Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 In a message dated 6/7/2004 3:44:16 PM Eastern Standard Time, cubfan23@... writes: > Anyone here experienced vaso-vagal? I experienced these fainting > experiences when I was very young and just found This caught my interest...i used to faint all the time when i was young and on up into my 20s. I finally learned how to tell when I was going to faint...and was able to stop myself many times. I've never thought much about it. What causes this " vasovagal " ? Welcome by the way.... Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 In a message dated 6/7/2004 4:59:41 PM Eastern Standard Time, jreid69@... writes: > > I have read that it is due to the blood pressure not being able to keep up > with a child's growth. Can't get the blood to the head quick enough upon > standing and as you become adult it goes away. > thanks jen...guess I'm an adult now...it doesn't happen much anymore. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 I have read that it is due to the blood pressure not being able to keep up with a child's growth. Can't get the blood to the head quick enough upon standing and as you become adult it goes away. Several people in my family have suffered from it. Jen This caught my interest...i used to faint all the time when i was young and on up into my 20s. I finally learned how to tell when I was going to faint...and was able to stop myself many times. I've never thought much about it. What causes this " vasovagal " ? Welcome by the way.... Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi, Cindi! Thanks for the welcome! This vaso-vagal is really strange, I think. I've been reading about it on a forum and it's been fascinating. Some people began with it as babies. Some outgrow it. Technically there seems to be a low blood volume. Some stress will provoke the episode. For some people it's the sight of blood or needles. For some it's pain of some sort. For others it's dehydration or overheating. Blood congregates in the lower extremities forcing blood from the brain, therefore the fainting. Some people have heart problems with it and others don't. Some seem to have seizures. Like I said it's strange! My last episode was my wedding day at age 25. I always wondered what it was! in Va. In a message dated 6/7/2004 3:44:16 PM Eastern Standard Time, cubfan23@... writes: > Anyone here experienced vaso-vagal? I experienced these fainting > experiences when I was very young and just found This caught my interest...i used to faint all the time when i was young and on up into my 20s. I finally learned how to tell when I was going to faint...and was able to stop myself many times. I've never thought much about it. What causes this " vasovagal " ? Welcome by the way.... Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi, Jen, That makes sense too! My sister-in-law who has had brain surgery several times so that she no longer has a pituitary gland. She has to take all her hormones. She can't tolerate alot of stress now. But especially heat. When she becomes overheated, she has vaso-vagal episodes. I think she needs to take extra cortisol for extra stress like this. She's 54 years old now. I wonder how often the adrenals are involved in this problem. in Va. I have read that it is due to the blood pressure not being able to keep up with a child's growth. Can't get the blood to the head quick enough upon standing and as you become adult it goes away. Several people in my family have suffered from it. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Hi in VA!! This is Janie in CO. One thing I want to ask: how much Armour are you on? Have you had your free T3 tested and what is it? A less-than-optimal free T3 can contribute to that depression you speak of. Also, I too am on testosterone--1 mg. a day via a gel. It really works!! Janie > Hi, > I thought I should sort of introduce myself. I'm 54, have a great husband and 2 grown sons, & 7 birds.:>) My first diagnosis was hypothyroidism at age 25. I know I wasn't treated adequately for at least 15 years. Finally a doctor increased the Synthroid to get the TSH to the bottom of the range. Then I began to be able to sweat, my dry skin and hair became oily and I stopped being cold. Then four years ago I persuaded the doctors to let me switch to Armour. This gave me more improvements. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Ahh, another bird lady. :-) I am 49 and was hyperT/Graves since dignosed in Nov/Dec 2001. I became very sick. I was then made to be sicker by an Endo who had no clue that my atd's (anti thyroid drugs) should have been decreased starting at around 6-8 weeks. I was made to go into HypoHell and it was a nightmare I'll never forget. At least when I was hyperT, I could still do some things, but my sails just lost wind easily and I couldn't hold up to all I needed to do. I got to the point where I had to take it 15 mintues at a time. When I was seriously sick with hypoT from too much Methimazole, I reached a point where if I went to the store to buy groceries, the shopping cart was how I held myself up, leaning into it. If I had to unload all the groceries on my own, I sounded like I was about to take my last breath. I would have to drag myself up out of bed to go to work, struggled to feed and water my birds (didn't have enuff energy to even spend time with any of my African greys or my quaker parrots. Finally had to have son and hubby feed and water them most of the time. I was just too fatigued to move unless I was on my way to work, but the back pain I felt was excruciating. I finally weaned off the anti thyroid drugs after almost two years on a lower dose and now have many hypoT symptoms. I'm also a bit of a stinker when I get to the dr's office. I have learned in all this that too much is just as bad as not enuff, and after recognizing all the signs that miraculously disappear after my meds are corrected......I can actually function like a human being. My dr's love to argue that this pain is in my head, but actually they can't pull that garbage with me anymore. I was almost into having carpal tunnel surgery but funny thing about not having the right kind of meds in the system. It means your cells are lacking and nothing is functioning right. I was told that my symptoms weren't enuff to warrant me being put on anti thyroid meds, because my labs were in the 'normal' range, but I've learned in all this with 3 dr's in the past 3 yrs that they aren't hypoT or hyperT and they only learned what they were taught, which in my book is usually wrong. I gained weight with hyperT/Graves, which is not always the norm.....but many of us do. I have to get up whether I want to or not, because my employer expects me to be there. I just thank God everyday that my bosses wife has had thyroid cancer so he's familiar with how badly it can affect somebody who's going through a rough time. If not, I'd surely have been tossed out the door by now. :-) I started self dosing with Armour 1 grain twice in the am (I try to fall asleep after lunch) so I added another 1 grain pill in the early afternoon. My constipation went away (yippie!!!!) and my left hand doesn't fall alseep these days. I've not really lost any weight but most days I can function and feel great. I owe it all to Armour Thyroid and I refuse to give it up. :-) SandyE~Houston Intro Hi, I thought I should sort of introduce myself. I'm 54, have a great husband and 2 grown sons, & 7 birds.:>) My first diagnosis was hypothyroidism at age 25. I know I wasn't treated adequately for at least 15 years. Finally a doctor increased the Synthroid to get the TSH to the bottom of the range. Then I began to be able to sweat, my dry skin and hair became oily and I stopped being cold. Then four years ago I persuaded the doctors to let me switch to Armour. This gave me more improvements. Six years after the hypothyroidism diagnosis I experienced an extremely stressful time when my father was ill and died and my boys were very young. I became extremely depressed and burned out. I believe my adrenals were exhausted but they were never tested back then. But a doctor did tell me what I was experiencing was like shell shock that men have when they return from war. I've been on antidepressants ever since. This was 1981. In 1994, I had a sleep study done and was diagnosed with narcolepsy. Then in 95, I developed fibromyalgia and began perimenopause. This past Sept., I was diagnosed with delayed sleep phase syndrome and ADD inattentive type. The most debilitating symptom of the ADD, was thought to be from the depression all these years. I've been unable to function. Getting housework done is impossible. I began to have problems with libido so I asked my doctor to test my testosterone. It tested low so I was given shots. At the same time, I had found a doctor who let me try Cortef for the adrenals. After 4 testosterone shots, I was functioning normally! This lasted until the doctor made me come off the Cortef. The depression returned with a vengeance and the inability to function returned. Being treated for the ADD has helped a little. Currently I'm waiting for saliva testing results so I can switch to natural HRT, hoping this will help. I'd love to talk with anyone with similar experiences! Glad to be with you. in Va. PS Anyone here experienced vaso-vagal? I experienced these fainting experiences when I was very young and just found out what they call it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 In a message dated 6/8/2004 12:54:16 AM Eastern Standard Time, cubfan23@... writes: > . Some stress will provoke the episode. > For some people it's the sight of blood or needles This is really interesting to me. I'm pretty sure I've outgrown this now (I'm 48)...but when younger I would faint if they were going to give me a shot or take blood. Even now, I always warn the nurses about it. And I remember the first time my mom was showing me how to shave my underarms...and I fainted. And sometimes I could just be walking and faint. I did this in a store one time and scared lots of folks. It was a strange thing...and so I'm glad to know there's a reason I did this. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 The most debilitating symptom of the ADD, was thought to be from the depression all these years. I've been unable to function. Getting housework done is impossible. I began to have problems with libido so I asked my doctor to test my testosterone. It tested low so I was given shots. At the same time, I had found a doctor who let me try Cortef for the adrenals. After 4 testosterone shots, I was functioning normally! This lasted until the doctor made me come off the Cortef , Welcome! Why did the doctor take you off cortef when It was working so well? Was it a low dose? What did it help besides the depression? You sound so much like me it is crazy! I am only on Armour now, but interested in the Cortef. I don't understand exactly what it helps with except for the adrenal connection. nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 I can't wait for my constipation to go away!! LOL I've heard too much can give you diahrea - I can't imagine that ever happening with me! I take several stool softeners/night, and still only go to the bathroom about once a week. I've also taken that IBS drug for women - talk about pains!!! Cris Re: Intro Ahh, another bird lady. :-) I am 49 and was hyperT/Graves since dignosed in Nov/Dec 2001. I became very sick. I was then made to be sicker by an Endo who had no clue that my atd's (anti thyroid drugs) should have been decreased starting at around 6-8 weeks. I was made to go into HypoHell and it was a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Is your testosterone gel a prescription? or where do you get it? Thx! cris Re: Intro Hi in VA!! This is Janie in CO. One thing I want to ask: how much Armour are you on? Have you had your free T3 tested and what is it? A less-than-optimal free T3 can contribute to that depression you speak of. Also, I too am on testosterone--1 mg. a day via a gel. It really works!! Janie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 How much water do you drink a day? I would die if I only went once a week.. ouch! Re: Intro > I can't wait for my constipation to go away!! LOL I've heard too much can give > you diahrea - I can't imagine that ever happening with me! I take several stool > softeners/night, and still only go to the bathroom about once a week. I've also > taken that IBS drug for women - talk about pains!!! > Cris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 In a message dated 6/8/2004 8:26:14 PM Eastern Standard Time, cubfan23@... writes: > > It really is rassuring to find out why, isn't it? Even though we haven't > experienced it in years. I just can't > believe that I've never remembered to ask a doctor about it. But it made me > feel good too to find out that there was a > reason for it and that it had a name. > Me too..in fact I think i might research it a bit. I used to also do it if I had sudden stress...would just keel over. And I also used to always do it the first day of my period when I was in high school. scared my parents something awful with just standing and dropping. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 I know...ouch is a good word. I drink in spurts - this week, I've not been drinking enough. I don't drink the 10 glasses a day, by any means, but I almost always have a glass of water in front of me - or sometimes, iced T. occasionally, pop/aka soda aka pepsi...- with sugar...no nutrasweet for me. I should be sure to start drinking more again. I start to feel like I'm floating!! LOL I've always had problems but the past few years have been worse than ever. and I've tried lots of different 'solutions' I started on the stool softeners last year after my surgery. they told me they wouldn't hurt me. I was thinking my body was getting used to them because even with one, I wasn't going often enough. even though 'they' told me that wouldn't happen with those. I need to get back to eating my ground up flax seed again. I think that helped a little bit. hubby says to just go - yeah, right!! Cris Re: Intro Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Cindi, It really is rassuring to find out why, isn't it? Even though we haven't experienced it in years. I just can't believe that I've never remembered to ask a doctor about it. But it made me feel good too to find out that there was a reason for it and that it had a name. in Va. > . Some stress will provoke the episode. > For some people it's the sight of blood or needles This is really interesting to me. I'm pretty sure I've outgrown this now (I'm 48)...but when younger I would faint if they were going to give me a shot or take blood. Even now, I always warn the nurses about it. And I remember the first time my mom was showing me how to shave my underarms...and I fainted. And sometimes I could just be walking and faint. I did this in a store one time and scared lots of folks. It was a strange thing...and so I'm glad to know there's a reason I did this. Cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi nne, I am having trouble with my keyboard with certain letters and punctuation, but I want to respond to you. (Hmmm, seems to be working better now.) Anyway, I've been dealing with this for 23 years. Always thought the inability to function was due to depression. However, when I was diagnosed with ADD inattentive type, I found out it was the culprit. I read on a forum about the phenomena of " paralysis of will " . The more I read, I read there's a tie in with stress and ADD. I'd never had any symptoms of ADD before really. Evidently my period of extreme stress activated the ADD inattentive type. (Believe me, there's NO hyperactivity involved. LOL) I also read about a study done that found that children with ADD are low in cortisol in the brain. Of course, all my health problems (hypothyroidism, depression, narcolepsy, menopause, delayed sleep phase syndrome, fibromyalgia) contribute to fatigue! I did alot of reading including Dr. Jefferies' " Safe Uses of Cortisol " , expensive paperback, but extremely helpful. He encourages physiological dosages of Cortef rather than pharmacological. I was taking 20 mg. a day. I found a doctor who would prescribe Cortef. He ran salivary tests that showed I was at the low end of the normal range in the morning when it's supposed to be the highest. Also I had had my endo do an ACTH stim test, where they draw blood for a baseline and then ACTH hormone is injected. Then you wait a half hour or hour and blood is drawn again to see if the adrenals are putting out enough cortisol in response. According to my doctor and the lab, if either number is about 18, it's normal. According to Dr. Jefferies, the number should at least double and most normal people will triple. My baseline was 15.7 and it went to 22.2. THe doctor allowed me to take the Cortef but didn't want me to increase it for stress like Dr. Jefferies says! During this time my mother became very ill and passed away. I followed Dr. Jefferies' protocol anyway and it really helped me get through that time. I was on the Cortef for 9 months. I think the doctor just got very nervous. He'd probably been talking to other doctors. Who knows? But doctors are very scared of cortisol. This is considered a low dose. I could have lowered it. But he was in a hurry for me to get off of it! He wasn't an endo. He was in physical medicine. The first thing the Cortef helped was my sleep. I was able to sleep a normal schedule, sleep through the night and awaken to an alarm. So it helped the delayed sleep phase syndrome dramatically. When testosterone was added, because I was low in it, by the fourth shot, I was able to overcome the " paralysis of will " of the ADD inattentive type. I felt so normal! I was able to function so well that I was able to declutter, cook meals, prepared for Christmas with ease, and go from one chore to another without having to sit down. It was so amazing! I hadn't been able to do all of this for years. And I was probably functioning better than any time in my life, really. I don't know if I answered your question or not. If you could read Dr. Jefferies' book, it would give you alot of insight. However, he doesn't have anything in there about ADD. in Va. The most debilitating symptom of the ADD, was thought to be from the depression all these years. I've been unable to function. Getting housework done is impossible. I began to have problems with libido so I asked my doctor to test my testosterone. It tested low so I was given shots. At the same time, I had found a doctor who let me try Cortef for the adrenals. After 4 testosterone shots, I was functioning normally! This lasted until the doctor made me come off the Cortef , Welcome! Why did the doctor take you off cortef when It was working so well? Was it a low dose? What did it help besides the depression? You sound so much like me it is crazy! I am only on Armour now, but interested in the Cortef. I don't understand exactly what it helps with except for the adrenal connection. nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Thank you so much , I have just received Jefferies book in the mail from Amazon yesterday. I have not read it yet. I also have a good doc appointment scheduled for next month (6 week wait) and I have some hydrocortisone on order from Mexico, if all that fails. Thank you again, you sound just like me, and I will update you, as I find solutions. (my keyboard and computer are goofing up too!) nne _____ From: Sent: Tuesday, June 08, 2004 9:55 PM To: NaturalThyroidHormones Subject: Re: Intro * Hi nne, I am having trouble with my keyboard with certain letters and punctuation, but I want to respond to you. (Hmmm, seems to be working better now.) Anyway, I've been dealing with this for 23 years. Always thought the inability to function was due to depression. However, when I was diagnosed with ADD inattentive type, I found out it was the culprit. I read on a forum about the phenomena of " paralysis of will " . The more I read, I read there's a tie in with stress and ADD. I'd never had any symptoms of ADD before really. Evidently my period of extreme stress activated the ADD inattentive type. (Believe me, there's NO hyperactivity involved. LOL) I also read about a study done that found that children with ADD are low in cortisol in the brain. Of course, all my health problems (hypothyroidism, depression, narcolepsy, menopause, delayed sleep phase syndrome, fibromyalgia) contribute to fatigue! I did alot of reading including Dr. Jefferies' " Safe Uses of Cortisol " , expensive paperback, but extremely helpful. He encourages physiological dosages of Cortef rather than pharmacological. I was taking 20 mg. a day. I found a doctor who would prescribe Cortef. He ran salivary tests that showed I was at the low end of the normal range in the morning when it's supposed to be the highest. Also I had had my endo do an ACTH stim test, where they draw blood for a baseline and then ACTH hormone is injected. Then you wait a half hour or hour and blood is drawn again to see if the adrenals are putting out enough cortisol in response. According to my doctor and the lab, if either number is about 18, it's normal. According to Dr. Jefferies, the number should at least double and most normal people will triple. My baseline was 15.7 and it went to 22.2. THe doctor allowed me to take the Cortef but didn't want me to increase it for stress like Dr. Jefferies says! During this time my mother became very ill and passed away. I followed Dr. Jefferies' protocol anyway and it really helped me get through that time. I was on the Cortef for 9 months. I think the doctor just got very nervous. He'd probably been talking to other doctors. Who knows? But doctors are very scared of cortisol. This is considered a low dose. I could have lowered it. But he was in a hurry for me to get off of it! He wasn't an endo. He was in physical medicine. The first thing the Cortef helped was my sleep. I was able to sleep a normal schedule, sleep through the night and awaken to an alarm. So it helped the delayed sleep phase syndrome dramatically. When testosterone was added, because I was low in it, by the fourth shot, I was able to overcome the " paralysis of will " of the ADD inattentive type. I felt so normal! I was able to function so well that I was able to declutter, cook meals, prepared for Christmas with ease, and go from one chore to another without having to sit down. It was so amazing! I hadn't been able to do all of this for years. And I was probably functioning better than any time in my life, really. I don't know if I answered your question or not. If you could read Dr. Jefferies' book, it would give you alot of insight. However, he doesn't have anything in there about ADD. in Va. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 ----- HI, Sandy, You have a fascinating story! I don't blame you for not giving up the Armour! I feel the same way! I've heard some women are losing weight with natural progesterone cream. I don't know how old you are. But as we get older our estrogen diminishes but our progesterone diminishes faster. And there's many symptoms that go with this estrogen dominance. Gaining weight is one of them. I can send you some info, if you're interested. How many birds do you have? Wow, African greys and quakers. I only have cockatiels and one lovebird. But I love all birds. Birds are my favorite people! LOL I bet you have some talkers! Take care. in Va. Ahh, another bird lady. :-) I am 49 and was hyperT/Graves since dignosed in Nov/Dec 2001. I became very sick. I was then made to be sicker by an Endo who had no clue that my atd's (anti thyroid drugs) should have been decreased starting at around 6-8 weeks. I was made to go into HypoHell and it was a nightmare I'll never forget. At least when I was hyperT, I could still do some things, but my sails just lost wind easily and I couldn't hold up to all I needed to do. I got to the point where I had to take it 15 mintues at a time. When I was seriously sick with hypoT from too much Methimazole, I reached a point where if I went to the store to buy groceries, the shopping cart was how I held myself up, leaning into it. If I had to unload all the groceries on my own, I sounded like I was about to take my last breath. I would have to drag myself up out of bed to go to work, struggled to feed and water my birds (didn't have enuff energy to even spend time with any of my African greys or my quaker parrots. Finally had to have son and hubby feed and water them most of the time. I was just too fatigued to move unless I was on my way to work, but the back pain I felt was excruciating. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi, Janie, I was taking 150 mg. a day. Then my last test showed my TSH 0.045 with normal being 0.350-5.50. I had alot of tests done at the same time. My regular doctor was out on medical leave. The doctor who looked at my results only remarked on the cholesterol. So I dropped my thyroid medication myself to 120mg. This is the only time I've done this in 29 years. But today after reading the comments of Dr. Lowe, I increased it back to 150. I always get my free T3 tested. Last time it was 5.2 with normal being 2.3-4.2. And free T4 was .99 with normal being 0.61-1.76. I know about the depression thing. Dr. Arem's book, " The Thyroid Solution:... " , is an excellent book. It really has a long title that I used to know. But that's where I learned about the depression connection. Generally after any stress, like when my mother died, when my T3 was tested, it was in the bottom of the normal range and I could tell it. Stress seems to give my T3 a nose dive. I had the testosterone shots 4 months in a row, 2 separate times. The first time while I was taking Cortef too, it worked GREAT. But the second time, I saw no difference. I'm waiting for saliva test results to see if I still need more testosterone. Glad the testosterone is working for you! What improvements have you seen with the testosterone? Thanks for your help and concern! in Va. Hi in VA!! This is Janie in CO. One thing I want to ask: how much Armour are you on? Have you had your free T3 tested and what is it? A less-than-optimal free T3 can contribute to that depression you speak of. Also, I too am on testosterone--1 mg. a day via a gel. It really works!! Janie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Hi, Cris, I've always dealt with constipation too. I've used Fiberblend with success. I purchase it from www. hacres.com. I was taking it daily. Then I noticed that they recommended not to take it for an extended time period because of some of the herbs in it, I think. So I began to eat prunes by adding water, and heating in the microwave. (I was heating it on the stove, but I kept forgetting it and burning it! LOL) I eat 8-10 prunes daily like this with my organic eggs. And it works well. I used to get gas from prunes but that stopped after eating it on a regular basis. (Actually, I had reached a point, where I didn't really need the prunes. But then I had to start taking Adderall and Effexor and the constipation returned. But the prunes help along with drinking alot of water.) in Va. ----- I can't wait for my constipation to go away!! LOL I've heard too much can give you diahrea - I can't imagine that ever happening with me! I take several stool softeners/night, and still only go to the bathroom about once a week. I've also taken that IBS drug for women - talk about pains!!! Cris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Boy, I'm sure that was extremely scary! I had 4 episodes, but I never hit the floor, or the ground. Let me know if you find any connection to the adrenals. I did see one site that listed " syncope " under adrenal exhaustion or was it 's disease? Can't remember. But anyway, that's fainting. The way I understand it, vaso-vagal is a type of syncope. in Va. > It really is rassuring to find out why, isn't it? Even though we haven't > experienced it in years. I just can't > believe that I've never remembered to ask a doctor about it. But it made me > feel good too to find out that there was a > reason for it and that it had a name. > Me too..in fact I think i might research it a bit. I used to also do it if I had sudden stress...would just keel over. And I also used to always do it the first day of my period when I was in high school. scared my parents something awful with just standing and dropping. cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Hi, nne, Please do update me. I'm very interested. I've read this book three times and it''s coming apart! I didn't think that would happen as expensive as it is! LOL in Va. ----- Thank you so much , I have just received Jefferies book in the mail from Amazon yesterday. I have not read it yet. I also have a good doc appointment scheduled for next month (6 week wait) and I have some hydrocortisone on order from Mexico, if all that fails. Thank you again, you sound just like me, and I will update you, as I find solutions. (my keyboard and computer are goofing up too!) nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 wow! this sure gives me good information! My sister, was probably ADD growing up. I think she still is - I've thought I probably am, although, different than my sister. My son is ADD - was ADHD when younger. His sleep patterns now (22) are all messed up, and he seems worse than ever with his inability to stay on any task, and to remember anything. He has been under some very stressful periods in his life. He crashes every time. what are: physiological dosages of Cortef rather than pharmacological ? I have 2 books - one on adrenyl fatigue and one on the cortisol connection. NOt this one you mention here though. I need to talk my son into going to the doctor Of course, I will have to pay for everything. He has a job, but not a very good one. He tried college, but wasn't able to do it. And he has such potential. It's a real shame. I'd love to get him some help. He has to be willing though too - and he is at a point, where I don't think anything can help, so he can't be bothered. He's too young to be like that his entire life. CRis Re: Intro Hi nne, I am having trouble with my keyboard with certain letters and punctuation, but I want to respond to you. (Hmmm, seems to be working better now.) Anyway, I've been dealing with this for 23 years. Always thought the inability to function was due to depression. However, when I was diagnosed with ADD inattentive type, I found out it was the culprit. I read on a forum about the phenomena of " paralysis of will " . The more I read, I read there's a tie in with stress and ADD. I'd never had any symptoms of ADD before really. Evidently my period of extreme stress activated the ADD inattentive type. (Believe me, there's NO hyperactivity involved. LOL) I also read about a study done that found that children with ADD are low in cortisol in the brain. Of course, all my health problems (hypothyroidism, depression, narcolepsy, menopause, delayed sleep phase syndrome, fibromyalgia) contribute to fatigue! I did alot of reading including Dr. Jefferies' " Safe Uses of Cortisol " , expensive paperback, but extremely helpful. He encourages physiological dosages of Cortef rather than pharmacological. I was taking 20 mg. a day. I found a doctor who would prescribe Cortef. He ran salivary tests that showed I was at the low end of the normal range in the morning when it's supposed to be the highest. Also I had had my endo do an ACTH stim test, where they draw blood for a baseline and then ACTH hormone is injected. Then you wait a half hour or hour and blood is drawn again to see if the adrenals are putting out enough cortisol in response. According to my doctor and the lab, if either number is about 18, it's normal. According to Dr. Jefferies, the number should at least double and most normal people will triple. My baseline was 15.7 and it went to 22.2. THe doctor allowed me to take the Cortef but didn't want me to increase it for stress like Dr. Jefferies says! During this time my mother became very ill and passed away. I followed Dr. Jefferies' protocol anyway and it really helped me get through that time. I was on the Cortef for 9 months. I think the doctor just got very nervous. He'd probably been talking to other doctors. Who knows? But doctors are very scared of cortisol. This is considered a low dose. I could have lowered it. But he was in a hurry for me to get off of it! He wasn't an endo. He was in physical medicine. The first thing the Cortef helped was my sleep. I was able to sleep a normal schedule, sleep through the night and awaken to an alarm. So it helped the delayed sleep phase syndrome dramatically. When testosterone was added, because I was low in it, by the fourth shot, I was able to overcome the " paralysis of will " of the ADD inattentive type. I felt so normal! I was able to function so well that I was able to declutter, cook meals, prepared for Christmas with ease, and go from one chore to another without having to sit down. It was so amazing! I hadn't been able to do all of this for years. And I was probably functioning better than any time in my life, really. I don't know if I answered your question or not. If you could read Dr. Jefferies' book, it would give you alot of insight. However, he doesn't have anything in there about ADD. in Va. The most debilitating symptom of the ADD, was thought to be from the depression all these years. I've been unable to function. Getting housework done is impossible. I began to have problems with libido so I asked my doctor to test my testosterone. It tested low so I was given shots. At the same time, I had found a doctor who let me try Cortef for the adrenals. After 4 testosterone shots, I was functioning normally! This lasted until the doctor made me come off the Cortef , Welcome! Why did the doctor take you off cortef when It was working so well? Was it a low dose? What did it help besides the depression? You sound so much like me it is crazy! I am only on Armour now, but interested in the Cortef. I don't understand exactly what it helps with except for the adrenal connection. nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Just in case this helps...there have been several major studies here in the U.K. that show supplementation with good doses of essential fatty acids dramatically reduces symptoms of ADD..they used prisoners as subjects...one girl begged to stay on it when the trial finishes as she felt so much more focussed!!! Also eliminating gluten from diet can help...but needs a co- operative son!!!! (However..you CAN reduce it!!!) Hope this helps Chirpy Fluffyowl > wow! this sure gives me good information! > My sister, was probably ADD growing up. I think she still is - > I've thought I probably am, although, different than my sister. > My son is ADD - > He's too young to be like that his entire life. > > CRis > ----- Original Message ----- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 OK LOL - see the name of dr. jefferies book in this e-mail !! boy - it is almost $50.00 at amazon books. Is it worth it?? Cris Re: Intro Hi nne, I am having trouble with my keyboard with certain letters and punctuation, but I want to respond to you. (Hmmm, seems to be working better now.) Anyway, I've been dealing with this for 23 years. Always thought the inability to function was due to depression. However, when I was diagnosed with ADD inattentive type, I found out it was the culprit. I read on a forum about the phenomena of " paralysis of will " . The more I read, I read there's a tie in with stress and ADD. I'd never had any symptoms of ADD before really. Evidently my period of extreme stress activated the ADD inattentive type. (Believe me, there's NO hyperactivity involved. LOL) I also read about a study done that found that children with ADD are low in cortisol in the brain. Of course, all my health problems (hypothyroidism, depression, narcolepsy, menopause, delayed sleep phase syndrome, fibromyalgia) contribute to fatigue! I did alot of reading including Dr. Jefferies' " Safe Uses of Cortisol " , expensive paperback, but extremely helpful. He encourages physiological dosages of Cortef rather than pharmacological. I was taking 20 mg. a day. I Quote Link to comment Share on other sites More sharing options...
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