Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 My mother, my sister, and my paternal grandmother have all been diagnosed with celiacs disease. Because of this, and because I display some symptoms of ciliacs disease myself, I went in for a test as well. The upper GI determined that there was some damage to the intestinal villi, but because the villi were not all but obliterated, they technically could not diagnose me with celiacs disease. But my mother is sure that since there was some damage to the villi, and that I show some symptoms, considering our family history (from both sides of the family, no less), that I should go on a gluten free diet. As I understand it's a rather challenging diet. All things considered, do you think I should go gluten free, or just wait and see if I eventually start showing even more symptoms, if I ever do, that is? My mom's nearly hysterical at this point, thinking I'm going to make myself sick eating products with gluten in it. I need some good advice a.s.a.p. Thanks, Ang Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Dear Ang- It sounds like you probably do have celiac disease. I am in the same boat as you...my biopsies showed some signs of CD but it wasn't conclusive. I do feel better overall on a gluten-free diet, but I sometimes have problems sticking to it. And I don't have too many symptoms when I cheat, so that makes it even harder. Based on what you said I would say that the gluten-free diet is probably the way to go. Have you had any blood work done? -Laurie in CT > My mother, my sister, and my paternal grandmother have all been > diagnosed with celiacs disease. Because of this, and because I > display some symptoms of ciliacs disease myself, I went in for a test > as well. The upper GI determined that there was some damage to the > intestinal villi, but because the villi were not all but obliterated, > they technically could not diagnose me with celiacs disease. > > But my mother is sure that since there was some damage to the villi, > and that I show some symptoms, considering our family history (from > both sides of the family, no less), that I should go on a gluten free > diet. As I understand it's a rather challenging diet. All things > considered, do you think I should go gluten free, or just wait and see > if I eventually start showing even more symptoms, if I ever do, that > is? My mom's nearly hysterical at this point, thinking I'm going to > make myself sick eating products with gluten in it. I need some good > advice a.s.a.p. > > Thanks, > Ang Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Ang, What were your blood test results? You have to remember that partial villous blunting is consistent with celiac disease, and cannot be ignored. Furthermore, celiac disease is patchy in nature, and can present differently in different areas of the small intestine. I would seek a second opinion from a Dr. who is aware of the intricacies of celiac disease, and is aware of the pathological presentations of the disease - yours appears to be ill informed. Good luck. Suzie Help! > My mother, my sister, and my paternal grandmother have all been > diagnosed with celiacs disease. Because of this, and because I > display some symptoms of ciliacs disease myself, I went in for a test > as well. The upper GI determined that there was some damage to the > intestinal villi, but because the villi were not all but obliterated, > they technically could not diagnose me with celiacs disease. > > But my mother is sure that since there was some damage to the villi, > and that I show some symptoms, considering our family history (from > both sides of the family, no less), that I should go on a gluten free > diet. As I understand it's a rather challenging diet. All things > considered, do you think I should go gluten free, or just wait and see > if I eventually start showing even more symptoms, if I ever do, that > is? My mom's nearly hysterical at this point, thinking I'm going to > make myself sick eating products with gluten in it. I need some good > advice a.s.a.p. > > Thanks, > Ang > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Hi again all Any damageto villi at all is enough proof for me. I would rather accept it and move on to better eatting, healthier days aheads and using my imagination more. My daughter is celaic and also type 1 diabetic. Her life is so much better eating for celaic disease. I go back tomorrow for check up surgery for colon cancer. I was not checked for celaic and am asking them to please do this as I suspect the cancer is all part of this. The long term damage is more then villi damage so If I were any of you, accept the damage they saw and start eating better, healthier foods. Jana Church Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 I have to agree with Suzie. Get another opinion! Your doctor sounds very ill informed. I'm sorry, but would he only be willing to give the diagnosis if your intestines were completely destroyed and you were dying of malnourishment in the hospital? With your family history and with damage evident... *sigh* I believe you can even have the biopsy that was taken sent to another for review. Find a GI or another GP in your area that KNOWS about CD. > Ang, > What were your blood test results? You have to remember that partial > villous blunting is consistent with celiac disease, and cannot be ignored. > Furthermore, celiac disease is patchy in nature, and can present differently > in different areas of the small intestine. I would seek a second opinion > from a Dr. who is aware of the intricacies of celiac disease, and is aware > of the pathological presentations of the disease - yours appears to be ill > informed. Good luck. > Suzie > Help! > > > > My mother, my sister, and my paternal grandmother have all been > > diagnosed with celiacs disease. Because of this, and because I > > display some symptoms of ciliacs disease myself, I went in for a test > > as well. The upper GI determined that there was some damage to the > > intestinal villi, but because the villi were not all but obliterated, > > they technically could not diagnose me with celiacs disease. > > > > But my mother is sure that since there was some damage to the villi, > > and that I show some symptoms, considering our family history (from > > both sides of the family, no less), that I should go on a gluten free > > diet. As I understand it's a rather challenging diet. All things > > considered, do you think I should go gluten free, or just wait and see > > if I eventually start showing even more symptoms, if I ever do, that > > is? My mom's nearly hysterical at this point, thinking I'm going to > > make myself sick eating products with gluten in it. I need some good > > advice a.s.a.p. > > > > Thanks, > > Ang > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 > My mother, my sister, and my paternal grandmother have all been > diagnosed with celiacs disease. Because of this, and because I > display some symptoms of ciliacs disease myself, I went in for a test > as well. The upper GI determined that there was some damage to the > intestinal villi, but because the villi were not all but obliterated, > they technically could not diagnose me with celiacs disease. Patchy villous atrophy is considered by most to be celiac disease. > But my mother is sure that since there was some damage to the villi, > and that I show some symptoms, considering our family history (from > both sides of the family, no less), that I should go on a gluten free > diet. Yes, look for changes in bowel patterns such as reduced flatulence, and more regular and softer movements. > As I understand it's a rather challenging diet. All things > considered, do you think I should go gluten free, or just wait and see > if I eventually start showing even more symptoms, if I ever do, that > is? The diet is not so much challenging as to find all the gluten foods that manufacterors try to sneak by us. By law now they are required to report if they have wheat in their products. Familiarize yourself with a whole foods store or farmers market. > My mom's nearly hysterical at this point, thinking I'm going to > make myself sick eating products with gluten in it. I need some good > advice a.s.a.p. Mom's do get hysterical, but here are some reasons she might be offering you good advice. 1. CD is associated with a number of neurological disorders, some are irreversible in some patients. 2. CD is associated with a several fold increase in gut lymphomas, and intestinal cancers. This is the result of accumulated damage and the cumulative affect cannot be reversed. 3. CD is associated with increased risk for diabetes. 4. A person who has CD is at increased risk for autoimmune diseases of just about every tissue where autoimmune diseases are found, and 100% associated with certain autoimmune diseases. Individuals with CD can contract multiple autoimmune diseases (Lupus). Some of these diseases are hard to diagnose, and in some cases, by the time they are diagnosed the damage is irreversible. CD is an autoimmune disease anti-tissue transglutaminase, and in propogates secondary diseases. All of these are risk factors for CD and sub-clinical CD [Which in essense is CD that clinicians do not recognize as such] 5. There is an 85% misdiagnosis rate for CD, most of this is the failure of Drs to recognize the disease. The sites of highest GI damamge may not be in the duodenal region. Many people in this group, including myself had misdiagnosis and over the period developed secondary conditions such a peripheral neuropathies. My recomendation to you is that if you are in doubt keep a log of what gluten things you are eating over the next week or so, but eat what you normally eat. Record symptoms, pain, nausea, painful bowel movements, abnormal flatulence, whatever. Then stop eating wheat and after 3 days record for 2 weeks the same. If you see a marked change in the way your bowel is functioning, you probably have CD. If you go to the gliadin Science Site you will see I have combined the results of 2 papers, the patchy infiltration of lymphocytes can be seen as a possible transition to clinical CD and there is little evidence that it spontaneously reverses Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 I had the same thing happen a few weeks ago. Everything was working fine…then POOF!....I started getting duplicates. Do you have any email “rules”? The yahoo tech told me to end all my email rules with “stop processing”. Even though I hadn’t set-up or changed any rules in a long time, this worked for me. Who knows what caused it in the first place. If that doesn’t work, write yahoo support and they will help you. Help! I am getting all the messages in duplicate today! I was not getting any last week and now they are doubling up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 I had the same thing happen a few weeks ago. Everything was working fine…then POOF!....I started getting duplicates. Do you have any email “rules”? The yahoo tech told me to end all my email rules with “stop processing”. Even though I hadn’t set-up or changed any rules in a long time, this worked for me. Who knows what caused it in the first place. If that doesn’t work, write yahoo support and they will help you. Help! I am getting all the messages in duplicate today! I was not getting any last week and now they are doubling up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 For what ever reason I started getting duplicates of the e-mails and then I e-mailed for help and just as suddenly it stopped. Sure did make it look like I got a lot of e-mails though! I was a bit overwhelmed by it all but it was gone as quickly as it came. Thanks for the info though! Quote Link to comment Share on other sites More sharing options...
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