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Where is your syrinx?

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Hey All

My syrinx is in the cervical spine and the thoracic spine. Drs. need to

learn that its not just in the cervical spine. When my original brain and

partial cerv. spine MRI was taken there was no syrinx shown in the area. my

doc then ordered a full spine mri due to my burning. Conclusions were I had

a syrinx from C5-7 and I'm not sure where my Thoracic one is exactly

Fight for this MRI tooth and nail

Wishing much luck and love to all

michelle in MA

ACM/SM

Surg. 12-20-00

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To those with a syrinx, where is it located?

My neuro refuses to do a full spinal MRI because the portion of my

spine visible in the head scans looks free of a syrinx, and he said

if there is going to be one it will always show up in the cervical

spine first. Is this generally the case?

Best,

Emma

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Please respond to the group on Emma's questsion? I have an apptmt

with my neurologist on Thursday (2 days) and know I am going to have

the same battle. I keep wondering if it is possible to have a

thoracic syrinx, causing the burning on the spine in between the

shoulder blades, the numb two last fingers on each hand and the band

of numbness across the midback, the....etc etc etc. Just a pinched

nerve, or possibly more?

thanks

Joanne

> To those with a syrinx, where is it located?

>

> My neuro refuses to do a full spinal MRI because the portion of my

> spine visible in the head scans looks free of a syrinx, and he said

> if there is going to be one it will always show up in the cervical

> spine first. Is this generally the case?

>

> Best,

> Emma

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My daughter's syrinx is in the thoracic spine (T5-T7). Her cervical MRI went

just low enough to show a slight portion of the syrinx in the top of what would

be the thoracic area of the spine. I don't understand why some doctors say that

a syrinx can only occur in the cervical part of the spinal column. It's just

not true. I'd press your doctor to have a full-spine MRI.

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My syrinx is small. It extends from C2-3 level to the C5-6 level.

My acm is 22mm.

ME in TX

ACM/SM

Surgery soon 6/18/01

> Hey All

>

> My syrinx is in the cervical spine and the thoracic spine.

Drs. need to

> learn that its not just in the cervical spine. When my original

brain and

> partial cerv. spine MRI was taken there was no syrinx shown in the

area. my

> doc then ordered a full spine mri due to my burning. Conclusions

were I had

> a syrinx from C5-7 and I'm not sure where my Thoracic one is exactly

>

> Fight for this MRI tooth and nail

>

> Wishing much luck and love to all

> michelle in MA

> ACM/SM

> Surg. 12-20-00

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