Weight Loss and Mito

[Guest guest]

<--Adriene, Thanks for writing me back. Although I sad you have the

same problem ,it helps to know I'm not alone. I need to lose weight,

I weigh 240. 11 yrs ago I weighted 250 and I went on a diet and lost

100 lbs in 10 months 3 months after that is when the attacks started.>

,

I have to say that my story is indentical. I lost 107 pounds in 10 months

and although I was a " healthier " person, I actually became sicker. I do

know that Dr Cohen has told our family that we should lose weight much more

slowly than most people. He recommended 1 lb a month but to be honest with

you, I don't know how to manage that.

By the way, my weight loss was 11 years ago too. Congrats on the weight

loss but I'm sorry to report that I too have gained the weight back. I was

doing quite well keeping most of it off until I went deaf and they put my

body thru a period of very high dose steroids to try to jolt back the

hearing. It didn't help, in fact the steriods almost completely shut down

my endocrine system, but it did help me to gain mega pounds which I have not

been able to lose.

An interesting sideline....last spring.. I went on another weight loss kick.

I lost about 40 lbs before a long trip that I was very much anticipating.

Well..I was very sick during and after the trip. It took me several months

to begin feeling just a little like myself. Again....the weight loss seemed

to have triggered it.

Alice

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[Guest guest]

two years ago i went on a crash diet - and at the same time i began what

i now see as cyclic vomiting. at the time t thought that it was food

poisoning, then i didnt know what was happenning after a couple of weeks

- the facts overwhelmed my sense of denial. Then i began realizing

that this chronic problem that i had had since 96 had gotten much worse,

and things snowballed from there. the diet precipitated the cyclic

vomiting, which triggered worse weight loss, and then worse cyclic vomiting.

it was nightmarish after a few months. it finally landed me in the

hospital several times, then to the Mayo clinic, and ultimatley towards

an understanding that it was all a mitochondrial disorder wreaking hovoc

on me. Now i, like several of yall, have a need to lose the same

weight again, having found it back over the last year. And to add

injury to insult, my condition has setteled into the more acute way that

it became when i was on the diet - the diet seemed not only to have made

things worse at the time but also to have triggered my condition to be

worse alltogether! i am very, very disapointed in myself for having

gained the weight back, for i know what it will do to me to get rid of,

and i know what it will do to me to keep. The deciding factor is

my infant son Will, whom i hope to show a better example to than i am.

al

Alice wrote:

<--Adriene, Thanks for writing me back.

Although I sad you have the

same problem ,it helps to know I'm not alone. I need to lose weight,

I weigh 240. 11 yrs ago I weighted 250 and I went on a diet

and lost

100 lbs in 10 months 3 months after that is when the attacks started.>

,

I have to say that my story is indentical. I lost 107 pounds

in 10 months

and although I was a "healthier" person, I actually became sicker.

I do

know that Dr Cohen has told our family that we should lose weight

much more

slowly than most people. He recommended 1 lb a month but

to be honest with

you, I don't know how to manage that.

By the way, my weight loss was 11 years ago too. Congrats

on the weight

loss but I'm sorry to report that I too have gained the weight

back. I was

doing quite well keeping most of it off until I went deaf

and they put my

body thru a period of very high dose steroids to try to jolt back

the

hearing. It didn't help, in fact the steriods almost completely

shut down

my endocrine system, but it did help me to gain mega pounds which

I have not

been able to lose.

An interesting sideline....last spring.. I went on another weight

loss kick.

I lost about 40 lbs before a long trip that I was very much anticipating.

Well..I was very sick during and after the trip. It took

me several months

to begin feeling just a little like myself. Again....the

weight loss seemed

to have triggered it.

Alice

---

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