Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 : You have taken the first step to show you care by getting on this list. You must really care. I have two completely different experiences with great family support and lack there of. My brother and his wife basically avoided us for a long time after our son was diagnosed b/c they did not know how to deal with it. When they finally did start coming around again they avoided asking about it and never made any attempt to learn about CF. They're funny that way...they tend to avoid any emotional situation like this. I try to be understanding of this because its the way they are. I know they care though because they did sell more raffle tickets to raise money for CF than any one else. My husbands brother and his wife on the other hand were very supportive. They came to see us right away after dx. They cried right along with us. They also did a lot of research right away so that they understood more about CF. They also learned all about doing my son's therapy and how to give his meds so they could give us a break when we needed it. They were never afraid to ask questions. So my advice to you is to ask them if you can read everything they do after they're done with it, learn how to look after your nephew so your sister can get away,and be a good listner and shoulder to cry on...family support is one of the most important things in this difficult time. Your sisters future and that of her son's has been completely altered and right now family is going to seem like the only thing that she can grab on to to keep her from sinking. It will get better over time for her. Give her a big hug from all of us here at cfparents. Tammy mom of Zack (almost 6wcf) and e (3nocf) Re: Potty training Hello everyone, my name is , this past week my nephew was tested and shown to have CF. I wish to support my sister and nephew as much as I can can in this, any suggestions on the best way to support a mother of a child with CF? I have no kids, but am getting tested to see if I might be a carrier. . _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
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