Re: Cindy - Hang in there

[Guest guest]

>

> ,

> Hey, think about the little one now - she needs you!!

Amen! And, so do the rest of us!!!!

(MO)

[Guest guest]

,

What awesome news! How wonderful you were able to sleep, go without itching and get the eval started - all in one day!

It's been my experience that praying gets better results than anything else!

Take care and keep us updated.

(MO)

[Guest guest]

Well my day at Henry Ford is over with. Let me first

say THANK YOU to all who prayed for me. Last night

was horrible for itching, but when I got up this

morning...not wanting to face the long trip to Detroit

let alone the doctor visit....I was amazed to find

that I fell asleep within 5 minutes of being in the

back seat of the car and slept the whole trip down

there without ITCHING!!! I was like a zombie though

the rest of the day.

I arrived and the nurse aide took my temp, BP and

weight (Yuck!) within 3 minutes of registering. The

nurse called me back to the room 3 minutes

early...still a good sign. When we entered the room

the exam table invited me to lay down and sleep. I

took Mike's coat for a pillow and my lightweight

jacket for a cover up and fell asleep.

When the doctor came into the room I had to be

awakened. He immediately proceeded to put up his hand

and wanted to speak without us saying anything.

Little SAGA here: I quit going there about 2 years

ago because it was horrible to get through the phone

lines to schedule appts, get rx refills or ask basic

questions and get information back. So I sent a

seething letter expressing my dissatisfaction in their

process and offered them some solutions...which one

was to get more phone assistance so 'live' humans were

talking to patients and not recordings that probably

went into NEVERLAND. When I left, I sought out a

doctor who had trained under Dr. Moonka and had set up

HEP practice here in Midland. She couldn't believe

that I couldn't get through, so she called for me and

got the royal run-around. So, she sent a seething

letter indicating the unacceptability of the

situations as well.

So....Dr. Moonka wanted to tell me first and upfront

that he had addressed the situation and had hired 2

full-time phone clerks to answer phones and direct

calls where they needed to go and they instituted a

turn-around time for return calls. OKAY, so I felt a

little smug thinking I finally got through to the

bureaucracy...but, I still was tired and wanted to get

on with the appt. and get Rimfampin.

Well, we went over the past 2 years, my latest labs,

and he stopped us and said, it's time for the

transplant evaluation...so he got the coordinator in

there and they set up some of the basic things today.

I had blood gasses drawn, Chest xray, ekg, and

bloodwork.

I have to go back for 2 days to schedule all those

other testings. I can have the scope for the jpouch

here in town with my 'gentle' surgeon...I can forward

the results of my recent endoscope to HFH, as well as

my most recent PAP smear in February....everything

else has to be scheduled.

He is going to do an ERCP and see if he can break

through some scar tissue and open up some duct for

itching relief.

Did I mention NO ITCHING today????

He did not give me the Rifampin...he questioned what I

had been taking which most recently was Ambien for

sleep and Naltrexone for the itching. He asked why I

stopped and I told him because the labs went up the

doctor in Midland thought that was the culprit and

took me off.

He made a comment (very lowly) that that is what he

would expect of that doctor thinking that, that that

would be a normal course of thinking, but the fact was

that my liver just got worse and he is putting me back

on the Ambien for sleep and the Atarax for itching.

He then prescribed the higher dosage of Actigall the

500 mg capsules so I didn't have to take so many of

them (I wasn't complaining, I can swallow about 7-10

pills all at once without having a problem)

So that is my story for today...when we left, I had a

horrendous headache and did not much care for the

blood gasses test as they hurt both of my wrists and I

couldn't carry anything.

When we got home, Ginger was so happy to see me, but

my headache was horrible and I took a Motrin to

alleviate it but she was in her kennel and she knew I

was in the next room and she howled and howled. Mike

had left go to to work for a little while, and I just

covered my head and hoped she would finally stop. I

slept for 3 hours straight...again without ITCHING.

So once again, thank you all for saying prayers for

me.

Baudoux-Northrup

____________________________________________________

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[Guest guest]

,

I'm still prayin'! I'm so happy the doc realized you needed an eval

(duh!), and that he's on the ball about getting things to work right

at the center. I was so hoping that this is where the visit would

take you...Congrats on even temporary relief from the itch, too!

Those days of unexplained respite were golden for me, too. Take care

and know that we're all out here routing for you and caring for you -

even if remotely.

Deb in VA

PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/05

> Well my day at Henry Ford is over with. Let me first

> say THANK YOU to all who prayed for me. > >

>

> Baudoux-Northrup

>

>

>

> ____________________________________________________

> Yahoo! Sports

> Rekindle the Rivalries. Sign up for Fantasy Football

> http://football.fantasysports.yahoo.com

[Guest guest]

I am so glad to hear things are finally going better.

You mentioned taking Motrin. Do others take that cause

's Dr's did not let him take it. Before the

transplant they said it would increase risk of

bleeding and after transplant they said it would

interact with the rejection meds.

Marti

--- Baudoux wrote:

> Well my day at Henry Ford is over with. Let me

> first

> say THANK YOU to all who prayed for me. Last night

> was horrible for itching, but when I got up this

> morning...not wanting to face the long trip to

> Detroit

> let alone the doctor visit....I was amazed to find

> that I fell asleep within 5 minutes of being in the

> back seat of the car and slept the whole trip down

> there without ITCHING!!! I was like a zombie though

> the rest of the day.

>

> I arrived and the nurse aide took my temp, BP and

> weight (Yuck!) within 3 minutes of registering. The

> nurse called me back to the room 3 minutes

> early...still a good sign. When we entered the room

> the exam table invited me to lay down and sleep. I

> took Mike's coat for a pillow and my lightweight

> jacket for a cover up and fell asleep.

>

> When the doctor came into the room I had to be

> awakened. He immediately proceeded to put up his

> hand

> and wanted to speak without us saying anything.

>

> Little SAGA here: I quit going there about 2 years

> ago because it was horrible to get through the phone

> lines to schedule appts, get rx refills or ask basic

> questions and get information back. So I sent a

> seething letter expressing my dissatisfaction in

> their

> process and offered them some solutions...which one

> was to get more phone assistance so 'live' humans

> were

> talking to patients and not recordings that probably

> went into NEVERLAND. When I left, I sought out a

> doctor who had trained under Dr. Moonka and had set

> up

> HEP practice here in Midland. She couldn't believe

> that I couldn't get through, so she called for me

> and

> got the royal run-around. So, she sent a seething

> letter indicating the unacceptability of the

> situations as well.

>

> So....Dr. Moonka wanted to tell me first and upfront

> that he had addressed the situation and had hired 2

> full-time phone clerks to answer phones and direct

> calls where they needed to go and they instituted a

> turn-around time for return calls. OKAY, so I felt a

> little smug thinking I finally got through to the

> bureaucracy...but, I still was tired and wanted to

> get

> on with the appt. and get Rimfampin.

>

> Well, we went over the past 2 years, my latest labs,

> and he stopped us and said, it's time for the

> transplant evaluation...so he got the coordinator in

> there and they set up some of the basic things

> today.

> I had blood gasses drawn, Chest xray, ekg, and

> bloodwork.

>

> I have to go back for 2 days to schedule all those

> other testings. I can have the scope for the jpouch

> here in town with my 'gentle' surgeon...I can

> forward

> the results of my recent endoscope to HFH, as well

> as

> my most recent PAP smear in February....everything

> else has to be scheduled.

>

> He is going to do an ERCP and see if he can break

> through some scar tissue and open up some duct for

> itching relief.

>

> Did I mention NO ITCHING today????

>

> He did not give me the Rifampin...he questioned what

> I

> had been taking which most recently was Ambien for

> sleep and Naltrexone for the itching. He asked why

> I

> stopped and I told him because the labs went up the

> doctor in Midland thought that was the culprit and

> took me off.

>

> He made a comment (very lowly) that that is what he

> would expect of that doctor thinking that, that that

> would be a normal course of thinking, but the fact

> was

> that my liver just got worse and he is putting me

> back

> on the Ambien for sleep and the Atarax for itching.

> He then prescribed the higher dosage of Actigall the

> 500 mg capsules so I didn't have to take so many of

> them (I wasn't complaining, I can swallow about 7-10

> pills all at once without having a problem)

>

> So that is my story for today...when we left, I had

> a

> horrendous headache and did not much care for the

> blood gasses test as they hurt both of my wrists and

> I

> couldn't carry anything.

>

> When we got home, Ginger was so happy to see me, but

> my headache was horrible and I took a Motrin to

> alleviate it but she was in her kennel and she knew

> I

> was in the next room and she howled and howled.

> Mike

> had left go to to work for a little while, and I

> just

> covered my head and hoped she would finally stop. I

> slept for 3 hours straight...again without ITCHING.

>

> So once again, thank you all for saying prayers for

> me.

>

>

> Baudoux-Northrup

>

>

>

> ____________________________________________________

>

> Yahoo! Sports

> Rekindle the Rivalries. Sign up for Fantasy Football

>

> http://football.fantasysports.yahoo.com

>

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