Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 , I don't remember reading that. I guess I will have to look it up. I will get back to you if no one else answers it by then. Hugs, Penny 173/159/130 Goal for Oct 31st is-----150!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 In a message dated 9/29/99 10:32:11 PM Eastern Daylight Time, Shadcat708@... writes: << I don't remember reading that. I guess I will have to look it up. I will get back to you if no one else answers it by then. >> Thanks Penny, I don't remember reading it either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 In a message dated 9/30/99 7:25:37 AM Eastern Daylight Time, GRSHOPER1@... writes: << I have heard a lot of rumors and side-effects that people say are caused by low-carbing, but I have never heard of dental problems. I'll see if I can find any info. about this. Marilyn >> Thanks Marilyn, I would appreciate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 , I didn't find anything in the book either, except the same thing Sue found, just another unsubstaniated rumor I guess. Hugs, Penny 173/159/130 Goal for Oct 31st is-----150!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 In a message dated 9/30/99 8:19:05 AM Eastern Daylight Time, suebirney@... writes: << Id ask that person where in the book I went thru it again and found only about the mercury fillings on pg 152 and 53. - >> She told me her MIL told her this. She is normally a very logical thinking person, so I thought there may have been some truth to it. Thanks for checking. That was all I could find about teeth in the book also. 170/140.5/125 4/9/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 In a message dated 9/30/99 8:21:04 AM Eastern Daylight Time, Shadcat708@... writes: << I didn't find anything in the book either, except the same thing Sue found, just another unsubstaniated rumor I guess. >> Thanks for checking Penny! I think it is a rumor too from an uninformed skinny carber. LOL 170/140.5/125 4/9/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 I will take my book to work today and search too about the dental problems. I have enough problems with my teeth I don't need more. Lyndia Alabama Atkins Way of Life since 6/14/99 " Only cat lovers know the luxury of fur coated, musical hot water bottles that never go cold " meet my family at http://www.geocities.com/Heartland/Park/8396/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Id ask that person where in the book I went thru it again and found only about the mercury fillings on pg 152 and 53. --- IAMAngel00@... wrote: <HR> <html> From: IAMAngel00@... Hello everyone, I have a question for you. I went to the dentist today and have a cavity. I haven't had a cavity in a long time. Someone told me that low carbing can cause dental problems and that it is in the book.....is this true? <table><tr><td><pre>-- Forget the rest We are the best. BIG AND BEAUTIFUL BUT LOSING!!!!!! ===== Sue List Manager 310/260.5/180 Goal for Challenge 2 250 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 In a message dated 9/30/99 4:14:30 PM Eastern Daylight Time, lsettles@... writes: << On the contrary- the bacteria in your mouth that cause tooth decay feed on > carbohydrates. Your dental health should improve. >> Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 > On the contrary- the bacteria in your mouth that cause tooth decay feed on > carbohydrates. Your dental health should improve. > > From: IAMAngel00@... > > Hello everyone, > > I have a question for you. I went to the dentist today > and have a cavity. I > haven't had a cavity in a long time. Someone told me > that low carbing can > cause dental problems and that it is in the > book.....is this true? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 I have find it is more easy to see Dr. Cohen if you havve biosy somewhere else and then you see Dr. Cohen for follow-up on everything and a repeat biopsy (of course depend on what teh first one say) i live in CT had me biopsy - left quad fresh do at St. Raphael Hospital and the neuroradiologist from Yale was in the OR and on standby for transport for the specimen right too Yale for start of analyze -- it take forever get reasult back and some of it really wack out with a lot of problem so of it OK - i see Dr. s in Boson at Beth Israel -- I won't recomend anyone else up there and he is send us two dr. cohen for anohter biopsy on the right quad in about 10 month because it also show neuromuscle disease but we don't no enough info two know what kind yet............i heere dr. Cohen wonderful even though me never meat him yet -- just share what i know. do what best for you and what you docs say of course and ALWAYS! If you disagree -- say so and ask them for second opinion or more good explain of why them feel the way they do -- don't get rush out of appt. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 I have find it is more easy to see Dr. Cohen if you havve biosy somewhere else and then you see Dr. Cohen for follow-up on everything and a repeat biopsy (of course depend on what teh first one say) i live in CT had me biopsy - left quad fresh do at St. Raphael Hospital and the neuroradiologist from Yale was in the OR and on standby for transport for the specimen right too Yale for start of analyze -- it take forever get reasult back and some of it really wack out with a lot of problem so of it OK - i see Dr. s in Boson at Beth Israel -- I won't recomend anyone else up there and he is send us two dr. cohen for anohter biopsy on the right quad in about 10 month because it also show neuromuscle disease but we don't no enough info two know what kind yet............i heere dr. Cohen wonderful even though me never meat him yet -- just share what i know. do what best for you and what you docs say of course and ALWAYS! If you disagree -- say so and ask them for second opinion or more good explain of why them feel the way they do -- don't get rush out of appt. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 tonya tummy description sounds just like andrew's at the moment. his is caused by dismotility in the digestive system. as laurie said, basically only a little comes out at each bowel motion and the rest stays in. even with the enemas andrew is having in hospital, his intestines just are not emptying very well....which leads to the big tummy look. keep well claudette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 a There is one on the UMDF web site and also the MDA site. laurie Reply-To: Date: Sat, 30 Nov 2002 13:19:29 -0600 To: Subject: Question Hi all, I am still dealing with a certain neurologist who doesn't like to listen about this disorder. There are some issues that we are working on, and I remember at one time there was some sight to go to with " Ask the doctor " or Ask the mitodoc, or something like that. Was that on the UMDF sight? It seems that if I have something in writing, he will listen a little better, not all the time, but most of the time. Thanks and smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 a There is one on the UMDF web site and also the MDA site. laurie Reply-To: Date: Sat, 30 Nov 2002 13:19:29 -0600 To: Subject: Question Hi all, I am still dealing with a certain neurologist who doesn't like to listen about this disorder. There are some issues that we are working on, and I remember at one time there was some sight to go to with " Ask the doctor " or Ask the mitodoc, or something like that. Was that on the UMDF sight? It seems that if I have something in writing, he will listen a little better, not all the time, but most of the time. Thanks and smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 yep, it is the umdf site. ----- Hi all, I am still dealing with a certain neurologist who doesn't like tolisten about this disorder. There are some issues that we are workingon, and I remember at one time there was some sight to go to with "Askthe doctor" or Ask the mitodoc, or something like that. Was that on theUMDF sight? It seems that if I have something in writing, he willlisten a little better, not all the time, but most of the time.Thanks and smiles,a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 yep, it is the umdf site. ----- Hi all, I am still dealing with a certain neurologist who doesn't like tolisten about this disorder. There are some issues that we are workingon, and I remember at one time there was some sight to go to with "Askthe doctor" or Ask the mitodoc, or something like that. Was that on theUMDF sight? It seems that if I have something in writing, he willlisten a little better, not all the time, but most of the time.Thanks and smiles,a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 Hi all..it is me again. I went back to my neurologist today to have my meds changed for my headaches, and I asked her point blank if she thought there was something wrong. I only asked because all of my tests have came back normal up until this point (EEG, EMG, MRI, blood work). She said that she is going to send me to a specialist, but she has seen stress cause my symptoms (severe headaches, weakness, ataxia, neuopathy, muscle twitching, no balance, and tire easily). Have any of you gotten a diagnosis of stress induced? I am so sick of hearing these things. It seems like the only one who truly thinks there is something wrong is my best friend, and that is because she lives with me and sees it every day. She goes to the appointments with me, but it just doesn't seem like there is any " light at the end of the tunnel " . I just wanted to see what you all thought. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 I think this is the reaction when they don't have answers for someone. I was told this more than once. I left some doctors because they would not take me seriously. laurie " Reply-To: Date: Tue, 24 Dec 2002 02:12:44 -0000 To: Subject: Question Hi all..it is me again. I went back to my neurologist today to have my meds changed for my headaches, and I asked her point blank if she thought there was something wrong. I only asked because all of my tests have came back normal up until this point (EEG, EMG, MRI, blood work). She said that she is going to send me to a specialist, but she has seen stress cause my symptoms (severe headaches, weakness, ataxia, neuopathy, muscle twitching, no balance, and tire easily). Have any of you gotten a diagnosis of stress induced? I am so sick of hearing these things. It seems like the only one who truly thinks there is something wrong is my best friend, and that is because she lives with me and sees it every day. She goes to the appointments with me, but it just doesn't seem like there is any " light at the end of the tunnel " . I just wanted to see what you all thought. Thanks. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 If oyu don't mind me asking Laurie...how long did it take before they finally gave you a diagnosis? > I think this is the reaction when they don't have answers for someone. I was > told this more than once. I left some doctors because they would not take me > seriously. > > laurie > > From: " tiggermania_2000 <tiggermania@h...> " <tiggermania@h...> > Reply-To: > Date: Tue, 24 Dec 2002 02:12:44 -0000 > To: > Subject: Question > > > Hi all..it is me again. I went back to my neurologist today to have > my meds changed for my headaches, and I asked her point blank if she > thought there was something wrong. I only asked because all of my > tests have came back normal up until this point (EEG, EMG, MRI, > blood work). She said that she is going to send me to a specialist, > but she has seen stress cause my symptoms (severe headaches, > weakness, ataxia, neuopathy, muscle twitching, no balance, and tire > easily). Have any of you gotten a diagnosis of stress induced? I > am so sick of hearing these things. It seems like the only one who > truly thinks there is something wrong is my best friend, and that is > because she lives with me and sees it every day. She goes to the > appointments with me, but it just doesn't seem like there is > any " light at the end of the tunnel " . I just wanted to see what you > all thought. > > Thanks. > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 Thanks. It is always comforting to know that I am not the only one who has to deal with the frustration of being told that it is all in my head or stress induced. I have been stressed before, and I do not recall feeling tired, or having my muscles feel like they just ran marathons, or having headaches so severe that even on 1200 mg of Neurontin I need to take 8 Excederine Migraine to get it down to where I can actually tolerate light. Sometimes you almost start to believe them, because you hear it so often. I am just glad there are people out there who are willing to help me " stay sane " . Thanks again! > Tigger, > > Stress can agravate a condition, but I don't think it creates them. Doctors blame patients when they cannot figure out the cause of a disease. It happened to me for 7 years. > > I only showed 'elevated citrate synthase' on my muscle biopsy and that was enough for a mito diagnoses from my neuro. Of course, I also had the typical complaints of cramping and fatigue, not being able to read for more than 15 minutes without sleeping, and on and on. > > It took years of docs telling me it was in my head, until one day I realized they didn't know what the problem was, started doing my own research and got the truth. So I am now diagnosed, and will probably have to go to the Cleveland Clinic for further testing. > > Please don't give up. You know when something is really wrong with your body better than any doc! The docs just test to see exactly what it is and give meds, if you are lucky enough to have a med for your particular disease. Also, the docs don't know how to say " I don't know " . > > So don't feel bad, keep fighting, maybe you should look up an MDA clinic to get tests if you feel your docs won't help. > > Also, you may want to print the articles on mito disease in adults and hand them to your doc so they can read and see the coorelation of symptoms. Just a thought. > > I hope this helps. > > God bless, > Hazelpone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 I also have had many doctors who couldn't find the answers and made excuses. Some I heard were, "You have post partum pregnancy." (My baby was over 1 yrs. old so that was rediculous!) Another was, "You just lost a bunch of weight." or "Are you overly stressed?" Why doctors don't want to admit they can't find a problem is beyond me. Early on in my disorder I went to an ER two days in a row for terrible weakness and shakiness feeling very dizzy and faint. I really wanted help but the doctors told me not to return even if I felt like I was going to die. They just didn't want to deal with something they couldn't know answers for. I must say there have been some good doctors who did tell me it "might" be Multiple Sclerosis and tried to help but they never mentioned Mito. I gave up trying to get help so many times only to try several years later when it got too bad. I don't think I would ever have found out what is wrong with me if my daughter hadn't been so bad. Now I am hoping for answers for her and myself. It feels good to talk to others who REALLY understand. Merry Christmas, Darla: 32 yrs. mito related symptoms since 1990 w/ a mito daughter that is 2 1/2 and 7 other kids 1-14 (the two youngest are my son-adopted (12 mon.) and my foster daughter (23 mon.). Re: Question Thanks. It is always comforting to know that I am not the only one who has to deal with the frustration of being told that it is all in my head or stress induced. I have been stressed before, and I do not recall feeling tired, or having my muscles feel like they just ran marathons, or having headaches so severe that even on 1200 mg of Neurontin I need to take 8 Excederine Migraine to get it down to where I can actually tolerate light. Sometimes you almost start to believe them, because you hear it so often. I am just glad there are people out there who are willing to help me "stay sane".Thanks again! > Tigger,> > Stress can agravate a condition, but I don't think it creates them. Doctors blame patients when they cannot figure out the cause of a disease. It happened to me for 7 years.> > I only showed 'elevated citrate synthase' on my muscle biopsy and that was enough for a mito diagnoses from my neuro. Of course, I also had the typical complaints of cramping and fatigue, not being able to read for more than 15 minutes without sleeping, and on and on. > > It took years of docs telling me it was in my head, until one day I realized they didn't know what the problem was, started doing my own research and got the truth. So I am now diagnosed, and will probably have to go to the Cleveland Clinic for further testing.> > Please don't give up. You know when something is really wrong with your body better than any doc! The docs just test to see exactly what it is and give meds, if you are lucky enough to have a med for your particular disease. Also, the docs don't know how to say "I don't know". > > So don't feel bad, keep fighting, maybe you should look up an MDA clinic to get tests if you feel your docs won't help. > > Also, you may want to print the articles on mito disease in adults and hand them to your doc so they can read and see the coorelation of symptoms. Just a thought.> > I hope this helps.> > God bless,> HazelponeMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 Wow Darla... I just read your signature line. You have 8 children at the age of 32? Boy...you sure have your hands full. Many times Mito is first thought to be either MS or Lupus or even Lyme disease. Unfortunately for us, not many doctors have much knowledge about the disease so it's just not thought of in just about all cases. Since your daughter has presented with it, your symptoms now would be much more suspicious to a doctor who had knowledge of the disease and even at that.. there just aren't many of them around. I see you have been getting some good support from the list and I wanted to be sure to welcome you personally. Alice <Merry Christmas, Darla: 32 yrs. mito related symptoms since 1990 w/ a mito daughter that is 2 1/2 and 7 other kids 1-14 (the two youngest are my son-adopted (12 mon.) and my foster daughter (23 mon.). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 TIGGER, I DO NOT KNOW YOUR REAL NAME BUT ANYTIME YOU WANNA SHARE LET ME KNOW. I ENJOY TALKING WITH PEOPLE WHO CAN ACTUALLY UNDERSTAND. SHELLY Re: Question I am glad to see that I am not the only one who has the response of "bite me" when I hear the B.S. they are pedaling. My whole thing is I know that I am not doing as well as I once was and until they live one day with the crud I have to put up with, do not dismiss me.Sorry to hear that you are in the same boat as me. It is frustrating, and you definitely do not seem to need any more frustration in your life. Let me know if you want to share some frustrations together! > > Hi all..it is me again. I went back to my neurologist today to have > > my meds changed for my headaches, and I asked her point blank if she > > thought there was something wrong. I only asked because all of my > > tests have came back normal up until this point (EEG, EMG, MRI, > > blood work). She said that she is going to send me to a specialist, > > but she has seen stress cause my symptoms (severe headaches, > > weakness, ataxia, neuopathy, muscle twitching, no balance, and tire > > easily). Have any of you gotten a diagnosis of stress induced? I > > am so sick of hearing these things. It seems like the only one who > > truly thinks there is something wrong is my best friend, and that is > > because she lives with me and sees it every day. She goes to the > > appointments with me, but it just doesn't seem like there is > > any "light at the end of the tunnel". I just wanted to see what you > > all thought.> > > > Thanks.> > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > > > Quote Link to comment Share on other sites More sharing options...
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