Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 In a message dated 12/17/02 9:15:51 AM Eastern Standard Time, writes: <<<<When I worked in the hospital, we would get an extra day off for donating blood 3 times in a given year. Of course, that was very motivating - so I always tried. Quite often they wouldn't take my blood because of anemia. It was also a real problem when I was pregnant - despite the iron tablets they gave me. (I have heard from this site that iron tablets aren't good for mito patients).>>>> I am also anemic and my iron levels are becoming very low. I am on IV nutrition, so when I need iron I have to get it through a large IV infusion in the hospital. Two years ago was my last iron infusion and it was after a very rough winter when I had a bout of the of the flu that dropped my hemoglobin to 8. A couple of days after I got the iron I began having severe leg pain, tremors, and weakness, which was never a symptom for me before and has been a problem ever since. It may just have been from the rough winter though...I'm not sure. What do you all do when your hemoglobin is dropping and your iron stores are low? Do you take the iron anyway? I am wondering if, in my case, I should ask for a couple small iron infusions instead of one large one all at once. What does iron do that may be harmful for mito patients? Thanks. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 In a message dated 12/17/02 9:15:51 AM Eastern Standard Time, writes: <<<<When I worked in the hospital, we would get an extra day off for donating blood 3 times in a given year. Of course, that was very motivating - so I always tried. Quite often they wouldn't take my blood because of anemia. It was also a real problem when I was pregnant - despite the iron tablets they gave me. (I have heard from this site that iron tablets aren't good for mito patients).>>>> I am also anemic and my iron levels are becoming very low. I am on IV nutrition, so when I need iron I have to get it through a large IV infusion in the hospital. Two years ago was my last iron infusion and it was after a very rough winter when I had a bout of the of the flu that dropped my hemoglobin to 8. A couple of days after I got the iron I began having severe leg pain, tremors, and weakness, which was never a symptom for me before and has been a problem ever since. It may just have been from the rough winter though...I'm not sure. What do you all do when your hemoglobin is dropping and your iron stores are low? Do you take the iron anyway? I am wondering if, in my case, I should ask for a couple small iron infusions instead of one large one all at once. What does iron do that may be harmful for mito patients? Thanks. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 Malisa When my hemoglobin is low, I try to get extra rest and be more careful with the diet. Many years ago, I was sent to a hemotologist because of anemia that didn't respond to iron. They did a bone marrow test and found that there was so much iron in the marrow that it couldn't get out, so I have had no iron since then. Of course, we are all so different. laurie From: Malilibear@... Reply-To: Date: Tue, 17 Dec 2002 13:00:17 EST To: Subject: Re: iron/anemia & mito In a message dated 12/17/02 9:15:51 AM Eastern Standard Time, writes: <<<<When I worked in the hospital, we would get an extra day off for donating blood 3 times in a given year. Of course, that was very motivating - so I always tried. Quite often they wouldn't take my blood because of anemia. It was also a real problem when I was pregnant - despite the iron tablets they gave me. (I have heard from this site that iron tablets aren't good for mito patients).>>>> I am also anemic and my iron levels are becoming very low. I am on IV nutrition, so when I need iron I have to get it through a large IV infusion in the hospital. Two years ago was my last iron infusion and it was after a very rough winter when I had a bout of the of the flu that dropped my hemoglobin to 8. A couple of days after I got the iron I began having severe leg pain, tremors, and weakness, which was never a symptom for me before and has been a problem ever since. It may just have been from the rough winter though...I'm not sure. What do you all do when your hemoglobin is dropping and your iron stores are low? Do you take the iron anyway? I am wondering if, in my case, I should ask for a couple small iron infusions instead of one large one all at once. What does iron do that may be harmful for mito patients? Thanks. Malisa Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 Laureta Fitzgerald wrote: Re: Re: iron/anemia & mito Malisa When my hemoglobin is low, I try to get extra rest and be more careful with the diet. Many years ago, I was sent to a hemotologist because of anemia that didn't respond to iron. They did a bone marrow test and found that there was so much iron in the marrow that it couldn't get out, so I have had no iron since then. Of course, we are all so different. laurie From: Malilibear@... Reply-To: Date: Tue, 17 Dec 2002 13:00:17 EST To: Subject: Re: iron/anemia & mito In a message dated 12/17/02 9:15:51 AM Eastern Standard Time, writes: <<<<When I worked in the hospital, we would get an extra day off for donating blood 3 times in a given year. Of course, that was very motivating - so I always tried. Quite often they wouldn't take my blood because of anemia. It was also a real problem when I was pregnant - despite the iron tablets they gave me. (I have heard from this site that iron tablets aren't good for mito patients).>>>> I am also anemic and my iron levels are becoming very low. I am on IV nutrition, so when I need iron I have to get it through a large IV infusion in the hospital. Two years ago was my last iron infusion and it was after a very rough winter when I had a bout of the of the flu that dropped my hemoglobin to 8. A couple of days after I got the iron I began having severe leg pain, tremors, and weakness, which was never a symptom for me before and has been a problem ever since. It may just have been from the rough winter though...I'm not sure. What do you all do when your hemoglobin is dropping and your iron stores are low? Do you take the iron anyway? I am wondering if, in my case, I should ask for a couple small iron infusions instead of one large one all at once. What does iron do that may be harmful for mito patients? Thanks. Malisa Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 Until just a few years ago, I had chronic anemia. The doctors continually put me thru batteries of tests over the years to find the cause - always saying that there had to be a reason for my low blood count. They never found one. I've been hospitalized more than once because of it and one doctor told me once that he didn't know how I was walking around...my count was so low. Just another interesting commonality I guess. Alice > In a message dated 12/17/02 9:15:51 AM Eastern Standard Time, > writes: > <<<<When I worked in the hospital, we would get an extra > day off for donating blood 3 times in a given year. Of course, that was very > motivating - so I always tried. Quite often they wouldn't take my blood > because of anemia. It was also a real problem when I was pregnant - despite > the iron tablets they gave me. (I have heard from this site that iron > tablets aren't good for mito patients).>>>> > > I am also anemic and my iron levels are becoming very low. I am on IV > nutrition, so when I need iron I have to get it through a large IV infusion > in the hospital. Two years ago was my last iron infusion and it was after a > very rough winter when I had a bout of the of the flu that dropped my > hemoglobin to 8. A couple of days after I got the iron I began having severe > leg pain, tremors, and weakness, which was never a symptom for me before and > has been a problem ever since. It may just have been from the rough winter > though...I'm not sure. > What do you all do when your hemoglobin is dropping and your iron stores are > low? Do you take the iron anyway? I am wondering if, in my case, I should ask > for a couple small iron infusions instead of one large one all at once. What > does iron do that may be harmful for mito patients? > Thanks. > Malisa Quote Link to comment Share on other sites More sharing options...
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