Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 , Thanks for letting us know. I also wanted to add that my daughter was recently put on BCMH (Bureau for children with medical handicaps) in Ohio, and they have started covering the CoEnzyme Q10 and other supplements needed due to mito disease. Patti re medicaid > We live in Kentucky,and although has qualified for > disability/medicaid since age five, we were told we earned to much > (max is $10,000 yearly).That will barely pay our insurance premium! > Anyway last week I found out that if she qualified for any home > health services then she would also qualify for medicaid.I was told > that the first month our income is counted but after that everything > is on 's income and since she has no income she WILL qualify.I > don't know if other states work this way,but it may be worth a try.I > was also told that if her doctor wrote a letter of medical necessity > that her CoQ10 should also be covered. > > It makes me Mad ,to know this has been available for years and we > were not told about it,had to find out from another parent. > > I hope this will be of help to SOMEBODY. > > Good Luck, > > > > ------------------------------------------------------------------------ > Failed tests, classes skipped, forgotten locker combinations. > Remember the good 'ol days > http://click./1/4053/2/_/368657/_/958802109/ > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 and others, You have brought up something here that I am very curious about. SSI and income and age. And I thought this was federal law. But does it vary by state???? My son is 10 and we live in PA. In PA he can get SSI in his own right after age 18 only if we make sure he has less tha $2000 in his name. I spent all of my pensions to stay home and then we went on SSI, money gets direct deposited . But we can't have more than $3000 fkor a family of 4 and can only make so much money- I think. Well maybe we can have $3000. and $2000 in his name I am not sure. Anyway, I have inherited some money from my Mom and will have to go off SSI. I could use your input here to help a family fued. My brother says his sister in law has a child with spina bifida and lives in New Jersey. They own their own business and have alot of money. But their child has gotten SSI since she was born and her Mom (so my brother says) says that this is federal law and they cannot discriminate us parents not being able to work and we should get the money, as they did, without looking at income. He is implying that I do not know the laws or what I am doing. Or that my SSi person is screwing me. Can only get this because of disability.(autism) Ok so this makes this is federal law. How come the discrepancy here. Does it vary state to state somehow??? And to whomever that was that I just read about getting audited. I just say that I do not pay my bills that way. You wouldn''t write your mortgage, electric, water, sewer, food, etc. bills using say a family of 4 and pay only one quarter of it out of your child's money then another check for 3 quarters. Well maybe that is what you should do since the check comes in your child's name. Is this child over 18?? Well thanks for any out of state input on this. Anyone from New Jersey? Kathy F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 Kathy, SSI is federal and to the best of my knowledge does not (and can not) vary by state. I believe that your brother is mistaken and probably doesn't know all the facts regarding his sister in law. If not, I'm sure a lot of us would like to know if he is right! It is different for disabled adults though. My mother is also disabled (in addition to my son) and I do claim her as a dependent on my tax return. However, my income is not considered in her Social Security Disability payments because she is an adult. She is not able to work, but if she did and made over a certain (very small) amount, her disability payments would decrease or stop altogether depending upon the amount. Terri > > and others, > You have brought up something here that I am very curious about. SSI >and income and age. And I thought this was federal law. But does it vary >by >state???? >My son is 10 and we live in PA. In PA he can get SSI in his own right >after >age 18 only if we make sure he has less tha $2000 in his name. > I spent all of my pensions to stay home and then we went on SSI, >money >gets direct deposited . But we can't have more than $3000 fkor a family >of >4 and can only make so much money- I think. Well maybe we can have $3000. >and $2000 in his name I am not sure. > Anyway, I have inherited some money from my Mom and will have to go >off >SSI. >I could use your input here to help a family fued. My brother says his >sister in law has a child with spina bifida and lives in New Jersey. They >own their own business and have alot of money. But their child has gotten >SSI since she was born and her Mom (so my brother says) says that this is >federal law and they cannot discriminate us parents not being able to work >and we should get the money, as they did, without looking at income. He is >implying that I do not know the laws or what I am doing. Or that my SSi >person is screwing me. Can only get this because of disability.(autism) >Ok so this makes this is federal law. How come the discrepancy here. >Does it vary state to state somehow??? > And to whomever that was that I just read about getting audited. I >just >say that I do not pay my bills that way. You wouldn''t write your >mortgage, >electric, water, sewer, food, etc. bills using say a family of 4 and pay >only >one quarter of it out of your child's money then another check for 3 >quarters. Well maybe that is what you should do since the check comes in >your child's name. Is this child over 18?? >Well thanks for any out of state input on this. Anyone from New Jersey? >Kathy F ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 Kathy, We live in NJ and have been told that our income is to high for SSI/Medicaid. As far as I know they count the parents income until the child is 18. There are in NJ however other forms of Medicaid. There is one form for kids who have no insurance called Kid Care (I think). There is also another form for kids who have chronic illness, but it too has an income cap. The third type, which we are applying for, is thru the NJ Division fo Developmental Disabilties. It is a medicaid only waiver and your expenses have to exceed more than 5% of your income. Your child must have delays of 33% in two areas or 50% in one area to qualify for DDD services. Hope this helps Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 Just wanted to put my two cents in about the SSI. has been getting SSI since she was about 9yrs. old. SSI is federal and it most certainly is based on the parents income. Each month I have to send in my husbands pay stubs so the Social Security office can verify his income. Becky --- KAFoley2@... wrote: > and others, > You have brought up something here that I am > very curious about. SSI > and income and age. And I thought this was federal > law. But does it vary by > state???? > My son is 10 and we live in PA. In PA he can get > SSI in his own right after > age 18 only if we make sure he has less tha $2000 in > his name. > I spent all of my pensions to stay home and then > we went on SSI, money > gets direct deposited . But we can't have more > than $3000 fkor a family of > 4 and can only make so much money- I think. Well > maybe we can have $3000. > and $2000 in his name I am not sure. > Anyway, I have inherited some money from my Mom > and will have to go off > SSI. > I could use your input here to help a family fued. > My brother says his > sister in law has a child with spina bifida and > lives in New Jersey. They > own their own business and have alot of money. But > their child has gotten > SSI since she was born and her Mom (so my brother > says) says that this is > federal law and they cannot discriminate us parents > not being able to work > and we should get the money, as they did, without > looking at income. He is > implying that I do not know the laws or what I am > doing. Or that my SSi > person is screwing me. Can only get this because of > disability.(autism) > Ok so this makes this is federal law. How come the > discrepancy here. > Does it vary state to state somehow??? > And to whomever that was that I just read about > getting audited. I just > say that I do not pay my bills that way. You > wouldn''t write your mortgage, > electric, water, sewer, food, etc. bills using say a > family of 4 and pay only > one quarter of it out of your child's money then > another check for 3 > quarters. Well maybe that is what you should do > since the check comes in > your child's name. Is this child over 18?? > Well thanks for any out of state input on this. > Anyone from New Jersey? > Kathy F > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2000 Report Share Posted May 22, 2000 Terri,, you are correct,,,,SSI is a federal program and it does not vary from state to state. Eligibility is based on medical condition,,50% disability,,and the income of the family. But there are times when the income is not taken into consideration,,if a patient is hospitalized for a full calendar month and continues to be hospitalized,,,they are eligible for SSI,,since they are not in the home the family income is not considered. I was a financial counselor here at ish Rite for 8 years prior to working with Dr. Shoffner and it was my job to help families find financial assistance for their medical bills. But so many people are not aware of the programs out there that can assist them. Georgia has a program that if you are eligible for medicaid, the state will reimburse you for the cost of your medical insurance premiums.It is more cost effective to the state to pay for the insurance coverage than to have to pay the medical expenses. I found that so many people thought they were not eligible for assistance with medical expenses because they were married,,or they worked,, or they had medical insurance,,or they had a high income. I suggest that people question what is available in their individual state..ask financial counselors at hospitals,,social workers, medicaid workers,,other families,,don't just ask what you qualify for,,,but under what circumstances would you qualify for assistance,,such as a long inpatient hospitalization. Look forward to seeing everyone in Cleveland,,, Janice West Re: re medicaid Kathy, SSI is federal and to the best of my knowledge does not (and can not) vary by state. I believe that your brother is mistaken and probably doesn't know all the facts regarding his sister in law. If not, I'm sure a lot of us would like to know if he is right! It is different for disabled adults though. My mother is also disabled (in addition to my son) and I do claim her as a dependent on my tax return. However, my income is not considered in her Social Security Disability payments because she is an adult. She is not able to work, but if she did and made over a certain (very small) amount, her disability payments would decrease or stop altogether depending upon the amount. Terri > > and others, > You have brought up something here that I am very curious about. SSI >and income and age. And I thought this was federal law. But does it vary >by >state???? >My son is 10 and we live in PA. In PA he can get SSI in his own right >after >age 18 only if we make sure he has less tha $2000 in his name. > I spent all of my pensions to stay home and then we went on SSI, >money >gets direct deposited . But we can't have more than $3000 fkor a family >of >4 and can only make so much money- I think. Well maybe we can have $3000. >and $2000 in his name I am not sure. > Anyway, I have inherited some money from my Mom and will have to go >off >SSI. >I could use your input here to help a family fued. My brother says his >sister in law has a child with spina bifida and lives in New Jersey. They >own their own business and have alot of money. But their child has gotten >SSI since she was born and her Mom (so my brother says) says that this is >federal law and they cannot discriminate us parents not being able to work >and we should get the money, as they did, without looking at income. He is >implying that I do not know the laws or what I am doing. Or that my SSi >person is screwing me. Can only get this because of disability.(autism) >Ok so this makes this is federal law. How come the discrepancy here. >Does it vary state to state somehow??? > And to whomever that was that I just read about getting audited. I >just >say that I do not pay my bills that way. You wouldn''t write your >mortgage, >electric, water, sewer, food, etc. bills using say a family of 4 and pay >only >one quarter of it out of your child's money then another check for 3 >quarters. Well maybe that is what you should do since the check comes in >your child's name. Is this child over 18?? >Well thanks for any out of state input on this. Anyone from New Jersey? >Kathy F ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ------------------------------------------------------------------------ Save 75% on Products! Find incredible deals on overstocked items with Free shipping! http://click./1/4013/2/_/368657/_/958895944/ ------------------------------------------------------------------------ Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 > > You have brought up something here that I am very curious about. SSI > >and income and age. And I thought this was federal law. But does it vary > >by > >state???? As others have told you, SSI doesn't but what does is the medicaid eligibility that is =automatic= with SSI. If you qualify for even $1 of SSI, you are fully eligible for medicaid in your state, regardless of the ordinary guidelines for medicaid in that state, which =can= vary state to state. > > Anyway, I have inherited some money from my Mom and will have to go > >off > >SSI. not necessarily. Do some heavy homework first since it may depend. My mom died and it did not affect our eligiblitly because we were able to " dispose " of the money within a reasonable timeframe and it was considered a " windfall " whcih is not considered as income in the guidelines. We bought our house with a large downpayment, and did home improvements (not factored into assets for SSI) and took a vacation within 90 days to spend down the inheritance. I still had it, but it was home equity (and newer furniture etc) instead. You really need to talk to someone who is an expert in this since I believe that you can also fold the funds into a living trust and it is not considered an asset. > >I could use your input here to help a family fued. My brother says his > >sister in law has a child with spina bifida and lives in New Jersey. They > >own their own business and have alot of money. But their child has gotten > >SSI since she was born and her Mom (so my brother says) says that this is > >federal law and they cannot discriminate us parents not being able to work > >and we should get the money, as they did, without looking at income. He is > >implying that I do not know the laws or what I am doing. Or that my SSi > >person is screwing me. Can only get this because of disability.(autism) > >Ok so this makes this is federal law. How come the discrepancy here. > >Does it vary state to state somehow??? No. What is more likely is that they don't have " taxable " income and are eligible that way. It can be very detailed, bu if you are selfemployed, many things can be considered business expesnes that working people pay for after taxes - cell phones, cars, insurances, etc. which are deemed to be " for the job " (and since they are their own employer, they are who decides unless audited and most things a big company would do for a CEO you can do for a small business if it's reasonable). Thus, their income may look to be much higher than their tax forms say it is! Additionslly, their business has no real value (no publicly traded) and a good thing is to put all the income into building the business and until it's sold, the value does not hit the tax forms. A business started from scratch, built for ten years and worth hundreds of thousands isn't worth anything until it's sold and turned into income. Either he doesn't know what's going on, or at least doesn't know the whole story. > > And to whomever that was that I just read about getting audited. I > >just > >say that I do not pay my bills that way. You wouldn''t write your > >mortgage, > >electric, water, sewer, food, etc. bills using say a family of 4 and pay > >only > >one quarter of it out of your child's money then another check for 3 > >quarters. Well maybe that is what you should do since the check comes in > >your child's name. Is this child over 18?? What you _can_ do is prepare a monthly statement that shows all of those expenses and then write a check out of your childs account for just their share of it. When a kid is on SSI, you could have to prove the $$$ was spent on the child - regardless of how. It could be food, medical, transportation (32.5 cents per mile for anything necessary for the child) upkeep on a vehicle kept to transport that child (a van maybe) or even prorated housing expenses as you listed them. You could also need bottled water service to mix formula, etc. There just =must= be enough expense to cover the amount of SSI received, otherwise it will accrue and then when it hits that magic $2000 mark, the child is ineligible and you lose it. No saving for the Make-a wish type trip as you'd be ineligible before you got there. A hand written ledger would be enough, showing what the costs are to keep up your child, separation of the actual money probably isn't, but you have to decide what you want to chance. Kathy > >Well thanks for any out of state input on this. Anyone from New Jersey? > >Kathy F > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > ------------------------------------------------------------------------ > Save 75% on Products! > Find incredible deals on overstocked items with Free shipping! > http://click./1/4013/2/_/368657/_/958895944/ > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Becky, Hi, sorry it has taken me so long to reply. I haven;t been on the computer for a few days and I have 208 emails ooch. We live in Elyria, Ohio. We are about 40 minutes west of Cleveland. Are you going to the Cleveland conference? Patti mommy to 2 yrs re medicaid > > > > > > > We live in Kentucky,and although has > > qualified for > > > disability/medicaid since age five, we were told > > we earned to much > > > (max is $10,000 yearly).That will barely pay our > > insurance premium! > > > Anyway last week I found out that if she qualified > > for any home > > > health services then she would also qualify for > > medicaid.I was told > > > that the first month our income is counted but > > after that everything > > > is on 's income and since she has no income > > she WILL qualify.I > > > don't know if other states work this way,but it > > may be worth a try.I > > > was also told that if her doctor wrote a letter of > > medical necessity > > > that her CoQ10 should also be covered. > > > > > > It makes me Mad ,to know this has been available > > for years and we > > > were not told about it,had to find out from > > another parent. > > > > > > I hope this will be of help to SOMEBODY. > > > > > > Good Luck, > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > Failed tests, classes skipped, forgotten locker > > combinations. > > > Remember the good 'ol days > > > > > > http://click./1/4053/2/_/368657/_/958802109/ > > > > > > ------------------------------------------------------------------------ > > > > > > Brought to you by www.imdn.org - an on-line > > support group for those > > affected by mitochondrial disease. > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Patti, It's Vange we have BCMH and had a hard time finding a compounding parmacist that would would be willing to do the cocktail for us even when they we're bmch providers , if you know of any please let me know Vange re medicaid > > > > We live in Kentucky,and although has qualified for > > disability/medicaid since age five, we were told we earned to much > > (max is $10,000 yearly).That will barely pay our insurance premium! > > Anyway last week I found out that if she qualified for any home > > health services then she would also qualify for medicaid.I was told > > that the first month our income is counted but after that everything > > is on 's income and since she has no income she WILL qualify.I > > don't know if other states work this way,but it may be worth a try.I > > was also told that if her doctor wrote a letter of medical necessity > > that her CoQ10 should also be covered. > > > > It makes me Mad ,to know this has been available for years and we > > were not told about it,had to find out from another parent. > > > > I hope this will be of help to SOMEBODY. > > > > Good Luck, > > > > > > > > ------------------------------------------------------------------------ > > Failed tests, classes skipped, forgotten locker combinations. > > Remember the good 'ol days > > http://click./1/4053/2/_/368657/_/958802109/ > > ------------------------------------------------------------------------ > > > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > > > > > > > ------------------------------------------------------------------------ > High rates giving you headaches? The 0% APR Introductory Rate from > Capital One. 9.9% Fixed thereafter! > http://click./1/3010/2/_/368657/_/958834904/ > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 well Kathy, I think what you are thinking these people do own their own business and can hide their income in the business and that is how they got SSI al of these years. I spoke to my SSI person today and she even said that is how you can fraudulent use SSI if you own your own business. Well, I am not wanted to commit fraud here. And yes, thx for your advice and I have thought how I can spend the money quickly and still keep SSI . I could put it in a trust or put it on the principal of my mortgage and SSI says that would be considered acceptable. Like I had to cash in stoch recently, stock I did not even now I had, but thank the lord as we needed a new roof and as long as I could lprove that expense it was OK. I'd really like to get off SSI and use this opprotunity to do so but I just have no one nearby to help me with my son. School is out for 3 months in a few weeks and whew he may miss most of that as hils ailde has strep throat. It is so hard. Thlx to all for answering me on this subject. Kathy F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Vange, Hi! We get all of her RX and supplements through CVS pharmacy, just call BCMH and ask them which pharmacy in your area, if you don't have a CVS pharmacy. The first time I went to get it filled (CoQ10), the pharmacy thought that I must be wrong, so I told them to call BCMH, because I had just gotten off the phone with our local bcmh nurse and she said it was covered. So they called and found out yes, it was indeed covered. Let me know if you have any questions. Patti re medicaid > > > > > > > We live in Kentucky,and although has qualified for > > > disability/medicaid since age five, we were told we earned to much > > > (max is $10,000 yearly).That will barely pay our insurance premium! > > > Anyway last week I found out that if she qualified for any home > > > health services then she would also qualify for medicaid.I was told > > > that the first month our income is counted but after that everything > > > is on 's income and since she has no income she WILL qualify.I > > > don't know if other states work this way,but it may be worth a try.I > > > was also told that if her doctor wrote a letter of medical necessity > > > that her CoQ10 should also be covered. > > > > > > It makes me Mad ,to know this has been available for years and we > > > were not told about it,had to find out from another parent. > > > > > > I hope this will be of help to SOMEBODY. > > > > > > Good Luck, > > > > > > > > > > > > ------------------------------------------------------------------------ > > > Failed tests, classes skipped, forgotten locker combinations. > > > Remember the good 'ol days > > > http://click./1/4053/2/_/368657/_/958802109/ > > > ------------------------------------------------------------------------ > > > > > > Brought to you by www.imdn.org - an on-line support group for those > > affected by mitochondrial disease. > > > > > > > > > > > > ------------------------------------------------------------------------ > > High rates giving you headaches? The 0% APR Introductory Rate from > > Capital One. 9.9% Fixed thereafter! > > http://click./1/3010/2/_/368657/_/958834904/ > > ------------------------------------------------------------------------ > > > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > > > > > > > > > ------------------------------------------------------------------------ > Failed tests, classes skipped, forgotten locker combinations. > Remember the good 'ol days > http://click./1/4053/2/_/368657/_/959108787/ > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > > Quote Link to comment Share on other sites More sharing options...
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