Re: B. on surgery

[Guest guest]

Hi ,

I think that's fantastic that surgery has helped you so much---congrats! (The

whole pain-free intercourse thing doesn't sound so bad to me; I kinda miss it.)

I'm not necessarily ready to think about surgery, but your results have at least

put it on my radar screen, since I think yours is maybe the only raving success

story I've heard (which is wonderful!). I'm just curious about what your

symptomes were beforehand, how long it has been since surgery, and what you may

be still inhibited from doing, if anything. Is your vv " gone " ? Have you ever had

trouble with recurrent infections? How do you suspect you " acquired " vv? And are

you on the pill? What medications did you try before surgery?

[All apologies, I'm just miss curiosity today. Partially motivated by work

procrastination, I'm sure.]

Thanks in advance for your info!

-Kirstyn

Please note: message attached

Hello I haven't posted for a while, but after seeing so many new people in the group I wanted to update everyone on my life post surgery. I am feeling great. I no longer have pain during sex. I can even have intercourse two days in a row:) I am now preparing my body for trying to get pregnant. I really recommend Dr. Hamod at s Hopkins. He has changed my life. I only wish that I had found him ten years ago!!! If anyone has any questions about the surgery( I had my vestibular glands removed) please feel free to email me. 973@... Good luck I'm New Hi,This is my first time posting here also. I have had this problem approximately 4 years. I have pain during and after sex, also with tampons, basically anything inserted in the vagina. It was so bad, that I would just sit in a hot bath afterward, and I didn't even want to think about peeing. I think part of it is the way that I was describing my pain. For the past 3 years I have been treated for Endometriosis. I had a laparoscopy in 1999 because of pain. While I did have endometriosis, I didn't have it that badly. It made my periods better!! I then went on Lupron injections for 10 months. It actually helped alleviate some of the pain, but the menopausal state was horrible. (I was 29 at that time). In 2001, my pain was tolerable enough to where I could sometimes stand a relationship with my husband. I then got pregnant and had my baby in November of that year via C-section. A few months later, when attempting to have sex with my husband, it was way to painful for penetration. I lived with it for a while,hoping it would get better. I finally saw my doctor in January of this year and said I was desperate for a normal relationship with my husband. I told her I couldn't even stand to think about sex. She asked me when it would start to hurt. I told her, and then she did the "q-tip" test. I was diagnosed with Vestibulitis. She put me on an anti-depressant and said that it could help with nerve damage. I took it for a few months and it helped a little, but it completely knocked me out. I am about to start taking it again, because now that I have stopped, the pain is back full force. We have tried different positions, KY, different "toys", nothing works. I endure the pain for about 10 minutes and then I can't stand it any longer. I even tried baby orajel on the parts that hurt, hoping they would be numb long enough for me to have some semblance of a relationship, it didn't work either. > > Hi. I've never posted before, but I'm a little confused right now. > My problems started 13 years ago, when I was 19. At first it was very > occasional and only during sex. Then the doctor I was seeing did a > laparoscopy followed by treatment with Synarel. (He decided for no > apparent reason that I had endometriosis.) After that the pain became > constant. I've been seeing Dr. Rodke in New York for about a year > now, and while the pain is a lot less, it's definitely not gone. > Right now, Dr. Rodke says I have candida inconspicua system-wide. > I've been taking lamisil for about a month and a half, and about the > best I can say is that it now hurts differently. Someone suggested > that I see an infectious disease specialist, because the candida is > something that people with immune problems get (although I don't seem > to have an immune problem). I'm working on getting an appointment. My > primary care doctor gave me the referral and said that the new doctor > would definitely disagree with Dr. Rodke on treatment methods. Has > anyone had any experience with this? I don't yet know what the > different treatment would be, but after making a bad call on the > surgery, I really worried about deciding this -- especially since > it's very difficult to find any information about it on the Internet.