Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hi everyone hope ya'll are feeling good today. We have a trampoline for the girls Now my oldest she jumps on it but the NSG said he would perfer Shelby not jump. I'll be the first to say we have cheated alittle with her. I do let her jump for alittle while but with no one on it and she is not allowed to do flips and other stuff just litely jump. Hey shes 6, maybe I'm wrong We did get her a swing set and bought her a new bike and that does keep her off that trampoline, she hardly gets on it anymore. We also go to the lake alot during the summer, tubing and skiing now the dr. did say he did not want Shelby riding the tubes anymore that was to much trauma to her neck, so I bought her a bunch of water toys and when they got out tubing we stay at camp and play. She hasnt missed that one much. ((((((((HUGS)))))))) Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 I don't think it is being over-protective to say NO to trampolines. I got hurt on one in high school (wrenched my knee). IF your child can't resist and is going to be on a trampoline, make sure he is the only one on it. (our neighbors have 4 or 5 kids on at once--- with no adult supervision). has NOT had surgery, but I asked her neurosurgeon (highly recommended on the list) if parasailing could cause her neck to jerk around too much and cause her to have increased symptoms and this is what he wrote: " It is certainly possible, but there is really no data on what exactly sets up the symptoms. You may wish to let her decide with parental consideration? " even the experts don't agree on what can and can't cause symptoms to flare up. As far as gymnastics goes. Our friends have a daughter who had decompression surgery at University of Michigan. She also has a shunt and is on seizure medication. they told her the ONLY thing they didn't want her doing was playing soccer. She has taken gymnastics for a few years now. SHe loves it and doesn't have any Chiari symptoms. I asked what she thought about the trampoline issue and she said , Well, if you aren't supposed to jerk your head around, you probably shouldn't be on a trampoline. " ('s mom) is 13 y/o ACM 1, Dx:July ' 99 20 mm herniation (has not had surgery) Symptoms are mild: headaches & migraines (controlled with Amitriptylene) [headaches are not the typical occipital ones--she ALWAYS has them in her forehead and occasionally on the sides of her head above her ears], tremors in her shoulder, tingling in her hands, frequent stomach-aches, ringing in her ear with ANY pain, stabbing pains in her arms and legs that come and go, numb spots, ear pain, head pain, chronic lower back pain, hands and knees shaking, chest pain 6/99 compression fractures of T 7 And T 9. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 In a message dated 4/24/01 8:02:32 AM Central Daylight Time, dsh79758@... writes: > We also go to the lake alot during the summer, tubing and skiing > now the dr. did say he did not want Shelby riding the tubes anymore > Is this on a tube being pulled behind a boat? After watching the way people get tossed around behind a boat, I don't think anyone should be doing that. I would think there would be many injuries from tubing. ('s mom) is 13 y/o ACM 1, Dx:July ' 99 20 mm herniation (has not had surgery) Symptoms are mild: headaches & migraines (controlled with Amitriptylene) [headaches are not the typical occipital ones--she ALWAYS has them in her forehead and occasionally on the sides of her head above her ears], tremors in her shoulder, tingling in her hands, frequent stomach-aches, ringing in her ear with ANY pain, stabbing pains in her arms and legs that come and go, numb spots, ear pain, head pain, chronic lower back pain, hands and knees shaking, chest pain 6/99 compression fractures of T 7 And T 9. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 - I have a 4 year daughter, who thank god, so far shows no symptoms. But I too, like you - wonder what things she should be allowed and not allowed to do. Such a trampoline, gymnastics, roller coasters, I sure do not want to aggrevate this monster. If anyone has any suggestions please post. thanks, Rita Trampolines & kids I just want to make sure I am not being an overprotective parent. Many of our neighbors have trampolines. Both of my children have chiari. , who is 9, was decompressed in 97 and doing well. Noah, is 5, and being decompressed in June. I will not allow them to go on the trampolines. Noah came home crying the other day because a neighbor boy told him he can not go on the trampoline because he has to have brain surgery. It is SO hard. I do not want to put my kids in a plastic bubble, BUT I do not want to cause more problems. Noah was on a very small trampoline at preschool the other day and he told his teacher he got a bad headache. I just wondered what other parents views are on this? Am I being overprotective????? Newcomb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Sheri - has Shelby been decompressed yet? Why can't she ride water tubes? Skiing I think I could understand, easy chance of falling and messing w/spinal cord but laying in a raft? See why we are so confused?!? Re: RE: Trampolines & kids Hi everyone hope ya'll are feeling good today. We have a trampoline for the girls Now my oldest she jumps on it but the NSG said he would perfer Shelby not jump. I'll be the first to say we have cheated alittle with her. I do let her jump for alittle while but with no one on it and she is not allowed to do flips and other stuff just litely jump. Hey shes 6, maybe I'm wrong We did get her a swing set and bought her a new bike and that does keep her off that trampoline, she hardly gets on it anymore. We also go to the lake alot during the summer, tubing and skiing now the dr. did say he did not want Shelby riding the tubes anymore that was to much trauma to her neck, so I bought her a bunch of water toys and when they got out tubing we stay at camp and play. She hasnt missed that one much. ((((((((HUGS)))))))) Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 > Sheri - has Shelby been decompressed yet? > Why can't she ride water tubes? Skiing I think > I could understand, easy chance of falling and > messing w/spinal cord but laying in a raft? > See why we are so confused?!? > Actually I don't think this is confusing at all........However, there is tubing and then there is TUBING!!! I also passed on a tubing excursion for fear of injury....We were going down a river where there were some small " white water " areas...and you " sit " pretty low in these big tires...your head/neck has the perfect " opportunity " to bounce around on these hard rubber tires...it can end up in some pretty weird angles,too. Arrgghhh...hurts to think about it. In the instance of kids... " laying around " ..I wouldn't be quite so concerned. Except, with kids, how often do the just lay around??? I have mental pictures of jumping from tire to tire....trying to upset the other person's tire..etc...etc...etc....The old neck is in some pretty vulnerable positions with these. I would want to know the kids involved pretty well... Sorry to be a spoil sport...but with all these things, I think that you have to put them in perspective.... enjoyment VS. risk!! Tough decisions.... Best wishes, Sally R...ACM..Decompression '91..Hydro .. VP shunt.... 2 revisions...NO medications... doing well in Bethlehem,Pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 hi lisa, hope you are doing well. about the trampoline thing...i would be pulled two ways, first i can totally understand the other mom..not because of 'upcoming brain surgery' (i might have found a gentler way to put it) but she might be worried that something she let noah do, may cause him to be in pain.... on the other hand....i would be inclined to let noahs body tell him if its too much on him. maybe you can find one of those little excercise trampolins for at home...he is only five and wouldnt need a great big one, and he might not feel left out if he has one of 'his own' its hard for me to watch kerry riding his bike or learning to use his skateboard and not flip out ( " stop, slow down, be careful " ) but its so important for kids to do 'normal' things. tracy in il.---son 10y/o acm1-- 7mm--surgery scheduled june 1st '01 http://www.delphi.com/chiarifriends/start On Mon, 23 Apr 2001 23:57:02 -0500 " jlnewcomb " writes: > I just want to make sure I am not being an overprotective parent. > Many of our neighbors have trampolines. Both of my children have > chiari. , who is 9, was decompressed in 97 and doing well. > Noah, is 5, and being decompressed in June. I will not allow them > to go on the trampolines. Noah came home crying the other day > because a neighbor boy told him he can not go on the trampoline > because he has to have brain surgery. > It is SO hard. I do not want to put my kids in a plastic bubble, > BUT I do not want to cause more problems. Noah was on a very small > trampoline at preschool the other day and he told his teacher he got > a bad headache. > I just wondered what other parents views are on this? Am I being > overprotective????? > Newcomb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Yes we pull the tubes behind the boat. I did not know then that Shelby had ACM so we have stopped doing that. She would ride in my lap when on the tube now we just float on watch. I got hurt real bad last summer when my brother in law pulled me and I hurt my neck so I dont ride any more either. I have wondered if that is the reason why I hear those popping and crackling noises in my head. (((((((HUGS)))))) Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 , NO. You are loving your children! In my opinion, trampolines, especially could be bad for Chiarians. Because not only do they press down the brain and cause the fluid dynamics of the brain to " slosh " about. It also puts pressure at the bottom of the spine in the lumbar area. In my career working in trauma. I have known for a man to break his ankles and his neck when he landed on a hard surface after falling from a building two stories. Now, I realize this is an exaggeration. But, notice that he broke ANKLES and NECK. This is weird. But, it is the exertion that is applied to the spine called the compression effect that could cause damage to a Chairian. I believe this. And, with my own experience of trampolines and headaches. I only tried my kids trampoline that they got a couple years ago just once. That was enough to convince me to not ever do it again. My head hurt bad for hours after that. Others may feel different. And, I am not against all types of physical activity. But, this exertion on the spine seems harsh for our condition. And, it is so repetitive. They jump at times for an hour or more. Ask your children's doc. By the way. I have one of those cages on my kids trampoline. Am I too protective? No, we love them and don't want them to get hurt. You are just using the mother instinct that God has trusted you with for your children. You love your children. You are not too tough. Just help them understand. And, then perhaps tell the parent of the child that made the comment about the brain surgery to talk to their children. Then, maybe you could replace your child's need for the trampoline with another gift of your choice and within your budget. They may appreciate that. What about a remote controlled airplane or boat if you are near water? Neat! in Ala. On Mon, 23 Apr 2001 23:57:02 -0500 " jlnewcomb " writes: > I just want to make sure I am not being an overprotective parent. > Many of our neighbors have trampolines. Both of my children have > chiari. , who is 9, was decompressed in 97 and doing well. > Noah, is 5, and being decompressed in June. I will not allow them > to go on the trampolines. Noah came home crying the other day > because a neighbor boy told him he can not go on the trampoline > because he has to have brain surgery. > It is SO hard. I do not want to put my kids in a plastic bubble, > BUT I do not want to cause more problems. Noah was on a very small > trampoline at preschool the other day and he told his teacher he got > a bad headache. > I just wondered what other parents views are on this? Am I being > overprotective????? > Newcomb ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
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