torticollis regression?

November 14, 2004

Has anyone ever experienced this? My daughter is receiving PT for

torticollis. She gets it once a week for 30 min. She was doing

really well and suddenly this week it is like she has tort all over

again. Her head is really tilting to the side and I haven't seen

that in a while. She has been really tired lately...I don't know.

Maybe she is going through a growth spurt and I am wondering if she

is tired maybe that is making her tilt more. I know she isn't

sick...just needing to sleep more. Anyway...just wondering if

anyone has ever seen torticollis get much better and then suddenly

come back with a crazy tilt.

Thanks...Shari

November 14, 2004

Hi Shari-

My daughter Emma has been going to pt for tort since sept 2. She's

been getting a TON better...even the therapist said that she was a

best-case-scenerio baby. Then last week, whaddya know, tilted way

over again! I hadn't changed anything...and of course i think it's

my fault. I totally don't get it. She's 5 months, and gaining a lot

of torso strength (learning to sit, etc.) so maybe she's

concentrating so hard on that she forgets about her neck? I don't

know, but it stresses me out. I thought we were almost in the

clear! Sorry I don't have any advice, but I'm going through the same

thing, if that helps. Our pt said they just go through phases.

(Great) I keep hearing from people that their kid had tort, now

they're fine...I can't wait until I'm one of those people!!!

, mommy to Emma, 5 mo.

Tort/plagio/DocBand 10/25

--- In Plagiocephaly , " sbcollns " <sbcollns@y...>

wrote:

>

> Has anyone ever experienced this? My daughter is receiving PT for

> torticollis. She gets it once a week for 30 min. She was doing

> really well and suddenly this week it is like she has tort all over

> again. Her head is really tilting to the side and I haven't seen

> that in a while. She has been really tired lately...I don't know.

> Maybe she is going through a growth spurt and I am wondering if she

> is tired maybe that is making her tilt more. I know she isn't

> sick...just needing to sleep more. Anyway...just wondering if

> anyone has ever seen torticollis get much better and then suddenly

> come back with a crazy tilt.

>

> Thanks...Shari

November 15, 2004

Hi Shari

It is normal that tort regresses when they are tired / milestoning /

teething / growing. Keep on doing the streches. Hang in there

Sandy WIllow's Mom

torticollis resolved

Cranio Germany Grad

--- In Plagiocephaly , " sbcollns " <sbcollns@y...>

wrote:

>

> Has anyone ever experienced this? My daughter is receiving PT for

> torticollis. She gets it once a week for 30 min. She was doing

> really well and suddenly this week it is like she has tort all

over

> again. Her head is really tilting to the side and I haven't seen

> that in a while. She has been really tired lately...I don't

know.

> Maybe she is going through a growth spurt and I am wondering if

she

> is tired maybe that is making her tilt more. I know she isn't

> sick...just needing to sleep more. Anyway...just wondering if

> anyone has ever seen torticollis get much better and then suddenly

> come back with a crazy tilt.

>

> Thanks...Shari

March 3, 2008

My son was in PT for 2.5 months for tort, between 2 and 4.5 months

old. I didn't continue with exercises once he was released. I don't

think our PT told us to, or if she did, I just didn't do them. I

never noticed any issues or regression with it. I did get worried

when he finally started walking at 15-16 months. We're late walkers

in our family (my daughter was 14.5m, my nephew was 15m), so that

wasn't my concern as much as his technique was. He lead with his

right foot and swung his left foot (his weak side) around to meet

it. I have read that tort can be linked to hip dysplatia (which also

runs in my husband's family), so I did get him checked out at that

point, but it had nothing to do with the tort, just general muscle

development, and he's walking like a pro now. His range of motion

was just checked before banding by two doctors, so I'm know that he

hasn't regressed at all yet. But I will keep an eye out for it as

our banding process continues.

Definitely do the exercises if that's what you're directed to do.

And maybe just get him evaluated every once in a while to make sure

it's not regressing. I'm sure the ped could check his range of

motion at every well visit just to give you some peace of mind. Or

go back to your PT. Our sessions got spaced out more as we got

towards the end of treatment. Maybe you can go back every other

month just to get it checked.

Good luck!

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

>

> My sons graduated from their DOC bands last month, but I am

still

> currently doing PT for one son for his torticollis. He has had

great

> improvement, and my question is; what should I keep an eye out for

once

> he is released from treatment? I have been told to always " watch "

his

> head tilt and keep up with the stretches, but how often? Has

anyone

> experienced it lingering on into their early childhood years or

even

> beyond? and if so, what other things should I keep a look out

for?

> From what I understand, the tort is actually more serious a

condition

> than the plagio was becasue of the various ways it can affect

> development...any help is appreciated.

>

> Shenelle

> Katy, TX

>

March 3, 2008

He will be a year at the end of this month...Before we started PT

they ordered an exray of his neck to rule out any spinal

abnormalities before stretching the area...at that time, the

radiologist reported seeing a tissue mass that was near his airway,

so we were immediately referred to an ENT specialist...she put a

camera down his throat and saw nothing, so we had a CT scan to be

sure which came out perfectly normal..after all of that, i would say

his anatomy checks out, and we have seen great improvement with the

pt so far...He is not walking yet, but neither is his identical twin

(was banded for brachy, but no tort) so I'm not overly concerned at

this point...also, they were about 5 wks early which could be

affecting the " delay " . My daughter walked at 11 mos, but was a full

term baby. I'm having them retest him for motor skill development to

be sure he is right on track before we slow the treatment any

further. We are still going once a week, as opposed to twice, so we

will see what happens from here...I just want to be proactive with

the regression if possible...thanks

Shenelle

Katy, TX

>

> My dd is 27 months old and still has tort.? When she was about 18

mo and her tort was still not resolved the drs ordered a CT and then

an MRI of her spine.? At first we thought she had rotatory

subluxation - but that was found to not be there.? The MRI showed

abnormalities in her spinal cord that are actually causing the

torticollis.? All the PT in the world won't help my dd.

>

> How old is your child?? What tests have they run?

>