Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 My sister goes to the same doc office as i do, and though she sees a different doctor they didn't diagnose my neice with RSV until she was already in the hospital though my sister was bugging them to please test her more. Now she is 3yrs old still has to use a nebulizer (sp) and has asthma. Right now my son, who needs the doc band, is on an oral steroid and the doctor casually said yesterday " if this dosn't clear everything in 3 days we'll need to send him to the hospital " WHAT ^%( & ^*^)* & I was in two weeks ago with the same thing with him and now he might need to be hospitalized. So now i am fearing RSV. Plus, with his band issue going on, he needs PT, our appeal, work, my daughter who's in preschool/dance and all her activities, etc... i'm extremly stressed and i think my head is going to blow off. If you see brown hair flying just know it's me! And on top of it all we are borrowing the money from my parents and in-laws, just to add to it! I feel for you. Thanks for letting me know i'm not the only one who's going crazy!!!! Oh, my doc's didn't ever notice his head, i did after his 4 month appt. so i waited until his 6 to bring it up which they then sent me to CT and that began everything. Now that i look back at his pic's of when he was a newborn you can see even this his tort and facial assymetry. I wish now i'd had said something sooner and that the doc's would have noticed his tort/assymetry sooner. So ontop of everything listed above i have this guilt hanging over me. Plus i feel like i'm so wrapped up with this that I'm not paying enough attention to my daughter. So i'm like, stress queen right now. >From: " " <r_shields21@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: Re: letter of med. necc.- >Date: Wed, 20 Oct 2004 19:32:14 -0000 > > >I totaly understand how you feel. I had to pay out of pocket for a >consultation from CT...then the pediatrition had the overies to tell >me " well if you were that concerned I would have refered you " . I >like " what ever! " I had been bugging her for months and at first she >said that she didn't beleave in the helmets. HUH. I have been under >a lot of stess over this..can you tell? LOL. I too am looking for >another pediatrition, I plan to ask the Neurologist my daugter sees >and ask who he recomends. The sraw has already broken this camels >back. I hope you appeal goes well. Keep us all posted on how it goes. > > & ...a.k.a little boo-boo noodle head. > > > > > > > > > > Hi all. As some of you know I'm in the process of putting > > > together > > > > my appeal and have asked the ped's office for a copy of the > > letter > > > > of medical necessity. My husband just called saying the fax > > came > > > > through and the letter is only one paragraph. I'm very > > frustrated > > > > now. I thought my ped would have had more concern than a one > > > > paragraph letter! So i thought i'd check with everyone else >and > > > see > > > > what your ped did. You think she could have done at least a > > page > > > > long like others that are in " files " . I'm frustrated.... > > > > > > > > > > > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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