Guest guest Posted September 22, 1999 Report Share Posted September 22, 1999 , Welcome to the list!! Hugs, Penny 173/159/130 Visit my family at: ****<A HREF= " http://sites.netscape.net/pjwrww6/thewilsons " >Home Page</A>**** http://sites.netscape.net/pjwrww6/thewilsons A new updated site!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 1999 Report Share Posted September 22, 1999 In a message dated 9/22/99 12:47:21 PM Eastern Daylight Time, lisarobinson@... writes: << Hi all. I am new to the list and just wanted to introduce myself. I am on my 15th day of ATkins. I lost 7 lbs total >> Hello and welcome to the list!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 1999 Report Share Posted September 23, 1999 Kitty, You can go to onelist.com, login with your e-mail address and password, adn when our list pops up, either click on digest or no mail. Hugs, Penny 173/159/130 Visit my family at: ****<A HREF= " http://sites.netscape.net/pjwrww6/thewilsons " >Home Page</A>**** http://sites.netscape.net/pjwrww6/thewilsons A new updated site!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Lori, Welcome to the list. Just jump right in, sometimes we move so fast around here that it gets real confusing, so feel free to post alot, no " rules " here about that.... Take care, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Gosh, you can never have too many Lori's I always say. Welcome to the list and I look forward to getting to know you and Scout. Where do you live? Lori, also stays at home but that's not my address, mom to 3, 1wcf and lives in Florida New to list > Hi! I am new to the list. > > My name is Lori and I am mom to Scout 19 months with CF. She was diagnosed > just barely over a year ago due to failure to thrive. We spent our first > Mother's Day in the hospital - hopefully, this year will be better! > > At 19 months Scout weighs 20lb 12 oz. She is 15th percentile for weight and > 5th for height. A year ago she was way off the chart in the wrong > direction - she only weighed like 9lbs. at 7 months of age. > > Her treatment plan is just enzymes and vitamins (and fun, fun, fun chest > P.T.) with Zithromax if she gets a cold/cough. > > I saw some posts about breastfeeding. I am a big supporter. In fact, much to > my surprise I am still breastfeeding Scout. I keep thinking I'll quit, but > since it no big deal to keep doing it and I like the health benefits she > should be getting from it I keep it up. (Get in that DHA and antibodies > anyway you can I figure.) > > That is it for now. I am really glad to find a group like this. > > Lori > mom to Scout 19 mo w/CF > > > ------------------------------------------------------------------------ > Special Offer-Earn 300 Points from MyPoints.com for trying @Backup > Get automatic protection and access to your important computer files. > Install today: > http://click./1/2344/6/_/480698/_/958157055/ > ------------------------------------------------------------------------ > > *********************** > This is a secular list. > *********************** > > -------------------------------------------------- > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsonelist > Subscribe: cfparents-subscribeonelist > Unsubscribe: cfparents-unsubscribeonelist > List owner: cfparents-owneronelist > _________________________________________________ > > WE HAVE A CHAT PAGE!!! http://www.onelist.com/chat/cfparents > _________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 We live in Wisconsin. Unfortunately, Scout was born in Montana. Wisconsin has newborn screening - Montana doesn't. In fact, when Scout was diagnosed we had been in our new state/house all of three big days, after having been separated (for moving reasons, not marital problems) from husband/daddy for four months! We came home from the hospital with basically everything we owned still sitting in boxes - my it was such a lovely time!!! Lori mom to Scout 19 mo. wCF New to list > > > > Hi! I am new to the list. > > > > My name is Lori and I am mom to Scout 19 months with CF. She was diagnosed > > just barely over a year ago due to failure to thrive. We spent our first > > Mother's Day in the hospital - hopefully, this year will be better! > > > > At 19 months Scout weighs 20lb 12 oz. She is 15th percentile for weight > and > > 5th for height. A year ago she was way off the chart in the wrong > > direction - she only weighed like 9lbs. at 7 months of age. > > > > Her treatment plan is just enzymes and vitamins (and fun, fun, fun chest > > P.T.) with Zithromax if she gets a cold/cough. > > > > I saw some posts about breastfeeding. I am a big supporter. In fact, much > to > > my surprise I am still breastfeeding Scout. I keep thinking I'll quit, but > > since it no big deal to keep doing it and I like the health benefits she > > should be getting from it I keep it up. (Get in that DHA and antibodies > > anyway you can I figure.) > > > > That is it for now. I am really glad to find a group like this. > > > > Lori > > mom to Scout 19 mo w/CF > > > > > > ------------------------------------------------------------------------ > > Special Offer-Earn 300 Points from MyPoints.com for trying @Backup > > Get automatic protection and access to your important computer files. > > Install today: > > http://click./1/2344/6/_/480698/_/958157055/ > > ------------------------------------------------------------------------ > > > > *********************** > > This is a secular list. > > *********************** > > > > -------------------------------------------------- > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > > > _________________________________________________ > > Post message: cfparentsonelist > > Subscribe: cfparents-subscribeonelist > > Unsubscribe: cfparents-unsubscribeonelist > > List owner: cfparents-owneronelist > > _________________________________________________ > > > > WE HAVE A CHAT PAGE!!! http://www.onelist.com/chat/cfparents > > _________________________________________________ > > > > > > > > > > > > ------------------------------------------------------------------------ > Best friends, most artistic, class clown Find 'em here: > http://click./1/4054/6/_/480698/_/958157637/ > ------------------------------------------------------------------------ > > *********************** > This is a secular list. > *********************** > > -------------------------------------------------- > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsonelist > Subscribe: cfparents-subscribeonelist > Unsubscribe: cfparents-unsubscribeonelist > List owner: cfparents-owneronelist > _________________________________________________ > > WE HAVE A CHAT PAGE!!! http://www.onelist.com/chat/cfparents > _________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Hi Lori! Nice to see you outside of the CF bb on Parentsplace! (hnlsmom) " Lori Devoti " on 05/12/2000 02:40:58 PM Please respond to cfparentsegroups To: " cfparents " <cfparentsegroups> cc: (bcc: -Holmes/Louisville/Humana) Subject: New to list Hi! I am new to the list. My name is Lori and I am mom to Scout 19 months with CF. She was diagnosed just barely over a year ago due to failure to thrive. We spent our first Mother's Day in the hospital - hopefully, this year will be better! At 19 months Scout weighs 20lb 12 oz. She is 15th percentile for weight and 5th for height. A year ago she was way off the chart in the wrong direction - she only weighed like 9lbs. at 7 months of age. Her treatment plan is just enzymes and vitamins (and fun, fun, fun chest P.T.) with Zithromax if she gets a cold/cough. I saw some posts about breastfeeding. I am a big supporter. In fact, much to my surprise I am still breastfeeding Scout. I keep thinking I'll quit, but since it no big deal to keep doing it and I like the health benefits she should be getting from it I keep it up. (Get in that DHA and antibodies anyway you can I figure.) That is it for now. I am really glad to find a group like this. Lori mom to Scout 19 mo w/CF ------------------------------------------------------------------------ Special Offer-Earn 300 Points from MyPoints.com for trying @Backup Get automatic protection and access to your important computer files. Install today: http://click./1/2344/6/_/480698/_/958157055/ ------------------------------------------------------------------------ *********************** This is a secular list. *********************** -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsonelist Subscribe: cfparents-subscribeonelist Unsubscribe: cfparents-unsubscribeonelist List owner: cfparents-owneronelist _________________________________________________ WE HAVE A CHAT PAGE!!! http://www.onelist.com/chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 >going....and going! I can't wait to get to know all of you....some I >already know (Hi Lori, , Grandma Bev) Hi Dawn! Nice to 'see' you. :-) ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 >going....and going! I can't wait to get to know all of you....some I >already know (Hi Lori, , Grandma Bev) Hi Dawn! Nice to 'see' you. :-) ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Hi Dawn, My name is Cheryl. I have a 7 months old son who has CF. His name is Jake. He is just like your little guy. He just found out the adventures of crawling and never stops. He just keeps going. . . . . We found out Jake's diagnosis at 3 months old. It was when I stopped breastfeeding. He decided he didn't want to eat anymore. SO, in desperation I took him to the hospital. And that's when we found out. He was a slow weight gainer, but now he's climbing up there. Still hard to feed. At 6 months he was 15 lbs. Who knows what he is now? I go back to the doc next month. Take care, Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Hi Dawn, My name is Cheryl. I have a 7 months old son who has CF. His name is Jake. He is just like your little guy. He just found out the adventures of crawling and never stops. He just keeps going. . . . . We found out Jake's diagnosis at 3 months old. It was when I stopped breastfeeding. He decided he didn't want to eat anymore. SO, in desperation I took him to the hospital. And that's when we found out. He was a slow weight gainer, but now he's climbing up there. Still hard to feed. At 6 months he was 15 lbs. Who knows what he is now? I go back to the doc next month. Take care, Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Welcome Dawn!! I think you will really like this list. I have pretty much deserted Cystic-L, it was just more than I need to know and our board seems to not get a lot of postings. Hope Tyler is doing well. Lori D. mom to Scout 22 mo wCF New To List > Hello, I just joined the list last night, I got the url from Cystic-l. Just > wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old with > CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that ruptured. > This year has been hard on us, he has been in the hospital 4 times already > for bowel obstructions. I tell you what, for someone that has CF Tyler > never slows down....he's like the energizer bunny, keeps going....and > going....and going! I can't wait to get to know all of you....some I > already know (Hi Lori, , Grandma Bev) > > Dawn > mom to Tyler 2 1/2 w CF > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Hello Dawn, welcome on the list. My name is Nicolas and I am father of Timothe 4 months 1/2 with CF, diagnosed because of Mecconium Illeus... I hope that Tyler will feel better. Nicolas > Hello, I just joined the list last night, I got the url from Cystic- l. Just > wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old with > CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that ruptured. > This year has been hard on us, he has been in the hospital 4 times already > for bowel obstructions. I tell you what, for someone that has CF Tyler > never slows down....he's like the energizer bunny, keeps going....and > going....and going! I can't wait to get to know all of you....some I > already know (Hi Lori, , Grandma Bev) > > Dawn > mom to Tyler 2 1/2 w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 GLAD your having a meeting time .These folks are so friendly. SEE YA!! GrandmomBEV Re: New To List >going....and going! I can't wait to get to know all of you....some I >already know (Hi Lori, , Grandma Bev) Hi Dawn! Nice to 'see' you. :-) ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Hey , glad you are here too, Man I already feel like I know everyone......How's the funnies? Talk to ya soon! Dawn New To List Hello, I just joined the list last night, I got the url from Cystic-l. Just wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old with CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that ruptured. This year has been hard on us, he has been in the hospital 4 times already for bowel obstructions. I tell you what, for someone that has CF Tyler never slows down....he's like the energizer bunny, keeps going....and going....and going! I can't wait to get to know all of you....some I already know (Hi Lori, , Grandma Bev) Dawn mom to Tyler 2 1/2 w CF *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Lori, did you get married or divorced? I notice your last name has changed. Tyler is doing pretty good for the time being. Take Care! Dawn Re: New To List Welcome Dawn!! I think you will really like this list. I have pretty much deserted Cystic-L, it was just more than I need to know and our board seems to not get a lot of postings. Hope Tyler is doing well. Lori D. mom to Scout 22 mo wCF New To List > Hello, I just joined the list last night, I got the url from Cystic-l. Just > wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old with > CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that ruptured. > This year has been hard on us, he has been in the hospital 4 times already > for bowel obstructions. I tell you what, for someone that has CF Tyler > never slows down....he's like the energizer bunny, keeps going....and > going....and going! I can't wait to get to know all of you....some I > already know (Hi Lori, , Grandma Bev) > > Dawn > mom to Tyler 2 1/2 w CF > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Lori, did you get married or divorced? I notice your last name has changed. Tyler is doing pretty good for the time being. Take Care! Dawn Re: New To List Welcome Dawn!! I think you will really like this list. I have pretty much deserted Cystic-L, it was just more than I need to know and our board seems to not get a lot of postings. Hope Tyler is doing well. Lori D. mom to Scout 22 mo wCF New To List > Hello, I just joined the list last night, I got the url from Cystic-l. Just > wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old with > CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that ruptured. > This year has been hard on us, he has been in the hospital 4 times already > for bowel obstructions. I tell you what, for someone that has CF Tyler > never slows down....he's like the energizer bunny, keeps going....and > going....and going! I can't wait to get to know all of you....some I > already know (Hi Lori, , Grandma Bev) > > Dawn > mom to Tyler 2 1/2 w CF > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Dawn, Have you tried MIralax to help with the bowel obstructions? It has been wonderful for my daughter . Amy (mom of 3, 1 with cf) New To List >Hello, I just joined the list last night, I got the url from Cystic-l. Just >wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old with >CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that ruptured. >This year has been hard on us, he has been in the hospital 4 times already >for bowel obstructions. I tell you what, for someone that has CF Tyler >never slows down....he's like the energizer bunny, keeps going....and >going....and going! I can't wait to get to know all of you....some I >already know (Hi Lori, , Grandma Bev) > >Dawn >mom to Tyler 2 1/2 w CF > > > > >*********************** >This is a secular list. >*********************** > > >PLEASE do not post religious emails to the list. > > >-------------------------------------------------- > > >The opinions and information exchanged on this list should >IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > >-------------------------------------------------- > > >Our webpage is at http://www.eohio.net/malbright/cfparents.htm > >_________________________________________________ >Post message: cfparentsegroups >Subscribe: cfparents-subscribeegroups >Unsubscribe: cfparents-unsubscribeegroups >List owner: cfparents-owneregroups >_________________________________________________ > >WE HAVE A CHAT PAGE!!! >/chat/cfparents >_________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 No actually Devoti has been my name as long as I have been on the board. You probably thought it was something else because my board name is Lorimt as in an abbreviation for Montana - where we used to live. Lori D. mom to Scout 22mo wCF New To List > > > > Hello, I just joined the list last night, I got the url from Cystic-l. > Just > > wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old > with > > CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that > ruptured. > > This year has been hard on us, he has been in the hospital 4 times already > > for bowel obstructions. I tell you what, for someone that has CF Tyler > > never slows down....he's like the energizer bunny, keeps going....and > > going....and going! I can't wait to get to know all of you....some I > > already know (Hi Lori, , Grandma Bev) > > > > Dawn > > mom to Tyler 2 1/2 w CF > > > > > > > > > > *********************** > > This is a secular list. > > *********************** > > > > > > PLEASE do not post religious emails to the list. > > > > > > -------------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > > > _________________________________________________ > > Post message: cfparentsegroups > > Subscribe: cfparents-subscribeegroups > > Unsubscribe: cfparents-unsubscribeegroups > > List owner: cfparents-owneregroups > > _________________________________________________ > > > > WE HAVE A CHAT PAGE!!! > > /chat/cfparents > > _________________________________________________ > > > > > > > > > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 No actually Devoti has been my name as long as I have been on the board. You probably thought it was something else because my board name is Lorimt as in an abbreviation for Montana - where we used to live. Lori D. mom to Scout 22mo wCF New To List > > > > Hello, I just joined the list last night, I got the url from Cystic-l. > Just > > wanted to introduce myself. My name is Dawn and I have a 2 1/2 yr old > with > > CF. He was diagnosed at 3 weeks, born with Mecconium Illeus that > ruptured. > > This year has been hard on us, he has been in the hospital 4 times already > > for bowel obstructions. I tell you what, for someone that has CF Tyler > > never slows down....he's like the energizer bunny, keeps going....and > > going....and going! I can't wait to get to know all of you....some I > > already know (Hi Lori, , Grandma Bev) > > > > Dawn > > mom to Tyler 2 1/2 w CF > > > > > > > > > > *********************** > > This is a secular list. > > *********************** > > > > > > PLEASE do not post religious emails to the list. > > > > > > -------------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > > > _________________________________________________ > > Post message: cfparentsegroups > > Subscribe: cfparents-subscribeegroups > > Unsubscribe: cfparents-unsubscribeegroups > > List owner: cfparents-owneregroups > > _________________________________________________ > > > > WE HAVE A CHAT PAGE!!! > > /chat/cfparents > > _________________________________________________ > > > > > > > > > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 Hi Cheryl! I went through this wanting another child or not for ages. After I knew hat CF I first of all decided he would be my last child. Then after quite a while I thought I could do with a couple more. I went on and on about this for months and years. At one point I decided that if I wanted another child I would have it and I would have it with or without CF. And then at another point about one year ago I decided that I just did not want any more children. And that decision had nothing to do with CF. The more often I think about this now I am sure that once you know a disease - like cf - you would - if you wanted another child - take one with cf. You know what your are getting. I get really angry when I talk to other people about this. It is my decision how many children I want. And I do not want ANYONE to tell me that I had better stopp because of CF... I just cannot write it differently, but I do hope you all understand what I am trying to say. Love Caroline with Talau 9 and 5 wcf Wade & Cheryl Shiley wrote: I've really appreciated all of the stories from people who have had a child with CF and have had a second or more. This is a constant discussion between my husband and me. One day we say lets have another, and the next we say no way. This is the hardest decision I've ever been faced with my whole life. I'd love to hear from more people who have made this decision or who are trying to make it now. This is the only place where I can come for support regarding this, nobody else even comes close to understanding. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 Hi Cheryl! I went through this wanting another child or not for ages. After I knew hat CF I first of all decided he would be my last child. Then after quite a while I thought I could do with a couple more. I went on and on about this for months and years. At one point I decided that if I wanted another child I would have it and I would have it with or without CF. And then at another point about one year ago I decided that I just did not want any more children. And that decision had nothing to do with CF. The more often I think about this now I am sure that once you know a disease - like cf - you would - if you wanted another child - take one with cf. You know what your are getting. I get really angry when I talk to other people about this. It is my decision how many children I want. And I do not want ANYONE to tell me that I had better stopp because of CF... I just cannot write it differently, but I do hope you all understand what I am trying to say. Love Caroline with Talau 9 and 5 wcf Wade & Cheryl Shiley wrote: I've really appreciated all of the stories from people who have had a child with CF and have had a second or more. This is a constant discussion between my husband and me. One day we say lets have another, and the next we say no way. This is the hardest decision I've ever been faced with my whole life. I'd love to hear from more people who have made this decision or who are trying to make it now. This is the only place where I can come for support regarding this, nobody else even comes close to understanding. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 Hi everyone My name is Sandy and my husband is Ed. I have been a lurker for the past 6 months or so but thought it was time to introduce myself. We have a 16 month old daughter called with cf and asthma. We live in Christchurch , New Zealand. has been reasonably healthy so far apart from 1 week in hospital at 8 weeks of age due to pneumonia. She has had some colds over winter but at the first sign of a cough she is put on oral antibiotics and that seems to work at this stage.We are just entering our summer here so looking forward to the nice hot weather. It was a great shock to us, as it is with everybody, when the diagnosis was confirmed at 2 weeks of age with the sweat test following the heel prick test at birth. We are so lucky here to have the heel prick test done on newborns. Our cf clinic is really great. We are only a 15 minute drive from the hospital where it is based. I think it is wonderful to have this list. Really informative. Thanks Sandy, Mum to 16mo wcf & asthma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 Welcome; glad you are listed. I am sure we will learn a lot from you and about your medical care system. Hoping this finds you all reasonably healthy, n Rojas wcf, mom of 3, 1 wcf--all grown, not to sure about mom, though! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 WELCOME.....It is so nice when we have another great family join in. Such support is the best thing ,except a cure , we in the cf community could have....thanks for being here. I look forward to your posts...Who is your doc at your clinic.? LOVE & HUGS, GrandmomBEV new to list Hi everyone My name is Sandy and my husband is Ed. I have been a lurker for the past 6 months or so but thought it was time to introduce myself. We have a 16 month old daughter called with cf and asthma. We live in Christchurch , New Zealand. has been reasonably healthy so far apart from 1 week in hospital at 8 weeks of age due to pneumonia. She has had some colds over winter but at the first sign of a cough she is put on oral antibiotics and that seems to work at this stage.We are just entering our summer here so looking forward to the nice hot weather. It was a great shock to us, as it is with everybody, when the diagnosis was confirmed at 2 weeks of age with the sweat test following the heel prick test at birth. We are so lucky here to have the heel prick test done on newborns. Our cf clinic is really great. We are only a 15 minute drive from the hospital where it is based. I think it is wonderful to have this list. Really informative. Thanks Sandy, Mum to 16mo wcf & asthma Quote Link to comment Share on other sites More sharing options...
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