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RE: oats and gluten

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Glutino (I believe) makes breakfast bars in apple, blueberry and chocolate. I

have never head them, but some here have and will probably weigh in with

reviews.

Bridget

________________________________

From: SillyYaks on behalf of Isabel Silveira

Sent: Sat 4/30/2005 5:59 PM

To: SillyYaks

Subject: Re: oats and gluten

Yes, I too am new to this list and this is my first question out to all of you.

I am the mother of 9 year old twin boys diagnosed with CD this past January. I

am interested in the list of GF bars. They were used to eating oat breakfast

bars and haven't eaten them since being diagnosed. They do not like the the

bumble bars or any other GF ones that I have had them try. I love Luna bars and

think that they would too. Where can I get a copy of the GF bars list so that I

can research bars that they might try. This is one area that I have not been

able to find anything to replace what they used to eat.

Thanks,

Isabel

Chelsea Wills wrote:

Hello- im new to the group............ love the list of GF bars- they are my

favorite! But a lot of them seemed to still have oats in the (clif, luna,

odwalla, etc) whats the deal with oats and gluten? ive always heard that it is

a no no........

Chelsea Bay Wills

Graphic Designer

chelsbay@...

>From: SillyYaks

>Reply-To: SillyYaks

>To: SillyYaks

>Subject: Digest Number 860

>Date: 30 Apr 2005 08:38:22 -0000

>

>

>There are 14 messages in this issue.

>

>Topics in this digest:

>

> 1. support at home/

>

> 2. Re: Testing Siblings

>

> 3. Re: Avoiding Cravings

>

> 4. Re: getting ready for kindergarten

>

> 5. New file uploaded to SillyYaks

> From: SillyYaks

> 6. My trip to the CD Center/important question

> From: sahmomof8@...

> 7. Re: Whole Foods, Marlton, NJ

> From: sahmomof8@...

> 8. Re: Re: Whole Foods, Marlton, NJ

>

> 9. Re: mouth sores

>

> 10. Summary of Gluten Free Cereal Bars, Protein Bars, Snack Bars,

Granola Type Bars, etc.

>

> 11. Re: Summary of Gluten Free Cereal Bars, Protein Bars, Snack Bars,

Granola Type Bars, etc.

>

> 12. Re: Summary of Gluten Free Cereal Bars, Protein Bars, Snack Bars,...

> From: Readingracer22@...

> 13. Re: Summary of Gluten Free Cereal Bars, Protein Bars, Snack Bars,

Granola Type Bars, etc.

>

> 14. Re: My trip to the CD Center/important question

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 1

> Date: Fri, 29 Apr 2005 18:02:11 -0400

>

>Subject: support at home/

>

>,

>I'm sorry that it's hardest for you to be GF at home. It seems your parents

simply don't get it. And you're right - they have control over decisions in the

house.

>

>My strongest suggest to you is to speak with your docs/specialists about your

concerns. Get THEM to speak to your folks about a dedicated toaster and cross

contamination issues.

>

>Second suggestion is to join a support group - live and in person. Gain

strength and knowledge from them. Maybe your whole family could attend various

events and your folks would learn from other " grown ups " about these very

serious issues.

>

>Maybe one of your folks would actually join this list? Or get a book from the

library, book mark the most pertinent pages and ask your folks to read and

discuss.

>

>And, in times like these, if you have a faith of any kind you can always pray!

>

>Best of luck.

>dawne

>

>[This message contained attachments]

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 2

> Date: Fri, 29 Apr 2005 21:44:36 -0000

>

>Subject: Re: Testing Siblings

>

>Most doctors recommend testing all first degree relatives, which would

>include not only the siblings, but also you and your husband. I would

>highly recommend testing everyone, because untreated celiac disease

>can cause a host of problems other than just gastroenterological (hope

>I spelled that right!) In our family, my husband, his father, and the

>father's cousin all had retinal blood clots which caused irreversible

>blindness. Not that that is likely to happen to your family, but why

>put off the testing when you can prevent problems? That said, his

>sister and mom still haven't been tested, despite both having multiple

>symptoms. Wish there were a way to convince them, but they don't want

>to know. Phoebe

>

>

> > The biggest problems for me are at home. I am the one that cooks

>the

> > dinners but both of my parents have wheat products in the house,

>which

> > is much more tempting than when I am with my friends. All of our

> > dinners are gluten-free but when they bake cookies, pizza, etc.

>that

> > is when it gets tough.

> >

> > Does anyone else live in a house where everyone eats gluten

>products

> > but them? How do you deal with that situation?

> > I also would like some input on cross contamination with pans. I

>know

> > my parents cook wheat products in the same pans as I cook dinner.

>I

> > can't get them to spring for a separate toaster to avoid cross

> > contamination that way.

> >

> > I try but it is hard doing this alone, especially when I am not

>the

> > one to make the final call in the house.

> >

> >

>

>

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 4

> Date: Fri, 29 Apr 2005 22:00:24 -0000

>

>Subject: Re: getting ready for kindergarten

>

>Just wanted to add my 2 cents that even if the school nurse does not

>know much about celiac disease, they still may be trained to deal with

>food allergies generally. With our school, they put all the kids with

>food allergies into one kindergarten class together (there are 5 K

>classes total) with a teacher who at least knew the basics about cross

>contamination (now she is really very well informed about celiac

>disease in particular -- we feel very lucky that she took an interest

>and read up on it). For us, it worked out well (only one day at the

>beginning of the year when something questionable was served).

>Although the other kids are all served the same nut-free snack, my son

>has his own snack bag and chooses his own snack out of it each day.

>The teacher has been good about emailing me when she knows there will

>be a special treat or event, or when his bag is getting low. Please

>feel free to email if you have questions.

>

>Just a suggestion -- the nut-free kids have their photos up on the

>wall over the teacher's desk with a big note, and I have heard the

>substitutes say that that is a big help to them, too. Good luck!

>Phoebe

>

>

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 5

> Date: 29 Apr 2005 22:20:34 -0000

> From: SillyYaks

>Subject: New file uploaded to SillyYaks

>

>

>Hello,

>

>This email message is a notification to let you know that

>a file has been uploaded to the Files area of the SillyYaks

>group.

>

> File : /122 Gluten Free Restaurant Menus/SillyYaks RESTAURANT

GUIDEBOOK as of April 29, 2005.pdf

> Uploaded by : onesillyyak

> Description : SillyYaks GF Restaurant Guide as of May 2005

>

>You can access this file at the URL:

>http://groups.yahoo.com/group/SillyYaks/files/122%20Gluten%20Free%20Restaurant%\

20Menus/SillyYaks%20RESTAURANT%20GUIDEBOOK%20as%20of%20April%2029%2C%202005.pdf

>

>To learn more about file sharing for your group, please visit:

>http://help.yahoo.com/help/us/groups/files

>

>Regards,

>

>onesillyyak

>

>

>

>

>

>

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 6

> Date: Fri, 29 Apr 2005 19:08:37 EDT

> From: sahmomof8@...

>Subject: My trip to the CD Center/important question

>

>Oh please, God, tell me I have CD! I know that sounds crazy, but I can't

>stand living like this with NO REASON! Today I went to the Celiac Center in

NYC

>and had my bloodwork done. I couldn't schedule my endoscopy/biopsy for a

month,

>due to our schedules not " meshing " . :( But at least we're moving along!

>

>We came home and I CRASHED again, which I thought was strange since I didn't

>have gluten today. But tonight I made chili macaroni for everyone. I didn't

>even make it through dinner without running to the bathroom (sorry to be

>graphic!). I used regular macaroni, of course.

>

>My question is this: My bloodwork won't come back for about 2 weeks. Once it

>does, I will know at least if I have that gene that could signal CD. Obviously

>if I DON'T have the gene, CD is impossible. If I do have it, I MIGHT have CD.

>The endoscopy then would (hopefully) tell us for sure. So I want to know if I

>can be gluten free until my blood test results come back, and if they're

>positive, go back on gluten for the two weeks prior to the endoscopy, or if

two

>weeks won't be enough after two weeks OFF gluten--if anyone followed that!

Even

>if I turn out to only have IBS (which the doctor assured me was a REAL

>diagnosis, not a cop-out, as I had suspected!), she recommended a gluten free

diet,

>saying it would probably help me. I just need to know if I can eliminate

gluten

>NOW, and go back on it if my results are positive, and still have the tests

>two weeks AFTER that be valid. Thoughts, anyone? Marilyn

>

>

>[This message contained attachments]

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 7

> Date: Fri, 29 Apr 2005 19:14:11 EDT

> From: sahmomof8@...

>Subject: Re: Whole Foods, Marlton, NJ

>

>Oh--okay--thanks! We don't get to Philly often--not even once a year. The

>area we're probably relocating to is near Stroudsburg. No help there,

>unfortunately! :P Marilyn

>

>

>[This message contained attachments]

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 8

> Date: Fri, 29 Apr 2005 19:36:05 -0400

>

>Subject: Re: Re: Whole Foods, Marlton, NJ

>

>At our local whole foods (no. va.) most of the in-house gluten free bakery

stuff is in the freezer case. They told me in the regular bakery that they were

keeping things in the freezer until they had a better sense of sales volume.

>

>

> [Norton AntiSpam] Re: Whole Foods, Marlton, NJ

>

>

> Where in the Whole Foods do they have the gluten free bakery stuff?

Everytime I have been there I haven't been able to find any.

>

> Tina in NJ

>

>

>------------------------------------------------------------------------------

>

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