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Clubfoot and delays

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Hello everyone. I'm not sure you remember me. I gave birth to a son

AJ on March 7th. AJ was diagnosed inutero at 17 weeks with

idiopathic clubfeet. He also had a onian Translocation of the

13th and 14th chromosome. At 12 days old I took AJ to see Dr.

Herzenberg for treatment of his clubfeet. After seven casts, a

tenotomy and full time in the DBB's, Aj is now on bed time only with

the DBB's and his feet look great.

My concern regards his development. Because of the genetic problem

AJ has been to see a genetics specialist and a neurologist at

Childrens Hospital in Philadelphia. After several blood tests it was

determined that genetically he is fine. Apparently the translocation

was inherited from me, and since I'm OK he should be OK. However he

is having some developmental delays regarding his gross motor

skills. At 8 months he is still not rolling over. He also does not

like to stand or put weight on his feet when held upright, nor does

he push up with his arms when on his stomach. However, he does sit

up by himself when placed in a sitting position. He is alert and

loves to sit in his walker and throw all his toys on the floor and

wait for someone to pick them up. He also likes to laugh and finds

his brothers and and his sister very amusing.

My question is, has anyone else experienced these types of delays

with their clubfeet kids? The doctors were not sure if the casting

and shoes had anything to do with him not reaching these milestones.

Since they did not have any other clubfeet kids treated at such a

young age to compare his development with. What do you think? I

would appreciate any feedback.

Thanks,

and AJ

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