Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 Lynn, honey, I will not take the Remeron, it will only make me worse. I have been positive for lupus since 1991 and it goes in cycles. Take care...we all love you........Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````````````` Re: Breast implants - suicide risk gets press coverage Lea ~ The appointment was basically as all my other ones are. Boy your case is complicated, and you have a lot going on, and that is about it. My heart has been doing good, but hey, when you have been in bed basically for 3 weeks, what can you expect. Again, they dont listen to me that I have low blood pressure, with spikes and dips that dont last a long time. Usually when I am feeling really bad, the spikes and dips I have are frequent, otherwise only a couple times a day. The guy was gonna double my beta blocker, but didnt after me telling him it goes so low. I dont know why they are so hell bent on assuming I have high blood pressure. My blood pressure unless I feel bad is usually 90-100/60-75, and this is OFF medicines. that is low ! ! He was saying something about my systolic being 100 or lower, and not wanting it that low......... ..geeze Mr, clean out your ears ! ! Anyway, he said to resume my activities and he wants to see me in 3 months...... so I guess I have to see the regular cardio to get clearance for the surgery. I think in Austin, none of the doctors are smart enough to handle a case like mine. It seems pretty simple to me......sure I have alot going on, but you see, to get rid of the instigator (implants) will allow me to heal the rest of the things...... ..... I had the worse pancreatic pain all night last night....... ....it has settled down some, but is still there. I havent eaten anything.... scared to.....lololol. ..... I cant do that pain again today, and havent slept. Lea, I thought of you during all that as you just had a rough one too. I hope your doc had good news for you, so I am gonna read on for a bit, then will be laying my bum down for a rest........ ....Love you ~ Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 Lea, if you don't have to - I wouldn't either. I hated taken the drug because it made me super foggy and my memory was bad. I didn't feel like myself, not clear minded. Lea, I hope you feel better soon. You have been having so many bad days, I am so sorry. Love, Lynn Re: Breast implants - suicide risk gets press coverage Lea ~ The appointment was basically as all my other ones are. Boy your case is complicated, and you have a lot going on, and that is about it. My heart has been doing good, but hey, when you have been in bed basically for 3 weeks, what can you expect. Again, they dont listen to me that I have low blood pressure, with spikes and dips that dont last a long time. Usually when I am feeling really bad, the spikes and dips I have are frequent, otherwise only a couple times a day. The guy was gonna double my beta blocker, but didnt after me telling him it goes so low. I dont know why they are so hell bent on assuming I have high blood pressure. My blood pressure unless I feel bad is usually 90-100/60-75, and this is OFF medicines. that is low ! ! He was saying something about my systolic being 100 or lower, and not wanting it that low......... ...geeze Mr, clean out your ears ! ! Anyway, he said to resume my activities and he wants to see me in 3 months...... so I guess I have to see the regular cardio to get clearance for the surgery. I think in Austin, none of the doctors are smart enough to handle a case like mine. It seems pretty simple to me......sure I have alot going on, but you see, to get rid of the instigator (implants) will allow me to heal the rest of the things...... ..... I had the worse pancreatic pain all night last night....... ....it has settled down some, but is still there. I havent eaten anything.... scared to.....lololol. ..... I cant do that pain again today, and havent slept. Lea, I thought of you during all that as you just had a rough one too. I hope your doc had good news for you, so I am gonna read on for a bit, then will be laying my bum down for a rest........ ....Love you ~ Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Lynn, I find Primal Defense really helps me in that way too. Sadly, I have been told to go onto plain old probiotics because my naturopathic dr thinks that those soil organisms may further irritate my appendix:( Now I can't go to the bathroom either! That stuff works like magic! Katy:) --- Lynn <spinkscl@...> wrote: > Dede - LOL! I am happy he was cute because he > sounds like an idiot! Doesn't that piss you off > when you make the appointment WEEKS in advance, make > sure they have your records (or so you think) - - > all to show up and they don't know why you are > there!! COME ON! ERRR! This has happened to me > much too many times to count. Damn medical > profession. > > I hope you get them out ASAP too. Glad that the > report looks good! > > I am feeling okay dokee - nothing spectacular but > nothing too bad to complain about. Although, I > hadn't been taking my Primal Defense in a while > because I was going to have a stool testing. Well I > can't poop without it!! So I decided I didn't have > the money right now for the stool testing anyhow and > started my Primal Defense up last night. Boy can I > poop today - - that stuff works great on me but I > kind of have a stomach ache. > > Hugs & prayers Dede - love you - Lynn > > > Re: Breast implants - > suicide risk gets press coverage > > Hi Lynn ~ > The doctor appt went the same as usual. First off, > they didnt even know I had been in the hospital > until the end of the appointment. One of the last > questions the doc asked me was, has the device gone > off? I just started laughing, and said yes, 6 times > 3 wks ago, that is why I am here.......he said > OH........hum. .....I dont have your records from > Seton, so he called them.......Anyway, just another > doctor saying, I have a complicated case with alot > going on.........useless, except he was cute........ > LOL...... ..The ekg, and the device history and > check came out good. They adjusted things with it. > That was it. Want me to come back in 3 > months...... No, I wont wait that long to get these > pups out ! Unless I end up having to. We will > see. > Thank you for asking. How are you feeling today? > Love Dede > > > > > > > > Get a sneak peek of the all-new AOL.com. > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new at http://mrd.mail./try_beta?.intl=ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 No time to be sick.........what a powerful statement. Spending so much time of our lives so ill, is a waste of our precious time. Bless us all !~ DedeGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 I tell ya Lea, if it werent for all you wonderful people, I dont know where I would be right now. It is no secret that all this is depressing, and with family not being there for you, it is empty on top. Ya know they all are used to me being the caretaker, has them stumped now that I need them, they dont know how, so they just dont.......when they ask how I am, they really dont want to hear the truth, so " they" do better if I just say I am great.....being ill is rough enough, it is what it is, for now anyway ! Love you sweet Lea ~ DGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Lynn ~ That is a great attitude, and the only way to go. Bless her heart, I know chemo is a rough ride. How much longer will she be having it? You know, it is the love of life and living that helps you survive the rough spots...... I use imaginary alot to help me thru alot of the rough spots, and it helps so much. I just go into my mind an be the well Dede I was for 40 years. I imagine each and every organ as healthy and vital organs. I am fortunate that I have always been a very visual person. I visualize everything.....sometimes I wish I wouldnt, because some words have quite the visual......LOLOLOL...... I hope you have a nice and relaxing day today ! Love DedeGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Darling Lynn and Group: I am feeling better today, it looks like prayers do work. This morning I was able to have my oatmeal. I have cleaned the cat litters, and my bathroom...Lysol is not good for me, but I wear a mask. Lupus really does have a thousand faces, and this has been a bad flare...last night my vision was so bad that I could not stand any light. Lynn, thank you for sharing your experience with me. The Remeron will go back to the pharmicist; however, I have taken my first new Thyroid medication...Desiccated Thyroid. This means that I must keep a list of any good or bad symptoms. Sending love and hope to all....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`````````` Re: Breast implants - suicide risk gets press coverage Lea ~ The appointment was basically as all my other ones are. Boy your case is complicated, and you have a lot going on, and that is about it. My heart has been doing good, but hey, when you have been in bed basically for 3 weeks, what can you expect. Again, they dont listen to me that I have low blood pressure, with spikes and dips that dont last a long time. Usually when I am feeling really bad, the spikes and dips I have are frequent, otherwise only a couple times a day. The guy was gonna double my beta blocker, but didnt after me telling him it goes so low. I dont know why they are so hell bent on assuming I have high blood pressure. My blood pressure unless I feel bad is usually 90-100/60-75, and this is OFF medicines. that is low ! ! He was saying something about my systolic being 100 or lower, and not wanting it that low......... ..geeze Mr, clean out your ears ! ! Anyway, he said to resume my activities and he wants to see me in 3 months...... so I guess I have to see the regular cardio to get clearance for the surgery. I think in Austin, none of the doctors are smart enough to handle a case like mine. It seems pretty simple to me......sure I have alot going on, but you see, to get rid of the instigator (implants) will allow me to heal the rest of the things...... ..... I had the worse pancreatic pain all night last night....... ....it has settled down some, but is still there. I havent eaten anything.... scared to.....lololol. ..... I cant do that pain again today, and havent slept. Lea, I thought of you during all that as you just had a rough one too. I hope your doc had good news for you, so I am gonna read on for a bit, then will be laying my bum down for a rest........ ....Love you ~ Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Darling Dede, thank you for your prayers and candles. What would we do without this loving group of women? I know for me it is a gift of hope. They have helped me so much. is vacuuming our bedroom, bless his heart, because we have to keep everything so clean because of our cats. He has also been so worried about me going into respiratory distress again. It is because of this that we keep the nebulizer close by, as well as Pulmicort and Ventolin. I have liquid Nilstat in my mouth while I am writing this. I am taking both the Nilstat pills and the liquid Nilstat because I am on a massive dose of antibiotics again. Like our darling Lynda and Dr. Blais always say, it will cure me or kill me. When this garbage is removed, we hope that will help. Dr. Blais told us that whatever is in there keeps forming into a chronic golf-ball-size abscess. Each time that it breaks, the cyclic symptoms return. I am a good example of a woman who did not have a the capsules remoned properly. This has prevented me from getting well. Dede, take care, and your day will come...love you...Lea and Superman ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`````````````````` Re: Breast implants - suicide risk gets press coverage Lea, I will light my candles, and say special prayers tonight for you and all the ladies, I am so sorry you are feeling so horrible. Get some rest, and hopefully when you wake in the morning, you will feel much better ! Love Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Katy, well it is good to know that it wasn't just me. I hope your appendix issues resolves soon! ... Lynn Re: Breast implants -> suicide risk gets press coverage> > Hi Lynn ~ > The doctor appt went the same as usual. First off,> they didnt even know I had been in the hospital> until the end of the appointment. One of the last> questions the doc asked me was, has the device gone> off? I just started laughing, and said yes, 6 times> 3 wks ago, that is why I am here.......he said> OH........hum. .....I dont have your records from> Seton, so he called them.......Anyway, just another> doctor saying, I have a complicated case with alot> going on.........useless, except he was cute........> LOL...... ..The ekg, and the device history and> check came out good. They adjusted things with it. > That was it. Want me to come back in 3> months...... No, I wont wait that long to get these> pups out ! Unless I end up having to. We will> see. > Thank you for asking. How are you feeling today? > Love Dede > > > > > > > > Get a sneak peek of the all-new AOL.com.> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new at http://mrd.mail. / try_beta? .intl=ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Lea, I also tried the armour thryoid. I think it was too high of a dose though and I had some heart palps and other symptoms. I wish I had just 1/2ed the pill but instead told the doctor who told me to take the synthroid instead. I still have the armour and I might try it again but only a 1/2 of the pill and then work my way up. If you have any wierd flares, you may just wanted to lower the dose until your body gets used to it (oh, I had some numbness in my face too - both sides on both cheeks). I wished I had given it more of a chance. I am so happy you are feeling better! Wow, you have done so much today. I need to clean Eddie's litter box too - blah. Love, Lynn Re: Breast implants - suicide risk gets press coverage Lea ~ The appointment was basically as all my other ones are. Boy your case is complicated, and you have a lot going on, and that is about it. My heart has been doing good, but hey, when you have been in bed basically for 3 weeks, what can you expect. Again, they dont listen to me that I have low blood pressure, with spikes and dips that dont last a long time. Usually when I am feeling really bad, the spikes and dips I have are frequent, otherwise only a couple times a day. The guy was gonna double my beta blocker, but didnt after me telling him it goes so low. I dont know why they are so hell bent on assuming I have high blood pressure. My blood pressure unless I feel bad is usually 90-100/60-75, and this is OFF medicines. that is low ! ! He was saying something about my systolic being 100 or lower, and not wanting it that low......... ...geeze Mr, clean out your ears ! ! Anyway, he said to resume my activities and he wants to see me in 3 months...... so I guess I have to see the regular cardio to get clearance for the surgery. I think in Austin, none of the doctors are smart enough to handle a case like mine. It seems pretty simple to me......sure I have alot going on, but you see, to get rid of the instigator (implants) will allow me to heal the rest of the things...... ..... I had the worse pancreatic pain all night last night....... ....it has settled down some, but is still there. I havent eaten anything.... scared to.....lololol. ..... I cant do that pain again today, and havent slept. Lea, I thought of you during all that as you just had a rough one too. I hope your doc had good news for you, so I am gonna read on for a bit, then will be laying my bum down for a rest........ ....Love you ~ Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Dede - this is my dear mother-in-laws attitude with the breast cancer! She said she is not going to let this sickness ruin her life, she refuses to let it take over. She gets so sick (both ends) after she eats due to the chemo, she must be by a bathroom within an hour or so of eating. Well we didn't want to go out to dinner because of this but she wasn't going to allow this to stop her. She has such a great attitude! Lynn Re: Breast implants - suicide risk gets press coverage No time to be sick........ .what a powerful statement. Spending so much time of our lives so ill, is a waste of our precious time. Bless us all !~ Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Honey, I am on 60mg. this seems like a high dose, but we are willing to try it. Thank you for sharing some of your symptoms with me. Love you...Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``````````````````` Re: Breast implants - suicide risk gets press coverage Lea ~ The appointment was basically as all my other ones are. Boy your case is complicated, and you have a lot going on, and that is about it. My heart has been doing good, but hey, when you have been in bed basically for 3 weeks, what can you expect. Again, they dont listen to me that I have low blood pressure, with spikes and dips that dont last a long time. Usually when I am feeling really bad, the spikes and dips I have are frequent, otherwise only a couple times a day. The guy was gonna double my beta blocker, but didnt after me telling him it goes so low. I dont know why they are so hell bent on assuming I have high blood pressure. My blood pressure unless I feel bad is usually 90-100/60-75, and this is OFF medicines. that is low ! ! He was saying something about my systolic being 100 or lower, and not wanting it that low......... ..geeze Mr, clean out your ears ! ! Anyway, he said to resume my activities and he wants to see me in 3 months...... so I guess I have to see the regular cardio to get clearance for the surgery. I think in Austin, none of the doctors are smart enough to handle a case like mine. It seems pretty simple to me......sure I have alot going on, but you see, to get rid of the instigator (implants) will allow me to heal the rest of the things...... ..... I had the worse pancreatic pain all night last night....... ....it has settled down some, but is still there. I havent eaten anything.... scared to.....lololol. ..... I cant do that pain again today, and havent slept. Lea, I thought of you during all that as you just had a rough one too. I hope your doc had good news for you, so I am gonna read on for a bit, then will be laying my bum down for a rest........ ....Love you ~ Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Dede, she has 4 more chemos and 30 or 40 radiations. She should be finished around Thanksgiving. I hope you have a wonderful day too. I just got back from church and I am catching up on a week's worth of Days of our Lives and All My Childrens : ) (relaxing) Love, Lynn Re: Breast implants - suicide risk gets press coverage Lynn ~ That is a great attitude, and the only way to go. Bless her heart, I know chemo is a rough ride. How much longer will she be having it? You know, it is the love of life and living that helps you survive the rough spots...... I use imaginary alot to help me thru alot of the rough spots, and it helps so much. I just go into my mind an be the well Dede I was for 40 years. I imagine each and every organ as healthy and vital organs. I am fortunate that I have always been a very visual person. I visualize everything.. ...sometimes I wish I wouldnt, because some words have quite the visual...... LOLOLOL.. .... I hope you have a nice and relaxing day today ! Love Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Lea ~ You just described me to a T ! LOL.........oh, well..........I do my best......and I know you do too. I am glad to hear you are feeling better today. I think I have been in a constant flare since May 2003. I will be interested at how much of this goes away with these tits when they are gone. They are still growing. It is unbelievable. The left one is gonna need a wheelbarrow pretty soon to lug it around ! I just dont understand how this can be as I had all breast tissue removed......thru all those surgeries.........strange..........very strange ! You are in my prayers Lea, I hope you continue to feel better. How is your mouth? Love you ~ DedeGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Dede, you are so sweet, but it is true for me. It seems like I can never get everything done before a flare hits me again. I am feeling better again today...this is good. Most women are in the same situation as me, too sick to do the things that need to be done, and cannot afford to have a cleaning lady. Love you...Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`````` Re: Breast implants - suicide risk gets press coverage No time to be sick.........what a powerful statement. Spending so much time of our lives so ill, is a waste of our precious time. Bless us all !~ Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Lynn ~ Wow, she has lots of treatments to go, but what a nice thanksgiving it will be for her to be ca free ! Sounds like you had a good and relaxing day yesterday ! with good tube to watch ! I hope your day today is a good one and not too tiring ! Love DedeGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Dede, it was super stressful and I am so tired. I tried to take it easy but I had so much work waiting for me. I feel like crap right now, both of my calfs are throbbing in pain for some odd reason??? I went to a new endocrinologist today and I already know I am not going back. She doesn't think the T3 Free is a good indicator of anything. She said my heart palps are probably just anxiety - SHEESH - RIGHT. I am going to bed early tonight, can barely keep my lids open. How was your day? Lynn Re: Breast implants - suicide risk gets press coverage Lynn ~ Wow, she has lots of treatments to go, but what a nice thanksgiving it will be for her to be ca free ! Sounds like you had a good and relaxing day yesterday ! with good tube to watch ! I hope your day today is a good one and not too tiring ! Love Dede Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
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