Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Lori Apparently some docs recommend this, and others say not to do it, as occasionally the beads don't get washed down enough and cause mouth sores. I guess you'd know it by now, though!!!! We did do the same thing with prilosec since ph was about 3 weeks old (first, we lined them all up on my nipple--real fun, lol) Most of us were told to put them into yogurt or applesauce, depending on the age and what they will eat. Good luck with your quest! If I were a kid, I would much rather swallow the capsule than to have beads in my mouth, for sure. Take care, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 Jen, We were also told to give a drink e.g. breast/bottle and make sure no enzymes are still in the mouth as they can cause ulcers, which Eilish did get from us not seeing a few. Re: enzymes << Meg, Forgot to write, our dietician said never to mix the enzymes with any dairy products. >> I have heard this before, too.....but we were told that it is ok to do this as long as you don't leave the beads sitting in it, give it right away..... so, it depends on the doc as to what they tell you, ours said it was fine to use yogurt, and we pretty much always have used yogurt.... Jen eGroups Sponsor *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 My daughter took them mixed with a small bit if baby food applesauce starting at 3 weeks of age. It was a slow process but it worked. Amy Jo - Mom to Maegan 3.5m wcf and Tierney 2.5 y wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 I am coming in late here, but I've been reading your replies for a day or so. With Ricky we emptied the capsule contents directly into his mouth and chased them with his bottle, taking care that none of the enzymes remained in his mouth to irritate his gums or mucus membranes. When he was about 10 months old we started tossing the whole pill in there and chasing it with the bottle, thus teaching him how to swallow pills, which he does beautifully to this day. Becky Whicker mom of Ricky 11/26/95 with CF and currently in the hospital and Andy 3/18/98 no CF beckerbuns@... or letscurecf@... http://www.whicker.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 Meg, Eilish has always been on Pancrease so may it does. Re: enzymes Could it have depend on what enzyme you were using? Jack is on Creon 5 but, Moe is on Pancreacarb Meg Mom of 3 Moe 10yowcf, Kate 5yowcf & Jack infant wcf eGroups Sponsor *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 my girls loved Gerber Baby Bannas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 Hi Meg, I have a one month old son with cf, Harry, our dietician advised us to put the enzymes (1/3)in apple puree. This was a little too thick though and he kept vomiting it back up so we watered it down with boiled water just a bit and now he takes it with no problems. The dietician says that it is best given with something slightly acidic as it helps it breakdown better. Barry Dad of Harry 1mowcf PS Are there any other UK parents out there? >From: MMolls@... >Reply-To: cfparentsegroups >To: cfparentsegroups >Subject: enzymes >Date: Fri, 17 Nov 2000 21:45:33 EST > >How do you give enzymes to a 1 month old baby? I am putting them in rice >cereal mixed with formula and making it thin. Using half a Creon 5 with >meal. Any other idea would be helpful. Also anyone else with a young baby >on Zantac? > >Meg >Mom of 3 >Moe 10yowcf, Kate 5yowocf & Jack 1 month wcf _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 When my daughter was born three years ago we had to see all the different dr's (pulm. gastro etc) plus dietician. The dietician always said that the amount of enzymes (we use pancrease) depends on how humch fat content is in the food she is eating for that particular meal. So if its something really fatty we give her three and if something not bad then she gets 2, but with mainly sugary foods (fairy floss, fruit bars,) she gets none. Enzymes > Hi, > > just some thoughts about the current enzymes-thread. > > Every ingestion system works differently. The food goes through the stomach and > the bowel at differents speeds and the acidic conditions are different too. > > The enzymes themselves work slightly different too. They go through the stomach > at different speeds and they dissolve in the bowel at different pH levels. > > Therefore a change of the enzyme brand makes sense, if something doesn't work > well. And keep in mind, that runny stools may often be related to a malfunction > of the enzymes, but other reasons are possible too. > > Regarding the question of overdosing and fibrosing colonopathy I am still trying > to figure the problem out. At the moment it is my understanding, that the > problem is more related to the enteric coating of the micropellets than to the > dose. Some brands like Ultrase are coated with a substance called Eudragit, > which is an acrylic acid and might be poisonous at high concentrations. Others > like Creon are coated with cellulose, which hopefully is harmless. > > Another theory says, that high-strength enzymes in combination with Ibuprofen > have caused the fibrosing colonopathy. > > Hope this isn't too confusing! I would love to have certainty about the drugs > our kids have to take. > > We are also watching the lipase dose and have been able to leave the dosage > unchanged for two years now. This makes sense, because Fiona eats always the > same. And to me it is a prove, that the intake of fat is important for the > dosage and not age or body weight. She eats 10 grams of fat at every meal and > gets 5 Creon5, which is much Creon for the small amount of fat. In relation to > her body weight, she gets 75.000 - 90.000 units at 16.5 kg (36 lbs), which is > not very much. > > Bye-bye > Torsten, dad of Fiona 3.5wcf > e-mail: aberdeen95@... > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
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