Guest guest Posted April 30, 2005 Report Share Posted April 30, 2005 One of my brothers may have a bone marrow transplant in his future for MDS. I believe he is an undiagnosed celiac (I suspect he thinks so, too, but refuses testing because he doesn't want to know!) and I've asked a few questions about donating marrow. From the *very tentative* answers from his doctor, it sounds like if the recipient and donor both have same autoimmune condition to start with (like celiac) and are a good match, as siblings might be, then they would allow the celiac donor - as this might actually be closer to the patient's " healthy " state than a non-celiac would be. Maureen > , > This excerpt below was taken from the National Marrow Donor Program Website at www.marrow.org. If you read #2, I suppose that is where Celiac Disease would fall into, since it is technically an auto-immune disorder. > > I have attended info sessions on bone marrow donor programs in the past and from what I understand, they are very careful with the selection process... as to be a donor it is very involved (and quite painful) and it is tough to get a match.... so they don't want to have a donor list... then actually find a donor match for someone in need at the time... and then have the donor back out of it. > > The whole thing is interesting. > > I wish your friend the best of luck. Perhaps we may have some SY members who may have some personal experience(s) with this bone marrow thing. > > Melonie > Health History Questionnaire (much snipping) > Determining Donor Eligibility > > Before joining the Registry, you are asked a series of questions to help identify any health reasons that may make you ineligible to become a donor. These questions do not include every situation that would make a person ineligible to join the Registry or to donate. > > If you are ever called as a match for a patient, you will undergo a thorough health history and physical exam to ensure it is safe -- for both you and the patient -- for you to donate. > > > Below is a list of the health history questions you may be asked when you join the NMDP Registry. Each question is followed by an explanation. Be sure to discuss your answers with your local donor center or recruitment group. > > Are you in good general health? > This question allows you to make an overall summary of your general health. Certain diseases, such as Thalassemia/Sickle Cell diseases or autoimmune disease, can be transmitted from donors to transplant recipients. If you state that you are not in good health, the local NMDP representative must evaluate the reason to determine whether you can join the Registry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2005 Report Share Posted April 30, 2005 The Bone marrow folks called for my husband who was in the program to see if he could go for additional testing. We had just gotten the celiac diagnosis and I passed that on to them. At the time, the person on the phone didn't have an answer and had to call me back. When they called they explained what you sent below, that persons with autoimmune diseases could not participate. I've never hear of CD being able to be transmitted to another, but maybe a celiacs bone marrow might trigger the disease in someone who had the genes for it. care to comment? Cheryl in Colorado , This excerpt below was taken from the National Marrow Donor Program Website at www.marrow.org. If you read #2, I suppose that is where Celiac Disease would fall into, since it is technically an auto-immune disorder. I have attended info sessions on bone marrow donor programs in the past and from what I understand, they are very careful with the selection process... as to be a donor it is very involved (and quite painful) and it is tough to get a match.... so they don't want to have a donor list... then actually find a donor match for someone in need at the time... and then have the donor back out of it. The whole thing is interesting. I wish your friend the best of luck. Perhaps we may have some SY members who may have some personal experience(s) with this bone marrow thing. Melonie Quote Link to comment Share on other sites More sharing options...
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