Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 I don't know if the supplements are making a difference yet. I started them maybe a month ago. Maybe they are. I used to have out of control neuropathy that was so extremely painful at times I would stuff a pillow in my mouth so my husband wouldn't hear me moaning. I couldn't sleep for days due to the intense burning. It is very decreased. I still have a bit of electricity running down one leg but its not as bad. I also take benfothiamine ?? on spelling. A concentrated thiamine for the burning pain. I don't take any meds now to try to deal with that as its decreasing. I used to flair every other month. None since starting the prokain. I haven't flared since Jan. I believe. I would get so bad I was flaring all the time. Prokarin is making a huge difference. I feel like the ms is stablizing with the prokarin and I am seeing some improvement. ________________________________ To: MS-Cured <mscured > Sent: Fri, May 27, 2011 10:51:51 AM Subject: RE: Supplements (Joy) Thanks Joy. Lion's Mane was one of the ones I thought was helping but after a while of stopping it, I was no different. I've been taking ALA for ages but have just stopped to see if that is where my kidney area pain is coming from. It's either that or too much chelated magnesium and calcium and I've ordered a different ca/mg. Have you felt different on the myelin sheath support? Janet To: mscured From: yourbeamofsunshine@... Date: Fri, 27 May 2011 09:52:03 -0700 Subject: Re: Supplements I take ca, mg, b-12, and include lion's mane, myelin sheath support, alpha lipoic acid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Hi Joy I know about that pain that's for sure! I hadn't known a good night's sleep for years until LDN. No pain killer or other treatment had helped.....and then I started on LDN. From the first night the pain lessened and after a week or so, disappeared! The difference it made for me was amazing - I got back the wonder of 'a good night's sleep'! Try it and see if it has the same affect for you if you haven't already doneso. Hope that can be of help to you because the pain is horriffic and it isn't something I'd wish on anyone - ever! 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: yourbeamofsunshine@... Date: Fri, 27 May 2011 19:52:22 -0700 Subject: Re: Supplements (Joy) I used to have out of control neuropathy that was so extremely painful at times I would stuff a pillow in my mouth so my husband wouldn't hear me moaning. I couldn't sleep for days due to the intense burning. It is very decreased. I still have a bit of electricity running down one leg but its not as bad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 I pretty much eliminated it with the supplements. ________________________________ To: MSCured <mscured > Sent: Sat, May 28, 2011 2:24:39 AM Subject: RE: Supplements (Joy) Hi Joy I know about that pain that's for sure! I hadn't known a good night's sleep for years until LDN. No pain killer or other treatment had helped.....and then I started on LDN. From the first night the pain lessened and after a week or so, disappeared! The difference it made for me was amazing - I got back the wonder of 'a good night's sleep'! Try it and see if it has the same affect for you if you haven't already doneso. Hope that can be of help to you because the pain is horriffic and it isn't something I'd wish on anyone - ever! 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: yourbeamofsunshine@... Date: Fri, 27 May 2011 19:52:22 -0700 Subject: Re: Supplements (Joy) I used to have out of control neuropathy that was so extremely painful at times I would stuff a pillow in my mouth so my husband wouldn't hear me moaning. I couldn't sleep for days due to the intense burning. It is very decreased. I still have a bit of electricity running down one leg but its not as bad. Quote Link to comment Share on other sites More sharing options...
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