Re: venofer/iron IV reviews

[Guest guest]

Dorothy,

It's very funny, I just send yo a link for venofer but on the other group. I

think it's the same web page but I did not get to the reviews.So,from what I

understand you need to get a few IVs in a period of time with a low amount of

iron to reduce the potential side effects.Did you ask for a few infusions?

Thanks a lot Dorothy.

Milena

>

> Here you go Milena, some reviews by venofer recepients.

>

>

http://www.rxlist.com/script/main/rxlist_view_comments.asp?drug=venofer & question\

id=fdb20109_pem

>

> Dorothy

>

[Guest guest]

Interesting. I had a high dose of venofer and didn't have any side affects. I

was told at the hospital that most people do just fine.

-- In RT3_T3 , " milenawilbur " wrote:

>

> Here it's the link.

>

http://www.rxlist.com/script/main/rxlist_view_comments.asp?drug=venofer & question\

id=fdb20109_pem

>

> Milena

>

>

>

> > > >

> > > > Here you go Milena, some reviews by venofer recepients.

> > > >

> > > >

http://www.rxlist.com/script/main/rxlist_view_comments.asp?drug=venofer & question\

id=fdb20109_pem

> > > >

> > > > Dorothy

> > > >

> > >

> >

>

[Guest guest]

Did you get only one iron IV? How much iron they gave you and how long time the

IV lasted?Do yo feel better now and how long time ago did you have the IV?

Thanks a lot

Milena

> > > > >

> > > > > Here you go Milena, some reviews by venofer recepients.

> > > > >

> > > > >

http://www.rxlist.com/script/main/rxlist_view_comments.asp?drug=venofer & question\

id=fdb20109_pem

> > > > >

> > > > > Dorothy

> > > > >

> > > >

> > >

> >

>

[Guest guest]

> Did you get only one iron IV?

Nothing yet. The insurance co. refused the pre approval because the dr's office

had the wrong code. They are working on getting the right one. I am bugging them

and sending them links to how to do it. I hope something happens soon. I am

having less and less energy.

Dorothy

[Guest guest]

> Interesting. I had a high dose of venofer and didn't have any side affects.

I was told at the hospital that most people do just fine.

Did you get 500 mg?

Dorothy

[Guest guest]

> I just read all of the reviews and they scare me much.I think you are a brave

girl.I have had so many scary episodes recently,which I think hold on me and I'm

not ready for more at this moment,LOL.

I am remembering the ones where they feel good right away. Betting on that

outcome. Not going to create problems for myself by imagining problems. We are

what we think.

Dorothy

[Guest guest]

Yes, only one. I had 300mg venofer which took about 2 hours. Honestly, it

wasn't a big deal. I drove myself to the hospital. I sat in a recliner with my

feet up, ate lunch, and watched tv. The nurses did come in to check on me every

15min. or so. I had the IV about 5 weeks ago. I was told to wait 3 weeks

before re-testing ferritin. My levels went from 24 to 196. Yes, too high but

doc. isn't concerned, it will come down.

I can't say for sure if it helped how I feel, I am still hypot. and hope to get

unhypo. before it drops. Good news though, w/o insurance and depending on the

hospital, it will cost between $500-$800. I just got the bill and it was $380,

they gave me an uninsured discount.

-- In RT3_T3 , " milenawilbur " wrote:

>

> Did you get only one iron IV? How much iron they gave you and how long time

the IV lasted?Do yo feel better now and how long time ago did you have the IV?

> Thanks a lot

> Milena

>

> > > > > >

> > > > > > Here you go Milena, some reviews by venofer recepients.

> > > > > >

> > > > > >

http://www.rxlist.com/script/main/rxlist_view_comments.asp?drug=venofer & question\

id=fdb20109_pem

> > > > > >

> > > > > > Dorothy

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

300mg. I asked and the nurse and she said that was a pretty good amount. It

took 2 hours to drain....drip drip drip

-- In RT3_T3 , " dorothyroeder " wrote:

>

>

> > Interesting. I had a high dose of venofer and didn't have any side affects.

I was told at the hospital that most people do just fine.

>

> Did you get 500 mg?

>

> Dorothy

>

[Guest guest]

-

I didn't expect to have any problems. Venofer is pretty routine according to

the nurses at the hospital. They do it all day long.

-- In RT3_T3 , " dorothyroeder " wrote:

>

>

> > I just read all of the reviews and they scare me much.I think you are a

brave girl.I have had so many scary episodes recently,which I think hold on me

and I'm not ready for more at this moment,LOL.

>

> I am remembering the ones where they feel good right away. Betting on that

outcome. Not going to create problems for myself by imagining problems. We are

what we think.

>

> Dorothy

>

[Guest guest]

> Good news though, w/o insurance and depending on the hospital, it will cost

between $500-$800. I just got the bill and it was $380, they gave me an

uninsured discount.

>

Good grief, no wonder insurance costs so much. Will things change? Probably not

much, but one can hope things might change.

Dorothy

[Guest guest]

Things are eventually all going to fall apart, everything is so corrupt, makes

me sick. My doctor who actually tries to help his patients, has been

reprimanded twice. He has been told that he spends to much time with his

patients. IHC dropped him because he was actually helping people with chronic

illness and helping with hormones. We shouldn't be surprised that most doctors

won't help, it's just business. I get farther without insurance.

The venofer wasn't that expensive. The 2 hours hospital was.

>

> > Good news though, w/o insurance and depending on the hospital, it will cost

between $500-$800. I just got the bill and it was $380, they gave me an

uninsured discount.

> >

>

> Good grief, no wonder insurance costs so much. Will things change? Probably

not much, but one can hope things might change.

>

> Dorothy

>

[Guest guest]

Dorothy,

You are right about that , " we are what we think " .I will see my doctor on

August/7 and see what can I do to convince him for a referral for a iron IV.I

have to try to get in touch with the local hospital.I have been 2 years stuck at

home and I'm tired of being toyed too.I think it's important for myself to

decide and talking with you guys helps me a lot.I just hope I will have the

energy to fight for that at this moment.

Thank you

Milena

>

>

> > I just read all of the reviews and they scare me much.I think you are a

brave girl.I have had so many scary episodes recently,which I think hold on me

and I'm not ready for more at this moment,LOL.

>

> I am remembering the ones where they feel good right away. Betting on that

outcome. Not going to create problems for myself by imagining problems. We are

what we think.

>

> Dorothy

>

[Guest guest]

Thanks for your respond.I hope you will feel better and the higher ferritin

level will give you more energy.

Thank you

Milena

> >

> > > Good news though, w/o insurance and depending on the hospital, it will

cost between $500-$800. I just got the bill and it was $380, they gave me an

uninsured discount.

> > >

> >

> > Good grief, no wonder insurance costs so much. Will things change? Probably

not much, but one can hope things might change.

> >

> > Dorothy

> >

>

[Guest guest]

-

My doctor took 2 weeks just to respond to my request for an IV. Every time I

called his nurse she said that he was working on it. He hadn't ever called in

an iron IV before so he was studying it I think. When you go to talk to your

doctor tell him exactly want you want, like 300mg venofer, so he doesn't have to

feel stupid not knowing what to do or have to look it up. He needs to call it

in at the hospital and then you make an appt. with the hospital to set up a

time. I really wouldn't worry about the IV, I'd do it again if I had to.

-- In RT3_T3 , " milenawilbur " wrote:

>

> Dorothy,

>

> You are right about that , " we are what we think " .I will see my doctor on

August/7 and see what can I do to convince him for a referral for a iron IV.I

have to try to get in touch with the local hospital.I have been 2 years stuck at

home and I'm tired of being toyed too.I think it's important for myself to

decide and talking with you guys helps me a lot.I just hope I will have the

energy to fight for that at this moment.

> Thank you

> Milena

>

>

> >

> >

> > > I just read all of the reviews and they scare me much.I think you are a

brave girl.I have had so many scary episodes recently,which I think hold on me

and I'm not ready for more at this moment,LOL.

> >

> > I am remembering the ones where they feel good right away. Betting on that

outcome. Not going to create problems for myself by imagining problems. We are

what we think.

> >

> > Dorothy

> >

>

[Guest guest]

Thanks,

I was looking into some info for the hospital and wonder when I call what

department should I ask for?I guess, I will call on the main number and explain

to them what I'm looking for, hopefully they will be able to point me to the

right one.I did not ask you, but what was your ferritin level before you got the

IV? It is important to know how much iron in the IV you will get and how do they

decide the exact amount? I assume it would depends on the ferritin levels one

has.

Thanks again

Milena

> > >

> > >

> > > > I just read all of the reviews and they scare me much.I think you are a

brave girl.I have had so many scary episodes recently,which I think hold on me

and I'm not ready for more at this moment,LOL.

> > >

> > > I am remembering the ones where they feel good right away. Betting on that

outcome. Not going to create problems for myself by imagining problems. We are

what we think.

> > >

> > > Dorothy

> > >

> >

>

[Guest guest]

Thanks,

I was looking into some info for the hospital and wonder when I call what

department should I ask for?I guess, I will call on the main number and explain

to them what I'm looking for, hopefully they will be able to point me to the

right one.I did not ask you, but what was your ferritin level before you got the

IV? It is important to know how much iron in the IV you will get and how do they

decide the exact amount? I assume it would depends on the ferritin levels one

has.

Thanks again

Milena

> > >

> > >

> > > > I just read all of the reviews and they scare me much.I think you are a

brave girl.I have had so many scary episodes recently,which I think hold on me

and I'm not ready for more at this moment,LOL.

> > >

> > > I am remembering the ones where they feel good right away. Betting on that

outcome. Not going to create problems for myself by imagining problems. We are

what we think.

> > >

> > > Dorothy

> > >

> >

>

[Guest guest]

Hi Milena,When you call the hospital, ask for IV therapies or infusion therapies, they will know what you're talking about. Before the Iv, my level was 24 and went to 196. I was told to wait 3 weeks or so before retesting levels. Good luck.Subject: Re: venofer/iron IV reviewsTo: RT3_T3 Date: Friday, July 24, 2009, 4:39 PM

Thanks,

I was looking into some info for the hospital and wonder when I call what department should I ask for?I guess, I will call on the main number and explain to them what I'm looking for, hopefully they will be able to point me to the right one.I did not ask you, but what was your ferritin level before you got the IV? It is important to know how much iron in the IV you will get and how do they decide the exact amount? I assume it would depends on the ferritin levels one has.

Thanks again

Milena

> > >

> > >

> > > > I just read all of the reviews and they scare me much.I think you are a brave girl.I have had so many scary episodes recently,which I think hold on me and I'm not ready for more at this moment,LOL.

> > >

> > > I am remembering the ones where they feel good right away. Betting on that outcome. Not going to create problems for myself by imagining problems. We are what we think.

> > >

> > > Dorothy

> > >

> >

>

[Guest guest]

> When you call the hospital, ask for IV therapies or infusion therapies, they

will know what you're talking about.

I was referred to out-patient surgery.

Dorothy

[Guest guest]

>I will see my doctor on August/7 and see what can I do to convince him for a

referral for a iron IV.

Do the magnesium also. You are really low. I am sure he is right that you need

that also.

Dorothy

[Guest guest]

You called the hospital and they sent you to out patient surgery? That doesn't

sound right. Call the hospital again and say " my doctor is going to call in a

order for an iron IV therapy and who do I talk to about that to set up an

appt? " . Maybe try another hospital if they do not have IV therapies.

>

>

> > When you call the hospital, ask for IV therapies or infusion therapies, they

will know what you're talking about.

>

> I was referred to out-patient surgery.

>

> Dorothy

>

[Guest guest]

Dorothy,

I will get the magnesium.The problem is my doctor lives an hour away and since

I'm not feeling good enough to drive I have to wait for my husband to drive

me,so will see when that will be. Dorothy, I called the hospital and they

pointed me to a Surgical Daycare and I will try to get in touch with them on

Monday.It sounds similar to the department they send you to.

Milena

>

> >I will see my doctor on August/7 and see what can I do to convince him for a

referral for a iron IV.

>

> Do the magnesium also. You are really low. I am sure he is right that you need

that also.

>

> Dorothy

>

[Guest guest]

I called the hospital and they pointed me to a Surgical Daycare.I didn't get

anybody on the phone from their department ,just an answering machine, probably

because was after 5pm.I will try again on Monday.

Thanks

Milena

> >

> >

> > > When you call the hospital, ask for IV therapies or infusion therapies,

they will know what you're talking about.

> >

> > I was referred to out-patient surgery.

> >

> > Dorothy

> >

>

[Guest guest]

> I will get the magnesium.The problem is my doctor lives an hour away and since

I'm not feeling good enough to drive I have to wait for my husband to drive

me,so will see when that will be.

Maybe the hospital could do the magnesium also. I have no idea how that works,

but I would ask.

Dorothy