Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 We are always here for you. Can only imagine how terrible it must be for you to be alone, especially when you are having a cholangitis attack. I dont know what brings them on but I am not ruling out stress as one of the factors. When my brother was dying had three in five days. Just wish you were closer so I could give you a big hug. My thoughts and prayers are with you and your daughter as the anniversary of your mother and s death draws near. Take care Leona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 , I'm praying for you! I'm sorry that you've had to endure so much, and in such a short period of time! No wonder your poor body is crying out with pain. We are here any time you want to connect, vent or otherwise express your feelings. Hang in there! Oh, and if the transplant team wants to list you, I hope you will say yes. I've found that being listed for three years has given me time to get used to the idea of getting a transplant, and has given me the transplant team to use as a resource. I'm still scared stiff about having a transplant and all that can go wrong, but being listed has been a good thing for me overall. I hope that offers you another perspective to yet another overwhelming situation you face. Peace in all you face, Deb in VA AIH 1997, PSC 1998, UC 1999, Listed Ltx 2001, MELD 19 > I also have concerns about seeing the tx team again in Oct. The last > time I had three cholangitis attacks in 6 mo. they were ready to list me. This > time I have had three, in just 5 mo. The talk about immunosuppressants, after > tx, and the risk of cancer is a little frightening, too. I have already had > precancerous cells removed from my face, as well as cervical dysplasia (cryo > took care of them). Don't misunderstand, I am not assuming the worst, but > these are things worth considering. And right now I'd give my right arm to be > able to sleep! I'm tired of hurting and tired of thinking/feeling. > > Those of you who believe in the power of prayer, please send some up for me > and my family. > > > > Again, I'm sorry for carrying on, but I'm so glad there is a place I can go > and do just that when I need to! THANKS!!! > > Sincerely, > (MO) > PSC & UC dx '84, chronic pancreatis dx '97 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 , I am so glad that you were able to release or at least share some of your pain and anguish via the group. When I was going through a very lonely divorce I joined a divorce chat room that provided me with hours of comfort. I know ... sounds crazy, but it is a way to connect - in all hours of the night with all kinds of people. I am so sorry that you did not find the happiness, love and support we all hope for when we get married. You and your daughter will be in my prayers, there is an enormous amount of love and support in this world (why it's hidden sometimes is beyond me...). Your plans for Oct 6 sound like a great idea, I know that when I am feeling my daughters pain the best thing I can do (for myself) is to be near her, hopefully it helps her as well. LINDA (Mom of Suzanne, 15; UC 1/04, PSC 3/04) (MO) PSC & UC dx '84, chronic pancreatis dx '97 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 EN : Of course you need to connect. We are always here. I do know the depth of sadness you are experiencing and I likened it to being in a deep dark well. I am SADD and I have bigger and brighter lights everywhere. This is not the magic elixir for you I am sure but give it a try. You have almost everything you loved come to an end and now fell unloved I am sure. The truth is: You are a good mother, good daughter, good friend, good woman, that will find her way back and be better than ever. Love ya Baby, keep the faith and we send our prayers for comfort, strength and lightening of the load you have been carrying forever. Time to turn over on your back and float for a while. Enjoy the time with your daughter and try and find some laughter in the day. Fondly, Dee in Peoria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 , You surely do not need to alologize; thanks for sharing with me in a way that made me remember going though some tough times myself when I was younger and how valuable my friends were. I think you have a lot of concerned friends in this group that understand and appreciate your problems. I hope that this is the low point and it will be all up hill from here. Hang in there; it may get much better soon. I am concerned that you are having chills and fever and are home and not at the hospital. Are you having rebouts of the same infection that they are just not knocking out? Sometimes when that happened to me they would put me in the hospital for 10 full days of IV alternating antibiotics and it would knock it out for a long time. I assume you check in when you have an infection episode and they monitor while you take orals? My docs rule was if you have been on antibiotics more than two days and you are still having chills head straight to the hospital cause it's a bug that the antibiotic is not effective against. How about those men, huh? Hard to live with 'em or without 'em. You'll find the right one some day. Tee > I will apologize, THANKS!!! > > Sincerely, > (MO) > PSC & UC dx '84, chronic pancreatis dx '97 Quote Link to comment Share on other sites More sharing options...
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