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Hi Steph,

I found out about the wait for Dr. Shikora when I called yesterday for

information. I have decided to go with Dr. Thayer and have an

appointment tentatively scheduled for July 26th. I just need to get the

referral number to them. Thanks for the welcome.

diane

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  • 2 months later...
Guest guest

Hi

My name is Debbie and i also have Fallon. I went to my pcp in April

and she is not very receptive. OH well. Start talking with your pcp

when you go for the physical and get it going then. It may take a

while especially when you need to decide who and where the surgery

will take place. As you may know UMASS and Fallon no longer have a

working relationship. But, start with your pcp and let us know how

things are going.

I live in CT, but I know there are a few others here that also live

in

central MA.

ds

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,

I don’t remember where you said you’re from, but I believe there’s a doctor in

NYC that does that type of surgery. I thought someone on this list had gone

there.

- Alice A.

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Yup I chose rny for the dumping syndrome too. I actually wanted it. I felt it would be a brick wall that would keep me in line and not eating those sweets. BUT guess what rny is NOT a guarantee of dumping. Why? I don't dump. Ever check out ossg-hungry ?? what is that? A list for those that have had vbg, rny even ds .. and can eat too much, too much bad stuff, or always hungry .. get the idea? Its stomach surgery not brain surgery lol.

Anyway no matter what surgery you choose make sure its right for you. I wanted rny so badly for the very reason some don't want it and yet I feel cheated because I do not dump. I can eat ANYTHING and I mean anything. I have NEVER thrown up .. I certainly can enjoy a bite or two of birthday cake if I want and thats fine with me.

The reason I didn't want ds was because of the size of the pouch and NOT dumping. So everyone is different and like Kim said we're all adults here so we should be able to handle the different views. In fact we have a few ds'ers here .. at least one I know of .. so hint hint speak up Marc .. lol. You could be a great source of info for .

Anyway its interesting to see who is doing what and why they went that way.

Just ask questions, questions, questions ..

Lyssa

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There is a Dr. Gagner (spelling?) in NYC that does it .. Marc did it .. come

out come out wherever you are .........

Lyssa

open rny 6/22/99

Dr. Bruce Thayer

Newton Wellesley Hospital, Newton MA

preop 236 lbs

today 137 lbs

Plastic surgery consult for tummy tuck/breast lift July 20/00.

Re: introduction

,

I don’t remember where you said you’re from, but I believe there’s a doctor

in NYC that does that type of surgery. I thought someone on this list had

gone there.

- Alice A.

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  • 1 year later...
Guest guest

- welcome to the group- believe me we all knnow where you're coming from- I was sure I had a problem in January- just 2 1/2 months after my D & E after my baby was born still- but the Dr's kept telling me I had a "hormonal problem"- that Ashernman's was rare and I had had no infection or fever- luckily I found this group and the answer- and by screaming at my Dr I was able to get them to do a test- where they found my cervix was totaly blocked- and my uterus looked like a lightbulb instead of a triangle- I had surgery in April- and all went well- I've had my period 3 times since then- I hope you'll have a successful result too!!! Have they drawn your hormone levels (to know if you're deficient in estrogen?- and is your cervix blocked?- Did you see the procedure as they were doing it? could you see an open cavity and the fluid flowing all around it and through your fallopian tubes- I didn't know what was missing until I had my follow up HSG and saw what normal was! When they do the saline test- ask to watch the screen - and request your records and start deciphering them yourself- the ladies here can help- you also might want to ask for an US that will measure your lining ( or if you have any)- do you have cyclic pain (I had pain every month when I was supposed to be having my period- because it was flowing back through my fallopian tubes!) Wishing you only the best!!!!

"I know God won't give me anything I can't handle, I just wish he didn't trust me so much"

-Mother

, Mike, Brenna (VSD, PS- open heart surgery 1/29/98--- typical 3 1/2YO- YIPES!), Baby Angel born still 11/7/00, and Riley and Snoozer the dogs

Join us again next year in remembering the millions of people affected by CHD on 2/14/2002: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

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: Welcome to the group, but sorry you need to be here! Your

story is so similar to the rest of ours...and just as frustrating to

hear! I am on 4 mg per day of estrogen right now following surgery

the 10th of July and am on my Provera as well, (4 more days) and will

wait for my bleed.

I'm so sorry to hear you are having so many difficulties. If you

have only one adhesion it seems odd you would have no period at all?

Was the adhesion in your cervix? Is it possible that your cervix

has " sealed " itself and that is why you get no menstrual flow?

Hang in there....

Gwen

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Hi everyone.

My name is and I am 32 years old. In Feb 99 I

gave birth to a little girl. Afterwards, while still

in the hospital, I was bleeding a tremendous amount,

so much so that the Dr. had to come in and physically

remove blood clots that were forming in my uterus(clue

#1 that something was wrong) I went back for my six

week checkup, told them I was still bleeding, they

said don't worry it's just your period (clue #2, since

I was still breastfeeding). At 7 weeks I started to

hemmorage, went to the ER where they did a D & C,

still couldn't stop the bleedig so they did another

D & C. After that, I went home and NEVER got a period.

When I would go to the Dr. for checkups I would tell

them and they would say not to worry, because you

don't have to have periods. Anyways, I finally found a

Dr. who would listen. She thought it was Asherman's

from the moment she walked into the room. We tried

Premarin and Provera...didn't work. Then I had a

hystersalpinogram (sp?)they could barely get the

catherter in my cervix because it was closed so tight.

And of course the dye went nowhere. Now I am just

waiting for my Dr. appt next week to discuss it with

her. Sorry for the long story.

Anyways, what I am wondering is what do you do if you

are not going to have anymore children (I have 2

girls). Is it safe to leave all the scar tissue in

there? Does it continue to grow, and make my uterus

bigger? Thanks for listening.

__________________________________________________

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  • 2 months later...

Hi Alisa,

Welcome and sorry you have to be here. I wanted toget a quick reply to you and then I must go. You arein luck in that Dr. March is in Los Angeles and isn't too far from you. With the risk of sounding extremely short...I can elaborate more later....you need to be worked up by an A list doc. Although your new OB sounds good in that she diagnosed you quickly...but what we have found through much expereince is that Ashermans surgeries take a special kind of doctor...usually a GYN who specializes in hysteroscopic surgeries and one who does Ashermans surgeries ALL the time. Our A list docs are considered the best in the world...we have taken great pains in compiling this list and only docs who are recommended by other docs can go on this list.

My story is long but I will say my experience has been not uncommon. My first surgery was wildly unsuccessful by a very expereinced OB/GYN and RE (reproductive endocrinologist). I love them both to death, but they are NOT the best in Ashermans and lucky for me they knew it and they knew they would do more damage by trying to remove my very bad scarring during surgery, so they left m uterus alone and told me to go to the best doc in the SF Bay Area...Dr. indman. Dr. Indman fixed me up in one surgery...he is a miracle worker. And I am now pregnant (thanks to my wonderful RE and my hubby of course). But, Dr. Indman and many others have recommended Dr, March as well....so you should go to him. Call his office and ask for guidance, he will give you a free consult by phone and tell you what diagnostics you will need to do etc . We have had gals fly a long way to see Dr. March and everybody loves him so far. Anyway, sorry this is so short, but I want to say to go to an A list doc right away...especially if you aren't bleeding and it's been such a long time. more later. Again welcome to our group, it's a wonderful resource and a a great source of support from other sufferers. We have lots of success stories so you are in the right place. My little 22.5 week little girl in my belly is living proof!

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Hi Alisa,

My name is Carol Swanson. I live in San right on

the Los Gatos border. After I gave birth to my son I

retained placenta. I had a D & C to remove the

placenta. I became pregnet last December, miscarried

in Feb. and had a second D & C in March. (I wounder if

the miscarrage was related to the Asherman's) I was

diganosed with Asherman's in July. A very caring

member of this group recommended I see Dr. Idman.

I began seeing Dr. Idman in September. I had moderate

Asherman's. He saw me for four Friday's in a row.

The first Friday was the operation. The next Friday

he cleared out a few new scars. The next Friday my

uterus was totally cleared and the fourth Friday he

rechecked the cervix. At that time I was told that

everything was clear and open. I am now waiting for my

first period in a year. Then I can start to ttc.

I think that the most important thing is to see an A

list Doctor.

Welcome to the group,

Carol Swanson

__________________________________________________

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