Re: Home Again, and need some ideas

[Guest guest]

I am glad to hear that you are home and I hope this finds you well.

Nurses tend to keep you up with all the poking, temperature readings

and blood pressure readings, don't they?

The bottom of my feet hurt too. I was thinking that it is because I

am on my feet a lot. They feel almost bruised when I am standing on

them but when I am off of them, they burn. The only shoes I can

wear are athletic shoes with a good cushion inside. I put on a pair

of Dr. Scholls the other day and nearly screamed, it hurt so bad. I

have heard that New Balance is good from others at work, but I have

not personally tried them.

Hope this helps you :]

Take care,

Joy

-- In Fibromyalgia_Support_Group , " elsiebea1 "

wrote:

>

> Hi! I've been gone for a week or so, something about hospital,

and

> swollen left leg, and blood clots, and blood thinners and stuff.

> Once again I have reinforced my belief that hospitals are the

worst

> place in the world to try to get rest! I've slept off and on for

> the last 2 days, ever since I've been home.

>

> But I've got a really irritating problem that no doctors seem to

> know the cause of. Both my feet are SO sore on the bottoms that I

> can barely stand. Walking has become excruciating. This is a

> recent development, and began a week or two before I was in the

> hospital.

>

> I was beginning to wonder, before I was so rudely interrupted by a

> blood clot, if perhaps better shoes might make a difference. So I

> was wondering, what kind of shoes do other people wear? Is there

> anybody out there with a similar problem? What should I do about

> this? Because I can't just spend the rest of my life in bed!

I've

> got to get moving again! HELP!!

>

> Hugs and stuff,

> LCB

>

[Guest guest]

I have had the soles of my feet hurt like that, usually after walking a

lot. The thing I have found that really helped me was to rub a pain

relieving cream on them in the morning and at night. If I knew I was

going to be doing a lot of walking during the day I would take the

cream with me and apply it about mid-day also. For me, it was a BIG

help.

I hope you find some answers

N.

[Guest guest]

Hi LCB ~

A couple of years ago, I developed symptoms that sound similar to what you're

describing and it turned out to be plantar fasciitis. Has your doctor x-rayed

your foot to check for this?

Anyway, my doctor said that I could get some sort of evil " boot " thing to wear

at night, or I could just get some Birkenstocks and wander around looking like a

hippie. So I got a pair of their sandals and now I'm pretty much symptom-free

(and no longer care what I look like). Woo-hoo!

I should warn you, though, that you need to go in to a store and actually try

them on. Not only do they use European sizes, but some of their shoes have

higher arches than others.

Good luck,

Kira

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[Guest guest]

Hi LCB ~

A couple of years ago, I developed symptoms that sound similar to what you're

describing and it turned out to be plantar fasciitis. Has your doctor x-rayed

your foot to check for this?

Anyway, my doctor said that I could get some sort of evil " boot " thing to wear

at night, or I could just get some Birkenstocks and wander around looking like a

hippie. So I got a pair of their sandals and now I'm pretty much symptom-free

(and no longer care what I look like). Woo-hoo!

I should warn you, though, that you need to go in to a store and actually try

them on. Not only do they use European sizes, but some of their shoes have

higher arches than others.

Good luck,

Kira

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[Guest guest]

Elsie,

It's so good to hear from you again. You punch bread? I punch

pillows and have thrown a few.also I've throw tissues. When I get angry and

want to throw something I always look for something kind of soft. At worst

I think I've thrown a medicine bottle. It's not normally in my nature to

have that kind of rage but over time with the pain and all, it finally gets

to you and that kind of action helps. Speaking of punching bags, I've tried

to get my cousin's husband to buy one. He punches walls! They've had to

patch a few holes. He even hurt his hand once. But, I'm not listened to.

Ah, well. My husband's mom is manic/depressive. He grew up with her

throwing dishes, etc. He had a really tough childhood. When we used to go

to the antique stores he'd occasionally show me the dishes she broke (the

whole set) and they were always very expensive and a very desirable pattern.

I'm so sorry to hear you were in the hospital. You must've gone

in the same time I did but didn't come out. I was lucky to escape! I'm not

looking forward to the bill. We have too much money in the bank to get

medical. Apparently, if you've always worked hard to make it on your own no

matter what, you can't get help until you lose savings. That savings is

keeping us from losing our home. I had to refuse work again this morning

and it is a class I would have loved to teach. And, yes, June; I have to

wait until June 4th and 6th. This waiting is hard because I can't do a heck

of a lot. I tried to yesterday, just went to Target with Mike, and I wiped

out and we had to go. I really didn't think I was over doing it.

Good-grief!

Back to you, clots are scary. Did they tell you why you got the

clot? Not to scare you but when the clot thing is over with, go to a

lighter blood thinner. My sister got a clot then went on Coumadin. The

next thing she knows is she's getting headaches every day and they got so

bad she went to the doctor. Turns out she had bilateral subdural hematomas.

Meds! Can't live with them, can't live without them.or is that husbands?

:-) Anyway, take care of you. About your feet, there are some nice linings

you can put in your shoes to help out. But, the best thing is peppermint

foot massage oil with the foot massage. Getting someone to do it is

something else. I think we could all use a masseuse who specializes in

people with Fibro!

Back to me (I'm a flip-flopper this morning) it's hard finding

out that I have what my dad had when I took care of him. It killed him

because he also had polycystic kidneys which created congestive heart

failure. The two heart conditions contradicted each other and was the death

of him. Thank God I don't have the polycystic kidneys! My sisters do but

me and my brother don't. That's one good thing. Meanwhile, it is scary

living with this condition and waiting. I don't get much done. So, we're

both kind of stuck for a while. Hey, there! (waving at you from my

recliner)

Warm, healing hugs,

Jane

[Guest guest]

Hi, Jane! Sorry not to respond sooner, but yesterday and I had

to take a big truck about 160 miles round trip to pick up 2500

pounds of flour for his job. This was after he'd already driven

deliveries all night, so I went to keep him awake or take over

driving the truck if he got too sleepy. One wouldn't think that

just sitting there while someone else drives would take all that

much energy, but boy, it sure wiped me out, and all I've done today

is sleep. It took forever to get there and back, too. Since the

clot episode I'm not supposed to sit for more than 15 minutes

without getting up and walking around a little bit. So pulled

the truck over every 15 minutes so I could walk around for a minute

or two.

Yes, I think there's something terribly wrong with forms of

government that actually punish you for trying your hardest to do

the best you can! Some of the requirements for assistance are just

ridiculous. My disability is a good example, as well as your

inability to get medical assistance. If I were to divorce my

husband, I could switch from SSD to SSI and get almost twice as much

money, but he could still live with me. How stupid is that??!!

EErrff!

I got the clot because I'm an idiot. I have Syndrome, which

makes platelets stick together. I take a thinner, the dosage is

adjusted based on not only blood tests, but poking my finger and

timing how long it takes to form a quarter inch sized drop of

blood. I was pretty sure I took my thinner one morning (wrote down

that I did!) but later a pill count after the fact showed I didn't

take it after all. And missing that single dose got me.

I tried using one of those pill boxes with the individual days

marked on them, but I lost it. Had just filled it, too. Finally

found it in my shoe organiser in my closet! Yep, the Fibro Fog

Follies. Wow, I'm glad your sister was lucky, those hemos could

have done her in!

I sure hope you can hang in there till June. Grit you teeth, girl,

and don't EVER give up! Hope you're feeling better soon, don't let

the frustration get to you, this too shall pass. June'll be here

soon, and you'll get treatment and your heart will be well! I'm

just sure of it, it's simply not allowed to be any other way!

Ohhhh, that peppermint foot massage sounds like heaven! But around

here, I'm afraid it would be a do-it-yourself proposition...sigh...

Many Gentle hugs, and waves back!!

Elsie

>

Apparently, if you've always worked hard to make it on your own no

> matter what, you can't get help until you lose savings. That

savings is

> keeping us from losing our home. I had to refuse work again this

morning

> and it is a class I would have loved to teach. And, yes, June; I

have to

> wait until June 4th and 6th. This waiting is hard because I can't

do a heck

> of a lot. I tried to yesterday, just went to Target with Mike,

and I wiped

> out and we had to go. I really didn't think I was over doing it.

> Good-grief!

>

> Back to you, clots are scary. Did they tell you why

you got the

> clot? Not to scare you but when the clot thing is over with, go

to a

> lighter blood thinner. My sister got a clot then went on

Coumadin. The

> next thing she knows is she's getting headaches every day and they

got so

> bad she went to the doctor. Turns out she had bilateral subdural

hematomas.

> Meds! Can't live with them, can't live without them.or is that

husbands?

> :-) Anyway, take care of you. About your feet, there are some

nice linings

> you can put in your shoes to help out. But, the best thing is

peppermint

> foot massage oil with the foot massage. Getting someone to do it

is

> something else. I think we could all use a masseuse who

specializes in

> people with Fibro!

>

Meanwhile, it is scary

> living with this condition and waiting. I don't get much done.

So, we're

> both kind of stuck for a while. Hey, there! (waving at you from my

> recliner)

>

> Warm, healing hugs,

>

> Jane

>

>

>

>

[Guest guest]

Ummm...Jane? Were the tissues still in the box? Just curious >:-P

Giggles and Hugs,

Elsie

>

I punch

> pillows and have thrown a few.also I've throw tissues.

[Guest guest]

Oh that's funny! You've got me laughing. When I thought about how it would

feel to hurl individual tissues, I just lost it! LOL

Thank you!

Be well, W

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with theYahoo! Search weather shortcut.

[Guest guest]

Elsie,

I meant to write this sooner, when I first heard of your blood clot

but here it is anyway. Don't know if this will help you or not but I

keep my coumadin on a tall dresser which is between my bed and the

bathroom. I take it when I go to bed every night so I'll be less

likely to forget it. My lung blood clot was not from my legs or

anywhere else that can be determined. The Dr's feel it was caused by

taking EVISTA to prevent osteoporosis. At first I was told I'd have

to take it for 3 months, then it was upped to 6 months, and now 9

months. As for the larger pill boxes, I have one also and I keep

that one right on the dining room table at all times. Yes I eat in

the dining room for all my meals because there isn't a square inch

free on the kitchen table. If I put things away, they are lost as

far as I'm concerned. Also, it is difficult for me to use step

stools. or stoop for the lower cabinet.

I agree with you totally about the problems getting disability

assistance. I'm very lucky I don't have to go through all that but

just reading about it on the list is so frustrating. I want so to

help but can't except by elections.

Margaret B

> Hi, Jane! Sorry not to respond sooner, but yesterday and I had

> to take a big truck about 160 miles round trip to pick up 2500

> pounds of flour for his job. This was after he'd already driven