Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 In a message dated 12/18/03 3:22:32 AM, VulvarDisorders writes: << How are you qualifed to make such a statement like this? You don't know for a fact that if she stops treatment, her symptoms will return do you? >> Yes I do. I read 's posts because I find her treatment plan interesting. If you read her posts you will find she mentions that if she becomes a little lax with her treatment plan, her symptoms return. <<Hope is what brings people together. Let us have some hope!!!>> Hope all you want. But most of us here want to get rid of the pain and that means researching, discussing treatment plans, challenging our doctors and testing out new treatments. I guess we could all light candles every day and hope, but I doubt it does much for our vv/vvs. Debbie Tiger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 In a message dated 12/19/03 3:44:07 AM, VulvarDisorders writes: << You say there is no cure but others will disagree with you because of their own experiences. If you maintain that there is no cure, and anyone believes you, they could give up and quit trying. >> If someone thinks there is a cure and finds out there isn't, they could quit trying too. If one really has vv/vvs, there is no cure. If one keeps trying there are treatments that abate the symptoms. It can be a manageable condition like diabetes. Unlike diabetes, vv/vvs can disappear for awhile, sometimes for years and then return again. If someone quits looking for a treatment that works for her because there's no cure - she could use a few more brain cells. <<Challenging our doctors is helpful to a point but doctors do not typically respond well to challenges. Then we need to find another doctor. >> It's ridiculous to pay a doctor and not tell him/her that a treatment isn't working, has too many side effects, etc... and that it's time to try something else. If one has a doctor that's not willing to work with you, then it's time to find another doctor. If one is going to take every word a doctor says as gospel, that is how one ends up with a mutilated vulva or chemical burns. <<Testing out new treatments? What new treatments? Are you willing to be a guinea pig?>> I read about new treatments on these lists every month, many that my doctor hasn't mentioned to me or just mentioned in passing. And I'm willing to test out new treatments. The current ones we have mostly just mask symptoms, I'm willing to keep trying until I find a treatment that rids me of vestibule tissue and nerve inflammation for good. I'm looking for a cure, but I'm realistic and know that maybe the best I can hope for is finding a treatment that keeps my inflammation at a minimum. I do not understand why being honest with oneself that there is no cure means there is no hope. I spent years with people who have terminal illnesses, where there is no cure. With the one disease, all they could hope to do was abate the worst of the symptoms and hope their organs didn't give out before they were ready for them to. With the other disease, they could just hope that by the time they reached a remission, they were strong enough to enjoy it and that the remission out lived them. Those people knew there was no cure, but they had a lot of hope that the new or different drugs/treatments they were trying were going to improve the quality and quantity of their lives. They whined a lot less than people around here too, maybe because they didn't tie their hopes up in a magical cure and found a way to live with what the medical community can currently offer while keeping an ear to the ground for something new that might be close to a cure, if not the cure for them. If Lynn wants to get a woman's hopes up that long term usage of Diflucan is going to cure her, fine. The truth is though unless the woman has has a chronic problem with yeast infections, long term (six months of so) usage of Diflucan is probably not going to make a significant abatement in her vv/vvs pain/symptoms. That isn't to say that long term use of Diflucan or any anti-yeast medication can't cure a stubborn yeast infection and cure the symtoms that were misdiagnosed as vv/vvs. The medical history of the woman in question did not suggest that she had a chronic problem with stubborn yeast infections. The symptoms she was describing did not indicate she was currently suffering from an yeast infection. My suggestion to her was to go back to her doctor and find out why he/she was diagnosing long term usage of Diflucan and just what result the doctor was hoping would occur. If the doctor was just prescribing it because he/she didn't know what else to try at that point, there are a lot of other treatments that the woman could suggest to her doctor that might resolve her symptoms better. Debbie Tiger Debbie Tiger " And Staples Girls are so extraaaaaavagant...I just don't have that much driiiiivvvvvvel... " - Alan, 2/12/03 Quote Link to comment Share on other sites More sharing options...
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