Re: Pain meds

[Guest guest]

That was me asking that original question. I'm sorry you had to go through

so much of an ordeal. The next time I see my doctor, I'm going to talk to

him about this. I can take one of those Aleve Liqui-Gels, but I'm taking it

so often now, that it's messing up my stomach. The ultram + the Aleve helps

...but I'm not ready for a third stomach ulcer, which is what I think I'm

working on here.

I seriously don't want to get the meds just so that I can get a buzz going.

That's not my intent at all. I just have to convince my doc of that.

Thanks for your response.

-- Pain meds

Hello,

I saw somewhere and now can not find it, that someone was wondering

How to get their doctor to give them their pain meds without them

Thinking they are just trying to get pain meds. I was having trouble

Getting a higher dose or a stronger pain med for the last 6 months. I

Discussed it with my rhem. When I saw her. I called the office three

Times when my flare was starting. It got really bad on day 2 so I

Called the office 3 more times then I called when the forwarding

Service was turned on and told them that I had called 6 times in the

Last 2 days because of my pain. My doctor called me back immediately,

I had the meds I needed, but I had to be very aggressive and let them

Know that what I had was not working and that I was in severe pain. It

Helped that I had discussed with her the need for something stronger

During a flare in advance so now she gives me a small supply of a

Stronger narcotic so I can get infront of the flares, but I had to be

Assertive and demand that they take me seriously before they did.

[Guest guest]

I was taking cymbalta it worked real well.. But it effected my vision.. So

as far as pain I have

To tough it out.. I have some pain meds I take when it gets real bad and

flexeril at night to help

Me sleep..

Bet

-- Re: Re: Pain meds

Hi,

I've been on Lyrica for several months. I take 2 75s in the am and 2 75s in

the pm. I love it. The restless legs are bearable and I have less pain. At

first I was a little tired when I took it but that went away. If I forget to

take it, I know it and go get my pills. I tried nuerotin and the only thing

I got was was sleep. I was groggy if I wasn't sleeping. I have some

neuopathy in my legs and at times they are very cold and it takes atleast

2hrs to get them warm even when swaddling them. This even happens in the

summer without air conditioning. The rest of my body can be sweatting. We

don't know if this is from the fibro or the diabetes.

Judy

---- charchar1974 wrote:

> Barb do you notice any major side effects from the Lyrica? Charisse

[Guest guest]

Charisse so far I have had no side effects from the Lyrica at all. I

too am very sensitive to meds and just about any kind of chemicals,

but I haven't had any from Lyrica yet. One of the " possible " side

effects is weight gain, but I haven't any weight gain since taking

it...yet. I really have noticed a definite decrease in my pain since

I've been taking. It might be something you would want to discuss with

your doc. I have tried soooo many different types of pain meds and

honestly until I started taking the Lyrica I have had no relief from

my pain. Now I really feel so much better, even more alive. I would

recommend anyone with FM to give it a try. After all we've tried

everything else, this might be the one thing that actually will help

ease the bite of it.

Barb

> > >

> > > I went to my Dr last week and had my pain meds changed. She

> gave me

> > Tylenol

> > > #3.

> > > Not working. I would like to know what kind of pain patches and

> > meds you

> > > take. I am going to call her back this afternoon and am looking

> for

> > what to

> > > ask for

> > > Thank

> > > Patsy

> > > (juneybug on Yahoo IM)

> > >

> >

>

[Guest guest]

, I cant find it in my book, is there one other nsme?Lycria

> >

> > I went to my Dr last week and had my pain meds changed. She gave

me

> Tylenol

> > #3.

> > Not working. I would like to know what kind of pain patches and

> meds you

> > take. I am going to call her back this afternoon and am looking

for

> what to

> > ask for

> > Thank

> > Patsy

> > (juneybug on Yahoo IM)

> >

>

[Guest guest]

I was so very happy to see in one of my monthly newsletters that the FDA had

approved this drug for fibro and not only that, but on Monday evening, I

actually hear someone on a television new program ACTUALLY MENTION

FIBROMYALGIA!!!!

I am so happy that there is finally some doctors and pharmacuetical companies

working to find help and support for those of us who have this diabilitating

disorder. I will never forget working for a small organization in Chicago in

the early 1980s and having to explain to the office manager, the controller and

perhaps others that there were times when I ABSOLUTELY could not take the empty

coffee pot to the nearest sink and fill the pot as I could not carry it back to

the office. I know they all thought I was faking it!! Had they actually

witnessed the fact that some mornings I could not get out of bed with out

assistance, I am not certain they would have believed me even then.

And since my first episode occurred in the spring of 1978, every doctor that I

saw for twenty years attempted to determine what was causing the pain --- they

could see it in my face, I will never understand why co-workers could not! (I

suppose, though, when you show up for work everyday, your co-workers think you

are ok!) I find it interesting, Barb, that the Wellbutrin is proscribed for you

by your rhuemy --- as I see a pyschiatrist for depression she has decided that

SHE is the appropriate person to prescrib that drug, the valium and also one

other med that I take which that could also be a psychotropic drug but which I

do not use for those reasons!! I finally got mad at her back in the winter and

said they had never been prescribed by anyone other than my pcp --- didn't

change her mind! But, on the other hand, I am counting the number of

appointments I still need to have with her before my husband retires and we move

back to the midwest! I have told my psychologist that I am tempted to call the

doctor I saw in a major midwestern city for a number of years and start flying

out there to see him rather than go thru the " Hello, m'am, how are you? Thank

you, M'am, see you in 3 months! " I realize that is the way the game is played

but I do think my old shrink would NOT treat me so rudely. Oh, my wellbutrin is

300 mg which I take one of each am.

[Guest guest]

> > >

> > > I went to my Dr last week and had my pain meds changed. She

gave

> me

> > Tylenol

> > > #3.

> > > Not working. I would like to know what kind of pain patches and

> > meds you

> > > take. I am going to call her back this afternoon and am

looking

> for

> > what to

> > > ask for

> > > Thank

> > > Patsy

> > > (juneybug on Yahoo IM)

> > >

> >

>

Message to whomever was looking for Lycria, as someone mentioned

earlier, the FDA has JUST either announced it or somehow made the

public aware that they have approved Lycria for Fibro. Several

double blind studies were done and the result were very promising! I

do hope so! Last drug that I found most effective was voluntarily

withdrawn from market some years ago as they had discovered it was

also effective for dental patients and I don't think dentists were

given enough info about prescribing directions --- individuals WERE

NOT to take drug for more than a 10 day period. For me, I could take

one pill on a Saturday morning and spend entire day working in my

garden! I was very angry when it was taken off market. I did have

inside contacts and was told at the time that someone else might buy

the patent and tweek it so that it could once again be on the

market. Last time I called, it had not be purchased. I do think I

will ask about the new drug. Would be better than the pain!!! And

the tiredness I feel as a result of it and the side effects such as

lack of sleep!

[Guest guest]

Thanks Barb. I see my rheumy again in August so I will ask him. I

have a feeling he will want to get me off the Ambien first but we

shall see. Charisse

> > > >

> > > > I went to my Dr last week and had my pain meds changed. She

> > gave me

> > > Tylenol

> > > > #3.

> > > > Not working. I would like to know what kind of pain patches

and

> > > meds you

> > > > take. I am going to call her back this afternoon and am

looking

> > for

> > > what to

> > > > ask for

> > > > Thank

> > > > Patsy

> > > > (juneybug on Yahoo IM)

> > > >

> > >

> >

>

[Guest guest]

Drs. do have a real problem with prescribing pain meds. I had to

get a new PCP and one absolutely would not take me because I was

taking pain meds. I tried to explain that it was my rheumy who

prescribed them, but that didn't matter. Did you ever?

Instead of Alevel with Ultram, try Tylenol with Ultram. In fact you

can get Ultracet, which is Ultram with Tylenol. When I need a boost

I add the tylenol. It does boost the efficacy of the Ultram. You

can safely take 100mg Ultram 4X/day, but no more. Otherwise it can

cause seiures. I very rarely take that much, just to be safe.

For more severe pain, my rheumy gives me hydrocodone. I wasn't

given that in the beginning, but when I got into my first bad

flare. It was given to me to stop the pain cycle, because it can

become like a run away train. If a flare begins, it is important to

get ahead of it. That is where the narcotics are useful. I don't

believe they should be used for what I call " everyday pain. " She

will continue to keep up my prescription for hydrocodone as long as

I keep my appts. to see her which now are only twice/year, unless I

call and request another. Works out fine.

I asked her about Lyrica my last visit a month ago. She said she

wasn't ready to prescribe it yet. She was waiting until more info

came out as to how well it worked, side effects, etc. I told her I

probbly would not be interested because of the weight gain. I have

read that that is one side effect that the manufacturers are

concerned about. I have had enough trouble with weight gain before,

I'm not going to chance it again.

I feel satisfied with what I have now. I also take Flexiril up to

3X/day if I need to, and Fioricet for headaches and Topamax for

migraines. So, basically, I feel I have the meds I need and enough

of them to manage my pain as I see fit. That does give me a sense

of control for which I am grateful. It may not be perfect, but I

don't feel helpless or at anyone's mercy. Perhaps that is why it is

working for me. I feel as if I am being treated as a human being.

Thank God.

For those of you who just can't find anyone to treat you properly,

is there not a Dr. referral service in your area that lists Drs. and

their specialities where you can find one who treats fibromyalgia?

Pain specialists you would think could help you, but I think I would

go to a rheumatologist first. There has to be somebody. I would

look in the phone book and start calling every one in the list,

asking if he/she treated fibro.

In the beginning, when I went to my rheumy, I was reading so many

books, I would take in a list of questions based on stuff I had

read. If he hadn't been willing to answer my questions, I think I

would have found another dr.

It is a lot of work trying to manage this illness. We all should

get special rewards.

Carley

[Guest guest]

Oh yes, when he first diagnosed my FM 5yrs. ago he started me out on

low doses of cymbalta and flexeral. I did not tolerate the cymbalta at

all so he switched me over to low doses of welbutrin. I also did not

tolerate the flexeral well at all and so stop taking it. Over time he

increased my welbutrin until I'm where I'm at today, 200mg twice a

day. And he was very positive about the Lyrica. He thinks it will be a

very effective pain management med. So I agreed to give it a try and

am very happy I did. I feel it is helping my pain very well and I feel

so much better...more alive then I've felt in a long time.

Barb

>

>

> I was so very happy to see in one of my monthly newsletters that the

FDA had approved this drug for fibro and not only that, but on Monday

evening, I actually hear someone on a television new program ACTUALLY

MENTION FIBROMYALGIA!!!!

> I am so happy that there is finally some doctors and pharmacuetical

companies working to find help and support for those of us who have

this diabilitating disorder. I will never forget working for a small

organization in Chicago in the early 1980s and having to explain to

the office manager, the controller and perhaps others that there were

times when I ABSOLUTELY could not take the empty coffee pot to the

nearest sink and fill the pot as I could not carry it back to the

office. I know they all thought I was faking it!! Had they actually

witnessed the fact that some mornings I could not get out of bed with

out assistance, I am not certain they would have believed me even then.

> And since my first episode occurred in the spring of 1978, every

doctor that I saw for twenty years attempted to determine what was

causing the pain --- they could see it in my face, I will never

understand why co-workers could not! (I suppose, though, when you show

up for work everyday, your co-workers think you are ok!) I find it

interesting, Barb, that the Wellbutrin is proscribed for you by your

rhuemy --- as I see a pyschiatrist for depression she has decided that

SHE is the appropriate person to prescrib that drug, the valium and

also one other med that I take which that could also be a psychotropic

drug but which I do not use for those reasons!! I finally got mad at

her back in the winter and said they had never been prescribed by

anyone other than my pcp --- didn't change her mind! But, on the

other hand, I am counting the number of appointments I still need to

have with her before my husband retires and we move back to the

midwest! I have told my psychologist that I am tempted to call the

doctor I saw in a major midwestern city for a number of years and

start flying out there to see him rather than go thru the " Hello,

m'am, how are you? Thank you, M'am, see you in 3 months! " I realize

that is the way the game is played but I do think my old shrink would

NOT treat me so rudely. Oh, my wellbutrin is 300 mg which I take one

of each am.

>

[Guest guest]

You know to this day I always take a list of questions with me when I

go see my rhuemy. Your so very right Carley...it's alot of work

managing this illness.

Barb

>

> Drs. do have a real problem with prescribing pain meds. I had to

> get a new PCP and one absolutely would not take me because I was

> taking pain meds. I tried to explain that it was my rheumy who

> prescribed them, but that didn't matter. Did you ever?

>

> Instead of Alevel with Ultram, try Tylenol with Ultram. In fact you

> can get Ultracet, which is Ultram with Tylenol. When I need a boost

> I add the tylenol. It does boost the efficacy of the Ultram. You

> can safely take 100mg Ultram 4X/day, but no more. Otherwise it can

> cause seiures. I very rarely take that much, just to be safe.

>

> For more severe pain, my rheumy gives me hydrocodone. I wasn't

> given that in the beginning, but when I got into my first bad

> flare. It was given to me to stop the pain cycle, because it can

> become like a run away train. If a flare begins, it is important to

> get ahead of it. That is where the narcotics are useful. I don't

> believe they should be used for what I call " everyday pain. " She

> will continue to keep up my prescription for hydrocodone as long as

> I keep my appts. to see her which now are only twice/year, unless I

> call and request another. Works out fine.

>

> I asked her about Lyrica my last visit a month ago. She said she

> wasn't ready to prescribe it yet. She was waiting until more info

> came out as to how well it worked, side effects, etc. I told her I

> probbly would not be interested because of the weight gain. I have

> read that that is one side effect that the manufacturers are

> concerned about. I have had enough trouble with weight gain before,

> I'm not going to chance it again.

>

> I feel satisfied with what I have now. I also take Flexiril up to

> 3X/day if I need to, and Fioricet for headaches and Topamax for

> migraines. So, basically, I feel I have the meds I need and enough

> of them to manage my pain as I see fit. That does give me a sense

> of control for which I am grateful. It may not be perfect, but I

> don't feel helpless or at anyone's mercy. Perhaps that is why it is

> working for me. I feel as if I am being treated as a human being.

> Thank God.

>

> For those of you who just can't find anyone to treat you properly,

> is there not a Dr. referral service in your area that lists Drs. and

> their specialities where you can find one who treats fibromyalgia?

> Pain specialists you would think could help you, but I think I would

> go to a rheumatologist first. There has to be somebody. I would

> look in the phone book and start calling every one in the list,

> asking if he/she treated fibro.

>

> In the beginning, when I went to my rheumy, I was reading so many

> books, I would take in a list of questions based on stuff I had

> read. If he hadn't been willing to answer my questions, I think I

> would have found another dr.

>

> It is a lot of work trying to manage this illness. We all should

> get special rewards.

>

> Carley

>

[Guest guest]

it is spelled: L Y R I C A

Hope this helps.

Barb

> > > >

> > > > I went to my Dr last week and had my pain meds changed. She

> gave

> > me

> > > Tylenol

> > > > #3.

> > > > Not working. I would like to know what kind of pain patches and

> > > meds you

> > > > take. I am going to call her back this afternoon and am

> looking

> > for

> > > what to

> > > > ask for

> > > > Thank

> > > > Patsy

> > > > (juneybug on Yahoo IM)

> > > >

> > >

> >

> Message to whomever was looking for Lycria, as someone mentioned

> earlier, the FDA has JUST either announced it or somehow made the

> public aware that they have approved Lycria for Fibro. Several

> double blind studies were done and the result were very promising! I

> do hope so! Last drug that I found most effective was voluntarily

> withdrawn from market some years ago as they had discovered it was

> also effective for dental patients and I don't think dentists were

> given enough info about prescribing directions --- individuals WERE

> NOT to take drug for more than a 10 day period. For me, I could take

> one pill on a Saturday morning and spend entire day working in my

> garden! I was very angry when it was taken off market. I did have

> inside contacts and was told at the time that someone else might buy

> the patent and tweek it so that it could once again be on the

> market. Last time I called, it had not be purchased. I do think I

> will ask about the new drug. Would be better than the pain!!! And

> the tiredness I feel as a result of it and the side effects such as

> lack of sleep!

>