Re: McArdles - - Are You Reading??? Need Your Help Here

[Guest guest]

Thanks Alice.

[Guest guest]

We do have a member of the list with this diagnosis.

She sometimes is not reading so I sent out this header

(sorry for the last send error). If she's reading..

she'll respond. If she doesn't respond, I'll contact

her privately.

Alice

--- wrote:

> ,

>

> You might have had trouble finding anything because

> of the spelling. It is

> spelled McArdles. It is also known as Phorphorylast

> Deficiency (MPD or PYGM).

> From what I remember, the exercise intolerance and

> weakness are an issue

> with McArdles, but not the other body system

> involvement that tends to go

> along with mito. They thought McArdles at one point

> with me too. I still

> mainly have muscle issues but also soft symptoms of

> other body systems and

> have mito dx via muscle biopsy (fresh at CCF).

>

>

>

> LILQT4U1984@... wrote:

> > I was wondering if anybody could tell me about

> Mccardles (sp?) I can't

> > seem to find anything about it on the UMDF

> web-page or even when I do a

> > regular web search. I have heard of it and I

> think it causes muscle

> > pain. Thanks so much!

> > Medical advice, information, opinions, data and

> statements contained

> > herein are not necessarily those of the list

> moderators. The author of

> > this e mail is entirely responsible for its

> content. List members are

> > reminded of their responsibility to evaluate the

> content of the postings

> > and consult with their physicians regarding

> changes in their own treatment.

> >

> >