KIDS new moderated/restricted list for kids with CF or for sibs of kids w/CF

[Guest guest]

Hi everyone, there has been lots of requests and lots of discussion about the

younger kids with CF needing support and having troubles with being

compliant, etc....

Anyway, we have all been kicking this idea around for awhile, but finally, we

created a new email support group for the younger kids with CF or for their

siblings. It is a restricted list (meaning they will have to identify

themselves in advance to be able to join, the intent her is to keep out

perverts, lol) and also, to play it extra safe, the posting feature is set to

Moderated, so that all posts must be approved first by the list moderators

(to prevent someone saying something too inappropriate for young ears to

hear) I have no idea how well t his will work, or how much work will be

involved....and I do realize that protecting the kids won't be an easy task

in the world we currently live in....

but still, there are so many kids out there wanting email support, and

cystic-l really isn't an appropriate forum for most kids under age 13 especial

ly.

Anyway, here is the website if you want to check it out.....

/group/KidsTouchedByCF

Anyone who requests to join will be sent an email from the list moderator (s)

asking for more information from them, and also asking for an email from

their parents where possible giving their ok for their child to join.

Also, anyone with questions can email me personally.....

Take care, everyone

Jen

Mommy of 7, including ph 16 months with CF, Mallory 3 with CF, RAD, GERD,

OSA, new port-a-cath; 4 with CF; 6, Miranda 8, Brittany 7 yo

foster daughter soon to be adopted by us; ERica 4 yo foster daughter, soon to

be adopted by us also ; also aunt to 3 yo with CF

[Guest guest]

Jen, I think this is a wonderful idea and I hope you get a good response. I

guess the idea may take a while to grow. I think Mycah (and ) are

still a little young, but I'll check back!

Lori

KIDS new moderated/restricted list for kids with CF or

for sibs of kids w/CF

> Hi everyone, there has been lots of requests and lots of discussion about

the

> younger kids with CF needing support and having troubles with being

> compliant, etc....

> Anyway, we have all been kicking this idea around for awhile, but finally,

we

> created a new email support group for the younger kids with CF or for

their

> siblings. It is a restricted list (meaning they will have to identify

> themselves in advance to be able to join, the intent her is to keep out

> perverts, lol) and also, to play it extra safe, the posting feature is set

to

> Moderated, so that all posts must be approved first by the list moderators

> (to prevent someone saying something too inappropriate for young ears to

> hear) I have no idea how well t his will work, or how much work will be

> involved....and I do realize that protecting the kids won't be an easy

task

> in the world we currently live in....

> but still, there are so many kids out there wanting email support, and

> cystic-l really isn't an appropriate forum for most kids under age 13

especial

> ly.

> Anyway, here is the website if you want to check it out.....

> /group/KidsTouchedByCF

>

> Anyone who requests to join will be sent an email from the list moderator

(s)

> asking for more information from them, and also asking for an email from

> their parents where possible giving their ok for their child to join.

> Also, anyone with questions can email me personally.....

> Take care, everyone

> Jen

>

> Mommy of 7, including ph 16 months with CF, Mallory 3 with CF, RAD,

GERD,

> OSA, new port-a-cath; 4 with CF; 6, Miranda 8, Brittany 7 yo

> foster daughter soon to be adopted by us; ERica 4 yo foster daughter, soon

to

> be adopted by us also ; also aunt to 3 yo with CF

>

>

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