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Hi Sue

You're right!! Thats a good exchange. Today I had crustless quiche for

breakfast (5.8 carbs) and a sort of chef salad for lunch and I happened to

glance at the croutons I'd taken out for my husband--you know those little

things are 1 carb per teensy tiny crouton? I knew they had carbs but din't

think they had 1 whole carb--and I have to admit I have cheated now and then

and stuck a crouton (or 2) in my salad--well, I won't anymore. I didn't

today because I'd already looked at the content but also because we're doing

this challenge thing. I plan to have a grilled salmon steak for dinner with

a salad (and no croutons) and cheesecake for dinner.

Bev

180/174/150

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Hey bev wish bone make crouton with the italin and

ceacar seasoning on them in a big bag here about 4 oz

and the carb count on them are 2-3 carbs per 1/2 oz if

i remember I'll have to pick some more up but then if

your subtractign fiber that comes off to.

--- Bevnselah@... wrote:

> From: Bevnselah@...

>

> Hi Sue

> You're right!! Thats a good exchange. Today I had

> crustless quiche for

> breakfast (5.8 carbs) and a sort of chef salad for

> lunch and I happened to

> glance at the croutons I'd taken out for my

> husband--you know those little

> things are 1 carb per teensy tiny crouton? I knew

> they had carbs but din't

> think they had 1 whole carb--and I have to admit I

> have cheated now and then

> and stuck a crouton (or 2) in my salad--well, I

> won't anymore. I didn't

> today because I'd already looked at the content but

> also because we're doing

> this challenge thing. I plan to have a grilled

> salmon steak for dinner with

> a salad (and no croutons) and cheesecake for dinner.

>

> Bev

> 180/174/150

>

> ---------------------------

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In a message dated 9/9/1999 8:17:30 PM Eastern Daylight Time,

ysgrrl@... writes:

<< starting getting hungry >>

If your getting hungry, eat cheese, the protien makes you feel full

Hugs,

Penny

173/162/130

Visit my family at: <A

HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " > Home

Page</A>

<A

HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " >http://www.ge

ocities.com/heartland/pines/6116/wilson.html</A>

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  • 1 year later...

I have noticed alot of the cf kids seem have sinus problems. Is this a

common cf thing or is list just a fluke? Funnily enough Eilish is the only

one in this house that doesnt have any sinus problems. And if it is a sinus

problem do they all eventually have sinus problems? Just curious.

> Hi Michele

> We also do a hypertonic nasal wash. We did find that it gets farther into

the sinuses if leans her head backwards over the bed and drip it in.

Rather than leaning forward and trying to squirt it in. She has cronic

sinus , recurring sinus infections. We nasal endoscopies about every 2-3

months.

> We also use Rhinocort AQ and Atrovent nose spray.

> Dana

>

>

>

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  • 3 years later...

Hi Maggie;

Have you tried getting seen by the following Clinic in New

Orleans:

Ochsner Clinic Foundation, Section on Gastroenterology & Hepatology

1514 Jefferson Highway

New Orleans, LA 70121

1-

1-

http://www.ochsner.org/gastroenterology/

Your experience reminds me of when my son was diagnosed ... just as

he was waking up from the ERCP the internist said to

him ... " Congratulations you have PSC! We'll be writing a paper on

you; and now let's talk about bile-duct cancer. " ... pretty heavy

material for an 18 year-old to grasp!

Best regards, and good luck in finding a more compassionate

hepatologist.

Dave

http://home.insightbb.com/~rhodesdavid/

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Maggie,

From the medical standpoint your doctor may actually not be too bad.

Most of the things he told you were within the range of current medical

opinion about this disease. For instance some doctors do chose not to

test for cholangiocarcinoma because it is hard to do anything about

unless you find it very early and there are so many false positives with

this disease that they think it isn't worth the stress it causes the

patient if there is a false positive. Every 6 months is quite

reasonable for blood tests if the patient is stable...

All that said it does sound like there he may have a problem with tact

and sympathy when dealing with patients, and dumbs down his answers

(like telling you that they'll put on the list once he turns

yellow) rather than explaining things in detail.

There also may be a poor fit between you and the doctor philosophy of

how aggresive a course of treatment to pursue. He doesn't seem to be

very agressive about pursuing options, which might fit some patients

attitude, but it doesn't look like it fits yours very well. It is true

that the options for treatment of PSC are somewhat limited, but there

are some options. To my mind, the best doctor is one who explains

clearly what the challenges are and what treatment options are available

to meet those challenges, and who then allows the patient to participate

in working out a treatment plan that is acceptable to both.

So overall, I would agree that it might be best to at least get a second

opinion, and see if you can find a doctor who agrees better with your

philosophy, who treats you more tactfully, and who allows you to

participate in planning your treatment.

athan

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