Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 , I can only give our experience, of course. Many people might have considered Jakob to be delayed, but if he was, he has certainly caught up to his peers now. Jakob didn't roll over tummy to back until about 7 months and a while later for back to tummy. He started crawling 3 days shy of 11 months. He was about a week shy of 19 months when he finally walked by himself. Now, he keeps up with his friends and does everything they do. People who don't know him would never guess there was ever anything wrong with him. Out of curiosity, what does your pediatrician think about it? lisa_cannuli@... wrote: > Hello everyone. I'm not sure you remember me. I gave birth to a son > AJ on March 7th. AJ was diagnosed inutero at 17 weeks with > idiopathic clubfeet. He also had a onian Translocation of the > 13th and 14th chromosome. At 12 days old I took AJ to see Dr. > Herzenberg for treatment of his clubfeet. After seven casts, a > tenotomy and full time in the DBB's, Aj is now on bed time only with > the DBB's and his feet look great. > > My concern regards his development. Because of the genetic problem > AJ has been to see a genetics specialist and a neurologist at > Childrens Hospital in Philadelphia. After several blood tests it was > determined that genetically he is fine. Apparently the translocation > was inherited from me, and since I'm OK he should be OK. However he > is having some developmental delays regarding his gross motor > skills. At 8 months he is still not rolling over. He also does not > like to stand or put weight on his feet when held upright, nor does > he push up with his arms when on his stomach. However, he does sit > up by himself when placed in a sitting position. He is alert and > loves to sit in his walker and throw all his toys on the floor and > wait for someone to pick them up. He also likes to laugh and finds > his brothers and and his sister very amusing. > > My question is, has anyone else experienced these types of delays > with their clubfeet kids? The doctors were not sure if the casting > and shoes had anything to do with him not reaching these milestones. > Since they did not have any other clubfeet kids treated at such a > young age to compare his development with. What do you think? I > would appreciate any feedback. > > Thanks, > > and AJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 , Our pediatrician is the one who referred us to the neurologist because they were concerned about his development. The neurologist has asked us to have a CT Scan done, but unfortunatley our insurance has reached its limit for the year so we are waiting until January to have it done. That was when they wanted to see him back anyway. In the meantime they want us to schedule him for physical therapy, something which our pediatrician also recommened. Our County has an early intervention program, and AJ is already registered so it won't cost us anything. Did anyone ever recommend therapy for your son? Thanks for your reply I feel somewhat better knowing that there may be some delays associated with the condition, but that they are not permanent and that apparently AJ will one day catch up. I would love to hear from some other parents so I can share the info with AJ's docotors. Thanks, > > > Hello everyone. I'm not sure you remember me. I gave birth to a son > > AJ on March 7th. AJ was diagnosed inutero at 17 weeks with > > idiopathic clubfeet. He also had a onian Translocation of the > > 13th and 14th chromosome. At 12 days old I took AJ to see Dr. > > Herzenberg for treatment of his clubfeet. After seven casts, a > > tenotomy and full time in the DBB's, Aj is now on bed time only with > > the DBB's and his feet look great. > > > > My concern regards his development. Because of the genetic problem > > AJ has been to see a genetics specialist and a neurologist at > > Childrens Hospital in Philadelphia. After several blood tests it was > > determined that genetically he is fine. Apparently the translocation > > was inherited from me, and since I'm OK he should be OK. However he > > is having some developmental delays regarding his gross motor > > skills. At 8 months he is still not rolling over. He also does not > > like to stand or put weight on his feet when held upright, nor does > > he push up with his arms when on his stomach. However, he does sit > > up by himself when placed in a sitting position. He is alert and > > loves to sit in his walker and throw all his toys on the floor and > > wait for someone to pick them up. He also likes to laugh and finds > > his brothers and and his sister very amusing. > > > > My question is, has anyone else experienced these types of delays > > with their clubfeet kids? The doctors were not sure if the casting > > and shoes had anything to do with him not reaching these milestones. > > Since they did not have any other clubfeet kids treated at such a > > young age to compare his development with. What do you think? I > > would appreciate any feedback. > > > > Thanks, > > > > and AJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 , Please let us know what (if anything) the CT Scan shows. It was never suggested to us to have Jakob seen a physical therapist and we really didn't push the issue. For what it's worth, Jakob's fine motor skills were somewhat ahead of other kids his same age. lisa_cannuli@... wrote: > , > > Our pediatrician is the one who referred us to the neurologist > because they were concerned about his development. The neurologist > has asked us to have a CT Scan done, but unfortunatley our insurance > has reached its limit for the year so we are waiting until January to > have it done. That was when they wanted to see him back anyway. In > the meantime they want us to schedule him for physical therapy, > something which our pediatrician also recommened. Our County has an > early intervention program, and AJ is already registered so it won't > cost us anything. Did anyone ever recommend therapy for your son? > > Thanks for your reply I feel somewhat better knowing that there may > be some delays associated with the condition, but that they are not > permanent and that apparently AJ will one day catch up. > > I would love to hear from some other parents so I can share the info > with AJ's docotors. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 , My son was born on March 31,2001, so he is close to the same age as your son. I feel he is a little more delayed in some areas than his sisters. I do not know if it is because he is a boy or the casts or what. My cousins son who does not have clubfeet was very delayed in everything. He did not sit up until 10 months, or walk until he was 16 months. He also did not speak a single word until 2 1/2. Now He's 3 1/2 and you would never know. He is equal with any child his age doing great! He is really, VERY smart for his age. We all worried alot for nothing! Maybe your son in like him! Anyway our prayers are with you! and Caleb 3-31-01 Savannah, GA In nosurgery4clubfoot@y..., lisa_cannuli@f... wrote: > Hello everyone. I'm not sure you remember me. I gave birth to a son > AJ on March 7th. AJ was diagnosed inutero at 17 weeks with > idiopathic clubfeet. He also had a onian Translocation of the > 13th and 14th chromosome. At 12 days old I took AJ to see Dr. > Herzenberg for treatment of his clubfeet. After seven casts, a > tenotomy and full time in the DBB's, Aj is now on bed time only with > the DBB's and his feet look great. > > My concern regards his development. Because of the genetic problem > AJ has been to see a genetics specialist and a neurologist at > Childrens Hospital in Philadelphia. After several blood tests it was > determined that genetically he is fine. Apparently the translocation > was inherited from me, and since I'm OK he should be OK. However he > is having some developmental delays regarding his gross motor > skills. At 8 months he is still not rolling over. He also does not > like to stand or put weight on his feet when held upright, nor does > he push up with his arms when on his stomach. However, he does sit > up by himself when placed in a sitting position. He is alert and > loves to sit in his walker and throw all his toys on the floor and > wait for someone to pick them up. He also likes to laugh and finds > his brothers and and his sister very amusing. > > My question is, has anyone else experienced these types of delays > with their clubfeet kids? The doctors were not sure if the casting > and shoes had anything to do with him not reaching these milestones. > Since they did not have any other clubfeet kids treated at such a > young age to compare his development with. What do you think? I > would appreciate any feedback. > > Thanks, > > and AJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2001 Report Share Posted November 23, 2001 Hi, I do not believe that the casting and DBB have much to do with the baby's ability to start crawling and standing....babies are easily adaptable, and should be able to get to these milestones soon enough. My son can crawl and pull himself to a standing position with the DBB on....he is 10 months old. Hope this helps!! --- lisa_cannuli@... wrote: > Hello everyone. I'm not sure you remember me. I > gave birth to a son > AJ on March 7th. AJ was diagnosed inutero at 17 > weeks with > idiopathic clubfeet. He also had a onian > Translocation of the > 13th and 14th chromosome. At 12 days old I took AJ > to see Dr. > Herzenberg for treatment of his clubfeet. After > seven casts, a > tenotomy and full time in the DBB's, Aj is now on > bed time only with > the DBB's and his feet look great. > > My concern regards his development. Because of the > genetic problem > AJ has been to see a genetics specialist and a > neurologist at > Childrens Hospital in Philadelphia. After several > blood tests it was > determined that genetically he is fine. Apparently > the translocation > was inherited from me, and since I'm OK he should be > OK. However he > is having some developmental delays regarding his > gross motor > skills. At 8 months he is still not rolling over. > He also does not > like to stand or put weight on his feet when held > upright, nor does > he push up with his arms when on his stomach. > However, he does sit > up by himself when placed in a sitting position. He > is alert and > loves to sit in his walker and throw all his toys on > the floor and > wait for someone to pick them up. He also likes to > laugh and finds > his brothers and and his sister > very amusing. > > My question is, has anyone else experienced these > types of delays > with their clubfeet kids? The doctors were not sure > if the casting > and shoes had anything to do with him not reaching > these milestones. > Since they did not have any other clubfeet kids > treated at such a > young age to compare his development with. What do > you think? I > would appreciate any feedback. > > Thanks, > > and AJ > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2001 Report Share Posted November 23, 2001 My soon to be 8 month old son is crawling full speed ahead and just started today pulling himself up into a standing position with the bar/shoes on. He has been out of the bar for 6 hours a day since Oct. 12, 2001. It is quite interesting to compare with his big sister (non-clubfoot) who didn't reach the milestones of crawling and pulling up until much later and didn't even start walking until she was 15 months old. However, her verbal skills came very early. The bar/shoes sure haven't slowed down my little guy one bit. Babies do easily adapt. My little guy loves his bar/shoes on. Tomi On Fri, 23 Nov 2001 18:31:49 -0800 (PST) Famiglietti writes: Hi, I do not believe that the casting and DBB have much to do with the baby's ability to start crawling and standing....babies are easily adaptable, and should be able to get to these milestones soon enough. My son can crawl and pull himself to a standing position with the DBB on....he is 10 months old. Hope this helps!! --- lisa_cannuli@... wrote: > Hello everyone. I'm not sure you remember me. I > gave birth to a son > AJ on March 7th. AJ was diagnosed inutero at 17 > weeks with > idiopathic clubfeet. He also had a onian > Translocation of the > 13th and 14th chromosome. At 12 days old I took AJ > to see Dr. > Herzenberg for treatment of his clubfeet. After > seven casts, a > tenotomy and full time in the DBB's, Aj is now on > bed time only with > the DBB's and his feet look great. > > My concern regards his development. Because of the > genetic problem > AJ has been to see a genetics specialist and a > neurologist at > Childrens Hospital in Philadelphia. After several > blood tests it was > determined that genetically he is fine. Apparently > the translocation > was inherited from me, and since I'm OK he should be > OK. However he > is having some developmental delays regarding his > gross motor > skills. At 8 months he is still not rolling over. > He also does not > like to stand or put weight on his feet when held > upright, nor does > he push up with his arms when on his stomach. > However, he does sit > up by himself when placed in a sitting position. He > is alert and > loves to sit in his walker and throw all his toys on > the floor and > wait for someone to pick them up. He also likes to > laugh and finds > his brothers and and his sister > very amusing. > > My question is, has anyone else experienced these > types of delays > with their clubfeet kids? The doctors were not sure > if the casting > and shoes had anything to do with him not reaching > these milestones. > Since they did not have any other clubfeet kids > treated at such a > young age to compare his development with. What do > you think? I > would appreciate any feedback. > > Thanks, > > and AJ > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2001 Report Share Posted November 23, 2001 Hi and AJ, My daughter Ivy was born with unilateral clubfoot and hip displasia. I think for the most part that the clubfoot and the FAB don't hinder motor developement. There has been a wide gamit of children on this board and they all seem to devlope at there own rate. My daughter didn't start to crawl until she was 11.5 months old, and didn't walk until she was 15 months. (Yes, I was concerned; however her verbal skills were more advanced.) It was also difficult because my son was an early walker, so I tended to want to compare developemental milestones. I would not hessitate to bring your concerns up to AJ's doctors. They are there to serve and answer your questions and concerns. It sounds as if AJ has some great playmates and " teachers " with his sibblings. Best to you, Sara and Ivy 8/17/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 From a developmental perspective, all children develop at different rates, as many people have attested to on this site. Some children develop gross or fine motor skills more quickly or verbal skills more quickly and these strengths will continue to follow them for the rest of their lives. Girls and boys develop differently. Developmental patterns, like many other physical characteristics, are genetically passed on, so generally children develop like their parents and grandparents did. Sometimes they will be working on one developmental area at a time. I had the shoes and bar and still learned how to crawl and pull up with them on. At this point, I wouldn't worry too much about the delays you're seeing as they are within normal limits. On the other hand, from my experience with early intervention, it certainly doesn't hurt. Most children enjoy it as it is generally play-based. It will also show you things you can do with AJ to encourage his development. One question: just wondering how much time does AJ spend on the floor? on his tummy? There was an article in the NY Times around the time our daughter, Zoe, was born (she's turning 8 months tomorrow) which pointed out that many babies now sleep on their backs and don't spend much time on their stomachs, so they aren't learning to crawl. Some babies don't crawl, they just learn to pull up and walk. I read another article by a pediatrician that recommended babies only spend 20 minutes a day in walkers or exersaucers. Personally, Zoe rolled over from stomach to back when she turned four months, but only did it six times until now. Just in the past few days, she can now easily roll from stomach to back. She was able to roll from her back to her stomach at about five months and has done that more consistently. She sat up unsupported at 4 months. She doesn't seem to be interested in crawling or pulling up, but is now more interested in trying to get to toys placed out of reach. She seems to have stalled in the gross motor department, but otherwise she continues to be very advanced. She takes after her dad, and he and all his siblings were " early talkers, late walkers " . Hope this helps. Joanne >From: lisa_cannuli@... >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Clubfoot and delays >Date: Tue, 20 Nov 2001 18:42:41 -0000 > >Hello everyone. I'm not sure you remember me. I gave birth to a son >AJ on March 7th. AJ was diagnosed inutero at 17 weeks with >idiopathic clubfeet. He also had a onian Translocation of the >13th and 14th chromosome. At 12 days old I took AJ to see Dr. >Herzenberg for treatment of his clubfeet. After seven casts, a >tenotomy and full time in the DBB's, Aj is now on bed time only with >the DBB's and his feet look great. > >My concern regards his development. Because of the genetic problem >AJ has been to see a genetics specialist and a neurologist at >Childrens Hospital in Philadelphia. After several blood tests it was >determined that genetically he is fine. Apparently the translocation >was inherited from me, and since I'm OK he should be OK. However he >is having some developmental delays regarding his gross motor >skills. At 8 months he is still not rolling over. He also does not >like to stand or put weight on his feet when held upright, nor does >he push up with his arms when on his stomach. However, he does sit >up by himself when placed in a sitting position. He is alert and >loves to sit in his walker and throw all his toys on the floor and >wait for someone to pick them up. He also likes to laugh and finds >his brothers and and his sister very amusing. > >My question is, has anyone else experienced these types of delays >with their clubfeet kids? The doctors were not sure if the casting >and shoes had anything to do with him not reaching these milestones. >Since they did not have any other clubfeet kids treated at such a >young age to compare his development with. What do you think? I >would appreciate any feedback. > >Thanks, > > and AJ > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
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