Re: introduction

[Guest guest]

Ann,

Most of the doctors working in ALS clinics are familiar with PLS. They

will prescribe different things for you to do: Stretching exercises,

strength building exercises, what assistive devices you may need, etc.

You may ask them any questions you have and someone will get you an

answer if it can be found. The ALS clinics are good ones to visit, or so

I've heard. I only see one neurologist in Indianapolis IN, about 77

miles south of Logansport IN where I live. As far as doctors, or

neurologists, go in NY, I have no idea. I do know Beth Israel Hospital

has a center for PLS, or at least a specialist in that area. That is how

I found this group in Sept of 99. They have a service like " Call a

Nurse, " only it involves nurses and doctors. At that time, they had no

idea what PLS was and referred me to this site for help. I found it and

have made many email friends here. I have also learned a lot. This group

is very supportive.

Occasionally someone will bring up a subject that no one has mentioned

before and many of respond stating we have experienced the same thing or

something like it. This begins a dialogue that becomes very informative

and helps us understand ourselves and our " crappy " disease better.

Your question's answer is " I don't know. " Ask the doctors whom you see

at the clinic. They will either refer you or let you know what you are

asking. Sometimes, doctors just take for granted that we know what they

do or we just wouldn't understand. Neither is true. We want to know and

I have found that if I ask my neurologist a direct question, he will

give me an answer. Sometimes I don't like it, but he does give me an

answer. So......ask. You will get what you need.

Welcome to the group and feel free to ask us anything. Someone will give

you an answer, usually more definite than this one.

Mike Gray

suethepoet2003 wrote:

>I WAS CONFUSED WHEN I REGISTERED AND WAS ASKED FOR AN ID

>

>THE NAME I USED WAS SUETHEPOET I AM ANN HILL

>

>I AM USING A DOCTOR AT COLUMBIA PRESBYTERIAN IN NYC

>

>MY PROBLEM IS THAT IT IS AN ALS CENTER WHICH I KNOW IS VERY CONNECTED

>TO PLS

>

>THERE ARE SOME ISSUES THAT I HAVE THAT ALSERS DO NOT. DOES ANYONE

>KNOW A DOCTOR THAT IS MORE FAMILIAR WITH PLS OR ARE THEY ALL ALS WITH

>SOME KNOWLEDGE OF PLS. THANK YOU

>

>

>

>

>

[Guest guest]

> Hi

> I just joined and wanted to share my story. I'm grateful that a

site like

> this exists for support.

> I started with a yeast infection that would not go away. Did the

Terazol for

> 3 days then 7 days. Was given Diflucan a couple times. Any way to

get up to

> the present I've had this constant burning/irritation for almost 1

1/2 years.

> Been to numerous doctors was check for all STD's which were

negative and a

> couple times was told cultures for yeast were negative but still

felt the

> symptoms. So after numerous GYN visits finally looked into seeing

a specialist

> because I was tired of hearing tests are negative, looks fine and

think it could

> be in my head. A local " specialist " prescibed estrogen cream but

that didn't

> seem to help. And the most recent specialist I saw said it is

yeast and gave

> me long term Diflucan. I have been using that for 6 weeks and

started

> feeling fine. I thought this nightmare was finally over but

unfortunately started

> with another " flare-up " . I called my Dr. and she said to load up

on my doses

> for a week. My question is for anyone...have you had a period of

relief where

> you thought you were finally healed and then the symptoms return

again. I'm

> getting scared that I'll never be normal again. When I called

about the flare

> up I was asked if I did anything different and said the only thing

different

> is I wore nylon underwear one time and usually wear all cotton.

It's

> deppressing and hard to believe at times that something so simple

can cause all these

> symptoms again.

> Thanks for listening.

>

> , 33

Hi ,

It is very common to have flares while killing yeast. Yeast grows in

cycles. Not unlike treating an animal for parasites..they do a

dose..then wait a while and do another dose to kill the newly hatched

bugs etc. It could be that at 6 weeks a new round of yeast are

dying and giving off toxins. Each flare should be less intense and

shorter in duration. The flare is caused by die off.

Try this for helpful info:

http://www.eczema-usa.com/articles_details.asp?Article_ID=12

Scroll down and it will tell about die off and what you can do to

help it such as using probiotics to reseed with the good bacteria etc.

Lynn