Re: symptoms and is it Chiari related???

[Guest guest]

In a message dated 4/17/2001 11:52:12 PM Eastern Daylight Time,

oh2bamermaid@... writes:

> I've been led to believe that my Thyroid

> problems are most probably caused by my Chiari. Mine is autoimmune related

> and in my research and things I've read here at Wacma, I thought this was a

> problem many of us shared possibly due to the csf pressure damaging or

> supressing the pituitary gland. Am I wrong?

>

You could very well be right and yes, many with Chiari do experience

thyroid/pituitary problems. The whole purpose of posting what I did was just

for others to be aware that while their problems may all very well be related

to having Chiari, we just need to explore all possibilites.

Something else I was thinking about. Many (including ) are on various

meds for pain relief, etc. We also need to keep in mind that sometimes, some

of the symptoms one may experience may be related to their med or combination

of meds. Good idea to always research the med that is being prescribed,

especially if taking more than one med is involved. Some doctors do not take

into consideration how meds work with each other (good and bad). Need to look

at those side affects and interactions.

It is just so important to look at the whole picture and all possibilites.

Tory ('s mom)

18ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus,

growth hormone

(weighs 50 lbs.) and thyroid deficient, blind, severly delayed, choanal

atresia, optic nerve

hypoplasia, artificial tear duct, 12-P chromosome deletion, sensory

integration disorder, latex

allergy, probable malignant hyperthermia, ACM II w/30mm herniation, basilar

impression.

History of 43 surgeries. (and musically talented) SUCH A SPECIAL LITTLE GIRL!

[Guest guest]

Hi Tory and Everyone,

Your absolutely right about blaming everything on chiari, granted some of the

problems do stem from this disease, but not with everyone. A lot of our

symptoms are similar, I don't doubt that.

For instance, I thought my eyes were blurry because of the chiari, I went to

the eye Dr. a couple of weeks ago and found out I have cataracts on both

eyes, not chiari related. I had surgery on April 12, 2001 for my right eye,

I let it go for so long thinking it was from chiari that my vision in that

eye was 20/4000. This surgery will be repeated on my left eye April 30.

I thank God my daughter insisted I go to an eye Dr., if I would have kept

blaming it on chiari, I could have went blind, so I was told.

Chest pains have to be watched carefully also, chiari does NOT cause chest

pain. I read a lot of posts where chest discomfort was mentioned, please for

your own safety have these pains checked out by your PCP.

There are a lot of problems with chiari, many more than we'll ever know, but

in the mean time just get some symptoms checked out by your PCP.

Hugs & Prayers,

Sharon Benedict

Baltimore, land

chiari ll ... first decompression '96'

Second surgery waiting to be scheduled with Dr. Weingart,

Supacuipital Craniotomy, Duraplasty, C1 Laminectomy