Guest guest Posted August 25, 2002 Report Share Posted August 25, 2002 , I truely believe that a very large weight loss that I dieted to do really caused my symptoms to worsen. I " m sorry you are doing poorly and of course I will keep you in my prayers. About the insurance - you will have to check with your insurance company to find out if they will cover out of state appointments. They are the ones who make that determination. What kind of medical insurance do you have? Alice Re: Alice > > > > > > - > > Alice, > > > > Thank you for the well wishes, I really needed them. I haven't had > > a attack in 2 days so I'm very happy. I really need more medical > > support ,because I feel like I'm all alone in this . I would like to > > see someone at the Cleveland med. ctr. Who would I see? I also will > > need my medical records and I don't have them. They are scattered > > everywhere and most of every test is neg. But I'm ready to go. > Please > > me in the right direction. By the time I get every thing I heard > > appointments are for next year. > > > > > > > > > > > > > > -- In @y..., Alice <cialicea@c...> wrote: > > > I am so sorry you are facing all these hard times and difficult > > medical > > > resources. Have you given any thought to Cleveland? I just > think > > you need > > > some support that you are not getting where you are now. > > > > > > Hugs, > > > Alice > > > > > > > > > --- > > > Outgoing mail is certified Virus Free. > > > Checked by AVG anti-virus system (http://www.grisoft.com). > > > Version: 6.0.381 / Virus Database: 214 - Release Date: 08/02/2002 > > > > > > Medical advice, information, opinions, data and statements > contained herein > > are not necessarily those of the list moderators. The author of > this e mail > > is entirely responsible for its content. List members are reminded > of their > > responsibility to evaluate the content of the postings and consult > with > > their physicians regarding changes in their own treatment. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2002 Report Share Posted October 5, 2002 Laurie, I'm glad you are taking some time off and reading is a nice thing to do when you are down. I also can imagine how difficult doing a lot of things must be. It's amazing how we find the way sometimes. We also learn how important our limbs are when we are faced with the challenge of somehow replacing them. I don't blame you aiming toward the least amount of pain. I'm also glad to hear that the supervisor is taking charge of your work at school. You'll be appreciated more after this. Those disability forms are a hassle. I agree, you would think that 22 years into the program would give you some special privileges, but it never works that way. Of course, filling out forms must be your favorite thing to do right now. You might want to consider online banking for bill paying if this goes on much longer. Last year, writing checks became overwhelming for me and I realized that if I was going to consider taking care of my own financial responsibilities, I was going to have to make some changes. It's much easier now. I cannot write for an extended period of time due to the weakness in my arms and hands. No one would believe my handwriting today compared to a year and a half ago. It sounds like Kent and are trying to take care of you. That's especially nice. I'm glad you went to lunch with them. I know how nice it is when your children take you out to lunch. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Kristie I am being to like the retirement trial. It would be even better if I could get something done once in awhile besides dusting furniture. I am going to start taking pictures of my dolls for insurance purposes if I can figure out how to push the button with my left hand without getting my hand over the lens. I have a pully at home and use it and other exercises to maintain range of motion. I am anxious to see what the doctor has to say about the shoulder when I see him on the 17th. laurie Reply-To: Date: Sun, 6 Oct 2002 21:10:50 -0400 To: < > Subject: Laurie Laurie, It sounds like you are making some progress. Those disability forms are a pain in the arse. I wish you luck both in the process of filling them out and in getting what is due to you after 22 years of very faithful service. It sounds as if your supervisor is being supportive and that alone must be a load off your mind. So, besides the pain are you liking this " semi-retirement " trial? As far as your healing goes...about 5 years ago I broke my shoulder in 3 places (I won't get into how)...anyway....I found very similarly to you that passive motion was the first to return. The thing that helped me the most in terms of achieving active functioning was to do the passive exercises in a water environment. Before long I was able to do them without assistance and then shortly after able to do them on dry land. Oh, and boy oh boy do I understand about the bra thing. I didn't wear one for weeks. Prio to finally going back to work I ended up having to take Jake (then 6) bra shopping with me. I learned very quickly that front closure bras are MUCH easier to deal with. I'm glad your finding some fun things to do in your time off, and that your kids are helping out where needed. Kristie Message: 14 Date: Sat, 05 Oct 2002 20:01:59 -0400 Subject: Re: Laurie Alice Typing with my pull out keyboard is one thing I can do. I still have to use the mouse with my left hand. The pain is reduced and actually absent when I am not moving around. I have great range of motion passively, but still have almost no active function at all. I am learning how to do things with my left hand and forearms. Probably the most difficult and painful thing is putting on a bra, so I stay in my nightgown on non-therapy days. I am sleeping better which is helping. My supervisor is coming here to go over some of the stuff I had started, but not finished. They have a sub to see my students, so I will stay home as long as needed. I am still filling out short term disability forms. I've paid for this for 22 years and now have to turn cartwheels to get it. Writing is possible with my right hand, but it takes me longer and I can't do lots at one time. I managed to get my bills paid after 3 days of working on them. I met Kent and for lunch today and they took laundry back to their place to do for me. I went to the store after that and bought 5 books, so I can sit around for some time yet. Thanks for asking, laurie --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.394 / Virus Database: 224 - Release Date: 10/3/02 Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 Alice I don't see the orthopedic surgeon for another three weeks. I am hoping he will talk with my therapist once he has the reports. My neuro was going to FAX his report today. I think it will depend on the extent of the tear, but my neuro is hoping surgery won't be necessary. He did say that he didn't think I should try to work and do therapy at the same time. He figured that the therapy would not be as beneficial. I guess time will tell, but I am hopeful that things will improve at a more rapid rate now that some progress has been made. Thanks for asking, laurie Reply-To: Date: Fri, 25 Oct 2002 17:03:03 -0600 To: Subject: Re: Laurie Laurie, This is very good news. I'm sure you are relieved. How will this be treated from this point on? Alice Laurie Laurie got some good news at the neuro's today, but I will let her give you the details when she gets home. We had a nice visit and lunch and then she headed back home a little while later. Of course, she ran into a hugh traffic jam so her arrival home is delayed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 I sure am! laurie Reply-To: Date: Fri, 25 Oct 2002 17:32:10 -0500 To: Subject: Re: Laurie Laurie, I am so glad that there is no nerve damage. You must be feeling pretty good about that right now! Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2002 Report Share Posted November 5, 2002 It was to you. I am in a crash, so the brain is on automatic pilot or something. Thinking of you. laurie Reply-To: Date: Tue, 05 Nov 2002 22:52:48 -0000 To: Subject: laurie -- Hi Laurie, Were you talking to me of Tonya? I know there is a Tonya on this site too. - In @y..., Laureta Fitzgerald <lfitzger@j...> wrote: > Tonya > > I hope you get the beginning of some answers. > > laurie > > From: " Nemley " <tanya2727@y...> > Reply-To: @y... > Date: Tue, 05 Nov 2002 14:15:28 -0000 > To: @y... > Subject: Adrienne > > > Hi, > > Well I went back to my PCP and told him about wht his friend did , > giving me a script for steriods without test and he was surprised. > so I found a few good doctor on my health plan ,BUT they don't have > openings until Jan- feb. So I went to My pcp and he'll be calling one > on wednsday to see if I can get a quicker app. > > I just had a MRI and it show my pituitary is so compressed that they > can't see it, b/c of empty cellar. this with the low cortisol could > be dangerous. I just joined a new support group for addissons and > they said I need to get this checked out asap. But this still > doesn't explain the leg weakness and Alot of pain. So I still have my > MDA app. at another clinic. > > Maybe I'll get some answers this year. > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2002 Report Share Posted December 5, 2002 laurie, im thinking about trying lamictal since im being weened off of gabatril and keppra for the tests in the hospital. I might just ask my neuro to try lamictal instead of gabatril since its been suggested to do so. gabatril can cause probs with the stomach ive read and i think it might not be the best med for me. keppra has almost stopped my myoclonic seizures which is a blessing (i was put on it first before gabitril and it only helped the myoclonic seizures not the others- then gabatril was added and it seemed to do the job- for awhile.) Oxycontin i didnt like at all, worse than the morphine, it made my seizures act up and tremors too and made me wired. I was supposed to see my pain dr on an emergency visit today for a new pain med, but the snow made him close his office, im hoping to get to see him tomorrow (though ive got other appts tomorrow, it will be a busy day). anyways, thanks for the info and all. hope you are doing well. take care, adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 , Thank you for the report. I've been waiting for this. I'm glad there were no problems with anesthesia but I'm sorry that the surgeon was not able to do what was hoped. How did Laurie take this? Please send my love and tell her I am always here when she's ready. Alice --- wrote: > Hi, > > Laurie had her surgery today on her shoulder. There > were > no problems with the anathesia, but they weren't > able to > do much with the arm. The surgeon said there just > wasn't > much tissue left to do anything with. He said he > hopes > they were able to help her at least a tiny bit, but > she > would never be able to raise her arm above her head > again. > The plan at this point is for her to be released > tomorrow. > > > > > Medical advice, information, opinions, data and > statements contained herein are not necessarily > those of the list moderators. The author of this e > mail is entirely responsible for its content. List > members are reminded of their responsibility to > evaluate the content of the postings and consult > with their physicians regarding changes in their own > treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 No, . Not exactly worried but concerned and anxious to know how she made out. I kinda figured she'd be a little depressed. I would be. Well..we now need to cheer her up and get her on the road to happier days. The surgery is behind her and at least that's a good thing. Send me her address and phone number privately please. I lost it when my computer crashed. Alice --- wrote: > I think Laurie is a little depressed, but she knew > this > was a possibility. I will most definitely give her > your > love!! The surgery took longer than they expected > and she > was in recovery for about 1.5 hours after the > surgery, so > she didn't even get back to her room until almost > 5:00. I > didn't want to leave without seeing her and until > Kent and > got there. I had about a 1.5 hour drive to > get home > in the snow too, so THAT is why I was so late > checking in. > I didn't have access to the internet until I got > home, or > I would have let you know sooner. Sorry if you were > worried. > > > > Alice wrote: > > , > > > > Thank you for the report. I've been waiting for > this. > > > > I'm glad there were no problems with anesthesia > but > > I'm sorry that the surgeon was not able to do what > was > > hoped. How did Laurie take this? > > > > Please send my love and tell her I am always here > when > > she's ready. > > > > Alice > > --- wrote: > > > >>Hi, > >> > >>Laurie had her surgery today on her shoulder. > There > >>were > >>no problems with the anathesia, but they weren't > >>able to > >>do much with the arm. The surgeon said there just > >>wasn't > >>much tissue left to do anything with. He said he > >>hopes > >>they were able to help her at least a tiny bit, > but > >>she > >>would never be able to raise her arm above her > head > >>again. > >>The plan at this point is for her to be released > >>tomorrow. > >> > >> > >> > >> > >>Medical advice, information, opinions, data and > >>statements contained herein are not necessarily > >>those of the list moderators. The author of this e > >>mail is entirely responsible for its content. List > >>members are reminded of their responsibility to > >>evaluate the content of the postings and consult > >>with their physicians regarding changes in their > own > >>treatment. > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Thanks for updating us . I wish they had been able to do more tho! HUGS Hi,Laurie had her surgery today on her shoulder. There wereno problems with the anathesia, but they weren't able todo much with the arm. The surgeon said there just wasn'tmuch tissue left to do anything with. He said he hopesthey were able to help her at least a tiny bit, but shewould never be able to raise her arm above her head again.The plan at this point is for her to be released tomorrow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 , Glad to hear laurie's surgery went ok, just hate they werent able to help her much, but like you said, she has it behind her now thankfully. let her know shes in my thoughts and im praying for a good recovery. take care, adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 So do we. Thanks . Ayars wrote: > Thanks for updating us . I wish they had been able to do more > tho! HUGS > > > > > Hi, > > Laurie had her surgery today on her shoulder. There were > no problems with the anathesia, but they weren't able to > do much with the arm. The surgeon said there just wasn't > much tissue left to do anything with. He said he hopes > they were able to help her at least a tiny bit, but she > would never be able to raise her arm above her head again. > The plan at this point is for her to be released tomorrow. > > > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of > this e mail is entirely responsible for its content. List members are > reminded of their responsibility to evaluate the content of the postings > and consult with their physicians regarding changes in their own treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 , Thanks for keeping us informed. Laurie is lucky to have you. I am glad everything went all right with the anesthesia. I am sorry to hear that the shoulder couldn't be helped much. Please let her know I am thinking of her. You take care of yourself too! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 -Hi , Tell Laurie I'm so sorry they couldn't do that much for the shoulder, but at least its behind her now and she can start to recover for the wedding. I hope the surgery at least helps her pain in the area, Celia -- In , a C Koch <kckoch76@j...> wrote: > , > Thanks for keeping us informed. Laurie is lucky to have you. I > am glad everything went all right with the anesthesia. I am sorry to > hear that the shoulder couldn't be helped much. Please let her know I am > thinking of her. You take care of yourself too! > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 Thank you for the update . Please tell her we're all thinking of her and give her a hug from me please. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 Hi, Laurie did not end up coming home from the hospital today after all. The surgeon wants to be good and sure that things are OK before he lets her go home. She is guessing maybe Friday, since she also had an allergic reaction to something today. She doesn't know if it was the antibiotic she has been on since the surgery or the oral pain killer they started her on today. My guess is the pain killer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 Will do. I think this is good (her staying in the hospital) as I think she is going to have a rougher time of things at home alone than she thought. LILQT4U1984@... wrote: > aww . Tell her that I am praying for her quick recovery. Hope > that she gets to go home Soon! Thanks for the update. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 , What makes you feel this? I'm sorry this has been so difficult and it seems as if it's going to continue to be so. Alice --- wrote: > Will do. I think this is good (her staying in the > hospital) as I think she is going to > have a rougher time of things at home alone than she > thought. > > > > LILQT4U1984@... wrote: > > aww . Tell her that I am praying for her > quick recovery. Hope > > that she gets to go home Soon! Thanks for the > update. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 Dear , thanks for the update and please give my best to Laurie. I am sorry she had the allergic reaction and hope she is feeling better. I often think it is better for us people with multiple problems be kept longer in the hospital as our recovery is more difficult. (They kept me in longer than normal after a hysterectomy)Celia > Thank you for the update . Please tell her we're all thinking of her > and give her a hug from me please. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 Laurie, I sure hope you are feeling better... thinking of you Smurffy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2003 Report Share Posted February 1, 2003 Yes,there is a great deal of pain. Getting in and out of bed and chairs are the worse.. My arm is strapped to my body and cannot move it except to wiggle my fingers. Thanks for asking and caring. laurie Reply-To: Date: Sat, 1 Feb 2003 13:58:41 -0500 To: " Mitoldies " < > Subject: Laurie Hi Laurie, I hope you are recovering nicely. How is the pain level from the surgery? Are you able to use your arm any at all yet? I am so sorry to hear that you won't be able to put your arm over your head again, but remember , the doctors do not always take into account the will of the human spirit. Not to mention that they certainly are not always right!!!! About a lot of things heh? My prayers for a speedy and full recovery are with you, Smiling, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2003 Report Share Posted February 2, 2003 Oh, Laurie, I am so sorry about the pain: I would take some of it onto myself if I could. Nature has its own timetable, and it very seldom matches ours, but I hope you do have time to rest while nature does its work. With love and a hug, Noreen for Leah (My Mito Angel) Re: Laurie Yes,there is a great deal of pain. Getting in and out of bed and chairs are the worse.. My arm is strapped to my body and cannot move it except to wiggle my fingers.Thanks for asking and caring.laurie Quote Link to comment Share on other sites More sharing options...
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