Re: Good Liver Transplant Hospitals

[Guest guest]

Indiana University Medical Center, Indianapolis, IN

Kathy

wife of Lonnie

ltx 6/2/04

(still disgusted at the new order of choosing based on a MELD of +15!)

> Mayo Clinic in ville

>

> U of M Hospital Ann Arbor, Michigan

[Guest guest]

Dear Adam;

Welcome to the group. A place to find information on Transplant

Centers is " Transplant Living (UNOS) " :

http://www.transplantliving.org/

Once at this page, click on " Find a Center "

Step 1: select a member type: select " Transplant Centers by Organ "

and then select " Liver "

Step 2: select an option to filter your results: e.g. select

region " All Regions " (this will list all liver transplant centers in

the US), or select a specific state or region.

Enter " Go " ; the resulting table gives names, locations, and phone

numbers for each of the centers.

You might also visit the The U.S. Organ Procurement and

Transplantation Network and the Scientific Registry of Transplant

Recipients: 2003 Annual Report (OPTN/SRTR) Data Tables, and look at

their Table 9.13: Transplants by State and Transplant Center, 1993 to

2002 (Liver)

http://www.optn.org/AR2003/913_li.htm

This gives you an idea of numbers of transplants performed at each

center.

This latter resource can be " mined " for further information about

each center.

I hope that you will remain asymptomatic for many years and will not

need this information any time soon.

Best regards,

Dave

(father of (19); PSC 07/03; UC 08/03)

[Guest guest]

Adam,

As a vet you are intitled to use the VA system. Your base hospital or

medic should be able to give you a recommendation. Don't be in to big a

hurry for a transplant. You could remain asymptomatic for quite a while.

Be patient and work with your doctor. Learn the symptoms, watch, and

wait. Sorry you had the diagnosis. We all know the feeling. It is not

all that scary. Good luck.

Mr. Itch (Rob)

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[Guest guest]

When we met with the surgeons at the monthly liver transplant

meeting, they were asked about VA transplants. They said there were

only two VA hospitals doing liver transplants. BUT... they were

working with the VA hospital here in Indianapolis to hopefully be

doing them soon. The gentleman that asked the question said he has

been working on the paperwork for 18 months!

Kathy

wife of Lonnie

ltx 6/2/04

GOOD NEWS -- he's down to only FOUR medications (prograf, levaquin,

maginex and Zantac)! WOOHOO!

> Adam,

> As a vet you are intitled to use the VA system. Your base

hospital or

> medic should be able to give you a recommendation. Don't be in to

big a

> hurry for a transplant. You could remain asymptomatic for quite a

while.

> Be patient and work with your doctor. Learn the symptoms, watch,

and

> wait. Sorry you had the diagnosis. We all know the feeling. It

is not

> all that scary. Good luck.

>

> Mr. Itch (Rob)

>

> ________________________________________________________________

> Get your name as your email address.

> Includes spam protection, 1GB storage, no ads and more

> Only $1.99/ month - visit http://www.mysite.com/name today!