with no serious side effects. now, two years

> > > later,

> > > > her

> > > > > CEA has been rising but so far the CT scan has not

revealed

> > any

> > > > > lesions or tumors, although the oncologist thinks it may

> > only

> > > be

> > > > a

> > > > > matter of time. in any case, when she had the chemo she

> was

> > > 84,

> > > > and

> > > > > did pretty well with it.

> > > > > > stage 3 - comments on

> > chemo

> > > > plan

> > > > > >

> > > > > >

> > > > > > My mom (72 years old)had her colon resection on 8/25,

> > and

> > > was

> > > > > told

> > > > > > she had 4 positive lymph nodes, which put her at

stage

> > 3.

> > > > The MD

> > > > > > plans on treating her with 5FU and leukovorin, 5 days

> > on,

> > > 28

> > > > days

> > > > > off

> > > > > > for 6 months. Any advice on this treatment plan?

What

> > > > > experiences

> > > > > > have people had with side effects of this treatment?

> > Any

> > > > > information

> > > > > > would be appreciated.

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Hi ho there neighbor,

I'm also in NY, in Stamford to be exact. I went down to Sloan as

well...I really like the doctors and facility, although I'm a bit

daunted by the city. (I'm originally from a small town in Georgia.)

It sounds like your gonna be on the same regimen as I am, and it

ain't too bad really. I'm currently post surgery, undergoing

5fu/luk. treatments, two more to go! I generally feel abit run

down, but all in all can't complain. (Ohh I try, but who really

listens anyway? hehe)

Btw, I'm 35 and was also shocked to get the news. I was originally

diagnosed stage 3, but after the surgery they downgraded it to stage

2 because it hadn't been as bad as they thought. I'm hopeful that

you get similar news.

Good luck to you.

Mike B.

> > > > > > > my mom had a colon resection two years ago, and had

two

> > > > > positive

> > > > > > nodes. she had chemo every other week for six months

and

> > > > > responded

> > > > > > to it well, with no serious side effects. now, two

years

> > > > later,

> > > > > her

> > > > > > CEA has been rising but so far the CT scan has not

> revealed

> > > any

> > > > > > lesions or tumors, although the oncologist thinks it

may

> > > only

> > > > be

> > > > > a

> > > > > > matter of time. in any case, when she had the chemo

she

> > was

> > > > 84,

> > > > > and

> > > > > > did pretty well with it.

> > > > > > > stage 3 - comments

on

> > > chemo

> > > > > plan

> > > > > > >

> > > > > > >

> > > > > > > My mom (72 years old)had her colon resection on

8/25,

> > > and

> > > > was

> > > > > > told

> > > > > > > she had 4 positive lymph nodes, which put her at

> stage

> > > 3.

> > > > > The MD

> > > > > > > plans on treating her with 5FU and leukovorin, 5

days

> > > on,

> > > > 28

> > > > > days

> > > > > > off

> > > > > > > for 6 months. Any advice on this treatment plan?

> What

> > > > > > experiences

> > > > > > > have people had with side effects of this

treatment?

> > > Any

> > > > > > information

> > > > > > > would be appreciated.

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

Hi Mike,

We live right outside of Albany, in a town called Voorheesville. My

parents live near by in Delmar, and it is my mom that has the stage 3

colon cancer.

I'm am shocked at the number of young people that have this cancer.

What a pleasant suprise to be downgraded, good for you. I fear the

opposite for my mom, but am trying to keep optimistic.

Who did you see at Sloan? Was it just for a second opinion or are you

treated there? The only info about treatment (and he also said 5FU

and luk) we have is from the oncologist when he visited herin the

hosp. after surgery when she received the news that 4 of 16 nodes

were positive. We have an office app't with him on the 29th of this

month and the next day we go to Sloan. Any info you can share about

your Sloan experience would be appreciated. How we can get the most

out of the second opinion visit? Thanks, I hope the best for you,

Theresa

> > > > > > > > my mom had a colon resection two years ago, and had

> two

> > > > > > positive

> > > > > > > nodes. she had chemo every other week for six months

> and

> > > > > > responded

> > > > > > > to it well, with no serious side effects. now, two

> years

> > > > > later,

> > > > > > her

> > > > > > > CEA has been rising but so far the CT scan has not

> > revealed

> > > > any

> > > > > > > lesions or tumors, although the oncologist thinks it

> may

> > > > only

> > > > > be

> > > > > > a

> > > > > > > matter of time. in any case, when she had the chemo

> she

> > > was

> > > > > 84,

> > > > > > and

> > > > > > > did pretty well with it.

> > > > > > > > stage 3 -

comments

> on

> > > > chemo

> > > > > > plan

> > > > > > > >

> > > > > > > >

> > > > > > > > My mom (72 years old)had her colon resection on

> 8/25,

> > > > and

> > > > > was

> > > > > > > told

> > > > > > > > she had 4 positive lymph nodes, which put her at

> > stage

> > > > 3.

> > > > > > The MD

> > > > > > > > plans on treating her with 5FU and leukovorin, 5

> days

> > > > on,

> > > > > 28

> > > > > > days

> > > > > > > off

> > > > > > > > for 6 months. Any advice on this treatment

plan?

> > What

> > > > > > > experiences

> > > > > > > > have people had with side effects of this

> treatment?

> > > > Any

> > > > > > > information

> > > > > > > > would be appreciated.

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

Hi Rich,

To be perfectly honest w/you once the colorectal doctor here in Long

Island told me it was cancer. I went straight to Sloan as it is one

of the world's best. Dr. Veach is not my doctor but from what I here

every doctor in that area is top notch. My dealings w/MSK has been

nothing but positive. If you need additional infor or if you have any

other questions please feel free to contact me.

kenneth_odonnell@...

No Surrender!

-Ken

> > > > > > > my mom had a colon resection two years ago, and had

two

> > > > > positive

> > > > > > nodes. she had chemo every other week for six months

and

> > > > > responded

> > > > > > to it well, with no serious side effects. now, two

years

> > > > later,

> > > > > her

> > > > > > CEA has been rising but so far the CT scan has not

> revealed

> > > any

> > > > > > lesions or tumors, although the oncologist thinks it

may

> > > only

> > > > be

> > > > > a

> > > > > > matter of time. in any case, when she had the chemo

she

> > was

> > > > 84,

> > > > > and

> > > > > > did pretty well with it.

> > > > > > > stage 3 - comments

on

> > > chemo

> > > > > plan

> > > > > > >

> > > > > > >

> > > > > > > My mom (72 years old)had her colon resection on

8/25,

> > > and

> > > > was

> > > > > > told

> > > > > > > she had 4 positive lymph nodes, which put her at

> stage

> > > 3.

> > > > > The MD

> > > > > > > plans on treating her with 5FU and leukovorin, 5

days

> > > on,

> > > > 28

> > > > > days

> > > > > > off

> > > > > > > for 6 months. Any advice on this treatment plan?

> What

> > > > > > experiences

> > > > > > > have people had with side effects of this

treatment?

> > > Any

> > > > > > information

> > > > > > > would be appreciated.

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

Hi Theresa,

In response to your inquires, I went to Sloan for a second opinion.

I initially went to stown, and although the doctor and facility

were good, the treatment they proposed was not acceptable to me. My

doctor is Dr. Guillem. I think he and his staff are very good, and I

have nothing but good things to say about them.

One of the male nurses was extremely abusive to one of the older

patients there. If I told you what actually occurred, you would be

very shocked. I turned him in, but am not sure what became of him.

He was the exception however. Everyone else was extremely pleasant.

I'm going back for xrays and checkup on Nov. 14 & 21. I had to get a

temporary illeostomy during my surgery, and will hopefully be getting

it reversed sometime this year.

Mike

> > > > > > > > > my mom had a colon resection two years ago, and

had

> > two

> > > > > > > positive

> > > > > > > > nodes. she had chemo every other week for six

months

> > and

> > > > > > > responded

> > > > > > > > to it well, with no serious side effects. now, two

> > years

> > > > > > later,

> > > > > > > her

> > > > > > > > CEA has been rising but so far the CT scan has not

> > > revealed

> > > > > any

> > > > > > > > lesions or tumors, although the oncologist thinks

it

> > may

> > > > > only

> > > > > > be

> > > > > > > a

> > > > > > > > matter of time. in any case, when she had the

chemo

> > she

> > > > was

> > > > > > 84,

> > > > > > > and

> > > > > > > > did pretty well with it.

> > > > > > > > > stage 3 -

> comments

> > on

> > > > > chemo

> > > > > > > plan

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > My mom (72 years old)had her colon resection on

> > 8/25,

> > > > > and

> > > > > > was

> > > > > > > > told

> > > > > > > > > she had 4 positive lymph nodes, which put her

at

> > > stage

> > > > > 3.

> > > > > > > The MD

> > > > > > > > > plans on treating her with 5FU and leukovorin,

5

> > days

> > > > > on,

> > > > > > 28

> > > > > > > days

> > > > > > > > off

> > > > > > > > > for 6 months. Any advice on this treatment

> plan?

> > > What

> > > > > > > > experiences

> > > > > > > > > have people had with side effects of this

> > treatment?

> > > > > Any

> > > > > > > > information

> > > > > > > > > would be appreciated.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >