Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Hi my Son Chad had decompressive surgery in 1987 at Uof M hosp. in MN.Considiering just how bad he was before surgery I guess he has come a long way. He presently has Basilar Evagination, Epithis Displasia, Microphalacy, Hearing inpaired bilatery,and a sever scalp condition causing scalp to bleed and reacuring sores,also loosing most of his hair from top and sides. Every April he had problems with his airway closing, gets very ill , coughing constanly and causing his neck extreme pain no amount of relief can be found. Since his surgery we have had no others to support with same disease. This AC group sounds likea god sent and you all seem so helpfull. We have only had a computer for 3 months so did not know that there was such a web site, just found it by reserching for AC 1 on the Web. Please email us and I will try to help you also being its been a 14 yr jurney since all this came into our lives. Thank You, Chad's Mom Marsha Quote Link to comment Share on other sites More sharing options...
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