Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Could it be canker sores?? Sounds just like it. Canker sores are more pain then anyone should have to experience. Go to the doc Andi, doesn’t matter what it is - please don’t try and suffer through it. -Barb in Texas - Son Ken (30) UC 91 & PSC 99 -----Original Message----- From: alw I can barely swallow. One deep ulceration lower lip and several small ones elsewhere, upper rear palate. Little intestinal involvement also. Some swelling in my lower lip. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Could it be canker sores?? Sounds just like it. Canker sores are more pain then anyone should have to experience. Go to the doc Andi, doesn’t matter what it is - please don’t try and suffer through it. -Barb in Texas - Son Ken (30) UC 91 & PSC 99 -----Original Message----- From: alw I can barely swallow. One deep ulceration lower lip and several small ones elsewhere, upper rear palate. Little intestinal involvement also. Some swelling in my lower lip. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 look into L-lysine for canker sores patti "happiness often sneaks in through a door you didn't know you left open" > >Reply-To: >To: < > >Subject: RE: Oral Crohn's >Date: Thu, 12 Aug 2004 11:13:12 -0500 > >Could it be canker sores?? Sounds just like it. Canker sores are more >pain then anyone should have to experience. Go to the doc Andi, doesn't >matter what it is - please don't try and suffer through it. > >-Barb in Texas - Son Ken (30) UC 91 & PSC 99 > >-----Original Message----- >From: alw I can barely swallow. One deep ulceration lower lip >and several small ones elsewhere, upper rear palate. Little >intestinal involvement also. Some swelling in my lower lip. > > Free yourself from those irritating pop-up ads with MSN Premium: Join now and get the first two months FREE* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Ya know, (my fiance) gets what he thought were canker sores all the time. After reading your post I wonder if what you're experiencing could be similar to what he's been getting. He does have Crohn's. Hmm...very curious! Bobbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Hi Andi; I know that many have already responded to your question, but I thought I would add that it might be worth talking with your doctor about the possibility of trying a topical steroid treatment, as described below: J Clin Gastroenterol. 1991 Feb;13(1):29-37. Oral manifestations of Crohn's disease. An analysis of 79 cases. Plauth M, Jenss H, Meyle J. Medizinische Klinik und Poliklinik, Abteilung Innere Medizin, Tubingen, West Germany. We report four new cases of oral manifestation in Crohn's disease (CD) and evaluate 75 reported cases for morphology and site of oral and intestinal manifestations of CD, clinical manifestation, and treatment. Oral CD was the presenting symptom in 43 of 72 (60%) patients and relapsed in 34 of 60 (57%). Median age at presentation was 22 (range 6-57) years, and males were affected more often (1.85:1, male:female ratio). From a total of 228 oral lesions in 79 patients, lips (57 lesions), gingiva (40 lesions), vestibular sulci (31 lesions), and buccal mucosa (25 lesions) were the sites most frequently affected. Edema (62 lesions), ulcers (57 lesions), and polypoid papulous hyperplastic mucosa (45 lesions) were the most common type of lesions. The rate of granuloma detection was high in oral (67-77%) and intestinal lesions (45-71%). A total of 66 courses of drug therapy in 51 patients were analyzed. Complete remission of oral symptoms was achieved by systemic steroids and/or azathioprine in 13 of 26 (50%) patients, whereas strictly topical treatment with steroids resulted in complete remission of oral symptoms in 7 of 12 (58%). We conclude that oral CD exhibits a characteristic morphologic appearance, as often as not preceding intestinal symptoms in adolescents and young adults. Thus, patients with orofacial granulomatosis CD should be vigorously searched for by complete gastrointestinal endoscopic investigation. Oral CD may cause disabling pain and facial distortion, and results of treatment remain unrewarding. In the absence of data from controlled therapeutic trials, systemic steroids and/or azathioprine are recommended if topical treatment has failed to control symptoms. Publication Types: Case Reports Review Review of Reported Cases PMID: 2007740 I hope that you can get these painful lesions into remission soon. Best regards, Dave (father of (19); PSC 07/03; UC 08/03) PRIMARY SCLEROSING CHOLANGITIS LITERATURE http://home.insightbb.com/~rhodesdavid/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.